Managing MS Symptoms - My Daily Habits That Changed my Life!

[@rawsomehappy]

Managing symptoms is like managing people. It’s all about perspective. When pain stops by without calling say, “Hello This is really not a good time” and take a breath, put on a smile, and show them some fun. Spasticity visiting again? I’d forgotten we were friends. I still have the leftovers from their last visit so I pick up where I left off. Fatigue? Hey! I was just going to walk the dog. We got this. Shokz, some music and we’re pumped. Just visualize the healthy version of yourself, feel it, believe it, become it.💪🏼

[@EvenSoItIsWell]

I love this Myrna!

[@Chid59]

I'm so glad I found your page!

[@EvenSoItIsWell]

@@Chid59 thanks Chid! I am glad you are here!

[@josephvered3991]

Hi from Israel thanks for this video it summerizes all the wonderful steps to have a good life although you have Ms❤

[@EvenSoItIsWell]

Thanks for watching from Israel!

[@donaldsmolder7152]

I had no idea. Weather plays a huge, huge giant role in my condition. Huge. It plays a giant role.

[@EvenSoItIsWell]

@@donaldsmolder7152 yes!! I had to be in an unfair conditioned space yesterday and I am dragging today!

[@andreag.6977]

Being with friends and family..

[@EvenSoItIsWell]

@@andreag.6977 I love this!💕 being with people we love is so important.

[@forkums]

Awesome video! Your dedication and effort shine through, and it's inspiring to see how you thrive despite MS. I love the comprehensive list of resources in the video description. I align with four out of your five categories and just need to work on my sleep. While I don't go overboard with supplements, I do take a few additional, including carnitine, magnesium, and lion's mane. I also practice intermittent fasting, aiming to eat only between noon and 8:00 PM. Keep living your best life and inspiring others. All the best to you!

[@EvenSoItIsWell]

Thanks Robert! Sleep can be a challenge for me sometimes too! I also do intermittent fasting... intermittently... especially in the summertime.

[@Don-io6cr]

I have Parkinson’s but your show helps me so much. This show was especially great I think!

[@EvenSoItIsWell]

Thanks for watching Don! I am so glad you find the content helpful! Keep taking exquisite care of yourself!

[@donaldsmolder7152]

In Jesus name, I take authority over the Parkinson’s. Don’t confess things on yourself and don’t believe that you have them believing God. Read his word. Authority over disease and believe.

[@laurarosanne]

Thank you for your excellent videos! So happy to learn that I do all of these too 🥰

[@EvenSoItIsWell]

@@laurarosanne good on you Laura! Thanks for watching!

[@128titanic]

Hello, Thank you very much. Welcome.

[@EvenSoItIsWell]

Thanks for watching.

[@fionamochar-collins5493]

Thank you for a thoughtful video, as always. Im just 6 weeks post-diagnosis and you are helping me approach this calmly and with hope. I started working for a company called ZOE about 8 months before diagnosis, and as this company is all about nutrition science, I fully believe that fate intervenes to give you what you need, if you listen 😅. If you'd like an interesting read, I recommend any of Tim Spector's books - he's very hot on microbiome and plant intake ❤

[@EvenSoItIsWell]

Welcome to the community! How wonderful that you are part of ZOE! I am very familiar with Tim Spector and love many of his recommendations. Please keep me posted on how you are doing!🙂

[@fionamochar-collins5493]

@EvenSoItIsWell Thank you 😊 🙏. That's fab, I'm so glad he's popular across the pond too 😀!! I hope all is well and I look forward to your next video

[@alrightwithms845]

Great advice thanks 😊

[@EvenSoItIsWell]

@@alrightwithms845 thanks for watching!

[@christinewhitehead795]

Your such a help for my two bad backs 😊 I too have spinal curvature and MS, bad Sciatica.. I am 77 on Thursday so no surgery for me. I had a q for you, please can I use different liquid besides coconut water for blending vitamin drinks.. Thank you x Christine

[@EvenSoItIsWell]

@@christinewhitehead795 thanks so much for watching Christine and happy birthday!🎁 I do not use coconut water. Try regular water or soy or almond milk.

[@christinewhitehead795]

@@EvenSoItIsWell Thanks xx

[@EvenSoItIsWell]

Do you have daily habits that help you? *Download You Free Healthy Habits Tip Sheet* healthy-habits-tip-sheet-02130.getresponsesite.com/

[@ranjeetajaggi5031]

Great video Vicky, are you taking any medicine nd steroids for ms ??

[@EvenSoItIsWell]

@@ranjeetajaggi5031 thanks for watching! Yes, I am currently taking the generic of Copaxone but would consider changing if needed. I also take Baclofen for muscle spasms. I did take steroids once back in 2006 and have not needed them since.

[@ahorsewithnoname870]

It's been quite the journey for me. . I have always assumed something was "wrong" with me for about ten years. But could never actually place what it was. Everything seemed to either come on very mildly over time, or changed on a day to day basis. That even i who am highly interested in things relating to disease with a nursing background never really picked up on what was happening. . My journey began around ten years ago. . Feeling severe anxiety and severe chest pain. . Of course when i broke down and went to the doctor, because of my age then, 27, everything was attributed to anxiety and panic attacks. Went on paxil and immediately it began to work. Chest pain went away. Anxiety went away. Everything forgotten. It was just anxiety after all. . Fast forward a few years and all of a sudden one day at work my right eye went crossed. Double vision. Blurry. But it only lasted for a few hours. Went away afterwards. Once more put it off as it was just something strange that happened. . Fast forward a few years later again and the crippling anxiety came back. I couldn't run anymore without getting to the point of feeling like I was going to pass out. But i could walk 15 miles like it was nothing. . Just strange things. Then once more the severe chest pain came back, and once more went to the doctor where again it was contributed to anxiety as everything with my cardiovascular system and blood was perfect. The chest pain wasn't where heart pain generally hits, it was more at my pectoral muscles, as if they just would not stop contracting. . But again a change of antidepressants and again everything seemingly improved after a few days. . Fast forward to the years after that. . Things really started going downhill. . Depression that continued to worsen. . Anxiety that wouldn't go away regardless of what was happening in my life. . Crying for no reason. . Some days waking up feeling fine, other days waking up and feeling miserable. Just off. I jokingly told people i had some kind of strange cyclical disease. . Sleeping only a few hours per night but being exhausted all day long. . And then Fast forward to last summer. . Things really began taking a dive. . I began having severe bladder discomfort. . Bowel discomfort. . I had such a frequency in urination that i essentially stopped drinking. . Such a hard time passing stool that i basically stopped eating. . I felt like i had a hernia in my left abdomen. . Because my muscle in that area was so tight that it looked like a hernia. . I lost 40 pounds. . Was in constant pain and discomfort. . Was dehydrated. . Everything was just horrible. . I finally went to the emergency room pushed by my family to do so. . They ran blood work. Urine tests. Ct scans. . And told me. . "Looks like everything is fine!" And sent me along my way. . Me knowing i wasn't fine. . Just stayed in that limbo for another several months. . Just surviving day to day still working full time and taking care of my three children. . Nothing improving. . And then one random morning in May i woke up to tingling finger tips on my right hand. . This was new for me. But i figured i must have just hit my funny bone or slept on it wrong. . No improvement through the day. . Went to sleep and that numbness began spreading. . Now it was my entire hand and forearm. . My vision also became cloudy. . I began forgetting things. Multitasking and short term memory seemingly didn't exist. I would set my phone down and forget where i set it a moment later. . Once again i headed back to the emergency room. . Surely i thought. . This time they will take me seriously. . More blood. More Urine work. Ct of my brain. They found absolutely nothing again. . Once more. . Dismissed with them saying it will probably just pass. . But given finally a referral to a neurologist. . But the numbness just kept spreading through that right side of my body. . Now it was my entire arm, shoulder, right chest, right abdominal area. . Right calf. . Right toes and heel. . I couldn't use my hand anymore, it was locked up numb. My arm moved as it willed sometimes and i could no longer write or do anything fine motor. . I couldn't just wait until six months out to see a neurologist. . So i made an appointment with a new primary care doctor. Desperate at the time for anything. She listened to everything that was going on with me am looked at all my scans. She saw that i was dehydrated and full of stool lining my entire colon. . She said she didn't know what was going on with me exactly but she said were gonna find out. . She ordered what had to have been 50 different labs. Looking for autoimmune diseases, Lyme, everything she could think of. . And in the meanwhile she put me on a laxative, told me to start eating salads, and drink four bottles of water everyday no matter how difficult it was to urinate in the beginning. . I was so desperate for help that i listened. . Within two weeks of following her advice, i had already begun to get some kind of relief. . My bowels were moving again. . Because i was hydrated, even urinating got better. . While we watched all my blood work come back one thing after the next as perfect. . With a few exceptions. . She also referred me to a urologist. . A neurosurgeon. A rheumatologist. And a neurologist which i was able to get in quicker with. . My c3 and c4 compliments were both low. My d3 was low. I was positive for hba 27 gene. . But everything else testing for lupus. . Lyme. . Rheumatoid arthritis. . Everything else was coming back negative. . During this time my symptoms began improving also just by diet change and hydration. . My numbness started to dissipate. . The hot spots i had and wet spots i felt and itchy patches that i couldn't itch also started to go away. . And by the time i saw neurosurgeon for something unrelated that my primary care doctor still pushed me to see, some mild disk bulge and some mild narrowing. . I took that opportunity to beg and plead this neurosurgeon to send me for an mri. . As believe me. . I knew what was happening to me already long before this visit. . But i knew the only way that i would be taken seriously is by these mri results. . I successfully advocated for myself enough with that unrelated doctor that she ordered a brain and cervical mri. . And that's when finally the medical field wanted to take me seriously. . I was found to have a nice wedge tornado shaped 1.1 cm lesion in the right dorsal side of my cervical spine between c1 and c2. I also had a few small lesions in my peri ventricular area and a few small juxtacortical lesions to go with it. . It was after that results that the bells and whistles finally went off. . They changed my neurologist visit to be much sooner. . And when i finally got to visit her i was telling her how happy i was to finally get to her! She examined me, listened to everything that has went on, and immediately went to work ordering me a vep test and a stat lumbar puncture. . Which i have just gone through this week. . I was abnormal in my right eye showing demyelination in that optic nerve, and still waiting on the results for my banding, but everything else that would be a hallmark for ms and nothing else in csf has already returned positive. . She diagnosed me at the visit with clinically isolated syndrome, but with the understanding that after these tests i would probably get the ms upgrade. She also has partnered with one of the ms specialists with my case, and started getting me prepared for treatment by doing things like getting myself current with hep b vaccine. . Things now finally after 10 years. . As beginning to look up. . I know this is a really long post but i know what i have just gone through. . I know how it's so difficult to sometimes find people's specific experiences. . And i can never tell people enough to keep pushing. . Keep advocating for yourself if you know something is wrong. . Eventually somewhere somehow . . Someone will listen to you.

[@EvenSoItIsWell]

@@ahorsewithnoname870 thanks for posting your story! Such a journey! Good on you for advocating for yourself. Please keep me posted on how it goes.

[@ahorsewithnoname870]

I certainly will on your next video! I have begun binge watching testimonials and related content of my newfound community. We are certainly a perplexing bunch! The wonderful thing about ms is truly that knowledge is powerful for us. Learning how to communicate with doctors specifically in their language. It can do wonders for getting us to where we ultimately need to be. I'm fortunate to be part of a network where i get to see my results as soon as they become available. Everything negative for the various diseases they check which mimic ms. Negative for malignancy. My white blood cell count is the only thing not in perfect range so far, (which i researched is a very common spinal tap for ms, especially relapse remitting, elevated but not super high without reason to be). The banding is the last thing I'm still in great anticipation to see. Side note. I had a dream in May where i was told that i had multiple sclerosis. This is before i even really started my specific journey of believing that's what was going on with me. And three nights ago before my tap, i had a dream that i was told i have oligoclonal bands. So I'm waiting on my results still, but I already know :). Love the time you have put into helping others. Sharing is power also.

[@EvenSoItIsWell]

@@ahorsewithnoname870 oh interesting about the dreams! I had a little voice in my head telling me I had MS. kzbin.info/www/bejne/sKjKp5adrKmHbqs

[@ahorsewithnoname870]

It was very interesting! I also left a long gigantic comment there that may be of interest to you. What can i say, I'm always full of things to say. Except when I'm in an attack. Haha.

[@gabikynigou2523]

@@ahorsewithnoname870OMG😢