Explaining how the Autonomic Nervous System works.

[@taldrich2526]

This is awesome! I’m not alone in this horrible illness. My symptoms are pretty bad- getting worse. My electrophysiologist has referred me to another electrophysiologist that deals more with autonomic dysfunction. My current doctor says my symptoms are much more than POTs. I have an electric wheelchair now, I get fluids at home. I’ve broken my arm twice from fainting- now it won’t heal. Doctor wants me to have surgery. I have a mass on my colon- another surgery. Can’t poop on my own. Skin cancer. On and on and on. This morning I dropped to the floor because I was going to faint- I’m getting good at catching it before I do. I wear a life alert necklace that detects falls etc. I was a respiratory care practitioner. I miss my job. Anyways , thank you for your new channel! Congratulations 🎉

[@lifewithdysautonomia360]

Thank you so much! And no you are NOT alone! This is why I wanted to start this channel to let others who feel so alone in this debilitating syndrome know that there are so many of us out there dealing with the same thing!! I’m hoping to bring more awareness to dysautonomia! Please feel free to email me at [e-mail] and let me know if there’s a topic you would like me to discuss! Best wishes!

[@crystalkeara8868]

Brain fog feels like a concussion without the extreme mood swings. I’ve had a few concussions so I’m familiar with brain fog from both conditions. Have you ever had a concussion? I can’t even think about driving when a brain fog hits or I will get lost or even worse get in an accident. Unfortunately I really can’t drive anymore because I get POTS attacks while driving. They don’t happen every time, just when driving for longer than an hour or so.

[@crystalkeara8868]

Do you have episodes where your heart rate bounces from the 30’s to 200’s? Those are my worst episodes! I’ve cause asystole on the ECG during those times. I’ll get a bunch of PVC’s as well. I can deal with the tachycardia, but not the bradycardia. That’s when I feel myself constantly loosing consciousness then the tachycardia kicks in and I come right back then the bradycardia and it repeats until I get a HUGE adrenaline surge and hitch stabilizes me. Does this happen to you? My doctors don’t know what’s going on. I’ve even had episodes with low potassium. Probably from the constant peeing and sweating. I have to drink a ton of electrolytes. It’s crazy because I’ll full bladder pee like every 15 minutes in a day to not being able to completely empty my bladder. Ugh what a roller coaster ride. I just want to figure out the tachycardia/bradycardia episodes. They happen even when I’m just sitting around and relaxing. Laying down doesn’t make it go away. Only the adrenaline surge stops it