flying with a disability as a new wheelchair user

[@ruby3200]

I just subscribed! I’ve been chronically ill for three years now and am diagnosed with POTS and ME/CFS. I have a lot of joint and muscle pain and hyper mobility and EDS like symptoms so I’m trying to figure out what’s going on. I have never (that I know of) dislocated anything before, but I know there is more to EDS than that. Do any of your videos explain symptoms and things to look out for that indicate EDS? I’m trying to learn more, I’m sure you know how it is with doctors, it’s important to have knowledge because they don’t know much. I just traveled for the first time in my wheelchair in September. I’m traveling again on Sunday to my specialists so hopefully it all goes smoothly. I wish the sunflower lanyards were used more in the US. People don’t know what that is, so people here don’t use them. It would be nice for airports to have quiet rooms for disabled people, but I don’t think most airports do here. Im always happy to find new chronically ill KZbinrs!❤

[@emelie.elizabeth]

it's kind of difficult to think of symptoms that could indicate EDS, since i've had faulty collagen all my life. i guess smooth soft skin, hyper-extendable skin, flexibility, which can be measured by the beighton scale. dislocations and joint pain are definitely some of the main symptoms. i have a video on my channel discussing the different types of EDS. i also just put out this video about dysautonomia which discusses some of the overlap between EDS and POTS. kzbin.info/www/bejne/j3LQp2VsnbCppNksi=lntS2bi0E4OWUNm6 hope your travel went well!!

[@ruby3200]

@@emelie.elizabeth Yes my trip went well. I was diagnosed with EDS. I saw one of the best neurologists in the US and he diagnosed me no problem. Thanks for replying!🩷

[@mdasik8730]

beautiful vlogs ❤😊😊