FND Functional Neurological Disorder Recovery/ FND campaigner Tom Plender interviewed on GB news

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Tom Plender

Tom Plender

Күн бұрын

Musician and FND campaigner Tom Plender interviewed by Angela Rippon and Stephen Dixon for GB news, discussing his FND story and the current desperate situation for FND patients.
Useful links for further information-
FND Action website - www.fndaction.org.uk/
FND Hope website - fndhope.org/
A great resource for those recently diagnosed with FND -
The landing Pad - fndportal.org/the-landing-pad/
Tom Plender website - www.tomplender.com/
Tom Plender Twitter - / tomplender
FND Portal website - fndportal.org/
FND Portal Twitter - / fndportal
Neurosymptoms website- www.neurosymptoms.org/en/
#FND #functionalneurologicaldisorder #fndawareness #functionalseizures #FNDAware

Пікірлер: 118
@Bella_G33
@Bella_G33 14 күн бұрын
Thankyou Tom for speaking up for the FND community! I’m recently diagnosed , My own Dr said to me my symptoms are all in my head. One neurologist said I manifested my symptoms, my Physio therapist said this is actually very serious & my new rehab psychologist took 2 hours to tell me about FND & how real & serious it can get ! Medical professionals need more education for sure, we need to be heard & understood & believed . Much love from Australia 🇦🇺
@tomplender1378
@tomplender1378 13 күн бұрын
Thank you Bella🙏what you've been through is sadly still so common, really glad you've found a good physio and rehab psychologist, if you have any more issues with doctors being dismissive this might help- www.fndaction.org.uk/informthedoctor-campaign/ we've found a lot of patients have seen a change in attitude when they've shared this with their doctor, sending very best wishes and good luck with rehab! 😊✊
@rhondacornelison4538
@rhondacornelison4538 Жыл бұрын
It took me 34 years to get a propper diagnosis. I am now on my way to healing! Thank you everyone who raises awareness of this horrible disease. You are so very much appreciated!!
@activatingchangewithsteph1259
@activatingchangewithsteph1259 2 ай бұрын
Hi Tom, I have FND and really appreciate you doing this interview and your other awareness work. I wish I could get proper treatment, it really is difficult, my neurologist is great but he is overworked and has far too many patients on his list to the degree that I no longer get appointments but instead have to only email him. It’s great tho that he has found a way to keep patients on his list and to keep accepting patients it’s just a shame that he can’t give the level of care he once was. I often get dismissed by drs because of my fnd diagnosis, they won’t help on things that could be completely not fnd related because they put it down to fnd….. then I deteriorate and 2 weeks later go back to find out it’s something else, that’s the kind of discrimination we still face. I do find that frontline workers have become more empathetic over the years but only a little and more needs to be done, as there are still many with the ‘it’s all in your head’ attitude and those ones tend to treat you quite poorly even though that if that was the case you’d still be needing empathy
@georgia19801
@georgia19801 Жыл бұрын
As an FND sufferer I thank you for all you do to raise awareness of this horrible condition.
@darrenrussell9720
@darrenrussell9720 4 ай бұрын
Hi Tom, Thank you and thanks to GB News for carrying this. Sufferer also, managed to get a diagnosis after about 5 years, One Neurologist told me to "just go home and get on with my life". I refused to leave his office until he referred me onto somebody who could help. Thankfully this was onto a specialist FND service and finally a definitive diagnosis. Keep up the great work!
@johnmcleod8451
@johnmcleod8451 Жыл бұрын
Fantastic insights into FND, I just hope more people in the medical community watch this.
@tomplender1378
@tomplender1378 Жыл бұрын
thank you John!
@Amelchikhaoui
@Amelchikhaoui 2 ай бұрын
Thank you for talking about FND I suffered from it since 2019 I met with Dr Mark Edward and his team they are fantastic in st George s hospital in London
@julie-annebrummitt5308
@julie-annebrummitt5308 Жыл бұрын
Thanks from Australia so much for getting the word out and us sufferers some help! So grateful! I've been suffering for 3 years with FND now! Hope we find more support and answers
@jennelleeclarke9554
@jennelleeclarke9554 Жыл бұрын
Thank you for your advocacy from a Mama caring for her daughter battling FND.
@tomplender1378
@tomplender1378 Жыл бұрын
thank you🙏
@stuartburns8657
@stuartburns8657 Жыл бұрын
Interesting you feel it's not psychologically linked Tom. My 16yr girl was diagnosed with FND a month after starting 6th form. Walking difficulties, hand grasping, arm spasms, tourette tic, inability to speak occasionally. Instability / falling down suddenly etc. Like many here, the UK / NHS recognition was poor to be polite. After nearly 3 weeks in hospital, she was sent home as medically fit and proscribed vit D :( Ended up paying for private diagnoses and then ongoing private neurological rehab for the physical side, and again private (see the pattern) psychological treatment. Touch wood we've mostly got our Daughter back, excluding constant low energy / exhaustion etc. However, anytime she's in what we or she perceives to be a stressful situation (or even if we talk about a possible return to College) we arms will twitch or she's have a verbal tic.. Only have a sample size of one, beyond consuming various research papers, and watching hundreds of hours of YT / FND content. Personally, I very much think it's a brain / signal 'malfunction' but it certainly appears in our case to be exasperated or even triggered by anxiety or uncomfortable situations.
@tomplender1378
@tomplender1378 Жыл бұрын
@@stuartburns8657 Hi Stuart my view is I think it's a very complex condition that affects different people in different ways, unfortunately it's hard to convey the nunaces in a short interview like this. FND is fundamentally a disruption of brain network functioning, for some patients stress and psychological issues can be contributing factor, however for many this isn't the case, so there is a wide spectrum of experience. I think it's wise to think holistically with this condition which it sounds like you are doing, a mind/body approach i.e combo of neuro physio and psychology can work well , and if stress does seem to be part of the picture or a trigger then it's wise to address that. My position is that solely blaming FND on psychological trauma and stress alone is what I'm against, the evidence doesn't support this out dated view and it's too simplistic, stress and trauma can be a risk factor and a trigger but not the route cause. You may find this helpful from the charity FND Action, it explains in more detail - www.fndaction.org.uk/wp-content/uploads/2022/10/Information-guideance-sheet-for-medical-professionals.pdf
@sharonlarge6893
@sharonlarge6893 Жыл бұрын
I'm so so pleased to see this hitting our mainstream news. 🙌 This condition has effected my quality of live really badly 😢. My GP had to Google it and play KZbin videos for her to get an understanding of this illness.. I get severe anxiety now if I need to go to the doctors because I've been told there's NO CURE and basically accept it and this is my way of live now... 😢😢😢😢😢😢😢
@leecorbiere7427
@leecorbiere7427 Жыл бұрын
Thank you for your advocacy work Tom! I live in Canada and have been diagnosed with FND by a Functional Neurologist at a leading Canadian brain health centre in Vancouver. It took years to get my diagnosis because I had been funnelled down the "mental health" pathway to address my issues (fuelled by the outdated belief "it's all in one's head"). There is so much stigma attached to this disorder so talking about it, getting information out there, and 'normalizing' the discourse is key! I pay close attention to what the discussions are in the UK because of the work being done by Professor Jon Stone, whom my neurologist suggested I read. Once again, thank you for speaking on this common disorder that is rarely talked about!! I wish you wellness with your FND, Lee 😊
@tomplender1378
@tomplender1378 Жыл бұрын
Yes the Uk seems to be a leader at the moment, it is very tough here too though, a lot of unpleasantness and stigma from doctors with regards to FND, but we must battle on! Thank you for your kind words sending best wishes from london UK😀
@lola6954
@lola6954 Жыл бұрын
Thank you for this great interview. Glad it's starting to be recognised. Hard to get people to understand what we are going through!
@tomplender1378
@tomplender1378 Жыл бұрын
thank you🙏
@privateprivate4384
@privateprivate4384 Жыл бұрын
I have suffered numerous head injuries caused by violent parents and a fall downstairs where I smashed my skull of the radiator.I had a huge hematoma on the back of my head but got no treatment. I also had meningitis 3 times in 2007 the cause was infected sinuses.I was also diagnosed with Parry Romberg Syndrome. My problems were suddenly zoning out and going into a trance like state, I also suffered non epileptic seizures chronic fatigue muscle pain and severe cramps in my face hands feet stomach and legs. At times I found walking difficult to coordinate the right side of my body always feels weak. I also have difficulty with my short term memory. Professor Jon Stone of Edinburgh diagnosed me with FND
@sdinsight9992
@sdinsight9992 9 ай бұрын
Please keep helping us people with this disorder. I'm tired of walking strange when I get just a little nervous. (Here on my boyfriend's phone) Thank you doctors. Please keep learning more.
@dianevose9655
@dianevose9655 Жыл бұрын
Great interview Tom, you articulated the condition and complexity of FND perfectly
@tomplender1378
@tomplender1378 Жыл бұрын
thank you🙏
@antmk
@antmk Жыл бұрын
Thank you for being a voice for this condition, it's being heard. Well done chap 👍
@tomplender1378
@tomplender1378 Жыл бұрын
thank you🙏
@aloggins69
@aloggins69 Жыл бұрын
I live in Austin TX and I was just diagnosed with FND in 12/2023 and FND has turned my life upside down. I have a lot of the symptoms and stay exhausted all the time. My daughter has it too, but she only has seizures. I have everything, but seizures. We need much needed research on this all over the world. Thank you for bringing this to the public.
@drEAmzZzza
@drEAmzZzza Жыл бұрын
what are ur symptoms?
@5gayed
@5gayed Жыл бұрын
Thank you Tom, best interview I have ever seen describing FND. My son was diagnosed two years ago in Australia after suffering for 2-3 years, was lucky to see one of top FND specialists here after running around in circles previously. Keep up the wonderful work Tom in spreading the word. 👍👏👏👏
@tomplender1378
@tomplender1378 Жыл бұрын
thank you for your kind words🙏
@lisamifsud6539
@lisamifsud6539 Жыл бұрын
Great interview. Thank you for raising awareness of FND. I am a fellow sufferer. I was diagnosed over 4 years ago and it has been debilitating. Through retraining the brain and low histamine diet have helped me dramatically.
@tomplender1378
@tomplender1378 Жыл бұрын
thank you🙏
@chrismaldonado4657
@chrismaldonado4657 Жыл бұрын
She is spot on about Drs having a hard time even recognizing FND bc there are SO many symptoms (and bc they don't know about it). This is true of my journey of many years, Drs getting overwhelmed by all my symptoms,, so they would work on 'part' of me....which now I know is the WORST way to treat FND, by focusing on what is 'wrong' or not working. Part of my healing in the 2 months since I've been diagnosed is having practitioners treat me as a whole person, and my symptoms in perspective of FND..,.it's the first time I've been called "normal' in over 25 years :)
@tomplender1378
@tomplender1378 Жыл бұрын
You are absolutely right a joined up mind-body approach is best, rather than looking at separate bits!
@privateprivate4384
@privateprivate4384 Жыл бұрын
🤗
@MoiraLittlewood
@MoiraLittlewood Жыл бұрын
My husband was diagnosed with this 4 years ago but nothing has been done for him. He is now in a long term care home. I have asked his doctor for proper diagnosis as he has detiorated to the point he can't walk. talk or do anything for himself now. I was told by his Dr he has FND and no more tests have been done. He has been on a waiting list for over 2 years for National inpatient centre for Psychological Medicine. I truly think more needs to be done. Thankyou for bringing more awareness of this disease.
@jennelleeclarke9554
@jennelleeclarke9554 Жыл бұрын
He needs physical and occupational therapy among other things.
@jennelleeclarke9554
@jennelleeclarke9554 Жыл бұрын
Praying you receive quality care.
@MoiraLittlewood
@MoiraLittlewood Жыл бұрын
@@jennelleeclarke9554 Thankyou
@tomplender1378
@tomplender1378 Жыл бұрын
thank you🙏
@stevenber1
@stevenber1 Жыл бұрын
Good interview Tom, If you get another opportunity, I suggest you expand how FND can affect different people, my 54 year old wife woke up one morning and couldn't walk, that was 15 months ago, since then her hands have locked in the fist position, and she's now paralysed below the waist, can't balance or sit up, lost control of her bladder and bowels, can't pick anything up or feed herself, and fears she'll soon be locked-in with no way of communicating, at all stages she's told "It's FND, there's nothing we can do", we're desperate, and there's absolutely nobody looking into this, we're not waiting for any test results, got no appointments, feels like she's just been cast aside.
@JanaShakespeare
@JanaShakespeare Жыл бұрын
What a fantastic interview! Thank you. I knew what FND was because I've watched friends struggle with it, but never expected it to hit home as it has this year since my daughter has started struggling with sudden episodes of paralysis and the variations in how people respond to her are astounding. Some are helpful and caring, but so many treat her with disbelief and suspicion, which makes her life doubly challenging. I'm so pleased to see good information being shared.
@tomplender1378
@tomplender1378 Жыл бұрын
thank you, glad you found it helpful🙏
@hazelannmurray6354
@hazelannmurray6354 Жыл бұрын
Great interview Tom 👏👏 x
@yolandawatson6909
@yolandawatson6909 Жыл бұрын
Excellent information! Thankyou for your endeavour to get more knowledge and support around FND. Both myself and my dad have been diagnosed in the last 12mths with it, both doctors started that conversation with saying “it’s all in your head” 😔 so unhelpful.
@tomplender1378
@tomplender1378 Жыл бұрын
So sorry to hear that, you could try using this which we created at FND action, it's designed to help patients faced with doctors who are not up to date on FND research and still stuck in the purely psychological mindset, it might help - www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/
@TheDonnellymarie
@TheDonnellymarie Жыл бұрын
I have this horrible condition, No one takes me seriously and people do not believe you. I hope the help that is due to us is made available before I am too old.
@lorrainewetherington8270
@lorrainewetherington8270 Жыл бұрын
I’m in the U.S. We need to educate these Drs. I’d love to watch the video from this March.
@millymay0025
@millymay0025 Жыл бұрын
Fantastic to see this, thank you Tom! I was diagnosed with FND 2 months ago, my (post diagnosis) journey is just starting, but I am full of optimism at the opportunities ahead to communicate, position and explain this disorder. Angela asked brilliant questions and Tom, you spoke eloquently, you are a powerfully advocate!
@tomplender1378
@tomplender1378 Жыл бұрын
Thank you Milly😀🙏
@kireenagulen4099
@kireenagulen4099 Жыл бұрын
Thankyou for bring some awareness to this condition. As so eobe who has suffered this for the past 20years I wish there was more support in the health industry.
@ivetorres5651
@ivetorres5651 Жыл бұрын
I’m at US. I got Fnd diagnosed 3 years ago thank for taking about this terrible condition
@palice28
@palice28 Жыл бұрын
I’m so glad this is finally getting some coverage. Great to see they allowed you time to speak and tell your story. This is the kind of exposure FND so desperately needs. Having witnessed it first hand, it’s such a devastating condition.
@janetc8560
@janetc8560 Жыл бұрын
I have it. It took over a decade to be diagnosed. My GP is no help. Just left on my own to manage something I don't really understand!
@sherrihanisco4484
@sherrihanisco4484 Жыл бұрын
Thank you for sharing about FND. I’ve shown symptoms for years and just recently diagnosed. It’s a tough battle that hopefully will be understood soon. I’m in the US.
@tomplender1378
@tomplender1378 Жыл бұрын
thank you🙏
@minawasef3316
@minawasef3316 Жыл бұрын
I got FND also, any recommendations for neurology in the US?
@sherrihanisco4484
@sherrihanisco4484 Жыл бұрын
@@minawasef3316 where in the US?
@minawasef3316
@minawasef3316 Жыл бұрын
Boston
@celiacooper4886
@celiacooper4886 8 ай бұрын
I have a diagnosis of FND. I've had physiotherapy but the physio didn't know how or why the exercises she was giving would re educate my neurons and synapses to behave( co operate) again. We need is Neurotherapy therapy therapy therapy therapy
@leahtrevillion3004
@leahtrevillion3004 Жыл бұрын
Thankyou so much! Actually got very emotional watching this. It means so much to see this disorder getting the awareness it deserves that we deserve 🙏 thankyou
@tomplender1378
@tomplender1378 Жыл бұрын
thank you for your kind words, best wishes to you Leah🙏
@jeanettebainbridge7217
@jeanettebainbridge7217 2 ай бұрын
Hello Tom hope your ok today. I got diagnosed on 8th Nov this year so fairly new to FND. I also have fibromyalgia and chronic fatigue syndrome, balance issues for years. I was diagnosed quite quickly tbh. I agree with you about the parliament knowing and getting things done and lots of awareness. And also the DWP but i did a change of circumstances and still don't get high rate pip. I've severe fibro and chronic fatigue but still can't get passed middle rate care. I look forward to hearing about this meeting. My neurologist said there's NO CURE BUT CAN MANAGE
@tomplender1378
@tomplender1378 2 ай бұрын
Thanks for your message, I understand your battle with PIP , the system is awful at the moment. Also wanted to point out your neurologist isn’t entirely accurate - some people do make a full recovery, it varies a lot from person to person, for many it’s more about managing symptoms so that it’s possible to regain a good quality of life. Ultimately we need more research to understand why people respond differently to treatments and also to look for new innovative treatments for FND. Sending best wishes👍🙏
@kristenwhite2701
@kristenwhite2701 10 ай бұрын
Professor Edwards is brilliant. He has some great Q&As on KZbin with FND Hope
@mtaylor766
@mtaylor766 Жыл бұрын
Another one that got FND diagnosis today. I live in Reykjavik Iceland and thankfully we do get fantastic help here. However, when I lived in Milton Keynes up until last year, and my neurologist said I might have FND back in 2020 after having Covid, there was no help, just non whatsoever. Thank you for your fantastic awareness. My family now know what this is due to this video I showed to them. Thank you.
@tomplender1378
@tomplender1378 Жыл бұрын
Thank you 🙏 really good to know this has helped!
@bindingjames
@bindingjames Жыл бұрын
Thank you so much for fighting. I have had this since 2020 after a migraine. I am still waiting for mental health help and an FND specialist. I was basically told you have FND, no go away. My symptoms are debilitating. If I can help you I will.
@itisBoodge
@itisBoodge 11 ай бұрын
Excellent interview Tom, I had tremors in my hands and feet for 6 years. My GP thought I was just an anxious young adult. After being diagnosed with FND late last year, I left my dream job in London and move back home. Thank you for raising awareness. I hope our amazing NHS and doctors will be enlightened.
@tomplender1378
@tomplender1378 11 ай бұрын
Thank you and sorry to hear what you've been through, it's tough having FND but I firmly believe if we keep campaigning we will get there, and this illness will finally be recognised and taken seriously, sending best wishes 😀
@georgieboy1958
@georgieboy1958 9 ай бұрын
I have just been diagnosed with f n d after two years and I am in a terrible state I really don’t know what to do it’s frustrating I can’t even sit to eat anymore
@lauraf3768
@lauraf3768 Жыл бұрын
Thank you Tom for your work. This is what I have (along with other health problems). The doctors don’t seem to care, even my neurologist doesn’t know what to do for me and gives me mixed messages 😢 There is a centre in Liverpool that specialises in FND but my doctor refuses to refer me until I have been through the Local Mental Health Team i.e. inferring it’s psychological 😢 I have been told there is no cure and just to ‘manage’ it which for me means resting / limiting activity, I have lost years of my life to this disorder. I really hope this is the start of some progress in treatment.
@tomplender1378
@tomplender1378 Жыл бұрын
I personally don't think Doctors know enough about this condition to say there is no cure. There is no doubt we need more research and we need better treatments, however many people to improve and regain their quality of life with expert treatment. I would recommend you get in touch with charities FND action or FND hope they may be able to recommend how you can access a friendly specialist. Best wishes🙏
@lauraf3768
@lauraf3768 Жыл бұрын
Thank you for taking the time to reply - I really appreciate it. Thank you so much for the work you are doing.
@emmabingham6765
@emmabingham6765 Жыл бұрын
I had never heard of FND until I was diagnosed with it November last year, really hope they find a treatment soon
@rohinihyde4766
@rohinihyde4766 10 ай бұрын
I was a fit 68 yr old walking 7000 steps a day when I took my 1st mandated AZ jab in Australia. Within a few weeks I was hospitalized with balance issues and 17 months later have been diagnosed with FND cause being "anxiety". I have never needed help with anxiety issues before. Could it be the jab that caused my FND and not anxiety.
@EnglisholicExpressions
@EnglisholicExpressions Жыл бұрын
I'm in Pakistan and unfortunately every doctor except one knew about this , no one knows about this they all called it anxiety and put some patient on schzophernic drugs . 😤 Doctors are really ignorant these days.
@dawnlower1893
@dawnlower1893 Жыл бұрын
here in usa too., took my husband 4 yrs to get diagnosed. hard to find a qualified Dr. here he suffers with bad pain also.
@sherrihanisco4484
@sherrihanisco4484 Жыл бұрын
I’m in the US also and it took me over 2 years of fighting to get tested. I’ve been told for years that what I was going through is what they went for before diagnosed with MS. I had a lot of doctors look at me and say you don’t have enough symptoms to test. (I’ve had gait issues with legs buckling and dropping for over 15 years).
@shannonbaylor7994
@shannonbaylor7994 Жыл бұрын
I’m in the US as well. It took almost a year and 13 different doctors before finding one who would look at all the symptoms to figure out what was wrong. And to find out my husband has FND. We were told to get CBT and PT for treatment as well as pain management.
@citizen3000
@citizen3000 10 ай бұрын
Has he been tested for small fibre neuropathy? Has he had nerve tests?
@Kensyoutube1776
@Kensyoutube1776 Жыл бұрын
I also live with FND in America. I have been dismissed by many in the medical community. They say if you have seizures you should go to the hospital. The ER is the last place I would go due to the lack of knowledge of ER Dr.s.
@aussierando9582
@aussierando9582 6 ай бұрын
I live in Tasmania Australia and you would be surprised how many doctors don’t know what FND even stands for. I’m under the care of DR LENH in Queensland who is absolutely amazing. I have suffered from FND for 7 years now following a car accident and it has turned my life upside down. Every day is a challenge and it makes it very frustrating when a doctor looks at you with a blank look on their face.
@tomplender1378
@tomplender1378 6 ай бұрын
I agree, there is still such a long way to go in creating awareness and challenging stigma around FND, glad to hear you are with Alex Lehn he's definitely one of the best FND doctors out there, sending best wishes🙏
@ttvmudgeez
@ttvmudgeez Жыл бұрын
My FND diagnosis came after i had a berry sized anurysum burst on my brain, now i have constant stabbing pain on my brain, and reoccuring siezures, dizzyness, tingling, fainting
@andrewkennan8812
@andrewkennan8812 Жыл бұрын
I suffer’d with chronic panic and Anxiety Disorder for 14 yrs and always continued to go to my GP as I always thought their was something going on, but in their minds it was psychological but last yr 2022 I was then diagnosed with FND which I never heard of and after being told to read up on it I related to a lot of the symptoms, but I was told my FND was prob down to the trauma of my constant panic and anxiety but to be honest I don’t know what think anymore. I am totally ground with this and never leave my home, psychology in the past has never help’d and I was told by a Neurologist I would need also a FND specialist that is a Neuro physio but then told sorry there’s none in your area so I was left to just get a physio but it’s had no effect what so ever and Anxiety meds don’t help either. Definitely needs to be more help with FND with the NHS
@user-hd2mb9zr4x
@user-hd2mb9zr4x 6 ай бұрын
There is not enough being done to help sufferers of FND.Sufferers are bei g rushed into hospital in case it's a stroke.But because they put all the symptoms down as FND and they are being sent home from hospital still very ill but because there is nothing the hospital doctors can do they get sent back home.There needs to be more help out there and people should be educated on FND.FND IS REAL.
@mollyyates872
@mollyyates872 Жыл бұрын
having FND is so tough,i keep getting paralysis and issues with my stomach and bladder,only seen a neurologist once,im 16 i sohulndt have to be going through this
@citizen3000
@citizen3000 10 ай бұрын
Molly, what tests have you had?
@yullyymarsosagonzalez1226
@yullyymarsosagonzalez1226 6 ай бұрын
🥺🙏🏼
@tracie.lawrence1514
@tracie.lawrence1514 Жыл бұрын
l was treated with ms for over 10 years then l see a specialist who said it wasn't ms was fnd l have gd bad days
@annettewheadon7212
@annettewheadon7212 Жыл бұрын
I got nead fits n tics I fit back to back every night get bout 2 hours sleep every night got no body professionally to help me fnd sure sucks wouldn't wish this on any one😢
@eleanorrosen193
@eleanorrosen193 Жыл бұрын
It's just another word for 'hysteria'. They rename and repackage something to try to sell it to patients.
@tomplender1378
@tomplender1378 Жыл бұрын
The FND field is moving away from such ideas. Recent FMRI research is clear - FND is a brain network disorder, have you listened to the interview? My neurologist doesn't believe in hysteria- he thinks it's a dangerous myth. He treated me as having a movement disorder with neuro physio therapy. There was no talk of repressed trauma or any Freudian theory.
@octrosie20
@octrosie20 Жыл бұрын
Yes .. and there is plenty of screen-grabbed evidence which illustrates that the architects of FND actually *do* think FND is an example of a conversion disorder. Although every time I've added useful links TP removes them.
@tomplender1378
@tomplender1378 Жыл бұрын
@@octrosie20 I haven't removed anything, I genuinely have no idea what you are talking about. can you please explain.
@octrosie20
@octrosie20 Жыл бұрын
@@tomplender1378 I have posted two replies which have included links to FND critical observations and they have both been removed. I didn't assume this would be the case with the first and didn't screengrab it but I did with the other one to Moira below. There doesn't seem to be a way to upload a photo here however.
@tomplender1378
@tomplender1378 Жыл бұрын
@@octrosie20 I certainly didn't remove them, I am completely open to debate and would be interested to see them, I don't agree with everything that all the doctors say in the FND field and there are a lot of different opinions. Many doctors disagree with the position my neurologist Prof Mark Edwards takes because he doesn't believe in 'conversion disorder'. He has publicly debated doctors taking the position hysteria is a flawed myth- kzbin.info/www/bejne/rZO7oHSliMmXrpo
@octrosie20
@octrosie20 Жыл бұрын
Not impressed that you sanitised my comment by removing it. I guess FND is not up for discussion?
@tomplender1378
@tomplender1378 Жыл бұрын
I haven't removed any comments I have no idea what you are talking about, I am happy to discuss FND, what do you want to discuss?
@octrosie20
@octrosie20 Жыл бұрын
@@tomplender1378 I have replied with 5 new messages , this will be the 6th. They all disappear. Are your settings such that for some reason I'm saying something that this site wants to filter out? Have you put filters on your page?
@octrosie20
@octrosie20 Жыл бұрын
Ignore for now. They went away and returned. Very odd!
@tomplender1378
@tomplender1378 Жыл бұрын
@@octrosie20 I am honestly at a loss as to whats going on, just message me directly - t.plender@btinternet.com
@octrosie20
@octrosie20 Жыл бұрын
@@tomplender1378 Thanks. YTis behaving strangely. Thank you for the offer to continue to discuss this. I don't have FND but I am chronically very unwell and so I'm limited in what I can manage to do. I am able to access some of the best quality research into the BPS model / MUS and FND etc, so I'm happy that my sources are very qualified to raise the concerns they do raise. I wouldn't be well enough to take this further unfortunately but thanks for the link to the video with Mark Edwards on it. It was most helpful!
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