FND Hope UK - FND Awareness April 2023

🌎🧠 April is FND Awareness Month 🌎🧠
We joined forces with our partners across the globe FND Hope International
on our mission to make more people FND Aware.
To kick off FND Awareness Month 2023, FND Hope UK's Patron Lorraine Kelly told us how you could get involved and help spread the word.
There's still time to join the campaign 👉 www.fndhope.org.uk/world-fnd-...
#FNDaware
#FND2023
#LetsTalkFND
#FNDAwarenessMonth
#AreYouFNDAware
#FNDAwareness2023
#FNDAwarenessmonth2023

[@gh-wt2ip]

I am so thankful lovely Lorraine Kelly is a patron for FND ❤

[@wandalynnellis7814]

I've been trying to touch base about the patient database. Oh well. I have FND for a long time diagnosed in 2005

[@cefndrewrexham8213]

I was diagnosed with FND 2019, but there is not a lot of information in Australia about FND . Some medical professions have never even heard of FND

[@lilmisst9770]

I have CRPS since 2018 after i had a accident at work and I have had FND since 2019 because of my CRPS. I have had no help.

[@Kerrylovesmusic]

I’m so sorry. Are there ANY resources in your area? There are some fairly decent groups online that have resources located around the world, but sadly it really is hit or miss. ❤ You aren’t alone in your struggle, we are out here.

[@lilmisst9770]

@@Kerrylovesmusic thank you for your information means alot.

[@user-hk3is1xj3z]

FND Hope has refused to allow me to join their adult support groups. They are a shameful, base group. I have literally tried to get them to let me join their support groups for FIVE YEARS. And after five years I finally heard back from someone. Guess what he did? Refused to let me join. This group is a sham, a fraud, and they do NOT care. FND HOPELESS

[@nickybates1975]

Rubbish living with FND especially NEAD