"Fragile" Stigma

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Spina Bifida Guide To Hope

Spina Bifida Guide To Hope

Күн бұрын

Happy Spina Bifida Awareness Month! To those who watch my videos, I apologize for being gone for so long. It feels great to finally be able to come back. I hope to be able to start posting weekly again. Once more, I apologize for such a long wait. Thank you for all the love and support, even during my absence. I greatly appreciate all of you.
Spina Bifida Facebook Support Group: / 422608971453264
Spina Bifida Instagram: / spinabifidaguidetohope
Spina Bifida Twitter: / sbguide2hope
#fragile #stigma #disability #spinabifida #spinabifidaawareness #spinabifidaawarenessmonth #spinabifidaguidetohope

Пікірлер: 9
@bluelanterns2982
@bluelanterns2982 3 жыл бұрын
Very beautiful 🤩
@spinalobifida
@spinalobifida 4 жыл бұрын
My mom and step-dad expected me to do chores around the house. I'm glad they did that too. I've even moved to a couple different places taking all of my stuff and riding Greyhound.
@THEPAPASMURFTHEOG
@THEPAPASMURFTHEOG 4 жыл бұрын
another great video my friend. god bless!
@spinabifidaguidetohope8080
@spinabifidaguidetohope8080 4 жыл бұрын
Thank you for your support 😊
@amyunderwood6372
@amyunderwood6372 9 ай бұрын
Hello, im new to your Channel. I am a 47 year old woman with Spina Bifida. I find your videos very interesting and informative. Although i know almost all the info you have mentioned it is very good information for other that are not formiluar with Spina Bifida and all the other things that come with Spina Bifida. I noticed that you have not posted any videos in the last 3 years. Do you plan to make more videos because i would love to see more videos about you and your personal experience.
@mywheeladvice5241
@mywheeladvice5241 4 жыл бұрын
I agree with most of what you said when it comes to strangers. I find it harder to ask for help around people I know really well. I can be stubborn just to prove I can do it. For example, wheeling for long periods of time in terrain I'm not used to being in that I'm sore for a week straight or tired by the time we get there. If I had asked for help for even 5 minutes I could have saved energy to last the entire day and lower risk of injury.
@mikewarburton6273
@mikewarburton6273 2 жыл бұрын
people don't understand near me why some times they see me with crutches and some times in a mobility scooter. and even time i don't use any aids if im just going over the road. i push my pain to the limits of me if i need help i will ask and not until don't be afraid of asking for help just let people know that you know your limits and if u need help u mean u need help. good luck your so young and just learn to manage the pain and do not rely on the pain killers as much as doctor gives em to you dont forget your on these things for life. i am now 53 years old and been handling this for over 30 years good luck girl and good advice x
@SalikKhatry
@SalikKhatry 2 жыл бұрын
Hey there
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