It upsets me when nobody believes me anymore when I tell them what I’m going through
@macsam87782 жыл бұрын
Wow, I honestly thought, I was the only one, experiencing these things. Thanks for sharing this!
@dulciponchot13 жыл бұрын
After a few falls (the last one in the tub) I have learned to slow down even more. It's so important to be very aware of every step, to make sure my feet are going where I want them to go. I use a cane when away from home but not usually at home.
@judystickling7242 жыл бұрын
Pleases her when km m Issa oklove offer one’s okink
@conniecharley70864 жыл бұрын
I don't talk about my MS to strangers or very little with my family but my first years with MS I fell forward backward sideways legs just bend and down I go but my legs and arms have some nasty scares. My balance I have to work on a lot I do the excerises it helps but losing your balance is no fun my bones in my left leg are very thin emergency room doctor told me one more big fall again and you are going to brake a bone. When I get down I can't get up on my own. I always need help. When I get into bed I use my body not my legs same as when I get in and out of a car I swing my body into the seat. I taught myself that one. I took a medication for awhile side effects we're not fun so I had to stop. I got scared of that kind of medication for MS. I have read all the videos they all hit home but I have never had double vision or blurred vision thank goodness since 2002 dope I haven't had that one. My memory stays stable but I do get emotional with anixty I hate it now for a long time that is stable. One doctor in one of the videos stated no such thing as being stable with MS you are always going to have a symptom pop up. I am doing just fine I make decisions at home and away from home .. I don't like to be in a situation I am not familiar with when it comes to a site traveling on a road that has been changed that upsets me and scares me but being crippled is frighting in those kind of situation .... God bless you all and keep the good work up with your MS you will make it that's s promise. Be brave and hold your head high.
@sharonklug3751 Жыл бұрын
please find out what’s wrong with me
@sharonklug3751 Жыл бұрын
😂
@janeyramseyer59643 жыл бұрын
U can just be walking along .....and....damn you are down.... Been fortunate.....picked myself back up......more embarrassing than anything......56 years old.....never giving up.......keeping myself educated.....
@lisaborsch89332 жыл бұрын
This is me 💯! I'm very grateful for your video! Thank you!
@macsam87782 жыл бұрын
My most recent fall, happened from getting up from a couch and spasticity settled in and my leg got num and I did not feel my leg at all hit the ground and I fell onto my right side. My right ankle required X-rays as it got swollen. I had hit my shoulder as well and the entire situation, required pt for a while. The sensation on my right was very dull and as it came back, months later the pain returned, still dealing with it, this ms thing is ever so strange!!!
@lisaborsch89332 жыл бұрын
I fell off a pool float. At the time it didn't occur to me that it was this but the pool wasn't very big and I didn't have far to fall. It was very much a depth perception issue. Lol pun not intended but very water worthy.
@macsam87782 жыл бұрын
@@lisaborsch8933 Just learning how foot drop is a major problem for people with this disease. And you are right, the depth perception problem is so real... We have to be more careful, because most people, even with ms won't understand it. You take of yourself!
@lisaborsch89332 жыл бұрын
@@macsam8778 me too! I was diagnosed with Ehlers-Danlos Syndrome and they couldn't figure it out. They never thought of MS though.
@asc4096 Жыл бұрын
One fall in particular stands out... Am I the only one who laughed? Trying to see the bright side wherever possible.
@eMDiKhamPha9 күн бұрын
I fall almost everyday if I'm outside. Foot drop + dragging; bruises all over. My foot is my own enemy 😵 Haven't bruisesfree for years
@conniecharley70864 жыл бұрын
I use a cane and a walker plus the 2 sets of braces on both legs. I have a problem with my walking when I come to a sidewalk can not get up upon on it . Need help to hold on to a person or a pole to get up on that hight amt of thick cement. But driving with my braces no problem I don't have to lift my legs very high so thank goodness to that. The strength lifting a leg is too high is weak. No stairs for me can't climb them have to hold on tight to tail to climb down take a deep breath when I see stairs I just say oh boy But if it is not very high I'm fine to left my legs. Especially my left one.
@mahbibikhan18652 жыл бұрын
Hi connie listen I need to ask you in the past two years did you find out a way how to lift your feet on the sidewalk
@eMDiKhamPha9 күн бұрын
Braces help? I cant lift legs high enough to wear pants 😵
@conniecharley70864 жыл бұрын
I must say I not happy with ramps either but I can make up one.
@muhammadzaheer41284 жыл бұрын
My ms is not diagnosed in our country and all simptoms r shows my body I can not walk in last 2 years pliz help me to diagnosed the ms thanks plis contact me
@mahbibikhan18652 жыл бұрын
Salaam alaikum brother Zaheer I just I want to ask you did you find a way to make yourself walking in the first one year Because brother I also cannot walk I am wheelchair bounded for the past 4 years
@georgekafantaris78078 жыл бұрын
very mild cases,,,not bad like myself
@mariankiely39953 жыл бұрын
OMG watching this it's me!! Broken arms, broken legs, dislocated shoulder, black eye, cuts ....
@stepheningarfield93862 жыл бұрын
Hi Al in the NMSS. We know what is happening and what can happen, we need a cure for it, because the help and support doesn't help when you can't walk, or it will keep happing all the time. A cure for the different symptoms MS cause's may help as well, the old drugs don't work.
@kathylgoedert Жыл бұрын
I almost always fa backwards. Fractured humerus that required surgery recently, split my head open a little while ago. I have not been diagnosed yet. I keep thinking I'm making this up. But the injuries are very severe. Just lost my job.
@NYNC88 Жыл бұрын
So sorry to hear this. I hope you're doing okay now.
@eMDiKhamPha9 күн бұрын
Just like my last job. The moment they learned I got handicap card to park near, they laid me off. Employers are not open-minded to handicap employees at all.
@rogersarber4575 Жыл бұрын
I fall so much...I've almost mastered it with out getting hurt or banged up as bad!😜
@eMDiKhamPha9 күн бұрын
😂 I fall almost everyday; bruises everywhere but still haven't master the art of falling yet 😂
@rehanailyas5084 жыл бұрын
I hv Meltiple scolerise
@smmcb647 Жыл бұрын
I use a cane when walking outside - today I nearly tripped on the pavement but I had my cane and was able to stay upright. It’s no shame to hold a cane, better than tripping over!
@eMDiKhamPha9 күн бұрын
I got a rollator thinking it would help + I could sit when I needed to rest. Well that was a horrible idea... Like you said, it felt weird for me to use crutches at first but after awhile, I didn't care anymore...When using my feet too much, they hurt so going with wheelchair if the walk were long to save myself from pain and bruises 😊
@loriemorris46296 жыл бұрын
I HAVE MULTIPLE SCLEROSIS, AND WALK WITH A GAIT MY LEG SEEMS STIFF, I USE A CANE!. I USED A CANE, FOR YEARS, BEFORE, MY FINAL WORD, OF HAVING R.R.MS.