Functional Neurological Disorder | FND Hope |

Who Are We?
FND Hope Mission
Our mission is to promote awareness, support affected individuals, and advance research for the prevention, treatment and recovery of FND.
FND Hope Vision
We envision a world where FND patients can expect to be treated with dignity, care and respect, regardless of the cause of their symptoms.
FND Hope Motto
We Empower Patients to Better Health

[@CaptainValian]

Very interesting. I am going to chat with my Doctor about physiotherapy. I have been reading up on the amygdala as I have found that marijuana helps me and connecting the dots, it has led me there. I feel quite isolated with this condition since I was diagnosed and nothing has happened since except my complaining to my Doctor about the seizures, muscle pains/cramps, cracking my teeth, and any possibility of help. I am a single man in his 50's and I just want to get this fixed and get back to work in my field, which I have always enjoyed. For me, this all started after a car crash as I had undiagnosed sleep apnea (another dot) and had severed my ulnar artery and nerve plus neck, should, and back damage. I realise it was traumatic (dot).

[@helenosborn3520]

P😊😊

[@avawright4080]

Very interesting I would love to take part in the SPECT study

[@paulaallen6649]

Ita so sad that the actual stigma is actually held within the " community " .. ITS under DSM5 ITS NOT NOTVMEDICAL . IT REPRESSED EMOTIONS AND FEELINGS LETS MAKE IT OK TO SAYY I HAVE MENTAL HEALTH ISSUES otherwise we putting more shame on ourselves..mh doesn't mean u failed it proves u are so strong to deal with so much but now its time to rest n heal x❤

[@avawright4080]

Bud&tender CBD oil helps me manage my symptoms for 9 months now so I am hoping my body and brain function well again

[@elizabethshackleford8048]

I wish doctors were this well versed in FND in the United States. I’ve dealt with this for 13 years and doctors still don’t know how to treat it or even know that much about it even after having it for 13 years.

[@carolcaldwell]

Oh! How I wish that I could take part in this SPECT study! My seizures cause me to be paralyzed instead of moving...I would be a perfect study because I don't move. 😮

[@ticksick.s]

Ditto

[@ticksick.s]

Why would you want to put yourself through this. It's all rubbish. Are you in Australia?

[@bell10877]

This is great the music breaking it all up is very jarring for me.

[@heathersoper6923]

I have been diagnosed with psychogenic tremor, I know how it happened, I know what caused it, the men are in court. How do I get rid of it? Where can I go in London?

[@tazmusic101]

hi i have fnd and heart problems i have been stuck in bed for about a year im 49 and feel my life is over doctors don't seem to want to help because im in bed my heart is probably getting weaker by the day can anyone help me if i try to sit up my HR shoots up to 140 im on a mixture of med for my heart i know this is not a video for heart problems but it stems from fnd i think only seen one neurologist for 5 minute nothing else been attempted im struggling to carry on with life

[@susanmason9138]

Same

[@rohinihyde4766]

I lost my ability to walk normally 17months ago and my right leg feels semi paralysed and heavy since. I have seen 6 neurologist and had numerous tests and the final conclusion seems very similar to what a FND diagnosis sounds like. All tests are clear. I was a very fit and healthy 68 year old and a few weeks prior to developing this problem received my first Astrazeneca jab which was mandated for over 60s. Could Astrazeneca be the cause of my mobility problems? I have never had covid-19 and was enjoying a stress free retirement at the time. Taking this vaccine is turning out to be the greatest regret of my life and I may never know the true answer.

[@user-bp1mz1bl2l]

Yes the vaccine has done disasters to our body and nervous system...nervous system injuries...Me too I regret deeply having the damn vaccine ..I have semi paralysed right hand and a weak arm...I can't even write my name or brush my teeth...doctors just gave me the diagnosis of FND and left me in the black hole no help no treatment no cure...I feel isolated with this condition and I blame the VACCINE for all what happened to me

[@amanigh2189]

how can we have help with treatment Iam in Jordan what is the treatment? how can we contact p,kannan

[@amanigh2189]

how can we contact doctor Kannan

[@emmahammond4338]

Plwease help me. Prof Edwards left Georges and he was in charge of EMDR. I will be anyone’s gunieau pig

[@user-hk3is1xj3z]

FND Hope has refused to allow me to join their adult support groups. They are a shameful, base group. I have literally tried to get them to let me join their support groups for FIVE YEARS. And after five years I finally heard back from someone. Guess what he did? Refused to let me join. This group is a sham, a fraud, and they do NOT care. FND HOPELESS

[@ticksick.s]

Re your comments on seeing a neurologist and someone like yourself. That would work if both parties understand FMD properly. Which the majority don't. I suggest that you look into the work of Professor Tisch at St Vincent's. He's a neuro specialising in movement disorders. I honestly, with all due respect, don't believe you have the correct understanding of this condition.

[@kristenwhite2701]

I’m guessing he’s of the opinion that all of this has to do with trauma. I can’t stand the view that stress needs to be present. I don’t find the need to incorporate a psychiatrist. I don’t think Bridget is buying it all either. I like the talks by Jon Stone & Mark Edwards better & the people in the FND Hope Facebook community

[@kristenwhite2701]

Alcohol in small amounts has helped my speech, but just have them when going out.