FX Premutation webinar | Dr Randi Hagerman MD, 11 Dec 2021

  Рет қаралды 1,686

Fragile X Association of Australia

Fragile X Association of Australia

Күн бұрын

Пікірлер: 3
@KMx108
@KMx108 2 жыл бұрын
Just wanted to say thank you for this presentation. It has given me a new lead to pursue when I was hitting very frustrating walls with my medical team. No one has offered this as a possibility and the fit is so good I can trace the likely genetic impact through my family tree. The only challenge now is convincing a doctor to order a test.
@fragile_x_australia
@fragile_x_australia 2 жыл бұрын
Thank you KM. If you are based in Australia, please contact us on our HelpLine: 1300 394 636 or email to support@fragilex.org.au
@amareromano4713
@amareromano4713 Жыл бұрын
Please beware that since a lot of us can't detox well, we have a lot of negative reactions to medication. She is brilliant, but I have to disagree with pushing ssris. I had a pharmaceutical genetic panel ran and it said that with my genetics ssris as well as most psychiatric drugs are contraindicated. I have many other genetics that say I don't detox well, so I have to use natural approaches as much as possible. I have a feeling that's most of us, and sadly they think they have found something to help us with the ssris, but once again it can be made worse if you can't detox it and end up with serotonin syndrome.
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