The Khoury Family from Sydney, Australia shares their story with the help of Dr. Elma Palmer and others from Sydney Children's Hospital
Пікірлер: 31
@markharrisllb11 ай бұрын
Right at the beginning when Mum is describing Gabby's personality Watch Dad’s smile. No matter what challenges a little one faces, a proud loving parent is a proud loving parent.
@beverlyblanks714811 ай бұрын
Loving family .. beautiful daughter!!
@calamitypip10664 ай бұрын
I have worked with a young woman with Kleefstra syndrome, an incredible, person who lights up the room. We all love her so much and she has many many capabilities and can be sharp as a tack.
@baharam9811 ай бұрын
What a truly beautiful girl. God bless you and protect you and your beautiful family with love.
@RomayPM11 ай бұрын
God bless this loving family ❤❤❤
@porshemaysonet15403 ай бұрын
My daughter was just diagnosed with Kleefstra syndrome yesterday thank you for this video.
@kikifaison359411 ай бұрын
She's such a cutie pie.
@saracorcho3205 Жыл бұрын
hermoso testimonio. yo tengo una niña con SK y puedo decir que a ella le afecto muchísimo pero con la perseverancia y amor de la familia la hemos podido sacar adelante, ella fue diagnosticada a los 9 años pero ya habíamos hecho mucho trabajo con ella, ahora tiene 14 y va al colegio ,es independiente y hasta tiene un emprendimiento de repostería. somos de Colombia, sur américa.
@deliriousgoat11 ай бұрын
What an amazing family ❤
@peggymcd493911 ай бұрын
⭐️🩵🙏🏼🙂 wonderful care ‼️
@leondavis-xf3wl Жыл бұрын
My daughter is 3 years old and also has Kleefstra syndrome. She started walking just over 2 without any therapy just at home we are working on her speech now their amazing xxz
@WooWoo-co4jf Жыл бұрын
Well done, that's lovely to read :)
@pedrobarca15 Жыл бұрын
Beautiful!!!
@JimmiAlli Жыл бұрын
Gorgeous family ❤
@LectronCircuits10 ай бұрын
She's very cute. Cheers!
@marlenecesarotti8468 Жыл бұрын
great doc
@anitamagno Жыл бұрын
💜meine Tochter hat auch KS wir kommen aus Deutschland 🇩🇪
@claudiasebas306710 ай бұрын
❤❤❤❤🙌
@tiffanytyson98311 ай бұрын
My baby boy was just diagnosed with Kleefstra Syndrome and I am trying to reach out to anyone who can give me some guidance please. He will be 2 on August 25th and his name is Dayce
@lmnopgr11 ай бұрын
@tiffanytyson983 do you live in the U.S.? have you connected with resources?
@glendafield979711 ай бұрын
Keep searching and knocking on doors. Soon enough the right door will open. All the best to you.
@tiffanytyson98311 ай бұрын
Yes I am in the U.S
@tiffanytyson98311 ай бұрын
Have not been able to connect to any resources
@flenzy11 ай бұрын
You might be able to contact St. Jude's Children's Hospital. They are amazing. They could certainly point you in the right direction if they couldn't themselves help your sweet boy.
@virtusleather Жыл бұрын
💜💜💜
@Monjagetitonya11 ай бұрын
I’m wondering if FMT (fecal microbiota transplant) could help!
@isabellecoeur1829Ай бұрын
Could you elaborate on this further? That’d be amazing 😇😊