GASTROPARESIS AWARENESS MONTH!!! My Story

[@oliverlikescats4736]

every month is gp awareness month when you have gp

[@pamelanovelli1239]

amen Oliver Likes Cats I have it hate it daily pain n suffering;( UGH:( 40 percent of patients with GP can not tolerate the reglan and I am one of them:( I wished they could resolve this GP issue for all of us that suffer from it:)

[@JRMorris]

Boy howdy...

[@judykegin3650]

@@JRMorris n

[@judykegin3650]

@@JRMorris :

[@MissaLVT]

Thank you for sharing your story! I was just diagnosed with Gastroparesis, Gastritis, an Esophageal ulcer and the beginning stages of Diverticulitis. They also reconfirmed my diagnoses of IBS and GERD. These diagnoses are on top of my already very long list of other chronic illnesses. If we could find a cure for just ONE of my chronic illnesses that'd be AMAZING!! Keep hangin' in there and don't ever give up! Praying for you and for a cure!

[@bonitawauls6274]

MissaVT. I sure understand one bad diagnosis after another and after my Pancreatic cancer, breast cancer 20 yrs ago. You will be on my prayer list every day. I pray WHY but pray for the stamina not to scream in pain and anguish at some of the Duh-Doctors who are not on the ball, look at me like,She lived a long life. Bye---look" I get. Feel better please. Love and a Cyber hug to all.

[@jacquelinesmith-jackson2815]

It seems the Gastroparesis gene is growing daily......... unfortunately in Missouri no one was able to diagnose me or help me.

[@SusiOfficial]

You are so smart and pretty and I am really sorry life decided to be tough on you. Keep being awesome :-)

[@jacquelinesmith-jackson2815]

SusiOffical Someone needs to let Mickey know Gastroparesis comes from T1D. Honestly I am not a doctor but yes I am smart enough to be one. If gastroparesis comes out of nowhere it is weird. Sometimes...... these diseases do come out of nowhere. 😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱 I hope with all my heart Mickey gets the help she needs and my name is Jacqueline and I was born at 24 weeks early........ I have the same tragic as she does and I have never been diagnosed or treated. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 It is sad because the doctors in Missouri........ well most of them are ignorant Jehovah's Witnesses. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 Jehovah's Witnesses wouldn't treat anyone with disabilities and they would turn a disabled persons life into hell. Every rare disease that someone thinks about everyday it's growing.......... people say let's just kill these children or disabled adults.

[@sheilareynolds3755]

you are SO knowledgeable about your diseases! You are also very articulate for a 16 yo...very impressive!

[@123cupcakekitty]

Hey there!! I was recently diagnosed with gastroparesis after struggling with the symptoms for about 3 years without the doctors being able to figure out my condition. I was on homebound for a majority of this time. I was lucky enough to finally find the gastroenterologist that could diagnose me. I just wanted to thank you for making these videos. Most people have never heard of this condition and I'm just extremely grateful that there are people like you in this world to help spread the awareness!

[@LifewithStripes]

I'm so glad you finally found a doctor that could give you answers :)

[@beanandmaybeanandmay6061]

What were the symptoms?

[@ritaberil7455]

Hi Ashley! I will be praying for you and every gastroparesis patient! God knows your pain and struggle, trust me. He loves us regardless of how we might feel about Him. I have suffered with unknown GI condition for 9 months now. Every other week a trip to ER, have seen every possible doctor, my anxiety and depression caused by thoughts of hopelessness and impending doom were out of control. Seeing me doctors would just say I have anxiety problems and put me on meds, but I knew something happened in March in my body that caused all of this problems. I am not going to give up because I am a single mom and my son needs me. I insisted on second opinion from a different GI and waiting for that appointment in a few weeks. For right now, I'm almost 100% sure I have gastroparesis and got myself on a liquid, puree- kind of diet. When I get flared, I almost cannot breathe at all which causes severe panick attacks. The breathing became the major thing that at times drives me totally nutts, but there are episodes when it gets so much worse that I even start thinking of taking my life. It's only Jesus who carries me through this trial because no doctor or human understands what I am going through! If you have any tips on diet or lifestyle, please share. God bless all of you who suffers from this debilitating, merciless, and disabling condition. You are never alone! Reach out for help, don't walk this journey on your own.

[@raelenechacon794]

you are a very pretty girl, Stay Strong !! My name is Raelene, I was diagnosed with Gastropareses last month in January 2019, after almost 1 yr. of not being able to eat anything for about 6 months. I went from 165 lbs. to 97 lbs...Suffering Soo Much Is NO FUN !!! Still waiting to find out why this happened to me at 48 yrs. old ? I've had stomach problems since I was a little girl. You have to be VERRY STRONG IN The MIND to get through something like this if you want to live. It's SOOOO very Hard Keep your head up and keep praying. Good Luck !!!

[@FunkyyB]

Idk if you will read this but I just wanted to say that I pray in Jesus name for you to be healed and see nothing but progress in your health. As someone whose life has been attacked by the devil with stomach issues too but you joy and smile has encouraged me. Be blessed!

[@theresalynn3633]

I’ve been watching many different GP videos as I’ve had the symptoms of GP since October 2018 and I don’t have an official GP diagnosis as I need to get a Gastric emptying study still but I’ve just been in pain for months and the nausea is constant....Zofran only helps take the edge off...but I will be surprised if I don’t have GP as Eating has been a nightmare for months now the pain and nausea is almost intolerable! Thanks for sharing your story! At first I thought all these symptoms were all in My head and I was going crazy as nobody seems to have any Idea but I found a GI that is really good. I’m just glad to know if it is GP I’m not alone and I’m not losing My mind that there is a reason for all My symptoms! I know you filmed this a few years ago but still thanks for sharing your story!

[@justanothertypicalartist3884]

@@cataline1274 I've recently had my symptoms that align with Gastroparesis become even more severe than they've ever been. Even though you didn't throw up from it at the time you wrote this, did you get a diagnosis for it? And if so, what were your treatment options, if you don't mind. I know not every Gastroparesis patients vomits, but I feel so hopeless because I don't. I almost feel like I'm not sick enough for people to care even tho the pain, nausea, feeling like I'm going to/need to throw up, pressure, and cramping are miserable. I have a GI appointment, but I'm just scared they won't believe me😅

[@justanothertypicalartist3884]

@@cataline1274 I'm so glad you were able to get your diagnoses and finally find treatments that worked for you!! That's so wonderful to hear! God, you had a really rough go with GP and CIPO. So glad to hear you're receiving the proper treatments for them. I just feel so hopeless and have been lead to believe that it's all in my head. So to hear someone else struggle the way I am gives me hope that something can be done for me and reassurance that I'm not making it up (even tho I know I'm not). I hope I get some answers and treatments as well. I've reached a point where I'm not able to do it on my own anymore. I can't just suck it up and push through like I used to, even tho that was always barely doable anyways. And thank you for being so detailed about your treatments and what you went through, it was really helpful to hear!! I'll definitely follow you on instagram! My instagram is @annah.h__

[@nicoleruth6680]

This video was posted on my birthday and I was diagnosed with GP recently even though I’ve been sick and unable to eat what I want for 6 years. This feels like a sign. Thank you so much for showing me I’m not alone 💕

[@Yeshuasdaughter888]

Just thought I share this tid-bit of information that I have learned from having to be my own health advocate for the past 30 years of my life and all the health issues I've had really since I was about 6 years old I have suffered most of my life with so many health problems. It all seemed to have started when I was 6 and came down with Spinal Meningitis . So through countless hours of praying, seeking the Lord Jesus, and doing an absolute cargo size ofi

[@AmbutuMalone]

God bless you! My sister-in-law was just diagnosed after several months of pain and agony and about 40 ER vists that included 1 week stays. She’s malnourished and lost over 49 lbs. this video is very helpful and gives hope.

[@shawnmccormick5720]

Thanks for sharing! I have gp, sphincter of oddi, espohigitis, gastritis, pots, cystic fibrosis carrier, pylori, spoonie, ibs, gerd, ,severe acute pancreatitic attacks which has led to chronic pancreatitis & my pancreas is burnt out so it doesn't produce enzymes anymore. M constantly nauseated & m prescribed zofran, phenergan & scopolamine patches & none of it helps! Also 1 yr ago I died from the wiowmaker heart attack right before my 47th bday. Your strength is amazing, keep shining & don't ever give up!

[@candacemichelle8345]

My moms cousin just got diagnosed with this.. So I’ve been looking it up to do more research so I can have a little more empathy for her 💚

[@metheanimallover]

I have a lot of these similar symptoms, I've always had stomach issues and for the last 2-3 weeks I puke, dry heave, get severe nausea, and have acid reflux after eating literally anything. It's absolutely awful, even after eating a small bowl of cereal today, I was retching and had to lie down for literally 2 hours because I was so nauseous and kept dry heaving. I do have many symptoms of POTS and hEDS but haven't been diagnosed. It's so hard because I feel so hungry and I want to eat (even though I get full or sick after a few bites) but I know that if I do, I'll be recovering from a small meal for hours and it just doesnt seem worth it. I want to see a GI doctor I'm just terrified that they will tell me that nothing is wrong or nothing will show up on tests. I dont know what to do 😔

[@laciebrackett2315]

Yes you sound like u have gastroparesis I have same symptoms I been diagnosed with severe gastroparesis my belly only emptied 30% in 4 hr I have a lot of pain from it to so bad I can’t breath.

[@madison8568]

They use Domperidone in pediatric patients. You are 16 anyway so two years won't make much of a difference, it is worth a try if you can get off tube feeds potentially or at least decrease your needs for tube feeds (Meaning less time being hooked up to a feeding pump). I also have EDS and Gastropareis but my motility issues are a way more widespread and severe. I am 18 and I have Ehlers-Danlos, Dysautonomia , Hypothyroidism, Central Adrenal Insufficiency, Widespread Joint Instability, Scoliosis, Chronic Pain, Low Vit D, Raynauds Syndrome, Colonic Inertia, Small Intestinal Dysmotility, Gastroparesis, Small Intestinal Bacterial Overgrowth, Pancreatic Insuffiencey, and Esophageal Spasms. So no matter what we fix my motility issues are so widespread that I will probably always need a form of nutritional support. These issues have significantly altered my life to the point where I am reliant of over 20 medication, braces, tube feedings, and now TPN (also known as IV nutrition) to get me through the day. I am currently 100% dependent on 2.5 liters of TPN for my nutrition and hydration and I have been on TPN for a bit over 3 months now. One of the benefits for me is that I have been getting 2.5 liters of IV fluids each day so my Dysautonomic symptoms have improved. I had an NJ tube for 7 months from January 2017 to the end of July 2017 and it was taken out because my nose and throat could no longer handle the irritation. The current plan is for me to get a permanent feeding tube in hopes of getting of TPN or at least less dependent on TPN. My EDS started with dislocations and now I dislocate and sublux over 150+ times a day and I have chronically dislocated joints. Then I started having heart issues and Dysautonomic issues and hormone problems. Then lastly GI issues which have been ruling my life for the past 8 months now. When I first diagnosed with EDS I never anticipated how bad it was going to get for me, I thought I can deal with dislocations but then the heart issues started and hormonal issues. Which lead to my first hospitalization, I was able to only be in the hospital once a year for a week at a time up until this year. When my GI issues started I could still eat not comfortably but I could eat at least, my GI issues spiraled out of control at the beginning of this year and I was hospitalized in the first week of January, I had quite a few good months on my NJ tube then I had surgery which further triggered my GI system and now I have been hospitalized a total of 4 times this year adding up to 37 days already. A year ago I was considered the worst effected patients almost all of my doctors had ever seen by EDS, they had seen other patients before but with much milder involvement. I wonder what they would consider me now considering how much I have gone down hill. Also just something to say is that the amount of gastric delay usually doesn't effect how symptomatic you are, even just a tiny bit of delay can cause severe symptoms.

[@kaltosoprenos3838]

Madison wow that's a lot of writing

[@kaltosoprenos3838]

But very informative

[@margueritedaltoso7186]

I’m so proud of you young lady. You are an inspiration to all of us out here who have the same thing. You might ask your doctor about Probiotics. I take one every morning and I can eat a lot of different food. It has really helped me live a pretty normal life. I hope it is something that will work for you too. God Bless You. You are so strong and beautiful and courageous.

[@janew3725]

Good job showing people what GP is like. I have GP and CIIPO which is the added complexity of constant bowel obstructions. Think of it like full digestive paralysis. I have found it's all about attitude. Some days are better than others and some days I handle it better than others. I always think of this, "If everyone had to put all their problems in a pile, and each person got to select a new one from the pile, they'd probably take their original one back!" I can think of a whole lot of them that are much worse! Hang in there!

[@الإيمانبالله-ض7ش]

Peace, I am from Morocco, I have intestinal paralysis, I lost a lot of weight, I always feel full and heavy, I visited more than one doctor and could not find a cardio device suitable for me

[@_randomtrashpanda_9635]

I have gp as a complication of my type 1 diabetes. My dietitian is encouraging me to eat more frequently and eat a diet low in carbs, fat, and sodium. It seems like everything is now hurting my stomach. I wouldn't eat if I didn't have to worry about lows. I get bad heartburn. I'm on reglan right now and have to get an endoscopy done in the near future but you are right about the nausea, vomiting, abdominal pain, and bloating.

[@katherinemacdonald1551]

I also have gp from having type 1 diabetes...35 years. I've been eating homemade soup every day and my symptoms have really improved

[@brittanyjackman103]

I cant even imagine what you are going through, i have the diagnosis too, and it is extremly difficult you must be oretty special to have recieved this. Been in and out of hospitals fir 6 years and it is hard but hang in there!

[@baconegggandcheese]

no one should live like this! your courage and strength inspires me.

[@sandraflores2914]

I went down 30lbs after 3weeks of not being able to eat and keep things down. I decided to go on Intermittent fasting keeping away from food that bloats me and so far so good 🤞. I try not to drink anything other then water to leave room for food also taking supplements.

[@kimberlyschultz1565]

I have been watching your videos for a long time. I'm hoping this year's GP awareness videos will be more helpful for all GP warriors! Love and Light to you💚🤢

[@mymultiplelife]

I was just diagnosed with severe gastroparesis on Friday. At the end of the four hours, I had 82% food left in my stomach. Thank you for this video.

[@Ladypuppy510]

my multiple life I just did the test. Ended with a 87% retention rate.

[@cac7549]

You are so pretty and young and you are suffering from this disease. It is heart breaking. I do hope there is a cure.

[@chronicallyfearless9655]

I didn't know you guys couldn't get domperidone in the States! It has made a huge difference for my GP... Also, your story is a lot like mine... I used to vomit upwards of 100x a day at my worst... 😔

[@peterchen8046]

Thank you for sharing your story! hope things get better!

[@bethpage6696]

This disease is life changing. I've had severe GP for a year now. I'm 93 pounds, have trouble swallowing. I don't know if the doctor will order a tube or not next week, I'm so malnourished

[@jackclj]

Looks like I've finally found what I have... thanks for sharing your story!

[@bonitawauls6274]

You are so UP and sweet smile, well informed, too.

[@NatoyaMBrown-zr8ek]

Just been diagnosed with Gastroparesis😢😭 I Love Food

[@kimhyejuo]

METOO BEFORE 5YEARS

[@sheagoff6009]

Have you ever considered Botox injections in your stomach? I’ve had two injections done within the last year. It really helps and my symptoms are almost non existent. I have to go to Cincinnati to do it but it’s worth the travel. I know it doesn’t work for everyone but it’s something to consider.

[@Random-yy1ub]

I have gastroparesis and it's exactly like yours i have lost over 40 pounds and not getting the amount of food or liquid in me a feeding tube is definitely a good choice but out of all the doctors i have been to none think my gastroparesis is bad enough for a feeding tube so everyday is such a struggle cause no one will give me the help i need

[@Celticmoon007]

Thank you for sharing your story of living with Gastroparesis. Your video explained what Gastroparesis is with crystal clarity and helped me better understand my disease because I am still relatively new to GP. I was diagnosed in the middle of 2018. I agree Gastroparesis Awareness month should be every single month of the year, we need more research done to find that cure to GP. Again thank you so much for sharing your story, you are definitely raising awareness to this awful illness and have taught me more about it. Take care and God bless!

[@curtisbemis6640]

I just got diagnosed with garstroparisis and ur videos help me understand a lot thanks for making these videos !!!

[@heatherschaeffer4579]

Great, post. I never new what was wrong f years w me. I had issues w gas, bloating, and weight gain f years over food. I was in multiple sports always active ate healthy and no matter what I looked pregnant like 5 to 10 months after meals especially pizza, rice, and pasta. And, went to the er f not going to the bathroom in 2 weeks. IMy diet consist of fruits and vegetables which gives gas. Although, meats and grains block me up. I gain weight from any food every year I seem to get heavier. My mother her sister and my grandmother were all over 400 towards the end of their lives. I am 44 and 184 after 4 children 3 csections inwhich made my stomach issues 6 x worst. I now use a hot water enima bag, laxitive tea, calm, and complete plant based diet. Some, days are better then others, but if i eat like a normal person or too late at night I will look like I am having twins and will hurt like labor pains. I seen a gi dr had colon oscopies y have leaky gut docters would say, and eat more vegetables. My diet consists of vegetables, I excersice dance, run, skate, bike, and swim and I am still obese. I excersice 3 times a day and cut my own lawn.The amount of physical activity I do I should be 90 pounds Question, what. docter should I go to w my stomach issues I am not a diabetic or have any health issues other then what i discussed.

[@paulaparkman5127]

Awe, you are so young and beautiful bless your heart ❤️. I just got diagnosed a few days ago at 43. I’m just starting to learn.

[@beanandmaybeanandmay6061]

Hey what were your symptoms ? I've felt sick on and off for 6 weeks , I'm worried I might have this x

[@bonitawauls6274]

I got Domperidome from Canada, also but it did not help. I get dehydrated easily and am so depressed by now from the vomiting and pain, constipation that I am ready to die. You look great, by the way! The tube you have, does it help well? Is this my future, as well? I might have some hope, huh?

[@awinkie12]

thanks for your video! Love your channel! I have gastroparesis as well as other chronic illnesses and just started a vlog too

[@michimelody4036]

Yet again, here I am back at your videos watching you because my drs are looking at me for gastroparesis now. GO FIGURE! Before it is was EDS (which I've got a working diagnosis of hEDS now so I'm half zebra) and I've got POTS too.

[@marlomichaels473]

They think I might have GP, I’m trying to get in with a GI doc about it so I haven’t had a GES yet. I have most of the symptoms and it’s getting really bad (only tolerating liquids right now and I legit collapsed today). I don’t have as many issues with actually vomiting as most people seem to? If I do it’s usually puking in my mouth really frequently (not reflux) but never really vomiting? But the nausea and early fullness and oh my god the stomach cramps are horrible. Plus when I do puke it’s foods that I ate at least 5 or 6 hours prior. I’m just worried that a doc won’t take it seriously if I’m not puking everywhere? Does regular vomiting (more than just puking in your mouth) have to be an issue for it so actually be considered? I didn’t think it would but all the people with GP i’ve talked to said that their main issue was vomiting... I haven’t been able to handle more than 500 cal max every day for the past week now and I’m handling less and less each day. It’s making my POTS sooo hard to deal with

[@bethanyshort5932]

I am the exact same way!! I have unbearable cramps and pain. and i am always nasoeus. my sister has gp, so I should really get tested.

[@crystal3897]

Have you found anything out? I’m having the same issues and wanted to see if you’ve gotten help

[@DancerBabeBallet]

Marlo Michaels if you’re vomiting in your mouth, that’s usually considered just normal vomiting...

[@bonitawauls6274]

Tell me please how Botox could help? I am furious right now with my doctors who have never had this talk with me. You....you are the one who have been the special one who explained this to me. Thank you, my Angel. You are an Angel! We WILL get a cure!!! We will. And, you and I will have lunch together! Thank you!!

[@dawnwheatcroft6964]

Great job! On this video...sharing 😉

[@lindacassell5472]

I just found out about three weeks ago after being sick for so long that I have Gastro paresis I haven’t been able to go back to work I have about $230 in my checking account I don’t know how I’m gonna pay my bills feed myself not that I eat and I feel your pain I just picked up five prescriptions from the pharmacy today so hopefully one of them works and makes me feel better

[@kimhyejuo]

I have to gastroparesis too for 6years it so terrible and painful but i try to overcome I M OVERCOMING IT WITH MY DIET.

[@margueritedaltoso7186]

You are a beautiful and courageous young girl. I have it too and I take a Probiotic capsule every morning before breakfast and it has truly helped me. I can eat a lot of things and maintaining my weight. I would like to suggest you talk to your doctor about Probiotics. I hope they work for you. They work for me. God Bless You. Marguerite Daltoso

[@shanicemorris8886]

Hello I’ve been having stomach problems for a while and it’s always been put down to IBS or anxiety. I get really bad bloating, stomach cramps and stabbing pains. I empty my bowels every 3-5 days and it super painful and there is some bleeding. I can’t eat big meals and if I do I get pain and bloating. I feel full quickly which I think stops me from eating as much, but I have to force myself to eat because I have had a past of anorexia, but some days I just don’t think I can eat. I don’t throw up. I also think I have PoTS because I have increased heart rate, shortness of breath, dizziness, shaking, and it goes on. Could I possibly have these and is it possible that they can link ? I just need someone to actually take me seriously xxxx

[@SamirCCat]

This is EXACTLY my position. No one takes me seriously, a past of anorexia and orthistatic symptoms. I'm so tired of people saying it's heartburn and that it's better with low blood pressure than high and grin idiotically! Is it as good to have constant tachycardia while standing and your lowest pressure when exercising?? I don't vomit either, and I eat normally. My past anorexia prevents me from NOT eating, so I have no choice. But definitely ajusting meassures and what kind of food depending on my stomach. Right now I have sharp pain in my lower stomach and bloated and uncomfortable. But I'm so used to it I hardly even notice. My life has been like this the latest 5 years, and I just think I ate too much and that's where my problems come from, but even when I drink water I get symptoms, and that can't be normal, can it??

[@brisea1028]

Thank you so much for sharing, I was diagnosed with severe Gastroparesis on AUgust 22nd this year and I have been faithfully watching your videos to learn more about everything. I would love love love if you would be willing to let me visit and chat with you. I am kinda lost with everything thats going on with me ..

[@LifewithStripes]

Brittley Sealy of course! I think our moms exchanged our info and we gave her my number. Please feel free to text me, I would love to talk to you!

[@YaYaPaBla]

I just went in for my scans today. Now to wait for results.

[@CardinalGrad]

Great video! My daughter diagnosed 9-11-19 with GP

[@bonitawauls6274]

Thank you, sweetheart. I have slow emptying and because I got a bolus of for stuck in my esophagus, they could not complete the test.

[@rashmisrivastava2096]

God bless you, my daughter having same problem she is diagnosed EDS

[@Bluejoseph5546]

I have gastroparesis for like 3years already and i dint even know just in when im feeling alot of the symptoms like bloated nausea vomiting i try to google this symptoms the boom i just unlock the knowledge that i have gastroparesis like the 7 symptoms is all im having that time then i wanna consult doctor but like 3 months ago the covid start what did i do is change my diet i search food that i can eat for having gastroparesis and since then i think im doing fine im not feeling anything like in the past

[@ynwchico2874]

I have gastroparsies and my stomach is half way paralyzed already so I only go to school half days

[@yooyoons3895]

i know this is super old but do you ever just chew on food so you can taste it? but just not swallow it?

[@chrisnewton2325]

My heart goes out to you

[@StonyBrookSurgery]

Just to echo SusiOfficial: "You are so smart and pretty and I am really sorry life decided to be tough on you. Keep being awesome :-)" The Gastroparesis Center at Stony Brook Medicine on Long Island is helping!

[@22QXX112]

I just got diagnosed this week. Got some questions from the community

[@laciebrackett2315]

I have a question I finally got diagnosed with severe gastroparesis I get bad pain in my stomach but also my lower left abdomen hurts really bad too sharp burning pain too. Do u have this too or does anyone

[@mariasaucedo2527]

Hi i was diagnosed with gastroparesis Feb.of this yr but some people have told me that gastroparesis is a cancer is that true I've lost 35lbs already i hardly eat anymore cause the doperidone pills cause me too always have diareah and when my food does stay in my stomach i start throwing up

[@aurorabalouchhukkelberg9252]

Omg u have a dimple that’s so cute

[@bethanyshort5932]

my sister has gp and when she was 14 she was so close to dying. idk how but they had her on domperidon. she is 16 now and doing much better, she is having a baby boy in december!!! but i am very worried because I am almost 14 and i have started to get these symptoms for about a month now. I am always extremely nasoeus and cant eat most of the time

[@bethanyd2046]

The issue is that certain parties like specialists, big pharma, insurance companies, governmental agencies, etc are all profiting off of our illnesses. This is why it is important to get politically involved.

[@MrArtbyart]

Ty

[@melissavidal2600]

Thank you for sharing

[@rachelswensen8269]

Love you💚

[@ShontelleScott]

Thank you for sharing your story! ❤️

[@aarongonzales4194]

Shontelle Scott thank both of you for giving me hope and letting me know I'm not alone!

[@gloriarhine9450]

Have you tried phengren it is the only neasua med that works for me.

[@michellemitchell6494]

Hi. I have had gastroparesis for about 10 plus years. In the last 2 years it’s got so much worse I have done Botox it was absolutely pointless. I have been on meds for it and they no longer work. Last June I got the gastric stimulater which worked a little I felt better for a while but then I was sick again. Now I have a gtube for emtying I can still eat some foods. But the tube is bring my self esteem down I don’t want to go anywhere do anything I have no energy to do anything. I have been reading about the gastric bypas. Good and bad things about it. My main concern is that I will lose to much weight and there is only a 50/50 chance that this can work. And that I will now become anemic. I have been watching a lot of videos about Gastroparesis. And I’m so confused

[@dannadanettevlogs3506]

Hello

[@katherinebrenner7377]

Domperidone didn’t work for me, so you probably didn’t miss out on much :/

[@arthurmorales6359]

So young I'm 62 I guess I should be happy

[@chaelao.4321]

having my test Monday

[@leeeaton9259]

I have a Gastroparesis test cause my doctor sent me to get the tube in my mouth to see what wrong but not much came to that but a pump in my throat and belly

[@jeffhkingh6761]

I haven't vomiting daily always paying I have ibsd all the medicines that help with the casual frenesis make me constipated I start vomiting more it's hard for me to eat anything I have no appetite sick to my stomach all the time I'm prescribed things I'm in and out of the ER Plus I get infusions for buster headaches I have home oxygen numerous shots and medications very sick constantly trying to get help from whatever doctor that will help me some relief is laying down and taking meds other relief that's watching diet otherwise I'm in miserable pain vomiting all the time and unable to use the bathroom

[@asiaslife8045]

did you have this as a baby?

[@sammymorelli6233]

I’m 12 and I have had GP since I was 7 and you are so inspiring

[@IdkIdk-gw3qo]

how are you now?

[@sherritrella5283]

I was diagnosed with gastroparesis in 2015 .

[@edwinkeytin4242]

Does gastroperesis cause chest pain?

[@Maharlikangdukalpa]

Yes ..and despnea also

[@callahclan7456]

Wonder why this seems to be so prevelent?

[@lacihierholzer3645]

I eat corn and it will come out literally 4 days later

[@nkadimashiane]

Stem cell therapy only possible cure for gastroperesis I've been able to find after extensive research.

[@urospeteh2637]

You are so knowledgeable, thanks.

[@الإيمانبالله-ض7ش]

Peace, I am from Morocco, I have intestinal paralysis, I lost a lot of weight, I always feel full and heavy, I visited more than one doctor and could not find a cardio device suitable for me

[@nkadimashiane]

@@الإيمانبالله-ض7ش Peace, sorry to hear about your condition. I have done so much research on this and the only hope now after so many promising treatments failed is stem cell therapy. This is the one I can say research and focus on. Google can stem cell therapy cure gastroperesis. Good Luck

[@الإيمانبالله-ض7ش]

@@nkadimashiane Where can I transplant stem cells

[@nkadimashiane]

Well bioxcellerator in Collumbia or Reelabs in India to save a pretty penny for the same treatment. They are more clinics of course but these are the two I can confirm are good.

[@aurorabalouchhukkelberg9252]

What really only 4 hours?? I throw up food from like breakfast after eating dinner

[@girrl88]

The study is a small amount of soft food mixed with radioactive material. They gave me some eggs which seems to be pretty standard, I imagine eggs would pass through the stomach pretty easily. But the eggs were powdered and without any seasoning. So nasty. I threw up halfway through eating and had to tap out but sure enough, 4 hours later and there were still radioactive eggs in my stomach. An actual episode is a horse of a different color.

[@aurorabalouchhukkelberg9252]

girrl88 lol I’m allergic to eggs But u ate radioactive eggs I would throw up just having that stuff in my mouth

[@girrl88]

@@aurorabalouchhukkelberg9252 It was pretty awful. I managed to get some down then threw up. Had to stop to take a zofran. Then I ate maybe 2-3 spoonfuls before I had to stop. I've always liked eggs but it's been over a year and I sometimes still get grossed out when I see scrambled eggs. But my doctors needed to be sure about what was going on and this is an easy and accurate way to prove if the stomach is emptying too slowly. I somehow found a way to force myself through the test. I figured that if I got sick and spoiled the test I'd just get sent back again and again until my insurance approved that pill that you swallow that electronically tracks where it is in the digestive system - but my insurance sucks and there's no telling how many times I would have had to eat the eggs again.

[@mayachadi7552]

You're beautiful

[@mayachadi7552]

I love you

[@toniprice4394]

i have it bad not fun

[@line-zh5lr]

im 17 and did domperidone when i was 16