Gastroparesis (dysmotility) and Enemas

MissNikkiAnn shows viewers the old-fashioned hot water bottle enema.
IMPORTANT UPDATE (as of 9/1/2013):
Enemas stopped working for me overtime. Yes! even the docs (my G.I. and my primary both tried), nurses (my in-patient infusion nurse ), and TWO emergency rooms couldn't get it out because the colon would constrict and prevent anything from passing). We were at a loss.
But...it just so happened that I was also having bladder issues. I was peeing on myself (no sensation to go) and my Urogynocologist prescribed Urodynamics testing (twice) to see what was wrong. I was NOT peeing on myself, per se. Instead, my bladder was ALWAYS full, so the pee was spillage from the bladder being over-full. I could not pee for anything, and I did not have the urge to pee. So he prescribed catheters and then Medtronic InterStim implants.
After the implant surgery, my lower colon and rectum began to function. Not my bladder! But my lower colon and rectum. So it fixed one problem but not the other. The device is designed to help the bladder and not the colon, so my Urogyno and Gastro docs were amazed. Please note that the devices do not help my stomach, so I still have the Gastroparesis. (Side note: There is an implant designed to help the stomach, but I do not have that device and my Gastro and I have decided to wait on trying it).
My bigger point is that if you have multiple and progressive dysautonomias, what once worked (via whatever method or meds) could stop working at some point--and that's what keeps happening to me.
For those who have reached the enemas-and medications-don't-work-anymore point and would like to know more about how my docs and I randomly stumbled upon a non-traditional treatment (InterStim), I will post some links below.
Please note that I still take meds to help with my Gastroparesis (which is seen as a separate issue from my lower colon, rectum and pelvic floor dysfunctions). The list of meds:
--Amitiza
--Cytotec/Misoprostol
--Noroxin (an antibiotic to help with the overabundance of bacteria that stems from the Gastroparesis)
--Zantac (for the mast cell disorder portion of the Gastroparesis issue)
Finally, here's the link to the KZbin videos I made about my Medtronic InterStim implants:
(Part 1 of 2) • Update and Interstim b...
(Part 2 of 2) • Update and Interstim b...
And the link to Medtronic's "About InterStim" page:
www.medtronic.c...

[@michellesunday1880]

Thank you for sharing your experience. I have s

[@missnikkiann]

Thank you.

[@SaleemJouney]

u r an angel from above....can't thank you enough for this info...

[@michellesunday1880]

Am very interested in your next video. Hopefully you will find a solution.

[@TheNeptunePisces83]

Doing enemas is good for constipation.

[@ladygirl99]

Hi Nikki, Hope you are feeling better this wonderful Sunday, Praying for you godbless.

[@postboredom2333]

Much as I hate to see such a clearly wonderful person suffering with these anomalies. Your candor is very much appreciated! I was going to suggest the squatty potty, though after reading the comments I see your symptoms have progressed beyond that point. I hope the new accessories are benefiting you. Best wishes!

[@marieked]

I take colace, senikot, and a suppository every day. Lactulose every 3-5 days if I don't go at all... These days I don't go unless I use lactulose. Ps: you remind me so much of my friend janel!

[@chuckschams1756]

Thank you very, very much. Been there unfortunately. Nice to share our struggles.

[@eyetech1975]

I have struggled for four years now with going weeks at a time without going. Doctors throwing all sorts of med at me. I'm going now to go pick one up. I love you! Drop it like it's POTS! Meg's

[@missnikkiann]

🤣🩷🙏🏾

[@missnikkiann]

@ironbith Hi Dayna! I hope Saturday is treating you well.

[@IronBitch-SapphireandIron]

~waves~ Hi Nikki!

[@missnikkiann]

Hi Meg! And yes, I will drop it like it's POTS! Sorry to hear about your pooping struggle. I just wanted you to know that over time the enemas stopped working. YES!!!! ENEMAS stopped working. I now have implants (one in each butt cheek) that I have remote and sync-able access to. My urogynocologist performed the surgery (because I needed catheters to pee!). Funny thing, though. The electrical implants are helping my lower bowel and rectum instead (not my stomach, though. nor urethra).

[@genapruitt]

Thank you so much! :)

[@missnikkiann]

+genapruitt You are most welcome.

[@andreleander2051]

how many cups of water In each one? Is it possible to put too much water up your colon? How long do you leave it in there before expelling?

[@zosorobo]

MissNikkiAnn! You need a colema board! 5 gallon bucket of water's worth of enema at a time. Everything goes down the toilet. You just lay back and reeeeelaaaaaaax! Google it! I bought the deluxe model. Worth every penny!

[@ProppahYisrael]

wow..how could you laugh...I had this for 4 years and can not smile its very painful vomiting nauseous... diarhea constipation sulphur burping...make a video flaring up ..so ppl will know how this really feel for us ppl with GP

[@lorissa69]

Thank you so very much I have the same problem it's just so high up in my intestines that I'm using Espinoza salts to flush it out but I'm so weak dehydrated and sick after words

[@jackiecole4508]

With gastroparesis we have to get the poop out, so a flush with epson salts every day is the answwer. I havent been diagnosed yet but im almost 95% positive with your same symptoms, so doing enemas once in a while, smaller meals and the salts. but probably will have to eventually go and get tested for the emptying tests, dont have very good insurance, will see.

[@April-t6z]

I had the emptying test 3 yrs ago. They gave me eggs, then put me in the tube and watched to see if my stomach emptied within 30 min. It didn't, so they said I had gastroparesis and life went on. No prescriptions, nothing. Ffwd to Oct 2019. They ordered upper egd to see how much worse my esophagitis is. It's been yrs since the last one, but this time I have a better doc. He said my stomach hadnt emptied in at least 3 days! He showed on the pics where each pile of food was from previous days. And he could tell I fasted the day before since he can tell older food from fresh. They never knew how bad it was since I was vomiting all the time before when they did egds. It was so bad I was in the er once or twice a month, for six years. But all that stopped from the meds these last couple years, at least the vomiting. So the gastroparesis has caused gerd, gastritis (inflammation of inner stomach lining), esophagitis, and acid reflux. For over ten years they misdiagnosed me and had me eating all the worse possible things for gp. High fiber, raw veggies, seeds and nuts, whole grain, all are off limits for me now. The food I can have isn't even worth it. Liquid is the only way to avoid pain so I live on broth, vanilla Carnation with almond milk, and sometimes eggs or rice crispies (the only cereal I can eat, since I can't have corn or whole grain besides rice) and I still have to use linzess 290, and fleet every day. I hope you find what is going on so you at least know what you can eat without doing more damage to yourself. If you've had your gall bladder out, if they nicked your vagus nerve, that will cause gp. I've also learned that taking ppi like Prilosec for years can cause gp, I hope this info helps!

[@missnikkiann]

@srvivngdyslogeibear Thank you! LOL. I use Arm & Hammer Peroxide and Extra Whitening toothpaste. *do you think Arm & Hammer will pay me for this endorsement? NOPE! LOL*

[@missnikkiann]

I am going to place a link to a video in which I address my Medtronic Interstim devices (one in each butt cheek). FYI: The links will be in the video description box above. I will also supply a link to the "company's" information about the devices. Again, the devices were supposed to help my bladder but helped my lower colon/rectum instead (to my Urogynocologist's and Gastroenterologist's surprise). So the InterStim site is mostly about the bladder since that's what it was designed for.

[@missnikkiann]

Okay, I've added the information and links to this post's description box. Please keep me updated on how you're doing. I host a video show and would love to have you on as a guest. Let me know if you'd be interested. Good luck!