getting my g-tube replaced, surgery + recovery vlog w chronic illness; pots & gastroparesis

  Рет қаралды 3,447

Lindsay Murray

Lindsay Murray

Күн бұрын

Today's video is a #chronicillnessvlog life vlog where I am getting my g-tube replaced. Including my surgery prep, recovery, experience, and more! #gastroparesisawareness #potsawareness #chronicillness #invisibledisabilities
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Disclaimer: This video is not sponsored. All opinions and actions are my own. Some links are affiliate links. This video is for educational purposes ; and to raise awareness for chronic illness/pots/gastroparesis/picc line life. Please consult with a doctor or nurse for medical advice.
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Пікірлер: 56
@EvaAntonia1
@EvaAntonia1 2 жыл бұрын
Aww, I love that Autuum just took the camera and updatetd us and Lindsay your edting face was the face I made as well while watching the clip
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
I love it tooo, seeing that when I was editing just makes my heart so warm, so so lucky to have her! Thank you! im glad it went well too! lots of love to you!! xoxo
@ashleyofnaath
@ashleyofnaath 2 жыл бұрын
Your editing face at 10:46 was my same face watching Autumn give her update. Aww😊! I LOVE how supportive she is. When she talked about administering your zofran so you didn't fall behind I got a bit choked up lol. You two are so sweet. I love it❤💙.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
So glad you enjoyed it!!! And yess omg that face makes me laugh every time! She’s the best 🥰❤️❤️✨ so much love to ya!!
@ashleyofnaath
@ashleyofnaath 2 жыл бұрын
@@ChronicallyLindsay You as well. Feel better soon💙.
@jodieanderson3305
@jodieanderson3305 2 жыл бұрын
Autumn is so sweet. I love how much she loves you and how much you love her. I hope your rate is better. I worry about you. I have fibromyalgia and CF and wheat sensitivity. I been having hard time since I broke and dislocated my ankle. Just few weeks before Christmas. I had surgery two days before Christmas. I am doing better still on crutches and in a boot now yay. I been so hurting everywhere. Your videos are so helpful I love how positive you are.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
She is the sweetest!! And thank you so much! I’m Glad to hear you are doing better now after your surgery! Sending you all the love and good energy and vibes!!! 💗💗
@highmater
@highmater 2 жыл бұрын
I find if im sitting for too long my heart rate can bounce around. POTS is so annoying. Can't walk, cant, stand but also have issues if Im just doing nothing all day. Autuum is so sweet. I love how excepting she is of you and your medical issues. What an amazing gf.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Glad im not the only one!! POTS really is so frustrating! and ikr she is truly the best i'm so lucky she makes me so happy!!
@oaklengallagher-armstrong7164
@oaklengallagher-armstrong7164 2 жыл бұрын
I have the high heart rate in inactivity too! As I type this laying in bed mine is reading 94 bpm. I dance at a competition tomorrow 😬😬😬. So glad this is my last year with my company because I know my body can’t handle another. Sending love to you Lindsay! Edit to add: I meet criteria for POTS but have yet to be formally diagnosed. Parental support is a great thing that sadly not everyone has available to them.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Good luck with your dance competition tomorrow!! Thank you for watching!! Sending you love as well! 💗✨
@jazzyjasmine4655
@jazzyjasmine4655 2 жыл бұрын
I just happen to find your content and can’t get enough I just have to say I’m very appreciative of you constantly making videos though out the years of your journey of life
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Thank you so much!! So glad you are enjoying my content!! 🥺😍❤️
@SassyWitch666
@SassyWitch666 2 жыл бұрын
Awe Luna is so cute. We have a Luna and she is only around 4 months old. She showed up on our doorstep when she was around 2 months old and was freezing and starving. She loves on me when my GP gets bad. She knows when I don't feel good and will sit on one side of me while our doggie, Rocky (Mountain Feist) sits on the other side. They're my "self-appointed" comfort and support crew.💚
@hannahbattersby7119
@hannahbattersby7119 2 жыл бұрын
Autumn's segment had me like 😭😍😭😍😭😍 my heart is so full! 🌸💟 Hope you are recovering okay from the procedures, the new tube looks so much more functional than your previous one! Hope it makes life a bit easier. I actually just got my gallbladder removed 3 weeks ago (being my unlucky self I had a bile leak which was no fun 😖) I hear you on the clumsiness! Ugh I fall / trip / drop things CONSTANTLY. Apparently it's an EDS thing. What joy! I'd love a walker like yours, I just have two walking sticks the physiotherapist gave me, but they hurt my hands to use (I always say to people that with EDS, there is no getting rid of pain, just moving it around 🥴) CAN WE JUST ALSO TALK ABOUT HOW PRECIOUS YOUR LUNA IS?! My Luna meows a lot too. Must be a Luna thing 😻🌛 I feel like I had more to say but brain foggggg abounds ☁️☁️☁️ You are amazing and your videos help me so much, with my chronic pain and conditions I don't get outside much, and generally just feel quite alone with everything, but your videos bring light, companionship, camaraderie, and hope into my world ☀️🌻
@kbsydney
@kbsydney 2 жыл бұрын
Literally tearing up when Autumn was on screen leaving you / us that message. My husband says the similar about me - but I still feel guilt because I’m not a “healthy wife”
@jazzyjasmine4655
@jazzyjasmine4655 2 жыл бұрын
. I am amazed by you. I am amazed by your courage, willpower, gifts and talents.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Thank you so much 🥺❤️❤️❤️ xoxoxo
@caseyslifewithcp3727
@caseyslifewithcp3727 2 жыл бұрын
put a ring on her finger lindsay lol but seriously she is so sweet
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
YOOOOOOOOO. Don’t read my mind 😱 but also hehe (stay tuned 🤫😉💍) you never know when it might be coming this year hehe
@caseyslifewithcp3727
@caseyslifewithcp3727 2 жыл бұрын
@@ChronicallyLindsay I seriously love your Channel
@teresagould6987
@teresagould6987 2 жыл бұрын
Only you could look so cute in pink boots and bling sunglasses 😎 on the way to hospital. You might be chronically ill my darling, but you are awesome 🤩 so sorry your going through more medical crap. As long as it helps you, then it’s ok lol 😂 take care honey xxx ❤
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
I LOVE THIS SO MUCH!!! you just made my day omg thank youu!!! sending you lots of love! you take care as well! :)
@teresagould6987
@teresagould6987 2 жыл бұрын
@@ChronicallyLindsay Good!! You deserve it flower 🌸 xxx
@leslies.massachusetts8966
@leslies.massachusetts8966 Жыл бұрын
Hi hun came across your channel I have been diagnosed with gastroparesis it hits me when I least expect it usually when I am waking up and I vomit all bile usually when I’m done I force myself to sleep amd I’m ok til the next time but sometimes it is so bad and painful that I can’t even deal with it anymore amd end up calling a ambulance. I just want to say you’re truly a tough cookie to deal with all u do! I don’t know how you deal with it!!
@ChronicallyLindsay
@ChronicallyLindsay Жыл бұрын
So sorry you are also having to battle with gastroparesis as well, it takes a lot of strength! I’m glad you found my channel & I hope it brings you support! The bile is the WORST ever since my gallbladder got taken out, that’s what I use my g-tube for the most is draining/venting the bile so I don’t throw it up! Sending you love 💕
@dominikbenz8349
@dominikbenz8349 2 жыл бұрын
amazing video rock this pretty stunning queen hope you felling better love
@alyssawssinging4039
@alyssawssinging4039 2 жыл бұрын
Hey I had my upper endoscopy with diliatons last wensday they took biopsy’s of my throat glad they came back normal my throat hurt so bad for like 2-3 days after
@beautyfromashes14
@beautyfromashes14 2 жыл бұрын
It's always a struggle with chronic illness. Do you also have MCAS or EDS? How was the botox injections in the stomache? why is it used for? love your videos always educational. 💜
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
It really is!! ✨ the Botox injection was to loosen up the pylorus so stuff could pass through my stomach easier- the hopefully increase my motility. I am supposed to get evaluated for EDS this year! We are super suspect of heds bc I have hyper extended elbows, knees, I get a lot of joint pain + I’m always cracking everythin, bruise like crazy, can touch my thumb to wrist etc but yeah! Can’t wait to keep you all posted on my health journey! Lots of love! 💜
@beautyfromashes14
@beautyfromashes14 2 жыл бұрын
@@ChronicallyLindsay Thanks for taking the time to answer. I have POTS, Gastroparesis, and MCAS and I'm also going to be evaluated for EDS soon. Always enjoy watching your videos. Hugs 💜
@rubytheservicedog8655
@rubytheservicedog8655 2 жыл бұрын
We should meet up I have my service dog Ruby who I owner trained and I live in NJ. I have scholiosis, sciatica, Epilepsy, possibly POTS....my cardiologist thinks I do he put me on metroperol and my heart rate still goes high. I'm 27 years old and I'm a woman who has a lot of medical issues. I hope you can get your service dog and he/she will make your life so much easier!!!
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
I would love that so so much!! Getting my service dog is going to be the best thing ever I’m so excited! Truly gonna change my life for the better and improve my quality of life exponentially!! But yes! I will be sharing and posting ofc as soon as I’m matched! But definitely dm or comment/message me and we can plan that once I have my doggo :)
@arielyoung3818
@arielyoung3818 Жыл бұрын
heating pad can help pain
@arielyoung3818
@arielyoung3818 Жыл бұрын
a tens unit can help pain
@jazzyjasmine4655
@jazzyjasmine4655 2 жыл бұрын
Thanks!
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Thank you so much!!
@SM12457
@SM12457 2 жыл бұрын
I hope God eases your pain very quickly.
@mymultiplelife
@mymultiplelife 2 жыл бұрын
Have you tried Corlanor? It's a lifesaver for me.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Corlanor and Midodrine are both on my pots doctors radars to start me on. I used to take Florinef and it actually helped me (i just didn't realize how much it helped me till I got off of it ofc). so rn im not on anything which is why I'm having so many issues, but I've been doing a blood pressure/ hr log for bout a month and a half/ 2 months to share with my pots docs so they feel comfortable starting me on meds to help :)
@eillianniablack7475
@eillianniablack7475 2 жыл бұрын
My dr still is gaslighting me about how I feel keeps saying it’s cause I am dehydrated or depressed is why I am so tired why the heck dose my body hurt all the time ya know I gotta find a new dr
@gretchenparker3628
@gretchenparker3628 2 жыл бұрын
I hope it helps with your pain. I keep u in my prayers thinking of u. I love you. My strong friend💋💋💞💞💗💗💓💓💋💋
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Thank you so much!! 💗💗💗 love youu!!
@eillianniablack7475
@eillianniablack7475 2 жыл бұрын
How often do u have it replaced
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
not that often, this was my first replacement, it was initially placed in May 2021 so Jan of 2022 is when I needed to get it replaced so maybe once a year/8 months? It varies person to person depending on your needs and doctor recommendations etc. I had to get mine replaced bc holes developed but not until like 7 months in
@carolinalarios7949
@carolinalarios7949 2 жыл бұрын
Hope feel better soon send you love 💕 you lindesy I know hard about sysney love 💕 you so much I am so sorry 😐 me busy doing many yesterday on Saturday me really tired 💤 me go bed 🛌 10:00 🕙 I will support you always forever your girlfriend autumn together forever ♾ love 💕 you so much hope great 👍 morning
@froggy.billie
@froggy.billie 2 жыл бұрын
You are such an inspiration for me ❤️❤️❤️
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Awe thank you so much! Sending you so much love!! ❤️❤️❤️🥺
@froggy.billie
@froggy.billie 2 жыл бұрын
@@ChronicallyLindsay awww 🥺❤️✨
@froggy.billie
@froggy.billie 2 жыл бұрын
I’m always nervous before surgery! 10+ surgeries make it a little less stressful but not much. The last time I had surgery, there was a child life specialist who let me listen to Taylor swift while I was getting the medicine through an IV. Scariest part is the mask they put on your face (because I have ptsd) but I always ask for an IV instead.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
I HATEEEEE going under especially for endoscopy’s bc of the bite guard they put in your mouth/wrap around your head, I have cptsd so I totally relate as soon as they put it on I’m like please just knock me out now so I don’t have a panic attack right before going under lol
@froggy.billie
@froggy.billie 2 жыл бұрын
Hello! Fellow Tubie here!! My advice is to eat lots of popsicles. It gets your mind off the pain.
@ChronicallyLindsay
@ChronicallyLindsay 2 жыл бұрын
Heyy!! Yess Popsicles are the best!!!!
@froggy.billie
@froggy.billie 2 жыл бұрын
@@ChronicallyLindsay Pudding too!!
@froggy.billie
@froggy.billie 2 жыл бұрын
I have a Mic-key g tube!
@froggy.billie
@froggy.billie 2 жыл бұрын
I’m sorry I’m commenting so much but how do you clean with that type of tube?
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