GIST Cancer UK - Managing GIST's, Dr Nasim Ali Liverpool Oct 2022

[@whitelisa350]

I found that presentation interesting and clear thankyou. I'm one of the patients with liver metastases from SDH deficient GIST. Dr Buluso is managing my treatment and also Dr Roji at QEB. I understand Dr Ali, that I have been referred to you for SIRT treatment. This was in August and I haven't heard anything. Do I assume (from your presentation) that this SIRT treatment is no longer available in the UK?

[@briandelmore7188]

Hello, from the United States hope you are doing better. I about 3 years was found to have a Gist tumor in my stomach and esophagus . They removed majority of my stomach and the Esophagus valve. Rrecently found out that i now have a a almost 9 center meter Gist in my right lung. Their plan is to not due surgery and treat it with the Imatinib . Hope you don't mind me asking but wondering as to where your First Gist was and how they plant on treating you now. Hope you are doing better and may God bless you .

[@michelleedwards9848]

I was told I have it in the esophagus over a year still waiting for operation gist runs in the family sergan still hasn't responded to none of the 6 letters my gp has written to him .ireland