Grief and Loss

[@RipperYouTubeOfficial]

34 minutes in and I'm sitting here thinking how brave you are for telling us this experience. Now I know where Captain Kori got his bravery from.

[@ginniville12]

❤truth❤100❤

[@RipperYouTubeOfficial]

@@ginniville12 There's so many lines from the James Blunt song called "Monsters" that fit into this story. @Thecrapgoth. Thank you for hiring a professional filming company for the service. There's so many of us that wanted to attend but couldn't be there, so this will help with closure for some of us.

[@tinaroberts5858]

@@RipperKZbinOfficial so true 💞

[@theniftyniffler]

yes- this

[@donnaandgertie]

So true ❤

[@tinaroberts5858]

Pixie. The time you spent with him, those 5 days, trust me he heard you. The soul knows. You're an amazing mom. My heart is breaking for you 💔 😢

[@talex1625]

He's not in the dark, he's not in that coffin and he's not in a grave. His soul is free and I really believe that he is still with you.

[@linda_sue]

I agree. I believe he is fast and free now, with his own spiritual activities and gang of friends, able to do all his own spirit business and still be at Mum's side in a flash much of the day. Sterling Psychic Medium is very comforting about this aspect of that side being a super fast-moving time and our loved ones able to visit with ease and frequency. Our eyes and arms do get lonely for them, however, in the meantime as we adjust.

[@thecrapgoth]

I often do feel him around me, but I miss him horrendously x

[@thecrapgoth]

I hope so xx

[@kik-dm1zv]

@@thecrapgoth Of course you do. I wish I could have the power to pull the grief out of you!!!!

[@livingauthenticallyonmyownterm]

Pixi, as an old Palliative Care Nurse, I’m so glad that you did what you needed to do when it comes to your goodbyes to Kori. There should be no rules and regulations when it comes to saying goodbye to your baby and others need to let it be. You have so many people around the world who love Kori, you and your family and we will never stop loving you all. You’re a part of our lives forever! Love you Pixi girl!!! ❤❤❤. Rest in Power Captain Kori! 🙏🏼✨♥️

[@marirose19]

@LivingAuthenticallyOnMyTerms Couldn't agree more; right there with you. Much love as you speak the #truth💛🌀🫠

[@BewareOFghost]

@ Livingauthentically Very kind words ❤️🙏

[@jeanne2390]

🙏🏿🙏🏿🙏🏿🙏🏿

[@livingauthenticallyonmyownterm]

@@marirose19 , you’re so sweet! I always speak from my heart. Blessings to you! ✨♥️✨

[@livingauthenticallyonmyownterm]

@@BewareOFghost , thanks sweetie! Freedom to do what we feel is right in our own situations, should always be important to others. ✨♥️✨

[@peggybreaux8973]

That sweet child is in heaven looking over his loving family. God Bless

[@In_MT]

I hope you can find some comfort in knowing that millions of people around the world love your Captain Kori.

[@Amandadear0812]

There’s never been a time that the masses needed to be united, as is now. Kori did that. Globally. His little 11 year old mind couldn’t even comprehend the magnitude of every adjective amazing available in the dictionary. Here’s my hero, and he always will be. As is Pixi. ❤️🇺🇸🫡

[@pamelad5677]

💖

[@katied1469]

❤❤❤

[@ronwynnjones9856]

God bless you Pixie. I am so truly sorry. I think of Captain Kori ALOT… i miss your baby 😢 I pray you get to keep his chair 😢 I am in the US and will do anything i can to help you to rally for your baby’s chair. Its not stupid and you are right. You do you. I love you Pixie and you are still the BEST Momma ever!!! Remember Kori adored you and always wanted you to take care of yourself. He put you first and would want you to be comforted in anyway possible. I am tired and have many health issues and children issues, so even though i have never been through what you have had to go through, i know pain. Peace be with you beautiful Pixie. Your beautiful boy made me smile everyday. When i thought I couldn’t go on a minute longer. I love him. I miss him. I told him he made me smile. He made a difference in my life and helped me through some very dark times. Thank you Pixie for sharing your beautiful baby boy w me ❤❤❤

[@magikablue]

Oh Pixie I'm so sorry for your loss, he is such a beautiful funny little Dude, know that all of us are here for you if you need to talk to us, if you need to cry even to vent we are here. Sending you hugs, blessed be from a fellow Pagan 😢❤xxx

[@Jacquih535]

Pixie, you are such a great mom. I’m a retired nurse who used to look after lung transplant patients. I have been with the families when their child has passed from cystic fibrosis and had had a lung transplant.:I’m so sad that no one prepared you for this. I can assure you that you did everything right to allow Kori to have a peaceful passing. Many hugs from Canada.

[@cornpope1832]

I feel really terrible that as a palliative nurse, that no one prepared you for the "last 3 days" from your story, that is exactly how it goes and someone should have explained. 💔

[@kestrel4294]

I unfortunately lost my dear mother a few months ago after a day of “comfort care” in the hospital, and no one gave me any info as I sat there by her side. I’m so glad other families can rely on you for help through these impossible situations

[@ChimeraTruely]

Thank you for the work you do. It takes walking Angeles to support the dying, & their loved ones, through this heart breaking time.

[@gloriahoulne]

I went thru this same frustration with my 94 yr old mom. Alone, with no prep from hospice. Left me with a good amount of anger and guilt. I’m so sry Pixi and family much love coming your way. ❤

[@ilovemyc2]

That broke my heart. I was an HCA with my local Hospice At Home service, every patient I ever saw in their final moments made that sound and it truly is extremely distressing for their loved ones. And as a former 999 call taker for the ambulance service, I'm so sorry for the insensitivity from the call taker after he'd passed. A very strict script has to be followed, it allows no room for humanity at times. Sending you so, so much love, Pixi and family 💞

[@kygal]

Thank you for the work you do. It takes a special kind of person.

[@annettebroomhall8617]

You are not an idiot for anything. You grieve your way. My heart goes out to you and your children especially

[@charmzpix]

This right here. Your grief is your own, do it how you need to do it and no one gets to tell you how that should be.

[@karin-vo2us]

@@charmzpix SO very true !!!!!!

[@jengraham6636]

💔It's not lucky. It's not fair. You did everything you could for Kori. We will all remember our Captain. We love you both. Thank you Pixie. 💔

[@Justyna_N]

The fact that you’re able to think of helping other people right now by sharing what happened is extraordinary. Hoping it helped you feel a sense of comfort because so many people continue to care. Thank you.

[@janicedriver2971]

Kori is a wonderful joyous boy and we will always keep him close to our hearts. ❤

[@ChimeraTruely]

There are plenty of parents that have been thankful to photographers that take after life photos of their babies. If you needed to do that, then you were 100% right to do so. I am sending love to you and all of Kori's Crew

[@mrsjamessmom9044]

It's very therapeutic for infant and stillborn loss. They were here and they mattered.

[@susieq1279]

​@mrsjamessmom9044 In the late 80s/early 90s, an older cousin's daughter was a stillbirth. They did photos of/with her. I didn't understand, mostly because I was very young. My family members thought it was odd, but I think it was truly helpful for her. I think about that sometimes when people say there is no correct way to grieve, especially as a parent. That was best for her, and it helped her grieving process.

[@mrsjamessmom9044]

@@susieq1279 Western culture has made it impolite to grieve too loudly. Before embalming made the process this clean and palatable, people sat with their deceased loved ones in the parlor of the home they were probably born in as well. The Victorian Era embraced mourning. Maybe a bit too much for some. When photography was invented and became popular it was very common (for those that could afford it) to have a loved one's photo to be taken after death since they didn't have a pile of photos hanging around to look back on. This would be the only remembrance of what they looked like .Children were lucky to live past 3 yrs of age back then due to disease, so it was especially important for grieving parent to have a treasured photo. I think we need to find somewhere in between Victorian mourning and modern stuff your feelings down to make everyone else comfortable.

[@susieq1279]

@@mrsjamessmom9044 I agree 100%!

[@DawnDavidson]

There are MANY post-death photos of children from the early days of photography. It’s a very common, very human impulse. Pixi, you and your family have the biggest hearts of anyone I have ever “met.” I hope you do whatever you need for your own process. How do you accept the unacceptable? This is the essential question of grief. I wish you and Kori’s sister, and all of your family and friends, the very best in your lives. We - Kori’s far-flung crew - are grieving with you. Your grief is your own, and a special kind of grief. But you aren’t completely alone with it, because of the actions that YOU and Kori took during his life. You took tragedy and turned it into a legacy. YOU did that, with Kori. Thank you.

[@Solitude11-11]

Living grief is rarely mentioned, and it’s the worst thing. That awful fear and anticipation. For you to have 11 years of that, my heart goes out to you. Once you are bereaved, people will be sympathetic, you can get counselling etc but when you are going through this, you get nothing.

[@sparkleninja5127]

Pixie, what an amazing boy you've raised. The word "balls" reminds me of him and his cheeky smile. Thank you for raising awareness of the lack of child palliative care support. If there is any further fundraising or petitions about this please do let us know. I will continue to follow both your and Kori's channels. Sending love to you all

[@laceysilver5714]

There are many stages of grief. We are all here for you and your family. We all broke when we found out Kori passed away.

[@lyndachele]

Captain Kori and you are in our hearts. You are our family!

[@davidknight9421]

Captain kori is looking down on you and pixie we are here for you

[@candyslife160]

@@davidknight9421 don’t tell anyone but my grandpa and great grandpa are probably teaching our Captain Kori all the dirty jokes so he can pass them on to Pixie! They were real jokesters in their time.

[@patmccrutch3927]

Clicked so fast… Pixi we love and support you and I am so deeply sorry for your loss. He was the most wonderful boy! I have no doubt he’s so freaking proud of you. You are an incredible mum and the love y’all have could never leave, love lives forever.

[@creed5248]

The world fell in love with your boy - such a good kid - Balls !!

[@GrandmaRobyn]

😢❤

[@Rosegloweyes]

BALLS! Such an amazing young Man💜A gift 💝

[@lorim667]

Kori is an extraordinary young man that has touched many hearts. He will always live in your heart. Take care of yourself, Pixie. Kori would want you to.

[@debragilbert6380]

Grief is personal. I lost two little girls and I wanted to scream at all the well meaning people with all thier advice on a subject they had never experienced. You are in my heart. What a wonderful mama you are.

[@Infamous-K]

My son was gravely ill for almost 12 years, and the thing I remember looking back at it now is how much his care, advocating for him, taking care of him, speaking for him, I think for a long time that was my whole identity. I don't think that a lot of people realize it. Hell, I don't think we realize it as it happens. I'm still unwinding that, and I know it can be hard. I know how hard this is and for what it's worth my heart is with you. Kori is brave and tough, Pixi, because he got it from you. Love to you and your family. I wish I had comfort to offer, but I know that you likely have folks offering that and trying to soothe you in droves. You did good, Pixi. You love him like no one else can, and you were his home. The whole world can see that.

[@Jacque727]

Pixi, from one brokenhearted mother to another, there is no right way to grieve. I lost my only son 14 years ago, but I still talk to him every day. I wish I could do something to help you feel better, I know I cannot. My heart and prayers go out to you, your family and Kori.

[@kaliortega8390]

Aww so sorry for your loss 😔

[@Jacque727]

@@kaliortega8390 Thank you. As Pixi said,no one should loose their child. It's the worst; you expect the loss of a parent or even spouse; but your child, NO!!!! Speaking for me, it is something I have learned to survive with, I will NEVER, get over it!!!

[@tinaroberts5858]

@Jacque727 my deepest sympathy. I have few words. I can't imagine what you have went through. Take care ❤️ 🙏

[@Jacque727]

@@tinaroberts5858 Thank you for your kind words. I wish you health, happiness and serenity.

[@Rosegloweyes]

@Jacque727 I cannot imagine losing a child-I’m terribly sorry for your loss- No mother should have to suffer this loss- I honestly don’t have words that could possibly be of any comfort- Prayers UP🙏🏼

[@missychan63]

Oh my god... His little thank you for the banana split just about sent me over the edge. I'm going to apologize for my bluntness from here forward, but I'm almost speechless- It's shocking to me that someone from hospice didn't come to your home. Here in the US they are literally on call 24/7, and will come anytime you need them. For any reason. You should not have had to go through that alone and I am so sorry. I also can't believe that you weren't better prepared, as in educated. They should have given you the worst case. Scenario- the sounds and the fluids and all of the things that you don't expect- you should have expected them. Sounds to me like their need to be some serious changes made for the care of terminal children there. The funeral directors weren't available until Monday morning? Are you kidding me? If you don't die during business hours? There's no one there to deal with your body until the next business day? How is that even possible? I know things are different in different places, but you live in a civilized country for heaven sakes- you're not out in the Australian bush country somewhere! I'm sorry, this is not what you need to hear, but maybe the rest of the world does--- we need to make changes! No parent should be left with their child's body until the funeral directors are available, whenever that might be convenient for them. That's inhumane, and absolutely abhorrent! Someone from the hospice should have come to your home and sat with you. Someone from palliative care should have prepared you. You're a mommy, not a nurse, not a doctor... Not a funeral director... Not a paramedic... You're his mama. That should be the only job you are concerned with when your child is dying. Again- I apologize for being so blunt, but as you said in the video, this is what it is and people need to be prepared. I can't tell you how much love I'm sending- there isn't a box or a bag or a shipping container big enough. I just want to wrap my arms around you and sob for what you had to go through.

[@dadanddave62]

I found Kori from a KZbinr from America. Even knowing his condition and circumstances from following for the last 6 months, all i can say, is the deepest most sincere condolences from the bottom of my heart...💔😌😔😪😢

[@Oinsichean]

Of all the things Kori ever loved, he loved you the most. You are worth every hug he ever gave you. No matter the advice you ignore nor the cliches you deflect, Kori thinks you are the best mother in the world. You know best ❤

[@sherryrutledge8792]

Your comment made me cry!💕

[@Oinsichean]

@@sherryrutledge8792 Hugs to you, too ❤

[@IreneJohansen-or7lb]

MUCH love from me !!!!!!

[@libralaw7359]

You gave your son a beautiful life. When he could no longer play, you built him a play world inside your home. When he couldn't play with children, you became his best mate, sharing secrets, playing games, teasing and behaving as much like a normal child as he was able. You allowed him to live out his life with dignity and you spared him great physical pain. I pray for your family and look forward to meeting Kori on the other side. Hopefully he will be sailing with my granddaughter Anne-Belle.

[@annswann1941]

Dear, sweet Pixi I hope making this video was helpful for you. You always consider others comfort; I’m very grateful that you’ve shared your awesome Captain Kori. I pray that you have peace

[@susannecramer6473]

I know Kori our captain of the hearts picked you Pixi as your mum. You are an amazing mum, a special mum. He was safe, loved, supported and in these long hurtful years there was always room for laughter and joy. I hope there comes a time you can feel as proud of you as we do🏴‍☠️

[@anidiquaojala1804]

❣️

[@duckylove3930]

❣️

[@VeretenoVids]

I am so sorry that they never told you about the breathing. I can't imagine how much that added to the already traumatic experience of losing your precious Kori. Your strength and generosity in sharing your journey to help other families moving through similar experiences is amazing.

[@milissameza5432]

There is no RIGHT or WRONG way to grieve a child. I am soooo sorry you have lost your beautiful Kori. My son Cory passed away on June 1st of 2020 from injuries he sustained from being hit by car while riding his bicycle home from work. You have joined a club you never wanted to join and can NEVER get out of, a parent who lost a child. My heart hurts for you. As a mother our children have been carried and developed for 9 months as a part of us and near to our hearts. Feel how you need to feel. There are NO stages, you will feel the grief and loss the rest of your life. Give yourself grace to feel how you feel. ❤❤❤❤😢

[@jenniferneil8455]

Kori's spirit is still in the world, through the connections he made with his family, his friends, his health care team, and his viewers. As long as we remember him, he will never truly die.

[@nickadams1519]

Sending Love ❤️...Jennifer...Are you single? ❤️🌹🌹

[@donovanfoto3263]

My heart goes out to you. I know the pain. It cost me a divorce, my job and so much more. My son was diagnosed with bone cancer when he was ten. We lost him ten days before he turned 20. I still grieve. It still affects me brutally. I don't think you will ever get over it completely. My son past in 2006. I still miss him. The Captain will be with us forever. Three cheers for our Captain. 🎉🎉🎉

[@heathermacduff4038]

Kori is an amazing inspiration for an 11year old I was privileged to be part of his journey through you tube much love to you all my heart goes out to all the family

[@sassyjintheuk]

Pixi, thank you. Crying is fine. So is smiling at his memory. Ĥe is always with you.❤❤

[@pzh3334]

Oh pixi, sharing grief will never make you look like an idiot my dear. As a 35 yr old widow, I also spoke about my husband in present tense for quite some time. 5yrs later, I still call him my husband, never my late husband. I faced comments and well-meaning people trying to get me to do things on their time and the way they thought was the "right way". The only right way is your way. Always trust your instincts on what you need, what is right for you, and when it isn't. The more you grieve in your way, the more your soul will heal. It's hard living without spending your days care giving and having all that time to do who knows what. Do whatever is right for you. Also, just know people will say some really dumb things, even at the funeral. Do your best to ignore them, they don't understand, they've likely never suffered a loss this great, or they never truly dealt with it. Sending you the biggest, longest hugs and all my love and strength to you as you navigate each moment. One breath, one second, one minute at a time. ❤❤❤❤

[@carinam4258]

Dear Pixi, no words will ever be enough to tell you how deeply sorry I am for you and your family. I can’t stop myself from crying with you. Kori is and will always be a special, brave boy that touched the heart of so many people… he will be remembered with much love.❤🏴‍☠️

[@NicoleHasADHD]

There’s nothing lucky, or fair, about any of it. You lived your life for Kori so that he could LIVE every moment. You have given him everything you could. We are here. We love you both SO

[@tinaroberts5858]

He is definitely one of the most generous, happy, brave and loving little boys I have ever witnessed. Millions of hugs and tons of love to you Pixie and your family. Thank you so much for sharing your beautiful little boy and your family with us. ❤❤❤❤❤❤❤

[@suecurtisart]

I can't believe how strong you are to be able to make a video so soon. I am shocked that there was no palliative care available near your home. Thank you for doing this to raise awareness and to help others going through grief now and in the future. Keep doing what you're doing - only you know what is right and best for your family. You and Kori and your whole family are just simply amazing and always thinking of others even in the darkest of times. Thinking of you all and sending so much love and admiration for everything you do xx

[@EmilyFoxasinEmilytheFox]

I'm listening to this at work like a psycho. I'm just a ball of snot and tears. My heart is broken for you, Pixie. I'm so sorry for your loss. Kori was an angel on earth and we are all better for knowing him.

[@SisterSherryDoingStuff]

I'm grateful I was able to be one of Kori's fans. And be a witness to a wonderful little boy who is brave and fun to watch.

[@sophiewelt9691]

I absolutely cannot imagine what you had to go through during the last hours of Kori's battle 😢. Just listening to you has me in tears. I am so sorry that everything came so suddenly and that you felt alone without help from professionals 😔. However the most important thing for Kori - for sure - was to be in your arms, hearing your positive words and being surrounded by the rest of your family. Sending you so much love!! 💖💖💖

[@orbweaver9750]

Sharing Kori's funeral and service on his channel is a lovely memorial to him, and IMO a beautiful way to allow his internet family to grieve and honor him as well, because we all can't fly out to England to attend ourselves. You don't have to do that, but I think it's very empathetic and kind of you to do so. We all love Kori too, and we love you. Please take care of yourself. Be kind to yourself in your grief.

[@doodlebug5105]

I agree so much and feel honored she’s willing to continue to share him with us.

[@Rosegloweyes]

Thank you dearest Momma❤️‍🩹 You are Kori’s hero💜Brave beyond measure-You loved with all of you, and Kori loves you back, now, yesterday, and forever 💝Kori is a gift 💝 You are a gift too ❤️‍🩹 I’m so incredibly sorry 😢

[@pyrettablaze9994]

It's not about you.

[@wolfmare50]

I love you, and your wonderful son. 💜🙏bless you.

[@beastoned8596]

Yes, thanks for sharing with your internet family ❤ lots of luv & hugs 💖💜💕💖💜💕💖💜💕🇨🇦

[@gurugnorm]

I lost my husband of 30 years over 11 years ago. One of the things that helped me was a story I read. "The more you tell your/his story the easier it will get". XOXO

[@nancybates6585]

I agree. Lost my husband in '97 at 42, in my arms...the passing of time will ease but never completely heal that whole in your heart. Pixi, you're so brave and an inspiration to all who have loved and lost. Much love to you ❤❤❤

[@TeaCup_Mouse]

I also have a hypoplastic left-heart syndrome angel. He made it through the first two open-heart surgeries but passed away when he was 18 months old from pneumonia. This was in 2004 and I only just made peace with his loss in 2021. I pray you find peace and comfort but do so in your own way. Thank you so much for sharing Kori with us, he is so dearly loved and is such an inspiration. Sending you so much love, Pixi, and to your family as well. 💜🏴‍☠️

[@thecrapgoth]

Oh my gosh, your little heart warrior and you..a brave parent..my love goes out to you x

[@thecrapgoth]

Oh my gosh, I'm so so sorry for your little one passing, CHD is just AWFUL 😢 I'm sending you lots of love xx

[@TeaCup_Mouse]

@@thecrapgoth Thank you 🩷

[@introvertedandie]

As a Mother of child born 40 yrs ago today who only live for 9 short months in the hospital, I admire you sharing your & Kori’s story with the world and making this video to help parents who may be facing this gut wrenching situation. On that note I found this quote years ago that really helped me and I hope maybe you can find some comfort in it too. “In some aspects losing a child is like a wall, but instead of getting over it, you must carry the wall with you, wherever you go, for as long as you live. The wall is immovable. You can’t go anywhere until you learn to move the wall. You are just stuck in the same place, forever. You can tug and tug all you want, there are days that the wall will not move. And there are days that it moves ever so slightly. Over time I have realized that in order to move forward, knowing that I must bring this wall with me, that the best way to do so is to metaphorically flood the soil near the wall with water, and have the wall float with me, instead of me having to carry it. Every act of love and kindness turns to water. Water and love can penetrate and move anything. It just takes time. I need to turn my wall into a raft.” JohnA Passaro, Again (Every Breath Is Gold #2)

[@marirose19]

@introvertedandie Lovely piece of writing. I'll always remember it & share w/many. Thank you. #SacredBlessings

[@duckylove3930]

First, condolences to you. ❤ This was beautiful. Thank you for taking the time to write it out and share it with all of us. Bless.

[@mariee.5912]

😢 sending hugs.

[@TarotTea]

I work in death care, that last “breath/s” were likely a reflex of the last bits of air releasing from the body, or agonal respiration which is a brainstem reflex at the end of our life cycle. I encountered this with my mother in law as I held her in her final moments. There is no pain for them, just natural body responses but it is heart breaking and albeit frightening in the experience with one you love so much. Bereavement photography is more normal than some may think and I do advocate it when family wants it. Ending a life cycle is very personal and not a one size fits all. Especially for a child. I wish I could hug you hun. My heart is with you Pixie. Much love sweet sister.

[@kellers5696]

Kori is such an amazing boy and forever in our hearts

[@kimtalley5740]

This is the most honest..raw..heartbreaking and incredibly brave thing ive ever watched..im so very sorry Pixie💔 xxxxxxxx

[@thecrapgoth]

Thankyou for watching it x

[@alisonmclane2631]

“You cope how you cope”… Pixi, I am grieving alongside you on your journey. One day at a time, sometimes one breath at a time. But I see strength in you. Sharing with this community reminds us how we are all connected…. Even on the other side of the world. Rest assured that Kori will not be forgotten. Hugs from Lake Country, BC

[@silverghostcat1924]

I kept wishing I could reach through the screen and give you a big hug. Thank you for sharing this part of Captain Kori's journey as well. There are many around the world that are with you spiritually in your time of grief, that are grieving as well. Thank you for allowing us to say, "Farewell for now, Captain Kori 🏴‍☠️ We look forward to the time we'll meet you on the seas again 🏴‍☠️💖💜🖤💜🖤💜💖"

[@ElayaHell]

this hits me in all the places... no parent should have to do what you just did!!! Prayers and hugs for your healing forward.

[@DoctorMoo]

The true measure of immortality is living on in the minds of people. Kori is immortal. We love you Pixi. We love Kori. ❤️💔😭🏴‍☠️

[@alysoncaddick6344]

I have been keeping my Granddaughter (the same age as Kori) informed. I told her about some of the people who have told you that you were lucky etc. Her response was immediately, "It's not about YOU! It's about Pixi and Kori!" Children are so wise. Love and hugs x

[@Bella-ht5jb9he3z]

Pixi this was very brave of you to make this video. I know Kori is proud of you. I loved watching you and Kori together. You two have such a special bond. My heart breaks for you. I will absolutely be watching both Channel's . Captain Kori touched so many people all over the world. We all got to know how special and cheeky he is. Thinking of you and your family. Sending love and hugs.

[@heliosdanderflux2037]

Words never seem enough when you lose a part of you. Much love to you and your family.

[@manchitas3531]

Sweet, sweet Pixi... I always had the impression that you were ready. When the fact of life is, a mother is never ready to outlive her baby. Sending you my love. The pain will never go away. You will just learn to live with it.

[@sunski_arts]

I’m so sorry pixi. Your boy is beautiful and inspiring, and he always will be

[@bcoleman2006]

Grief knows no time line. Grieve as long as you need. Thank you for this video. Captain Kori is missed. Wish i could give you a hug. ❤

[@Blowinshiddup]

Saying "My condolences" seems hollow. I shed tears when Kori sailed off, and I was at work (nobody saw me except my dog, so I was spared the embarrassment). To me, one of the things that's special is his way of saying "Thank yew..." during gift opening. Such a presence. One day, jokes can be told, smiles will appear, and Kori's spirit will shine on. Such a noble pirate!

[@kkkrog-ws2im]

I know what you mean. Its difficult to find the right words. Kori was SO special!!!!!!!! A noble pirate indeed ❤❤💙💙💙🏴‍☠🏴‍☠🏴‍☠🏴‍☠!!!!!!!!!!!

[@rebeccaglasgow1324]

Pixie Kori touched millions of lives. Kori is a Hero, he made a difficult decision and stood strong in the face of his illness. Kori couldn't have done so without you and your strength. You are amazing to honor his choices. He will always be an inspiration to me. As are you.

[@Rosebuddutchess1313]

Grief and crying go together. I haven't finished watching the video yet. But you do what you need to do. I will watch it to the end. You're in my thoughts and prayers and I'm hugging you tightly. I will be more than likely crying right along with you.

[@S.W.A]

You and your family have my deepest condolences.

[@lula-kester]

It's not the same, but perhaps a memory garden for Kori at home or elsewhere could be made. Kori's sprit is with you always. He is free and not tied to that cemetery now.

[@katelillo1932]

I was thinking the same when she mentioned wanting put lights and bird feeders and pretty things in the cemetery for him. Maybe a little garden in her yard that she could nurture and tend to would be a nice experience while she heals. She could hang sun catchers and wind chimes and make a little beautiful forest for him 😊

[@sharonwilbourne7256]

I think the same way.

[@patmeacham5667]

I agree. Give both of you a place to go and talk to each other.

[@thecrapgoth]

We are currently trying to get landscapers in, but so far, no luck x

[@robinlosee3411]

Pixi, you’re an amazing lady and Mom. Thank you for sharing this difficult journey and for sharing your beloved Captain Kori with us. This video is helping me process and grieve the passing of my Daddy and my Auntie, both of whom I was a major part of their palliative and hospice care. My heart and soul is with you, Kori and your family. Sending much love and warm hugs. ❤️

[@RandiPoitras]

Oh Captain our Captain, oh Pixi our mate: I love you both so much, i dont know if i can watch the whole video but i’ll keep popping back when i can. You have as much support as you want from all over the world and pixi we know you and family are strong

[@forestdawnroberts868]

Thank you for sharing this heartfelt video Pixie We love you so much. Captain Kori will be greatly missed.

[@fredlyndalu]

So thankful for the time you allowed us to share with your family. Really I enjoyed seeing you all. My heart broke the moment I heard. I had a similar experience. Not a child though the grief is with me over 20 years. Thank you for letting us cry together. ❤

[@jennaberrrybean]

I know no words can bring you any comfort right now but just know that all of us from around the world feel your pain. Our hearts break for you. Sending all my love to you , Pixi. 💛

[@AnneMarieBibby1966]

Just letting you know you are a constant in my thoughts. Sending love 🙏

[@christianefiorito3204]

Kori is with us all. I think of you and him everyday. You are a wonderfull mom for great children. We will stand with you.

[@AKAClaudia]

You are so strong and I’m amazed by you daily Pixi. The front row of the funeral is always the deepest pain, but losing a child is almost unexplainable. Just know that we have your back and when you need us, we shall be there. Thank you for sharing your little captain with us. He will always be in our hearts. 🏴‍☠️❤

[@juliannedispain1637]

Long live Captain Kori❤ I have rewatched many of his videos. His laughter, smile and his kindness will live on

[@holycroc20]

I didn't think I'd watch the whole thing, but I did. Very well done. Whatever he was feeling, in terms of pain, the joy that beems thru his face holding that silver KZbin plaque is everything!! It's every bit as apparent in that picture, as it was in the moment. Simply amazing. An infectious glow in those cheeks. Kids are the best!! They just need a little bit of support and encouragement, you obviously always did him well. The captain lives amongst us all.

[@rebelsora]

I am so sorry for your loss. Kori will forever be remembered and loved and I thank you for sharing with us. You are an amazing woman and an amazing mom. We lost my brother to cancer 2 years ago at the age of 39. My dad just started grief counseling. Remember to give yourself grace while you grieve. We love you and your family and we are here for you.. Sending hugs and healing energy your way.

[@jodicowell]

Kori is an amazing child. You have done so well through everything Pixi. Your an AMAZING mother. So strong.

[@annashidingplace2441]

My father passed away on July 26th (19years ago). It isn't the same loss, not in the slightest. It is a permanent hole inside you though... Kori is here still, in all of us who he touched with his sense of humour and jokes, his kindness and above all his bravery. He has made a difference in this world and he will be remembered always...

[@Viothon]

I lost my father in 2004, 19 years ago as well on Nov 5th. Still hurts.

[@annashidingplace2441]

@@Viothon It never goes away, does it?

[@karin-vo2us]

@@annashidingplace2441 Never, One learns to live with it!!!

[@GeoffInfield]

He couldn't have a better mum, I'm so sorry 😢 We only saw him happy, sooo happy, thanks to his mum ❤

[@reidun-engh8824]

Pixi is the best mum !!!!!!!!!!!!!!!!!!!

[@maryfreyre2119]

Ps... Kori is with you through this video. He is so proud of you and you taught him well to care about others. You see where he got his strength, from you. As you continue to carry his torch, Kori continues to live on through you. His presence is almost palpable and with you and his legacy will live on forever. You are so brave and amazing yourself, Pixi. You are an amazing mom, person, and advocate for other parents in need. As a nurse, I will find a way to help you somehow to help others on your endeavor.

[@leezirkle7840]

Pixi, you may be the most remarkable woman I have ever met in my life. We know where Kori got his brave from.

[@Viper-ft3tk]

Kori taught me a valuable lesson about life that I never thought about until I found his channel. It's that life is very much worth living, no matter how grim the circumstances. And I think Kori especially knew that. Now that he's gone, we have to push further ahead until we no longer can, because that's what he would want. He was a wonderful kid, and I hope you find peace with what he left you.

[@straycat3041]

You are loved and we are so sad for the loss of that little pirate. I took so much joy in watching you two. I have to say you are truly an amazing woman.

[@Nandrea7627]

Sweet Pixi 💔 took me ages to be able to watch this! 💔 I’m so heartbroken for you all! 💔 As a piece of practical advice, buy a replacement wheelchair and if they actually do request Our Captain Kori’s chair back, Just give them the new one! They won’t question it! I used to work in the health service in Northern Ireland and I pray this will work for you. We’re all still here to support each of you 🖤🖤🖤💞💞💞

[@JoanieBowers]

Hugs to you and your family. Heartbreaking loss

[@traciemarsh1611]

aww pixi ive been thinking about you. hugs sweetheart. pixi you did so well to talk about kori and to talk to us all. thankyou i dont know you personally but know im with you. rip kori ❤❤🕯🕯

[@lindajames978]

So brave Pixi, so honest, god bless you sweetheart Captain Kori was a very special boy, thank you for sharing him with us ❤❤

[@raleighrobinson6399]

😊Pixie, your in my prayers, I’m so sorry! I was a ICU nurse for 30 years and spent the final moments with many patients and their loved ones. What you describe is extremely common and I wish someone had shared that with you. Kori heard every word and knew you would never leave him. Kori touched the world with his bravery, his since of humor but most of all with the love the two of you shared. It was very plan to see! I can still heard his adorable laughter when he shot you with his nerf gun or said “balls”. Your an amazing person and mother, and he felt your love on earth as he does now in the afterlife.

[@scloftin8861]

Sitting here reading the comments and sniffling and then guffawed at his laughter over "balls" ... his laugh was so infectious ... well, it still is as long as the vids are up ...

[@Shatarii]

as a HLHS mum, we are not palliative but my now adult son started refusing further surgery at 11, we've lived like you said, is this it, every day for years. I am sending you so much love to you and your beautiful family. I have sobbed throughout this video ... I've seen other children pass of heart conditions whilst we've been in various hospitals and its hell, each one is burnt into my memory. Wrapping you in love Pixi, walk your new journey YOUR way, those who genuinely care will walk along side, listening and supporting. Kori was an absolute dynamite little lad. I am so very glad I was able to watch his videos, and see his cheeky side too.

[@merrynwatts]

Thank you for sharing your experience Pixie. Kori is absolutely still with you everywhere you go. I had a NDE many years ago and I can tell you, I felt more alive than I did in my body. We are not our bodies. He is 100% with you, comforting you and probably saying, “mum, I’m right here!” ❤

[@Loralie571]

A very important message Pixie. Through this video those who currently experiencing loss and grief can join you on this journey. We walk together and can help each other - we are not alone.

[@crazycatmamainthesip]

I cared for my grandma through her passing that rattle is something you never forget. I'm sending yall so much love and positive thoughts. He had such an impact on so many people 🫶🏻💞

[@candyslife160]

Captain Kori made us all better by uniting us all together in the name of love. He will forever be in my heart.

[@sandram.8271]

I am so, so sorry for your loss. You were so brave and he felt your arms around him when he took his last breath. You did everything you could have done.

[@fluffycat3946]

what a beautiful tribute to your son! don't let ANYONE tell you how you should grieve! my son died 12 yrs ago next month. I couldn't put him in a coffin. and I couldn't bury him. it was his wish to be cremated so that's what I did. I cry almost every day. but I get through every day. so many people don't know what to say so they say stupid things. ignore them if you can. I grieve with you! and I cry with you!

[@ladylaois8184]

I lost a Grandson 21 years ago. Now a son to. My son was 39, and died unexpectedly three years ago. I’m still very in limbo! From one grieving mum to another. I do totally understand. Glad I stumbled across you. Thank you.

[@deedrahsimmons7545]

Pixi, there are no words that will ease the deep pain and loss you feel all throughout your body. I have lost both of my sons. It's a pain that cannot be described. Losing your precious child just obliterates your heart. Please know how much Kori touched the world and made us all better humans for knowing him. We are here for you and your family. You are never alone. Sending you so much love and hugs. ❤

[@susannemulholland4804]

I'm so sorry you have had to experience this with both your sons.

[@deedrahsimmons7545]

@@susannemulholland4804 thank you.

[@mrsjamessmom9044]

❤‍🩹

[@carmenpriest1326]

just know Kori will never be forgotten.....he and you have touched our souls......his smile, laughter bravery and so much more.......sending many virtual hugs

[@livingonthetyne]

RIP Kori he is wonderful and you did an amazing job bringing him up. You should be proud.

[@bobbis.172]

Pixi, you're such a wonderful person. You have raised such a truly beautiful, kind, smart, and super funny son. Captain Kori is sailing the seas and keeping watch over his crewmates each and every day 🏴‍☠️

[@kidswithability]

Dearest Pixie, my heart breaks for you. You have been through hell; you were so brave giving Kori the best live possible. You have been so articulate in sharing what you are going through. All I could do is sit here and nod my head and cry with you. Lots and love coming to you and your family.

[@sharondrury5676]

God bless you, Pixi❣️I love you.