GRWM- it’s just one of those days

It’s just one of those days today. I was super irritable, in pain, my feeding pump kept saying it was plugged which it most definitely was not, and little things just kept going wrong.
It was not just minor annoyances either. My husband and I drove a total of 3 hours out of town for one particular vehicle to replace my daughter’s vehicle that was totaled in an accident and someone else was just signing papers on it! Ugh.
With all that being said I’m still so very grateful that my daughter walked away from the wreck with just bumps and abrasions. None of the rest of the issues I had matter compared to my kids health and safety.
#ehlersdanlossyndromes #pots #potsawareness #gastroparesis #chronicillness #chronicpainwarrior #invisibleillness #posturalorthostatictachycardiasyndrome #alwaysthepatient #tubie #tubelife #feedingtube #autoimmunedisorder #PTSD #anxiety #depression #nevergiveup #medicallycomplex #spoonie #spoonielife #momlife #blessed

[@jennifermcmillan9518]

If you saw my bathroom, you’d be appalled 😂. Eventually I’ll get there. I’m glad your daughter is safe. It’s so scary when they start driving. When my daughter’s learners permit came in, my husband just stopped in his tracks and said “I think this is the most frightening thing I’ve ever seen” 😂. How is the cyst going?

[@paintedbystripes4033]

I'm sure that your bathroom is just fine! It is very scary when they start driving, I agree with your husband. I am so grateful that she was okay. We removed the JP drain, it was very painful and irritated and was no longer draining. Unfortunately, I had an MRI before they pulled it out and it showed that the cyst was growing again. The pain is somewhat better but worsening by the day. I am waiting to hear back on what the next step is. ugh. Thank you so much for checking on me. I appreciate it.

[@jennifermcmillan9518]

@@paintedbystripes4033 I’m so sorry. Hopefully the next doctor will surgically remove it. If not, I bet the one in the Woodlands will. I’m crossing my fingers for you.

[@paintedbystripes4033]

@@jennifermcmillan9518 thank you. I am hoping maybe there is a different drain to try first. We shall see.