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In the last year, Harry Ellis has become a social media celebrity, raising awareness of his rare disease through the power of TikTok.
The 19-year-old has garnered hundreds of thousands of fans by sharing his dinosaur knowledge and educating people on his disability, Neuroblastoma Amplified Sequence (NBAS).
In this film, I travelled to the family's home in Sheffield to hear firsthand about Harry's rise to stardom and what it's like living with such a unique condition.
To donate to scientific research into NBAS, click the link in my bio!
A massive thank you to Harry and his family, clinical geneticist Dr Meena Subramanian, and camera operators Nelson Walker and Lauren Leyva!