My Diagnosis: Myelodysplastic Syndrome (MDS)

Please do the bone marrow transplant, my Mom has been diagnosed with this at 81 we have no hope, it’s progressing fast. She can’t tolerate the treatments. I am your future encouraging you to do all you can while you’re healthy. God speed

[@johnny.3693]

I agree, you're still young. You do not want this to progress into leukemia. I wish you the very best.

[@Lorien78]

Thank you for uploading this video lots of love in the UK please let us know how you do with your treatment I hope it goes well for you❤

[@anngray9171]

Snap! I've got what you've got! Ive probably had it for years. Never had any symptoms, just low white cell count. While in Australia had to see a doctor on unrelated matter, routine blood test.. doctor in panic mode, telling me I had leukaemia and treatment was Chemo. Returned to Europe. Not leukaemia, it was MDS and last thing that was needed was chemotherapy!!! I got a second opinion from one of the top specialists in Europe. Remember, this is still considered rare and it has been identified ( I'm led to believe) in this century so it's not as well researched as it will be. I first saw a specialist, unfortunately not a specialist in MDS, he hadn't a clue and bluffed it. How does one know if a specialist really specialises in your illness? I guess the give away was his attitude when I asked in-depth questions. And he hadn't written any papers himself. That is VERY important. Thank God I found a MDS specialist, shall we even say an enthusiastic specialist..who reads the research papers. I wish you luck, I wish me luck. I do hope you get to read this! Ann

[@brendaharrup6693]

Last year I was diagnosed with MDS (low risk). In my research I found that it is classified as a rare group of blood cancers. It used to be called pre-leukemia until 2003, when it was deemed cancer.

[@menz_nation3375]

Then are u ok today

[@GWAYGWAY1]

I have it and it is killing me, blood transfusion with one unit of red cells made me feel great but only for a week, it means more bloods regularly but that will end when the SHTF comes in and the donors stop coming. At 75 they are not bothered with me anymore.

[@SamiKhan-mo8mz]

Hi, my cousin has been diagnosed with mds in Denmark . He is in stage 2 or type 2 . Can you give my a little more information about treatment and how are you feeling now ?

[@zoeh1750]

Hope your doing OK 🤗👌🏻

[@madhu7242]

Have you gone with bmt or cured with chemotherapy