Help for Female Genital Lichen Sclerosus

[@lenaparnell2417]

I’m 75 & I’ve had this problem for almost a yr now & finally decided to see a gynecologist about it because of the pain & bleeding. She suggested me using Cetaphil cleanser which is very mild & hypoallergenic & she prescribed a steroid ointment. I seen her today & she suggested I use either Cetaphil cream in the jar or Aquaphor cream because I’m so dry. She is a wonderful lady & has helped me tremendously. Fortunately I’m not sexually active anymore since my husband has passed away 3 yrs ago. It helps to know that I’m not alone in this, we all can use the support that’s out there, both women & men alike.

[@euphoriceclipses2270]

i'm fifteen and i've had this problem for 3 years. i was only diagnosed earlier this year however, and it's gotten so severe that i've been stuck in the bathroom for the whole day at times, trying to soothe it and stop the itch, but it doesn't ever go away. even my attendance for school has been effected. i really wish there was more awareness for it because these last year's have been a real pain in the ass and i pray for everyone and anyone who has to deal with LS.

[@lovettenstuff5092]

I’m 16 and almost a hundred percent sure I have this and have been dealing with this for about 3-4 years. I can’t get a diagnoses rn because of everything going on, but I definitely feel your pain and wish you the best.

[@kiadouglas9798]

I feel your pain, I have this! Been off work and having sex is a no go because I'm in pain for weeks after

[@alohanow156]

Go to earthclinic.com for treatments to help symptoms. I have using Vick’s vaporub and I am surprised it is helping so much.

[@YouthfulGlowBeautyRecipes]

Try black seed oil.

[@joloughlin577]

That’s ridiculous and shame on the doctors who you saw for those three years. Can’t imagine what would have happened to you if you got this during the 90s, I had to have major surgery during winter break at college. I was told by doctors for 3 years that it was an std before they even took a test or yeast infection etc. mind you at the time I had one sexual partner all my life. I had permanent damage done to my glands and then had major surgery and was on bed rest for a month after - as I had triple the number of glands than the average person. I was sexually abused as a child and I think this was one factor in causing this issue - I don’t care what anyone says. I sincerely hope you don’t get interstitial cystitis after child birth cuz that’s what happened to me.

[@louise-marie]

I have had great success using organic extra virgin cold pressed olive oil daily. Simply rub it in to the area. For the first couple of weeks I gently cleansed myself with water after using the bathroom and then reapply the olive oil each time. I now only use it in the morning and again before bedtime. I found it way more effective then a steroid cream. I also have been researching and discovered that low oxalate eating can help this disorder. 2 of the highest oxalate containing foods are spinach and potatoes. I gave both of them up and it wasn't easy giving up potato chips and french fries. My pain is gone so it was well worth it.

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@suesmith3744]

I’ve been diagnosed today following a biopsy , I don’t have the usual symptoms of LS though , no white patches just a horrible itch and a lump that never seemed to heal with occasional bleeding . It was suspected squamous cell cancer but thankfully the biopsy showed LS instead . Am waiting to be given a prescription of steroid cream and an appointment for my local vulva cancer centre . Just SO relieved I don’t have cancer 🙌🏻

[@lenaparnell2417]

I am so happy to hear that it wasn’t SCC. I read about that tonight & it brought tears to my eyes. I’m terrified of getting anything that has the word cancer in it. I didn’t even know there was such a place as a vulva cancer center. I’ve had SCC for under a yr now & it’s very painful & uncomfortable. Thank God I’m not sexually active anymore. Thank you for sharing your story, Sue Smith.

[@nicolasmiley7181]

I cut out all yeast and my itching stopped, I still suffer with LS but stopping that awful itch has made it more manageable and bearable. I’ve also cut out gluten and follow a celiac diet. The health authorities around the world need to provide money for more research in this debilitating disease UPDATE ONE YEAR ON I still have flare ups but the gluten and yeast free diet still helps. I’m very lucky my consultant and doctor are really supportive and prescribe different creams and ointments, hopefully to find something that works (I’m from West Midlands UK 🇬🇧)

[@patreecemcintosh8036]

Hi, can you tell me if litchen schlerosis is actually visible? Can you actually see it?

[@patreecemcintosh8036]

@@ashleyk9328 hey, that's not why I asked. I asked because I had itching and the yeast tests and vaginosis tests were negative. So I was wondering if it could be this, but I Dont see any white patches

[@lenmey1]

Like what yeast products? That’s amazing you got it to stop

[@ree_ree]

This so what I need to do, it's so hard to do.

[@marthamilton973]

I'm going to try your diet suggestions also. In the meantime chlobetasol prescription helps also.

[@whitebranch]

They do not know what causes this condition, but it is linked to Lichen Planus in your mouth - so it's something that affects mucous membranes. It appears like canker sores in the mouth, too. Baking Soda in the mouth heals them. Baking soda in your bath, like a sitz bath, may help Lichen Sclerosis. Borax baths may help, too. Borax will not hurt you if used externally - people use it in their laundry all the time. It is a disinfectant. You can buy it in a cardboard box where laundry detergent is sold. Some people have results using Monistat, an anti fungal, and many people find that eating lots of carbs or sweet foods make these conditions worse - that sounds fungal, too. Do what's common sense: reduce skin abrasion by changing your wardrobe - don't wear pyjama pants that have a seam up the middle - wear a nightgown. Wear more tights and pants that have gussets in the crotch rather than a rough seam. Wear more skirts and cotton underwear. Don't use polyester sanitary pads. Don't eat sugary or carby worthless foods. Lastly, emollients. Especially menopausal women find their skin very dry and thin all over their bodies, so use olive oil or coconut oil religiously, especially in the genital area. Olive oil is very effective. Blot yourself carefully rather than rub with toilet paper or bath towels. Be gentle! Good luck everybody! Don't get discouraged!

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@lenmey1]

Me too last Thursday. Been suffering since April 2019, 14 months. Four Gynocologists and one dermatologist. Every diagnosis under the sun, BV UTI, yeast,vaginal atrophy. Hormone therapy. Seven antibiotics and so many other medication,nerve damage medicine was next until my doctor decided to take biopsy.

[@bhtriz]

Sorry for the question, but do you have the white patches that come along with lichen sclerosis? If yes, why didn't any doc think about the diagnosis earlier :( it's so sad seeing people suffer for such a long time.. :(

[@lenmey1]

beabriks no patches just itching!

[@LichenSclerosusPodcast]

Sorry it took so long to get diagnosed. Unfortunately, this is a common story for a lot of us. It took me 5 years and 4 doctors. How are you doing now?

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@mzjaeee]

Ive had lichen plantis since I was a child in various areas of my body. About 15 years ago it hit my vaginal areas...... Then I remember my parents going through something in their relationship where they thought the other was cheating and giving them an std. The finding was THIS and here I am suffering with it. I also have hypothyroidism and gluten allergy. Keeping gluten out and lowering my sugar intake has helped, but when my cycle comes around, ugh! Lichen game on! Thanks for the video. I will look into some of those treatments. I use the steroid cream when its super bad but would love to be free of this. Its gone away on other parts of my body with diet maintenance. Here's praying💗

[@mzjaeee]

@Miriam Samuel in those areas , very itchy and angry. The areas not affected are not itchy. Its been on my feet, to my forearms, to my scalp, the last has been inside my mouth and vaginal area. I'm am learning about high hystime foods as well setting it off. I am avoiding night shade veggies as these seem to make it worse.

[@mzjaeee]

@Miriam Samuel I do used head and shoulders when its get irritated but mime in the back nase of the scalp. When I sweat a lot that happens. Then it it hes like mad and scabs. It truly is maddening! I would talk with you doctor he can perscrip maybe am ointment with a steroid for when its angry. Thats what I had for my northern region😒 but I saw a nutritionist amd we are working on what foods are factoring to set off of the flare ups. Unfortunately its an autoimmune thing, which usually come in three's. By chance my doctor found it asked about my scalp and hands and looked at the crashing and showed me the "webbing effect" in my mouth.

[@alohanow156]

These doctors get off on these diseases affecting women-the thought of female parts disappearing. All of them sickos. Medical science doesn’t care. O-shots aren’t covered by insurance either. Brings more relief but yet insurance and Medicare won’t cover this procedure to help this Disease. Shame on the medical field and Medicare and all health insurances. Go to earthclinic.com for help.

[@kristinab434]

Interesting. I was diagnosed with hyper thyroidism. Wondering what the connect is there...

[@kristinab434]

Well besides the obvious (auntoimmune, hormones) I mean.

[@jenniferjusten7253]

Thank you Dr.! I am so sick and misdiagnosed for so long.

[@suebartel9232]

I went to 2 general practioners and a gynecologist who kept telling me I just had vaginal dryness. I changed insurance carriers and was able to go back to my original GP who diagnosed it rightaway.

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@kathie554]

Excellent video. Contains all the correct information on this topic. Thank you.

[@BklynBabe]

The itch in the middle of the night 😥 I did not have any problems until after my hysterectomy for fibroids 14 years ago. What tends to help me is antibiotic cream (ointment makes it worse), and alternate diphenhydramine cream or hydrocortisone cream. I douche with dilute acne wash. I try to take Benadryl at night. The itch scratch itch cycle is a struggle. It's like you can't NOT scratch. I also have an area under one breast.

[@alohanow156]

At night and in the morning apply mixture of 1 tablespoon organic castor oil, 1 drop organic lemongrass oil, 4 drops organic lavender oil. Apply generously in genital areas. This works for me. Also, when itch gets out of control I rub 1 teaspoon coconut oil mixed with 1 teaspoon 20 mule team borax throughout the day. Always have some ointment in you genital area at all times. I switch these treatments periodically. I also apply Egyptian Magic cream (order from Costco for $19.99). I also soak every other day in bath tub with 1/4 cup borax and 1/4 cup baking for minimum 20 minutes. If I am going out I apply, as needed, organic ozonated olive oil (buy on eBay). All help really well. Go to earth clinic site for more treatments. Earthclinic.com.

[@alohanow156]

1 tablespoon of organic castor oil, 1 drop organic lemongrass oil, 3 drops organic lavender oil. Mix and apply to vulva, perineal area and rectal area at bedtime and in the morning (and throughout the day if needed). Also, if you need a break from this mix, apply Egyptian Magic Cream (buy from Costco or Costco online). Also, 99% organic aloe vera gel or organic ozonated olive oil (eBay or Amazon). Always keep vulva area moisturized with at least with one of these.

[@LichenSclerosusPodcast]

Hey. How are you doing? Have you been able to find a treatment plan that works for you?

[@barbarachristiansen5305]

i use a water spray bottle , because the tolit paper hurts to much, but if i spray water on tolit paper it for one cleans the urine off my skin and allows me to wipe, i have also used Vaseline when i had nothing else, it helped me get thru the night .emuaid works really well

[@alohanow156]

@@barbarachristiansen5305 I bought from Amazon a toilet seat bidet. There are also hand-held bidets for toilets from $25. Many to choose from.

[@paromita10]

Coconut oil helps a lot!

[@spellbinder196]

I use it too

[@CarmenGonzalez-xq9fu]

Does it take the itch away?

[@niordren9800]

What if you are allergic? Do you recommend any alternatives?

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@elfchick2264]

@@niordren9800 aloe Vera helps stop the pain and itch for me immediately. I always get a fissure right above my clitoris where the hair starts. I was starting to feel the itch and soreness come on and coincidentally I was using the bathroom and used a aloe Vera facial wipe to clean up because I didn’t have anything else. Well for the first time in 10 yrs. The itching stopped right then and the next day, I was absolutely normal. I haven’t flared up since as I bought those wipes and have been using them. Now it’s only been 6-7 weeks and this stuff will come and go sometimes months at a time but still, I am hopeful it will last. God bless all of us that are stricken with this disease from hell.

[@kristinekf2393]

I've had this for 7 year after menopause Doctors said it was thrush it took me couple years, and seeing Private Doctor that I found out I had lichen Sclerosus. Omg never been so desperate for a cure for a illness that's so painful. Soap/shower gels, toilet Role hot bath/showers, tights anything other than cotton is not possible near my privates. I have to use warm water started using Sudocream to cool the area? Also been on Dermovate Ointment which I suppose to use 2 a day which can be impossible. Can not have smears test without going in hospital for local. Not to mention my marriage. Constantly feel bad within myself daily ware cotton underware, toilet role rips my skin so use wipes soap Thank you for the video

[@LichenSclerosusPodcast]

So sorry you are having such a hard time. Unfortunately, it's a lot of us get misdiagnosed often. Have you found anything that works yet?

[@angh638]

After menopause? I’m premenopausal (48 yes now) and it started 2 years ago. It would itch only at night or in the morning upon waking. There has to be a cure!

[@LichenSclerosusPodcast]

Unfortunately, there is no cure but through experimenting with medication and diet hopefully, you will find the right combo to make you symptom-free.

[@paromita10]

It’s the same with me. Coconut oil has helped quite a bit. Steroids are useless as once you stop them the LS comes back!

[@LichenSclerosusPodcast]

@@paromita10 Yes you have to use steroids for life but the amount is minuscule compared to the risk of developing vulvar cancer. I discuss proper steroid use with Dr. Jill Krapf on my latest episode. kzbin.info/www/bejne/m3Smaaatj9Z0l8U

[@paromita10]

@@LichenSclerosusPodcast And what about Lichen Simplex Chronicus? Is it as bad as LS?

[@alohanow156]

See Dr. Coyle in Florida.

[@jenniferjusten7253]

My ferritan iron is always very low and I wonder now.. Now my liver enzymes labs are abnormal.

[@katiie7]

@Valerie O'Brien get live blood cell analysis. You’ll see fungal strains in the blood. It happened to me

[@sagebamboo]

This LS is so embarrassing i rlly wish it never existed i wish i didnt have it and im only 14...

[@barbaraberg6078]

I agree.very embarrasing

[@katestevens5857]

Does LS usually flare up around your period. I had recurrent thrush and it settles down on my period but comes back as soon as it’s over and my gynaecologist said it’s either recurrent thrush or LS. I’m truly hoping it is thrush instead as much as it sucks but I’m still confused.

[@spellbinder196]

Yes I truly think hormones effect it. Coconut oil in your bath water helps so much loose clothing when at all possible cut out foods that trigger and no soap 🧼 down there try not to scratch that’s what causes damage

[@deliaduarte5076]

Where are you located?

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@bee3027]

I am 68 and my doctor thinks I have this and I am getting a biopsy. Is this an age that this can happen?

[@maggieadams7000]

Yes. I am post menopausal low estrogen and now I have LS

[@katherineharris2080]

The biopsy showed that it is so similar to psorasis I was floored I have psorasis

[@stellaquinert]

Itch gone but red raw skin causing burning when going to toilet. Skin hasn't healed for years

[@MirjamPeij]

Pat dry don't rub. Wear cotton liners. Fatty ointment steroids cream helps with itchiness.

[@agalIam]

great video and info, thank you

[@dakotaflamez]

Thank for this video! :-) What moisturizers do you recommend?

[@analiabertoni9793]

I use coconut oil

[@alohanow156]

Search earth clinic web site. I use 1 tablespoon organic castor, 1 drop organic Lemongrass oil, 3 organic lavender oil. Mix, apply at bedtime and then in morning or as needed. This worked for me.

[@rosemaryking-pate6371]

VMagic has great products; also Emu Joy; emu oil; Sudocrem.

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@lenaparnell2417]

Cetaphil cream or Aquaphor.

[@srhpb8923]

Is it okay to have Monalisa laser to remove white spots on vulva due to lichen sclerosus?please answer.

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@marim7784]

Can the color be darkened as well? I have hidradenitis which is in remission, but have these patchy darkened areas.

[@sunshinesmiles70]

Does anyone experience flare up's in different spots? I typically have the itch right under the clitoral hood but currently I have a flare up below that in the labia. This is new for me... To have a different area be itchy.

[@Bobsbud100]

I have a really bad patch under my hood but have had it on my labia and perineum and had bits cut out. I have thyroid roblems and liver problems. I'm sick of it.

[@tinadobbs980]

Yes and then towards the back one week you think your fix then week 2 it's back

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@TheBanaxel]

Lavender,myrrh,argan oil mix it applie it for at least a month.

[@geralyned9530]

Not moisturizer. In between applications of the steroid (used twice a week) use a lotion that has anti-inflammatory properties such as Vitamin-E, pure Calendula oil, Emu oil, or Castor oil.

[@MirjamPeij]

Apply steroid fatty ointment (not the highest potency but the one just below it, prescribed) at night when you have to go to the toilet less rather than in the morning. I use Vaseline petroleum jelly on nights I don't apply the steroids. Sometimes I apply rhe steroids more than twice a week because of the itchiness.

[@ronieborra3338]

I think my problem is the lichen cause it has a white spots and it's very itchy witch it was located in my genital part....... Please help me to found out what kind of problem I have I been suffering for a year right now I would appreciate that....thankyou

[@LichenSclerosusPodcast]

Have you been able to get a diagnosis? How are you doing?

[@pollyplummer8843]

Does it mean my genitalia is going to go away? 😭

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@timberwolff758]

Tell your doctor " I believe I have Lichen" state it firmly if you get ignored go to another doctor.

[@timberwolff758]

Men get it also. And it's just a miserable 😖

[@fd16838]

how to i get rid of the white scars

[@madisenmoreno]

SAME. mine are so so bad

[@anilagohar5064]

Same.

[@elfchick2264]

I read to use half hydrogen peroxide and half saline and spray it on yourself at least 4 times a day and after the bathroom

[@sangitakundu5467]

Hello and thank u very much for the information. I have this problem and I am 30 years lady and also not married yet.Now, I am under the treatment. Can it affect my future pregnancy

[@aruna2077]

Hi r u indian

[@agalIam]

i dont have sex in 10 yrs. iam 64 and its getting worse for the last 4 yrs

[@LichenSclerosusPodcast]

Sorry to hear that. What treatment have you been using?

[@kristinekf2393]

Hmm not good I've been the same, start trying Dermovate ointment - reduces inflammation, ware cotton underware. And cool water when showering no soap just water. I've been using wipes for toilet cleaner anyway, I take small sealed bags of wipes to work & out. 1st in years pretty much stopped using Dermovate and started using Sudocrem its soothing on the infected are well chuffed 👍

[@LichenSclerosusPodcast]

@@kristinekf2393 What was your treatment schedule with the Dermovate and how were you putting it on? What are your symptoms? Did you have a biopsy? Did they test you for anything else? A lot of the time when treatment is not working it's because there is another underlining condition that's not being treated.

[@kristinekf2393]

Correct I had additional issues, long story but Manager recommended a private consultant, was under the consultant for 3/4 years the medication worked a treat no longer needed but a life saver. Then referred back to my Doctor, who's been very supportive put me on Dermovate, referred me privately nearer home, had biopsy that confirmed lichen Sclerosus? Had test done as recently as 2018/19/20 just had a surgery virginal opening best desition feel great 1st time in years.

[@stingsting1132]

Who ever thought lichens can be cured am permanently free from it now with the special herbs medications which Dr iyaremoses on KZbin prepared for me

[@lenmey1]

What is the mildest best moisturizer?

[@alohanow156]

lenmey1 Also, take vitamin D3 and all vitamins.

[@alohanow156]

Coconut oil, castor oil, lavender oil. Best is the combination of 1 tablespoon organic castor oil, 1 drop organic lemongrass, 3 drops organic lavendar oil. Apply at bedtime and in the morning or as needed throughout the day. Lately, I tried Vick’s vaporub and that works too!!!!

[@MirjamPeij]

​​@@alohanow156doesn't Vicks sting? Or does it soothe?

[@lovemagicandroad]

There just is no help. Not for me anyway.

[@elfchick2264]

Try aloe Vera and manuka honey. Slather it on. ❤

[@christmascuddles4621]

Nothing helps.

[@LichenSclerosusPodcast]

Sorry to hear you haven't gotten any relief. Can I ask what you've tried?

[@christmascuddles4621]

@@LichenSclerosusPodcast clobetasol. I took a allergy test in 2017 .. came back I can't use any type of Cain mix or rubber some medicines have that combination in it...I've also tried uv light therapy and still no relief. Thank you for your kindness 🙂

[@LichenSclerosusPodcast]

@@christmascuddles4621 No problem. I'm here to help ladies with LS wherever and whenever I can. I know some pharmacies will mix the meds with different base ointments so it doesn't contain the allergin. Maybe your dr can prescribe a steroid whose main ingredients don't contain your allergins. If there are no steroids you can try topical calcineurin inhibitors. They are less potent but should give you some relief. What are your main symptoms?

[@BerndMelz]

Fettcreme tgl.2 x verwenden. 4:13

[@twangel46]

Emuaid claims to cure it

[@FionaclarkClark]

It didn't cure mine, the only cream that gives me some relief is betnovate cream, but I've still got it after 6 months.

[@FionaclarkClark]

Not me it didn't. Stung like hell.

[@haroonriazb]

You're very hot, doc.

[@essie9028]

She looks like Peg Bundy