Hemochromatosis Pt1

Рет қаралды 1,886

Күн бұрын

Пікірлер: 36

@labbott3933 9 ай бұрын

Thanks for posting. Too many people suffer years with the Celtic Curse before they are diagnosed, even when their metabolic lab results indicate high iron. We have to do our own research and beg doctors for answers. There is information and societies in UK and Canadian, but people and doctors in the US need to know about this condition.

@DeverVision 9 ай бұрын

You are 100% correct

@AppalachianBreadLady 9 ай бұрын

Thank YOU for sharing this.

@DeverVision 9 ай бұрын

Thanks for listening

@herbhometales8255 9 ай бұрын

Thank you ! It’s like you’re putting words to my life!

@DeverVision 9 ай бұрын

You are so welcome. I’m with you. I really hope the video is helping people.

@wmauibill 9 ай бұрын

Diagnosed in November 2023 ,5 venesections in . Chattanooga TN here .

@DeverVision 9 ай бұрын

It’s been 4-5 yrs for me. In Kentucky

@mammamia200 9 ай бұрын

Omg, you sound like what I went thru. I was having so many physical problems. The drs kept telling me different things. And the heat was so odd and horrible. I just kept telling myself i was going thru menopause in my 40’s and it sucked with all my other problems. Finally a decent dr found HH. I had to go every week for phlebotomies for a while then every 2 wks. Only because my blood was too thick and had particles in it. It took a year to finally see my blood drain like a faucet. I was so happy. They told me the iron had been stored everywhere and thats why it was so thick. Scary ☹️I'm so thankful now and have been getting labs done a few days before phlebotomies they do monthly. A lot of damage done before that diagnosis. I've been mediterranean diet minus red meat for a couple years now. I used to use cast iron skillets but had to stop. I miss using them and especially some good steak 😞All the changes I’ve made have helped ease the heat and a lot of pain. Still suffer but I’m better than i was. At least I can function. I love cooking but it does take a lot! Tiring! But so worth it! Take good care of yourself! P.S. Great video! Keep up the good work!

@CaseyDever85 9 ай бұрын

Mamma, your story sounds so much like Shaun’s! I’m so glad they found the issue! The treatment sucks but it could be worse! At least now, we’re aware and can do the necessary! Glad to hear we’re not alone and hopefully this will help others going through this! Thank you for watching!

@mammamia200 9 ай бұрын

@@CaseyDever85 I'm just glad to hear from somebody here in the USA with similar stories! I have the gene from both parents. My oldest brother passed never knowing and same with my sister never knowing. ☹️ I'm sure they had it too. The blessed part is we know and can help ourselves. I'm sure your thankful Shaun found out otherwise he'd have gotten worse. God bless you guys! Great video and hope for more! America needs to wake up in more ways than one. Not just the Drs...😂

@roberternest5908 9 ай бұрын

Thank you for making this video. I’ve shared this with friends and family to try and explain what it’s like having this as you have put it so well 👍🏼

@DeverVision 9 ай бұрын

Thanks for sharing!!

@wmauibill 9 ай бұрын

That’s the worst is not getting any answers and feeling like crap. At least we’ve discovered what we’re suffering from. I hope your symptoms are being alleviated by the phlebotomies

@danmurphyits 9 ай бұрын

Good video. I have this complaint as well

@bethrobinson-pp7gn 9 ай бұрын

Thank you for posting. My husband was just recently diagnosed with HH. It took 10 years to get answers. The daily struggle is real. I look forward to your next video.

@DeverVision 9 ай бұрын

Thank you for watching. I’m right there with him.

@carolinecoffey5404 5 ай бұрын

This is great that you shared this my husband was about 50 and he started feeling really tired, he had chronic psoriasis as well and could hardly walk after exercise. Then he started ballooning in weight and coughing all the time and was diagnosed with AF his heart rate was all over the place. We thought he had Lyme disease too, I found an article luckily about Celtic Curse and asked doc to check his bloods. His levels were very high after venesection his levels are stable. We managed to get our children tested and they all carry the gene.

@DeverVision 5 ай бұрын

I’m so glad this video was informative. I had to make the video. Not enough info about it. Hopefully, your hubby won’t suffer long term effects like I do. With me, it went untreated too long and the damage is done. I’ve just gotten really good at hiding it. Thank you for watching. I try day to day to live my life as normal as I can. It took me about 4 yrs to get my ferritin back to normal. I make videos on day to day life. Well, my life. I started doing these KZbin videos to take my mind off of being sick. It helps a lot and keeps me busy. We maybe not agree on everything in the videos I do. But that’s what makes us all different as individuals. Hopefully you subscribed and I can keep your interest in other videos. Thanks again. And, if you share it helps out..😊😎😉😁

@wmauibill 9 ай бұрын

Bad Body Aches are my worst symptoms

@DeverVision 9 ай бұрын

I can totally relate

@valeriecenti3147 9 ай бұрын

Thank you for sharing. I am so looking forward to the rest of your story. I wanted to do a video like this, but I don’t have the knowledge of how to post so I am sharing your video to get the message out. I suffered for 15 years till a new doctor finally sent me for testing. He literally saved my life and possibly my children and grandchildren as well. I felt like everybody looked at me as a hypochondriac or crazy. I knew something was wrong and just like you all my tests come back and was told “There’s nothing wrong with you.”

@DeverVision 9 ай бұрын

Thank you for watching and sharing the message. I hope it helped. Or, at least made you feel like you’re not alone…

@seymourfamily9942 8 ай бұрын

Thank you for sharing. There's so much to learn about this condition.

@DeverVision 7 ай бұрын

Sry for late response. You are very welcome. You are 100% correct.

@waltzb7548 Ай бұрын

You've just described my past few years. Finally after months got a referral to a rheumathologist, which seemed like not much going to happen, finally tested for iron. I'm loaded with it, just go referreral to a hemotologist, weeks now waiting. Called yesterday both of them...they're on it! I'm in the system. At one point I almost said no one gives a fuck. Still waiting. I went through the lyme disease thing as well after a necrotic wound from a bite from something. That was 12 years ago. I've got the non gynetic type, type 2, but no one has told me yet if that's better or worse. To be continued....

@DeverVision Ай бұрын

Better to have H.H my friend. Go give blood. I haven’t changed my lifestyle. Got my numbers back down. Hope you done have permeant damage like me. It’s a long road. Get those numbers down and you’ll feel better. Took me 3yrs. Mine was 6995

@shelley3825 9 ай бұрын

I am also in KY and on this same journey. I go to KY Blood Center in Middletown. Looks like you are traveling in my area. Have you found good medical providers there?

@DeverVision 9 ай бұрын

That’s exactly where I go too.

@jz7079 2 ай бұрын

I’m literally 37 and in the doctors getting diagnosed

@DeverVision Ай бұрын

It’s a tough ride. Sry late response. It’s been 7 yrs for me. Well, since my health fell apart. About 5 since diagnosis. I hope it’s not too late for you. I have irreversible damage to my joints..