How Dying Looks In Dementia With Hospice Nurse Julie

🌟 Excited to welcome the inspiring Hospice Nurse Julie to our channel! With over 1.4 million followers, Julie is a trailblazer in transforming how we perceive death and dying. Today, we dive deep into understanding end-of-life care, particularly for those with dementia. Julie shares invaluable insights on hospice vs. palliative care, helping demystify the often-confusing aspects and what to expect as a caregiver when your loved one is nearing the end. 🕊️
📚 Exciting news! Julie's upcoming book "Nothing to Fear: Demystifying Death to Live More Fully" is available for preorder! Get a sneak peek into her profound knowledge and personal experiences that could change your views on end-of-life care. Link below! 📖
Julie also addresses the critical distinctions between palliative and hospice care, shedding light on the unique challenges dementia patients and their families face. Her perspective is not only enlightening but also deeply comforting to those fearing the unknowns of death.
Be sure to leave your thoughts and questions in the comments below. Your engagement helps us reach and support more Careblazers like you.
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🔗 Preorder Julie's Book: www.hospicenur...
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🎬 Watch Next:
Differences between Hospice Care vs Palliative Care: • Differences between Ho...
End of Life Dementia Hospice Care: • End of Life Dementia H...
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It’s our mission to make dementia caregiving easier for families caring for a loved one with Alzheimer's disease, frontotemporal dementia, lewy body dementia, vascular dementia, or any other type of dementia. We believe that in order to create a more dementia friendly world, we must first create a caregiver friendly world. That's why we create free educational training videos like this one so that anyone with an internet connection can get access to dementia care information.
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DISCLAIMER: The content of this video - or any content by Dementia Careblazers - does not replace the need for healthcare professionals. Our content is not healthcare advice and is not a substitute for your own healthcare. It is for general education and demonstration only. Do not use this content to self-diagnose or self-treat any health, medical, or physical condition. By consuming content from Dementia Careblazers, you agree to hold harmless and indemnify Dementia Careblazers LLC for any and all losses, injuries, or damages resulting from any and all claims that arise from your use or misuse of this content. All content or recommendations on the company’s website, social media, blog, or email series. All comments from Dementia Careblazers’ are expressions of opinion only.
In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
#careblazer #dementia #dementiacare

[@DementiaCareblazers]

Explore our Care Course for personalized support, live Q&As with dementia experts, and a supportive caregiver community: careblazers.com/for-families/ 🔗 Preorder Hospice Nurse Julie's Book: www.hospicenursejulie.com/book Check out the videos mentioned here: Differences between Hospice Care vs Palliative Care: kzbin.info/www/bejne/nn6XaHaLmqmno6csi=JCZT1r-F2D1skf5s End of Life Dementia Hospice Care: kzbin.info/www/bejne/sGfdkISEmNCWfqssi=wD5JbbV1q_0fp3jc

[@lisalassiter1626]

My mom passed this past January of dementia. I have followed this channel for many years and Dr Natali was a life saver for me in my care journey. As we neared the end I started to realize that I was unprepared for her death and I had a lot of questions that no one talks about. I happen across Hospice Nurse Julie and she helped me prepare as best I could for the end of her life. I thought it was really helpfully for me to see her videos of actual end stage breathing patterns and other end of life videos. I strongly believe this topic needs to talked about more. It truly helped me navigate the last month with a little more comfort.

[@DementiaCareblazers]

Sending you so much love 💖

[@pamwilburn3606]

God comfort you.

[@shawizz]

Hospice nurse Julie Videos have been so helpful to our family. I’ve been watching her because my mother in law has dementia and I’ve been watching her videos and careblazer videos for over a year. One month yesterday my mom died. She was at dinner with us on march 11th and had to leave because she felt sick. She was put on hospice march 20. She does April 11. The things she went through would have been so co fusing and misleading and scary during that process. But we were prepared and just witnessed what nurse Julie had already prepared us for.

[@janicenewbold70]

Wonderful video!!! One thing I was told while my mom was on hospice, that hearing was the last thing to go and I was encouraged to continue talking to her, read passages from the Bible, and express how much she’s loved❤️❤️❤️❤️❤️❤️

[@janicenewbold70]

@@Paulohlsson7 very very well❤️

[@zanyzana66]

My Mum died of dementia or with dementia last Tuesday at the age of 89. I watched the KZbin channels of both you beautiful professionals. They helped me with supporting Mum with her Alzheimers and understand the dying process. So I was informed for her living and her dying. It made me much more confident and understanding.

[@subversivevegan]

She is amazing and helped me all the way to my spouse’s death. We truly do not need to be afraid.

[@Reet64]

This has been really helpful. We have been trying to get a palliative team for my mother but there is so much resistance and it's more like just reactionary medicine rather than instituting an actual plan. It's extremely frustrating and as a very tired caregiver I wish there were a better system to help families with this. Thank you both for the work that you do and the information and support you offer.

[@hansfourie5606]

Hi Dr. . I hereby wish to thank you for your videos and information. It helped me taking care of my wife threw her sickness of alzheimers . I cared for her for six years. She passed away on the 30th April 2024 and you helped me so much . Thank you thank you. Be Blessed Hans South Africa

[@DementiaCareblazers]

Sending you so much love. Thank you for being there for your wife when she needed you most.

[@milels6917]

I live in the Uk my husband in early stage dementia it’s bad for the carer I have not seen a nurse since the first visit thought I would see her and get more help but I understand how busy they are The problems are the same here Thank goodness we have you two nurses Bless you ❤️🙏

[@estherschmitz9985]

Thank you so much for this video!! More people need to be educated on this! Death is a part of life that will happen to all of us… nobody wants to talk about it. Thank you for sharing this content.

[@irmapena9319]

This was wonderful! Please keep educating us caregivers. Thank you both kindly

[@DanaLong-e1g]

Dr. Natali, Thank you! Thank you! Thank you for having Hospice Nurse Julie cover such important topics! I have learned a great deal from her videos.

[@maryblaschka4129]

I am so honored to have been holding my loved one's hand, talking with him as he left this earth. Hospice Care was truly amazing. Love you forever JMG❤

[@susanmann5286]

I was so proud of my adult son when he volunteered at a Hospice location. Not a lot of men do that. When his grandfather, a retired physician was actively dying, my son ended up "taking over" care for the whole family.

[@mrs.e3909]

I would have appreciated a consult with my loved ones doctor at the start of their care and as they began their decline. Even though a nurse could as well explain care, having the doctor in a face to face would have been reassuring and shown that he was invested in our loved ones care. I am tired of the unavailability of doctors in a care setting when families are not getting answers from staff or their loved one is being affected by wait times for decisions from doctors. Answers are critical at times and our family has waited for weeks for staff to move through protocols to receive answers from our loved ones doctor.

[@PlayingGamesPoorly247]

I HATE THIS. But I know this knowledge is so necessary for whats coming. Thank y'all for putting this together.

[@KimberleyBrown-yt3lb]

Educating healthcare professionals is in big need. My mom has dementia. You have to be the patient's advocate. Thank you for the transparency and truth. Thank you!!!

[@jdbnosik]

Knowledge is power. The knowledge you two provide empower those of us who watch your videos, as we travel the death and dying process with our loved ones. What we learn makes the process less scary and, for me, actually made me confident in how I handled caring, and advocating, for my father. Thank you for what you do and what you share.

[@tammyringler300]

This is so important !!! People just don’t know The knowledge is key❤️ Keep on keeping on😊

[@amtrue_]

I needed to hear this right at this moment. I took my mom to the ER yesterday. She was admitted overnight for aspiration pneumonia. As I was typing to find a video to help with my thoughts of "what now"? Then you guys popped up! Thank you Dr. Natali and Hospice Nurse Julie

[@DementiaCareblazers]

Sending you so much love 💖

[@limenlemon9027]

100% times a million!!!

[@misskitty2133]

Best to you & mom! ❤️❤️

[@elainemedley8638]

This happened to my husband going through dementia. He was on hospice and then taken off. It seemed he needed hospice more than ever. I was grateful he was in a wonderful facility that took up the care. Within two months he was back on hospice. And both hospice and the memory care facility made my husband very comfortable till he passed. Most people dread both but the truth is when you are facing dementia and dying hospice is there for you.

[@limenlemon9027]

Going through this now. Hospice has been a blessing. I hope we can stay on it if need be. Very interesting to hear that patients decline if they get taken off hospice. Its good to be aware of this. Thank you for this information!

[@sarahhursey3215]

Both of you wonderful ladies jave enabled me to understand the processes of Dementia and Dying and what is natural and the best ways to manage situations.. my uncle has Dementia mid stage with CLL and varoius other health issues catheter causing many nasty infections... admittances to hospital... but at no time has anyone had a conversation about palliative or hospice care options... he is declining but still has decent quality of life... with these issues.. we know that anytime we could lose him.. both of youre unfaltering advice and information has enabled me to know when hes struggling..I know i will be able to ensure he has good end of life care.. so much love and thanks to you both ❤❤❤❤❤

[@chrissy24-7]

I'm so glad I got the suggestion of this video. My mom was put on hospice in January and taken off in March. I tried to appeal but it was denied. She still needs extra support but won't get it until she gets weaker

[@Lauren_1987]

Excellent information. My ex-husband went into Hospice care Sept. 2023. He is in a private memory care facility. He was diagnosed with Parkinson's dementia 2 years ago. He was diagnosed with psychosis, visual hallucinations. He became very volatile, aggressive, belligerent. His dementia changed his personality. There are MANY different kinds of dementia.

[@judyevans2205]

My husband is headed down this path of aggression and belligerent. Can you talk more about this Natalie.

[@clynnadams32]

My husband has been with hospice for 3 weeks today. Thank you for this video

[@stephaniegoddard9397]

I also say “When in doubt…Check it out” Thank you for your video’s…Dr. Natalie and Nurse Julie. They are so informative. Blessings to you! ❤

[@hospicenursejulie]

💕💕💕💕

[@amieklingler1574]

Great video. I just put my Mom on Hospice a few days ago. I really appreciate the information in this video.

[@zaeemahrobinson8720]

The two ladies I watch often for helpful videos and valuable information. Thank you❤

[@lindalarson5468]

This was so helpful. I am already a devoted follower of Julie, and I would encourage Julie to TALK to doctors about all of this! Accept those invitations to speak to doctors and other medical professionals because those of us with dementia patient family members are feeling so alone and forgotten by our doctors. Excellent video!!! Thank you both.

[@elainesfab5032]

This is amazing ❤definitely every health care professional need to be trained with this information! Family members need to be their own advocate! Thank you

[@marccamilleri2335]

Julie your the best and help me deal with dementia and death now I know what to look for

[@culturematters4157]

Dr. Natali, you enunciate better than anyone I've ever met!

[@DementiaCareblazers]

Thank you!

[@culturematters4157]

@@DementiaCareblazers Sorry to hear that your father passed. My 91-yr-old mother has advanced dementia (sleeps 23 hours a day, is bedbound, double-incontinent, spoonfed, and under hospice care for 15 months) and was given a week to live 3 months ago. It pains me to visit her (she hasn't known who I am for almost 2 years) and she acts scared when she wakes up and sees me. I don't see that she benefits from visits, but my 94-yr-old father insists I visit her frequently. My oldest brother stopped visiting her 2 years ago. Do you have a video on whether it's helpful to even visit advanced dementia relatives?

[@MaryMcclain-jm8he]

Love nurse Julie!! Follow her always!

[@peggyhawkinson3061]

Excellent topic from two esteemed professionals. Thank you! 🙏🏻

[@queenmum698]

I started out as a Dementia Careblazer when my dear husband was still home, but sadly I had to move him to a Memory Care facility. He was eventually put on Hospice and then I found Hospice Nurse Julie. I 've learned so much but watching my Sweetheart go through this has still been so heartbreaking. God Bless all who are going through this...both the patients and their families.

[@myredpencil]

You 2 are a power team of leaders !! So great to see you together🥰

[@karendeehenninger]

Commenting on about 17 minutes in when death is not the job in medical. I just want to share that my first experience with hospice was when my sister was dying of cancer in 1987. At that time it was 2 women who came to my home. The sole purpose was to discuss death. It was understood that medical doesnt deal with talking about death. It is maddening to hear and see that decades later it appears hospice has bern put under the umbrella of medical care and the original purpose doesnt exist. We had hospice for my mom who died very quickly in 2019 of a brain tumor. Hospice is medical care assist in dying. Like birthing a child, the events as natural life processes are controlled and interpreted through the medical model. It is beneficial at times to have the medical model but often the actual process of life events often is smoother and less hurried when and chaotic when fear and control are replaced with trust. I have long believed that a business built on induced fears become self limiting beliefs. I heard there are death doulas now?

[@kayokolindenberger3754]

This video is 100% spot on. This is everything I have experienced. My mom has vascular dementia and has a fantastic hospice care. I had a different experience when my dad was diagnosed with terminal cancer. Because he had a health maintenance organization (HMO) insurance, every decision needed a referral from his primary care. HMOs are truly cost saving focused and the all the boxes must be checked before moving the patient to the next level of care. Including having palliative and hospice care. He was finally transferred to hospice 4 weeks before he passed away. Once he finally got to hospice it was wonderful, but I wished I could have gotten my dad in palliative care as soon as he was diagnosed with terminal cancer.

[@daizeofgrace]

My husband has diffused brain atrophy and we are working with Johns Hopkins memory care to try and define what is actually causing this. I’m seeing him struggle more lately cognitively and trying to get support and care for him and support for me is just impossible to get. I feel so alone and isolated and when your heart is breaking watching your spouse leave you bit by bit and doing it alone is the hardest thing I’ve ever faced. I just don’t know how to do this though I’m trying to learn as much as I can so I feel I have some knowledge to face each day. So much needs to change so we aren’t so alone

[@irmapena9319]

Hola, your information on changing wet briefs during night is so informative. Thank you. I appreciate it

[@Kaleidescope66]

Big fan! Love Julie ❤❤❤

[@DavidBall-v5i]

She's amazing always!!!😊❤

[@stevenblack3092]

Wow listening to this I’m so glad to be living in Australia your medical system sounds like a nightmare we still have a few hoops to jump through but once your in the system then they have to meet there outcomes

[@jenniferwatson7118]

Thankyou.

[@Pink_143_6]

When my mom was in hospital, i had to request my mother go into hospice. I was very discouraged with the lack of support through hospitals and rehabs when my mother was clearly deteriorating quickly from Alzheimer’s. Once on hospice, my mother passed 2 months later. Not all physicians or medical professionals will mention palliative or hospice care. You really at times have to advocate for your loved ones

[@sandyrobi9280]

Love njrse Julie!

[@josieharrison839]

I have dementia and I am worried that no one will care for me. I have no young people in my family nearby.

[@Pink_143_6]

Most importantly talk to your physician and request resources asap. 🌸

[@cbonnieb]

Thanks!

[@DementiaCareblazers]

Thank you for your support.

[@Print229]

About palliative care... be careful about this, especially if your loved one is in a facility. Fair or not, a lot of caregivers and medical staff in facilities *assume* that family members just want their loved one to die fast so that they can get their money. So, if you do ask, as I did, about palliative care (and hospice!), you are playing into that stereotype. Approach with caution. In my case, when I asked about palliative care, the doctor told me he'd call me back and then, he told the facility he didn't want to service me or my father as he has a problem with my morality. The facility then told me they would evict my father in 24 hours because the facility doctor would not treat my loved one. I had to BEG the facility admin, crying, not to evict. They only agreed when I offered to hire a care manager to interact with the doctor, instead of me, AND to give the doctor carte blanche to do as he saw fit without my approval or consultation.... JUST because in the first three minutes of meeting the doctor, I'd asked about palliative care. This probably won't happen to you.... but know that it might and know what people are assuming about caregivers -particularly ones who put their loved one in a facility and/or are much younger than the loved one.

[@ElizabethCook-q5g]

Sorry that happened. I know even some good doctors don’t understand palliative care and hospice care and that is a real shame.

[@Print229]

@@ElizabethCook-q5g Thank you. It is a shame. My father died 6 months and 2 weeks after the day I offended everyone by asking about palliative care and hospice. I swear, the Bible belt is decades behind the rest of the country.

[@annemariedeservi9345]

Thank you for that information. I will be careful when I bring up the issue.

[@jessicadecuir1050]

Why didn't the use of antipsychotic drugs get covered here? And how these drugs are distributed in hospice and increased before death? When is it ever okay to give these dangerous drugs to dementia loved ones in hospice? In my mom's case, the hospice nurses were pushing her to be on those drugs right away, and I fought against it. My sister and I disagreed, and she was ultimately put on a drug (Seroquel, without my consent) that caused her to start screaming loudly and sporadically. She was not the same even after a low dosage of that drug. My mom's vitals were perfectly fine, yet she was put on hospice after a fall because she was too anxiety ridden to do the physical therapy, and too frail. In her last months and days, my sister and I endured her screaming loudly and calling out to her mother, a behavior that had started with an antipsychotic she was put on 3 months earlier. Even after being taken off that drug, the screaming continued (Seroquel stays in the system a long time and has dangerous side effects, also causing insomnia). The nurse also explained that she had to be put on another antipsychotic temporarily while she was withdrawing....absolute nightmare and they needed to abide by our wishes to wean her completely off of antipsychotics, not introduce another dangerous drug. The hospice nurse called mom's three months of screaming "terminal agitation". I call it irresponsible, unethical use of antipsychotics in the aged with dementia. In the final days in hospice, anytime my mom made a peep or seemed upset, the hospice nurse would come in and use a syringe to put drugs in her throat....they switched her to haldol. It was excruciating to watch. I understand the need to make her comfortable, but in the end it was these dangerous, black box drugs that stopped her heart, it was not a "natural death" you signed up for with hospice and palliative care. We asked the hospice nurses to allow us to give her cannabinoid gummies early in mom's hospice stay, but they would not allow it. I think there is an extremely limited tool kit available in hospice that pushes dangerous, inappropriate medications for those with dementia. The Black Box warning labels even say not to prescribe to persons who are elderly or with dementia! So why are hospice nurses across the US doing this? In Canada, there is already a big push to make the distribution of antipsychotics to elderly dementia patients illegal. Hospice nurses need to stop playing down the fact that these are dangerous drugs. Literally the day my mom went in hospice, I asked a nurse why she was recommending mom be put on haldol (for severe anxiety) and how concerned I was about the black box warning label. The nurses response was, "well she's dying anyway", to which I replied, "she is NOT yet actively dying, and is still having conversations and is very much alive." These hospice nurses are either misinformed themselves about the serious risks of these meds or are not being up front about it. When I asked questions about these drugs, I was accused by my sibling as being disrespectful to the hospice staff. My sibling would not allow me to bring up the meds or discuss them rationally. It was mind-boggling and maddening. I get it, quality of life and comfort is a big issue, but we need to rethink the use of antipsychotics in hospice for the elderly with dementia. Full stop.

[@JamalSimmons-ms4qp]

I LOVE your new hairdo!

[@christinem.carter-wanner5304]

Love from Roundup, Montana

[@virginiahilman7786]

I am am LPN in a nursing home and i’m 68 i hate what we do to our elderly with dementia. how would i transition to a hospice nurse?

[@Pink_143_6]

Are you a resident or do you work there? I’m a bit confused. If you are a resident, you would need to request a hospice evaluation to see if you qualify for services. 🌸

[@EZman373]

Check out QSP , qualified service provider in your state . New program , just getting started .

[@angelaharris1112]

I was recently diagnosed with mild dementia. There is only one place I've found that deals with the patient themselves. So I follow y'all and appreciate all the info I get. What worries me morlst is the I have Medicare, but don't qualify for Medicaid. Doesn't seem like Medicare helps with anything in later stages. Am I wrong?

[@Pink_143_6]

Medicare will cover all expenses of hospice including medications and any personal supplies needed.

[@patriciahopes2136]

I don't see the link for Julie's book on death and dying. Where can I find that?

[@DementiaCareblazers]

🔗 Preorder Julie's Book: www.hospicenursejulie.com/book

[@dorishumphries8689]

What stage do you enter hospice?

[@DementiaCareblazers]

when a physician estimates a person has less than 6 months to live.

[@flonamelton9224]

Do you need to pay to get someone on hospice

[@Pink_143_6]

No

[@DonnaMason-kr3pg]

Well intended efforts in this video & with this message, but we're ignoring the more common contributing root cause of death in those with Dementia ~ the systemic, abusive practice of chemical restraint by way of anti-psychotic medications that are scientifically considered to hasten cognitive decline and death. What version of dying is this applicable to? Or, the version of dying that those drugs "dumb down" people's cognitive capability? Is this the version of dying that those drugs result in increased falls? Or, the version of dying that those drugs increase immobilization, including the inability to feed themselves? Or, the version of dying that those drugs &/or immobilization cause weight loss? Or, the version of dying that causes an LO to sleep for 3 days straight vs the body's natural progression of being unconscious or the natural mechanism of making them sleep during the active dying phase (as described in this video)? These are the versions of death of a loved one with Dementia that is traumatizing. Hospice can be a useful resource that can be a blessing, but I've witness it much too often from within residential care facilities that it is used to alleviate "care" by the facility staff & a decision made in hast by a medical provider who sees the person in a state or condition at a moment of time without having awareness or context to the Dementia patient's journey of neglect and abuse in residential "care".

[@hogietunes5193]

🧠Doc and HNJulie 🎯💝

[@nighthawk_predator1877]

Our entire health care system/structure blows so why should we expect progressive dementia care to happen? The problem as I see it is our government could care less about the elderly and or those who are not elderly but have diseases that affect mostly the elderly like dementia. It's like the govt taxing social security. It's a huge middle finger to those in our society young and old. We need better more equitable healthcare across the board and we need more comprehensive social benefits in general that do much more than just do the band aid treatment.🤨

[@songoftheblackunicorn666]

Yeah I'm kinda just mad at all of them except the social worker nurse and her hospital doctor and a Bassett nurse councilor from the hospital. They have such a mean spirited attitude and there were only four visits offered where they don't do anything whatsoever

[@anne-marieriamitchell1140]

Sorry me again mum recently had pneumonia and our primary care doc said no more hospital for Anne now ( this was before mum was Ill) at the time of mum being so unwell it didn’t enter my head and got an ambulance but surly if someone is conscious and saying can’t breathe you can’t let her suffer? To me in that situation mum was suffering it was so clear she would have an awful death and that’s not something I want mum to go through Spoke to mums other dr who said she needed to go to hospital and she’s not there yet but my husband was really pushing me leave mum at the respite home i said it’s hospital or home or I move in here. My husband who a fire fighter and pare medic ditto son said that your mum won’t ‘die quickly’ in his opinion he didn’t think I could cope because I have autoimmune things and get tired but I was there for my gran and coped and looking back that took days but gran was unconscious surely if your love one can express feeling awful you get help? I’ve already done a DNR as I know if it came to it without that being deceived in advance I would try to save her she’s my mum! Sorry guys all to much info but am I right that dying shouldn’t be like the above and fully awake and suffering and telling me that? Would appreciate a response xxx

[@Print229]

Oh, dear. It's hospice nurse Julie. I'm going to be very honest. Her videos did as much harm to me and my loved one as they did good.... and that's if I am being generous to her. It saddens me to say that. I watched all of her videos and read everything she recommended to better prepare myself. And now that I have lived through it and seen death come to my demented father, I can stand on solid ground when I say, very firmly, take everything she says with a TABLESPOON of salt. She paints a very, VERY rosy picture of hospice services and the death process, IMHO. You are doing yourself and your loved one a disservice if you walk in with those expectations. The better homework is to find people in your location who have lived through it and asked them to tell you *everything*.... or better yet, to sit with you at the bedside and help guide you. Seriously. THOSE are the people who can prepare and help you... including helping you deal with hospice. And finally, one more note about Julie... in this video, she says something false. She says she puts a trigger warning on all her videos that have real people dying in them. This is untrue. She used to put trigger warnings up but not anymore. I have left many comments asking her to do this. She doesn't. She's been reported to YT for this but still, the videos without triggers remain and she continues to make more without trigger warnings.

[@michele21auntiem]

I agree, i am a speech path and worked with lots of terminal patients. There are vast differences in good hospice care and the complications that can arise. Terminal agitation happens way to frequently and hospice doesn't always come everytime you need them.

[@leeannulrich9874]

May you find peace

[@yvonnetitus2]

I have heard her say multiple times you can interview multiple hospice companies and even change companies. I have watched so many of the actual dying videos and she always has trigger warnings.

[@Print229]

@@yvonnetitus2 I'll try to look up the ones I've reported for you. No trigger warnings. Yes, almost all of what she says is not false.... but it's overly rosy! For example, interviewing multiple companies. You can interview all you like... BUT... some will only accept people with dementia at stage 7c and others at stage 7a... My father died at stage 7a. (My mother is about to die, too, at stage 7a.) So, you interview them and then, the patient must be evaluated. If they are denied, you are off again to search for another hospice. It'll take about a week. But let's say you get lucky and everything seems to be great. They are accepted and you like the company. Then, your loved one is actively dying. THIS is where you find out just how good they are. Oh, you LOVED the person you interviewed with... but they moved on from that company or aren't working that week or aren't on call... and the person you get, instead... Well. ON AND ON. You don't know what you'll get until you are living it. That's the kind of thing I mean when I say 'she paints it very rosy'. She assures you, "Oh, you can just interview with different hospices until you get one you like!"... and it's not false... but it's very misleading, also.

[@Print229]

@@michele21auntiem And some hospice nurses recognize agitation and are quick to treat and some don't recognize it until it's severe. And you don't know who you'll get when you're in need. Same is true for the hospice doctor. Some are generous with the morphine.. and some are not.

[@marykaymorley8551]

Hospice Nurse Julie's videos are exemplary. I am new to caregiving and she explains things so well. She is a great teacher and comfort, and she puts into words what is difficult to talk about.

[@hospicenursejulie]

Thank you so much 💕

[@Lauren_1987]

Hospice Nurse Julie is THE BEST OF THE BEST. She educates and teaches us NOT TO BE AFRAID of death and what happens when a person is dying (what to expect).

[@yvonnetitus2]

I actually look forward each Wednesday for her Live at Five. I am just a regular person looking for education before I need to know.

[@hospicenursejulie]

Yay! Thank you 🥰🥰🥰

[@donnapavlovsky9923]

This was a message I really needed today. Thank you both for the work you do and the knowledge you share. You are both a true blessing to this community!❤

[@DementiaCareblazers]

💖

[@limenlemon9027]

💯

[@garygarza9441]

Now this really looks like to genuinely care about someone else that truly needs help thanks Julie and Nataly

[@wendychappellbarefoot]

my mother was diagnosed with Alzheimer's Disease in 2017 though she clearly had multiple manifestations for many years prior to diagnoses. i moved her into my home in 2017 and, with a lot of support, cared for her until she passed. we palliated her at home last month and it was quite an amazing and peaceful process. i am so grateful she did not have to leave home for her dying and death.

[@culturematters4157]

Bless you for providing this wonderful, loving gift to your mother!

[@stevenblack3092]

Talk about timing we are just starting the palliative care stage I’m ready to let her go but the grief is immense 😢

[@cathydale104]

Thank you so much for having nurse Julie as a guest. I have been subscribed to you both for quite some time. I have been through the dementia journey with my father, who has now passed, and am currently going through this awful disease with both my mother and mother-in-law. Here in the UK, I definitely feel that we don't discuss death or dying enough. As caregivers we are always so worried that we haven't done enough, aren't we? Julies questions to ourselves of "are they clean, safe and comfortable?" is going to be of great comfort to me going forward. Thank you Julie. I really needed to hear that. It will definitely bring me some peace along the way.🙂

[@maypalmer]

Wow, it's freakin' Hospice Nurse Julie for real!!!!

[@maureenmcgrath8169]

As a caregiver, you two are the sources I share with all of my families.

[@audrianafreberg5629]

I don't know what my family would have done without my dad's hospice service. He went on hospice(Alzheimer's) about 10 months before his passing(he was recertified after the first 6 months). He was already in a skilled nursing facility, but the added support and care my parents and family received from hospice was beyond anything I ever expected. They were all so warm and genuine and truly guided us through his last few months of life. Even though his facility was wonderful, the 2x weekly extra nursing visits gave us so much more peace of mind. They called us with updates, checked in with us and were so caring. The chaplain not only visited them each week, but he continued to come see my mom every week for a full year after Dad's death. My mom is now in her own later stages of dementia. I certainly don't want to hasten her decline, but I have to say, I am looking forward to her having the extra hospice support once she qualifies.

[@michaelcohen7274]

Thank you both for this great conversation. I love Hospice Nurse Julie!

[@DementiaCareblazers]

Us too! 💖

[@chessiepique9532]

Thank you for this. This is exactly where I am with my loved one, and I'm trying to learn what I can.

[@DementiaCareblazers]

💖

[@Laurie-p9g]

Love Julie and how easy she explains the process, thank you for doing this video and would love any type of follow on with the both of you.

[@DementiaCareblazers]

Glad it was helpful! 💖

[@tinak.356]

McFadden is my Grandmothers maiden name.

[@limenlemon9027]

Excellent interview. Very informative and helpful. Its a very difficult situation to go through. This conversation helps in understanding what’s going on.

[@angelasnyder2855]

Medicare in America.🧐

[@gerrylieberman7867]

Excellent! well stated on everything she said, so helpful in my situation with my my.

[@bobfenton5711]

Excellent... I have been looking for this for months.... hard... but necessary

[@albertouribe435]

Thanks

[@songoftheblackunicorn666]

And keeping her from getting a UTI is a 24/7 job. And if you can't even come and do a lab on her every two two and a half weeks then I'm sorry that's pretty darned malicious if you ask me because I can't leave the house with her at home anymore and it takes two people to take her anywhere anymore

[@fkarbowski]

Love this video! Much needed!

[@betsysloan4619]

I wish I had this information 5 years ago! Thank you for teaching about death and dying! I unfortunately had the home hospice from hell experience for my husband who had Early Onset Alzheimer's!

[@jessmohi6317]

I can't emphasise how helpful this video is. Thank you both for being so clear, kind and generous with this important education.

[@DementiaCareblazers]

Glad it was helpful!

[@pamengland6103]

Thank you.

[@songoftheblackunicorn666]

We don't even get help assessing if there is a UTI

[@myredpencil]

Thank you for saying that it's hard to suggest hospice to the care team, but they don't want to suggest it either. Then I feel like it makes me seem impatient for my mom to die, if I want them treating her like she's dying soon. Thanks too for the reassurance that Medicare & her Tri-Care should cover hospice, as this whole group home/guardian/conservator thing is a pain & has not been covered by insurance! I'm an only child taking care of my mom, who I haven't lived with since age 10. We've had a close & caring relationship and I'm glad my life was open to take her in for her last good year. The research I'm doing now is therapeutic too, bless your hearts!

[@MispelledOnPurpose]

Who do I contact to get palliative care? Mine is temporary in patient at the nursing home for rehab from a fall. They can barely walk or speak and are incontinent, only eat pureed food, but hospice is strict about them being non verbal. The nursing home said nobody in my area accepts our insurance for home health care (smaller town) but we weren't wanting to permanently put into a facility.

[@kumonaccountant7182]

Thank you Dr Natalie for exposing us to Hospice nurse Julie. It is an eye-opener to those of us who do not know what to expect Dr. Natalie you are the best and m ost informative individual out there when it comes to dementia Thank You Regina

[@lynnmason1625]

I have dementia, C.O.P.D., and now cancer in lung, thank you from all of us, you are a blessing.❤❤❤

[@irmapena9319]

Hola, your information on changing wet briefs during night is so informative. Thank you. I appreciate it

[@irmapena9319]

Hola, your information on changing wet briefs during night is so informative. Thank you. I appreciate it

[@ritaharvey3981]

I'm so happy I found nurse Julie.. she has helped me sooo much.. thank you Julie ❤❤️

[@charlotteminichiello6260]

Julie is the best!

[@lizzijansen6527]

Excellent!