How I Set Up My NJ Tube Feeds ➰

  Рет қаралды 31,706

Simply Hannah

Simply Hannah

6 жыл бұрын

I have a PO box!
PO Box 103
Huron, OH 44839-9998
Instagram: hannahr916
Camera
Canon g7x mark II
Welcome to my channel! My name is Hannah and I live with a couple of chronic illnesses. I also love traveling and beauty. Thank you for supporting my channel!
For Business Inquiries ONLY: hannah-elizabeth98@hotmail.com

Пікірлер: 72
@spinstercatlady
@spinstercatlady 6 жыл бұрын
Wow! Setting that up takes as much time and energy as fixing a full on dinner haha 😃😃 Glad to see how well you are doing!!
@jlee5649
@jlee5649 4 жыл бұрын
Im on my first week of a nj tube.i have the kangaroo joey pump as well. Its nice to know there are other people going threw the same process i am. And always good to see how others go threw out there daily functions connected to a tube. Lol. Thank you.
@ginajozile1226
@ginajozile1226 5 жыл бұрын
Good job I feel like most people with this feel upset most of the time but you took your condition to KZbin to show the world how brave you are about this try not to make this take over your life being upset👏🏾👏🏾👏🏾😀😁
@luis-be7xw
@luis-be7xw 5 жыл бұрын
I think your are so strong and brave you go girl !!
@thespotlight5659
@thespotlight5659 5 жыл бұрын
Love you hannah. You are a huge inspiration to me. Keep up the hard work.
@yaleximeza5834
@yaleximeza5834 5 жыл бұрын
God bless u. You inspire me everyday
@rylee2792
@rylee2792 5 жыл бұрын
I live in Ohio too! And I’m 12 years old and I’m currently in the hospital at rainbow babies and children’s hospital, I also have an ng tube and am getting a formula switch.
@Cultleader1984
@Cultleader1984 5 жыл бұрын
I'm about to get one of these put in so nervous
@emelyjuarez5387
@emelyjuarez5387 5 жыл бұрын
God bless you
@IsabelleJane
@IsabelleJane 6 жыл бұрын
Hello Hanna I was wondering if the feeding tube pump would work with a vibedration or kandypack hydration backpacks? I have several packs for my infusions so I just put the tubing through where the bladder used to be basically. I use the 3 L for going out because it’s a lot more space and the two leaders for home use mostly.
@SimplyHannah98
@SimplyHannah98 6 жыл бұрын
I'm not sure, I'll have to look into it!!
@MrKrabs420
@MrKrabs420 5 жыл бұрын
I couldn't do it girl 🙏 stay strong
@rarebarney5681
@rarebarney5681 5 жыл бұрын
so can you take that during the day or is it best to take it when you are sleeping.
@niphanif
@niphanif 4 жыл бұрын
Does it remove excessive gas?
@qttmia0974
@qttmia0974 5 жыл бұрын
Go girl I hope you fight it!
@d4y08
@d4y08 5 жыл бұрын
Stay strong Hannah
@officialkuraz
@officialkuraz 5 жыл бұрын
God will be on your side when something happens wrong
@alphablade2203
@alphablade2203 4 жыл бұрын
U go girl god is on your side and so am i
@sambaker5333
@sambaker5333 5 жыл бұрын
Ik u might not see this but can u try to answer, i am about to have an nj (maybe) and im wondering how do u feel when u wake up and how long does it take for you to get energy back cus im rlly weak and im getting it because i keep vomiting so if u can answer then thanks
@estherfisher2005
@estherfisher2005 Жыл бұрын
What's like having a feeding tube I may have to to get one I am nervous
@Redstoneprojrjr
@Redstoneprojrjr 5 жыл бұрын
God bless you hope u feel better
@andreag6077
@andreag6077 5 жыл бұрын
💙💙💙
@roxannehopkins2193
@roxannehopkins2193 4 жыл бұрын
I know just how to do it my sister has a similar condidtion but slightly different and she is only 5 years old and almost died at birth but I hope you can get better and may God bless you 🤗❤️
@prettygirl.morgan_judd5307
@prettygirl.morgan_judd5307 4 жыл бұрын
U are strong dont let anyone say that you are not strong ♥️♥️♥️♥️
@cathytower4116
@cathytower4116 2 жыл бұрын
I just got my NJ tube yesterday and I feel gaggy . Does this get better? And do you have any tips. Thank you for your video it made me more comfortable going into this. 💕
@SimplyHannah98
@SimplyHannah98 2 жыл бұрын
It took about a week for me to get used to it and not feel gaggy. Hope things get better for you soon!
@itskay9376
@itskay9376 4 жыл бұрын
I know your not goin to see this but I luve your videos and your a very strong ladie 🥰❤️but I want to know if you can feel it go up your nose
@kodyshu6320
@kodyshu6320 5 жыл бұрын
Stay strong :-)
@addswilliams
@addswilliams 5 жыл бұрын
Stay strong
@mariagerbacio2674
@mariagerbacio2674 5 жыл бұрын
does it huert
@Izzy.notfound
@Izzy.notfound 5 жыл бұрын
Maybe u could try to eat a smoothie with a spoon or babby for or apple sauce love u
@icecreampanda6332
@icecreampanda6332 4 жыл бұрын
God bless you 💖💞
@gracem3252
@gracem3252 5 жыл бұрын
I have to wear a brace and i hate it! 😭
@fernandojacobs2494
@fernandojacobs2494 5 жыл бұрын
you should come to Michigan we have great medical
@charliherrera8430
@charliherrera8430 4 жыл бұрын
Nothin is stoping you follow youre Dreamstime
@TerriShaw05
@TerriShaw05 3 жыл бұрын
I love in Ohio also and go to the cleveland clinic. Who is your doctor,
@asimerexha6075
@asimerexha6075 5 жыл бұрын
I have just seen your videos stay strong sister hello from Kosovo Albania love you
@incurablyawesome2024
@incurablyawesome2024 6 жыл бұрын
Hi Hannah! Are you able to choose what type of formula you receive? Do they work with your diet if you are vegetarian or vegan? Interesting vlog! Thank you for teaching us how to set up an NJ tube for feeds. :) Your backpack is SOOOOO cute by the way!!
@SimplyHannah98
@SimplyHannah98 6 жыл бұрын
I personally wasn't able to choose which formula but I'm sure if you bring it up to the doctors or dietician they'd work with you and find something! Awh thank you so much!!
@heatherdelisle6380
@heatherdelisle6380 6 жыл бұрын
Did you buy a special backpack or make one to hold your feeds?
@SimplyHannah98
@SimplyHannah98 6 жыл бұрын
I bought a Vera Bradley backpack and then my grandma sewed a clip at the top to hold my feed! I'm making a video about it soon!
@anitraduke3616
@anitraduke3616 3 жыл бұрын
Keep up the fight. I'm wondering how long they will wait, before they will put you on a permanent tube? I'm going to try out a a NJ soon. If it helps me, then we put the permanent on. If not I'm going to TPN. I wonder how long they will leave a the NJ in before they place the permanent Jtube.
@SimplyHannah98
@SimplyHannah98 3 жыл бұрын
Usually they're a short term thing but I've had a lot of complications and finally just got my permanent tube placed (over 2 years later). I did not have an NJ tube that entire time though, it was on and off over the years. Sorry I don't have a better answer for you, sending good thoughts your way 💗
@anitraduke3616
@anitraduke3616 3 жыл бұрын
@@SimplyHannah98 This is the 1st time I have had one. But it is only because I have left it until I have no choice. They will do a NJ tube 1st. My Stomach was helped by the GPoem, so it went through it quickly but my Intestines aren't working well. It took 175min to go through my Intestines. So it may not help me at all. I will have to get TPN.
@itssarieee1672
@itssarieee1672 4 жыл бұрын
If you didn’t know you can do auto prime so you don’t have to prime it your self
@dineshdurgam4602
@dineshdurgam4602 5 жыл бұрын
Your stronger than me
@SOPHIALARUE40
@SOPHIALARUE40 5 жыл бұрын
Do you ever feel the formula going in you like in your nose. What does it feel like. ?
@marlihacker5325
@marlihacker5325 5 жыл бұрын
that’s a good question
@desireedaniel6073
@desireedaniel6073 5 жыл бұрын
i also have an NJ tube and you can’t really feel anything unless it’s cold, then it just kind feels like something cold is going in your nose and throat, i hope that makes sense lol, there’s not really another way to explain it😂
@maddy-em2yu
@maddy-em2yu 5 жыл бұрын
Were do you live in Ohio???
@roselinepetion5407
@roselinepetion5407 8 ай бұрын
You don’t look disgusting. You are very very beautiful 😍
@mo2wheelz74
@mo2wheelz74 4 жыл бұрын
What dose the formula actually taste like 🤔
@LuisMendoza-jx4sg
@LuisMendoza-jx4sg 4 жыл бұрын
Hmmm
@LuisMendoza-jx4sg
@LuisMendoza-jx4sg 4 жыл бұрын
It’s maybe the same thing as Diet Coke This time it’s Diet Formula
@emilywolf5520
@emilywolf5520 3 жыл бұрын
I feel bad for hannah she cart eat
@MOJORAPSCALLION
@MOJORAPSCALLION 5 жыл бұрын
Real shame I couldn’t listen to this video the music was way too loud :(
@leekaren9707
@leekaren9707 4 жыл бұрын
You beautiful you are not ugly
@yogabirds
@yogabirds 6 жыл бұрын
You are doing a great job! Keep up the good work! How many siblings do you have?
@SimplyHannah98
@SimplyHannah98 6 жыл бұрын
Thank you so much! I have 3 younger sisters!
@yogabirds
@yogabirds 6 жыл бұрын
Simply Hannah Thanks!
@ocean_101
@ocean_101 5 жыл бұрын
If I were you I wouldn't be surviving right now :P
@ashakrpata8464
@ashakrpata8464 5 жыл бұрын
Does it taste good?
@SimplyHannah98
@SimplyHannah98 5 жыл бұрын
I don't drink it, it goes through my tube so I can't taste it.
@fernandojacobs2494
@fernandojacobs2494 5 жыл бұрын
if you ever need 5 cc s of chorizo call me please
@cunyanwei6004
@cunyanwei6004 5 жыл бұрын
Who Is here from inside edition
@doggymilk4203
@doggymilk4203 5 жыл бұрын
Hey! Just wanna say I feel bad for you you are very pretty
@lizzyL59
@lizzyL59 6 жыл бұрын
hey just to let you know your background music is too loud and its hard to concentrate in what your​ saying over the music
@janaeandrose4214
@janaeandrose4214 5 жыл бұрын
At least you can walk and you don’t have to use a diaper like my cousin that lives with me
@janaeandrose4214
@janaeandrose4214 5 жыл бұрын
She has the same disease as Hannah does
@taytaycherry
@taytaycherry 5 жыл бұрын
I wonder if medical marijuana would help you eat? Just a thought lol
@desireedaniel6073
@desireedaniel6073 5 жыл бұрын
Taylor Starks with gastroparesis it’s not really the lack of hunger that’s the problem, it’s the fact that the body won’t digest the food after it has been eaten and when you eat there’s lots of pain, vomiting, etc after you have eaten.
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