How I Spend My Week in Style

Sarah Noble lives with a rare genetic disease Mucolipidosis! alpha/beta. Mucolipidosis is considered part of the Ultra-orphans of the Lysosomal Storage Disease family of which there are over 60 known different disorders. There is no cure or treatment for this disease ML. This short is about my week in style. What I got up to heading towards my holiday.
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Until them I wish you peace, happiness and lots of love. Sarah Noble