How I was diagnosed with MS (Multiple Sclerosis)

  Рет қаралды 33,263

MyMSJourney

MyMSJourney

Күн бұрын

I explain the steps involved in getting to my final MS diagnosis in this video.

Пікірлер: 45
@ravengale
@ravengale 9 жыл бұрын
I was on your path and stopped at the MRI. You've just inspired me to return. I'm calling my neurologist tomorrow.
@nelliepeople413
@nelliepeople413 11 жыл бұрын
thank you so much for this video. no one knows your body but yourself and ppl always love to become dr and tell you what you feel and what you have. argh!!!!!
@ravengale
@ravengale 9 жыл бұрын
I wanted to thank you for posting this. It was because of what you said that I went to have a spinal tap. It was done today so I'm just relaxing on the couch. I'll find out all my results in 3 weeks. I'll come back with those when I get them.
@missluvmoney
@missluvmoney 6 жыл бұрын
raven gale any updates?
@sparklebox11
@sparklebox11 5 жыл бұрын
@@missluvmoney No one replies with updates :(
@Mr5star407
@Mr5star407 9 жыл бұрын
thanks for sharing your story! I too have MS and i have decided to go the alternative route.
@nissandoctor1
@nissandoctor1 9 жыл бұрын
Great video you give me encouragement to keep pushing my doctor. I
@musich3508
@musich3508 12 жыл бұрын
Thanks for posting this. I know you posted this a little more than 2 years ago but your information has been inspiring to me. I am struggling now to find out what is wrong with me. For a while I have thought that I had Connective Tissue Disease, due to rupyured breast implants. I am now having neuralogical symtoms. I am seeing neurologists, rhumatologists, and others. Right now none of them agree on anything. So I will keep on them. Thanks again and I hope that you are doing well.
@missluvmoney
@missluvmoney 6 жыл бұрын
Cassandra Bradleigh any updates?
@yaredmamofeleke6535
@yaredmamofeleke6535 11 жыл бұрын
Really its wow great video, thank for all doing sharing activities
@rrmosley1
@rrmosley1 8 жыл бұрын
Hello! I was recently in ER. I had been feeling exhausted and other things over a few weeks. But the left side of my face and bottom lip became numb. That alarmed me to go on to ER. In the case I may have been having a stroke. I have currently been diagnosed w fibromyalgia along w a gamet of other things. While at the ER the neurologist mentioned that I was having symptoms of MS. We tried for a MRI twice. But claustrophobia prevented that. I saw my PCP and she is referring me to a neurologist. So grateful for your post. I see that your posts have been up for years. So I am asking for now 2016 how you are coming along in this journey?
@xXAvrilAtHeartXx
@xXAvrilAtHeartXx 13 жыл бұрын
Thank you so much for this information! my CT came back clean and i'm waiting for my mri results but if that's normal results I will ask for a spinal tap so thank you! :)
@donotconcede
@donotconcede 15 жыл бұрын
Thanks so much. I sure do wish my thoughts were as gathered and efficient as yours. I'm all over the place in my videos, due to being unable to focus. Sounds like you have some good doctors. I had to learn on my own about MS, but I am switching neurologists to a good one at Hopkins. Again, I appreciate your videos. heh i wish my own were as cohesive as yours. :) hugs, Judy
@kimberleeanastasiasdavis7539
@kimberleeanastasiasdavis7539 12 жыл бұрын
i am so sorry to hear this i wish you the best you are in my Prayers Sweetax
@DiscernWell
@DiscernWell 13 жыл бұрын
Thank you for posting your journal. I know that you have helped so many people and I pray, in the Name of Jesus, that you will be healed.
@paulaclark7412
@paulaclark7412 5 жыл бұрын
You are so gorgeous...thank you for using your platform to serve...
@georgenep1082
@georgenep1082 10 жыл бұрын
Hi Tamika, I'm not sure but i know my body has been terrible to me for about 1 year. I thought vertigo, I had a blood clot maybe it's that but I was told my symptoms sound like MS. I'm afraid of what's to come but happy someone finally heard my cries. I'll be in touch!
@missluvmoney
@missluvmoney 6 жыл бұрын
Georgene P any updates?
@wkjeom
@wkjeom 9 жыл бұрын
You must have some doctor to be able call back and call back. If I do that, I get fired as a patient. They are so very CRUEL and CRIMINAL. God bless.
@rvquilter83
@rvquilter83 13 жыл бұрын
Did you have to wear an eye patch to correct your eye problem? My son is having to wear a patch to hopefully correct the problem. Thank you for your videos, it's helping me understand what he is going through.
@85jaded
@85jaded 10 жыл бұрын
ty for your videos
@kin1766
@kin1766 12 жыл бұрын
I'm a little confused as to how you managed to get the diagnosis with only one lesion. I'm obviously not disputing it and I'm really pleased for you that you were able to get the clarification...but I only have one lesion, had an abnormal spinal tap and spent a week in hospital with sensory and physical symptoms yet was told I couldn't get a diagnosis as I've only had one attack and one lesion. If I get more a diagnosis will follow. I'm just curious how yours worked out so differently.
@phillipclements282
@phillipclements282 5 жыл бұрын
You have really cool eye shadow
@christinedavi
@christinedavi 15 жыл бұрын
so what meds do they want you on? Thanks for the informativen video. Christine
@selleisa121626
@selleisa121626 8 жыл бұрын
How are you doing now?
@Christmasqueen84
@Christmasqueen84 7 жыл бұрын
I’m kind of on this same path. My neurologist I’m sure has results of my spinal tap and cervical/thoracic spine mri but has not called (and I’m sure won’t) to share results. I have one more appt with a nuero opthamologist next week and then my follow up with my neurologist to get all my results isn’t until nov 1st! It’s killing me to have to wait another month.
@missluvmoney
@missluvmoney 6 жыл бұрын
Christmasqueen84 any updates?
@terrieacosta990
@terrieacosta990 2 жыл бұрын
What was happening to your eyes?
@sineadtbc3338
@sineadtbc3338 8 жыл бұрын
Did anything traumatic ever happen to you that may have triggered the MS do you think? Wishing you all the best xx
@TheDetroitblack
@TheDetroitblack 4 жыл бұрын
I feel horrible.... I have every symptom of MS for years,even when they read the test,they saw the white brain matter on my brain,and they tried to say it's because of my age lol and I was 53 at the time,now I'm 57 and I can barley walk some days,I have horrible pain in my back around by my neck and now I can't sleep anymore,it's so many different issues when I have a flare up...I feel like I have been looked over and I don't wanna live anymore,it just hurts and I have no support, can't find a doctor I'm at the end of my rope!!
@bethany2nirvana
@bethany2nirvana 11 жыл бұрын
What do you have exactly? i was tested for ms and came back negative. But just my head. I live in a dizzy world, ear symptoms, arm and leg symptoms, my neck and shoulder hurt, muscle spasms..etc..sucks but im hoping to get to the bottom of all this.
@missluvmoney
@missluvmoney 6 жыл бұрын
bethany2nirvana any updates?
@deborahtruthseeker112
@deborahtruthseeker112 7 жыл бұрын
Spinal tap is too risky. I know of a few ladies who became permanently paralyzed, and only lived a few years afterwards. One lady attempted to sue, gave an attorney the fifty thousand dollar retainer he demanded, for the medical malpractice involving The Huntington Memorial Hospital in Pasadena, California. That rotten attorney took her money, and fled the country. That attorney was also located in Pasadena, but I cannot recall his name, or if she even gave me his name. I may have forgotten to ask her because I was so upset about my own dire situation. Also, there was an older lady who wore a medic alert bracelet, which the same hospital, The Huntington Memorial, ignored. She nearly died as a result. She told me she was suing them. I wonder how her case turned out? I did not ask her for her telephone number or anything else. Then there was a case where that very same hospital committed malpractice on the daughter of a woman named Betty Newton, many years ago. Her daughter died, and she failed to sue them, or perhaps could not, way back then. That hospital scares the hell out of me. All I hear about them is horrible news. I do not ever want to go there.
@Mojosfire
@Mojosfire 14 жыл бұрын
I envy anyone who can have a good neurologist asses them. I'm on state healthcare insurance, and even though the neurologist found of abnormal brisk reflexes, and missing reflexes, Vertigo, and very noticeable tremors in my hands. I was told I probably just keep my feelings inside, and it's just stress. This is on top of all the typical MS symptoms, and not having an MRI yet. Now I have been having falls. My legs keep going out on me. :(
@missluvmoney
@missluvmoney 6 жыл бұрын
Mojosfire any updates
@ladyessence2628
@ladyessence2628 10 жыл бұрын
Thank you for sharing, you are welcome to check out my story as well. It's always great to build a support system
@henryd5078
@henryd5078 9 жыл бұрын
skin sensitive? all my blood came back negative. My problem might be related to the Gulf war , at least you didn't have ALS which is a death sentence ...
@bethany2nirvana
@bethany2nirvana 11 жыл бұрын
oh no sorry, see thats why Im worried. If they dont ever see it, it wont get treated and I will get worse :( Im scared enough as it is. I dont know of any other condition that could cause all these symptoms though. The only difference is my symptoms are ALWAYS there. They dont come and go. Is that unlike MS?
@missluvmoney
@missluvmoney 6 жыл бұрын
bethany2nirvana any updates
@jetunknownactor
@jetunknownactor 13 жыл бұрын
@rriverstone1 it's not just mercury but alsow aspartame and msg that can give you MS and lots of otther problems like type 2 diabetis => we all need to know how we can help ourselves the natural way before we take that dumb so called hungry for monney science !!! => don't get me wrong i 'm all for science but not for those who are there to fill there pockets => those who are there to really help and heal people need to be payed :-) you always ,always need to get to the cause of
@jetunknownactor
@jetunknownactor 13 жыл бұрын
@rriverstone1 hey it's not just pseudo science => science was wrong many times => moust times they even know => they do it for the money => have you seen her latest video :-x do you know how much money is involved => have you any idiea of how resurge is being conducted ? lots of times they make very basic mistakes :-( => lukely less than 30 years ago , but still to much => the biggest problem science hass is they are not honnest all the time because of monney :-(
@sweetaxthanxaxswisha8963
@sweetaxthanxaxswisha8963 12 жыл бұрын
for so long i thought i was the only one that had all those sympthomes. that i was alone. i was diagnosed with MS when i was 17. i really hate this disease. ! im a high school student and i feel like such an outsider. ive been made fun of because of how i walk. people are so cruel !
My MS Story - 17 Years Until a Diagnosis
9:43
metaspencer
Рет қаралды 241 М.
My First Multiple Sclerosis Symptoms
4:29
My Journey with MS
Рет қаралды 477 М.
Support each other🤝
00:31
ISSEI / いっせい
Рет қаралды 81 МЛН
Tuna 🍣 ​⁠@patrickzeinali ​⁠@ChefRush
00:48
albert_cancook
Рет қаралды 148 МЛН
Сестра обхитрила!
00:17
Victoria Portfolio
Рет қаралды 958 М.
Tamia Opens Up About Living With Multiple Sclerosis
3:42
Father of Hunter Wood testifies in Megan Boswell trial
18:41
What are the symptoms of Parkinson's Disease? - Ask the Experts
6:47
ButlerHospital
Рет қаралды 640 М.
How Ocrevus works in Multiple Sclerosis
3:07
Aaron Boster MD
Рет қаралды 55 М.
Multiple Sclerosis: Understanding Your MRI
6:59
DrBarrySinger
Рет қаралды 262 М.
MS: The Basics - Symptoms of Multiple Sclerosis
5:53
Multiple Sclerosis Foundation
Рет қаралды 212 М.
Trigeminal Neuralgia - My Experience
7:57
MyMSJourney
Рет қаралды 74 М.
My MS Symptoms - 1st Outbreak
5:59
MyMSJourney
Рет қаралды 151 М.
The Only Seated Exercises That Improve Balance & Stop Falls
11:55
Support each other🤝
00:31
ISSEI / いっせい
Рет қаралды 81 МЛН