How to treat Polycythemia Vera, What are the causes and symptoms

[@4estdweller4ever]

I was just diagnosed with Polycythemia, with leukocytosis and thrombocytosis. I think I’ve had it for years. It’s been like pulling teeth to get a diagnosis. Always made to feel like a hypochondriac. My symptoms are so bad it has ground my life down to a halt. I’m a very curious person though and will be proactive about understanding this disease. Strange side note. My dad had leukemia when I was born. He died of Hodgkin disease and lung cancer at 40. His dad died from stomach cancer at 40

[@Jair260686]

How are you doing with the Polycythemia? I've just been to the hemithalogist after countless other doctors and she thinks I got Polycythemia because of my lab results. Had blood samples taken and will have to get my bone marrow checked. Funny thing, my Dad died of Leukemia about a year ago- and I donated bone marrow to him! Now I'm waiting curiously if I'm so "lucky" to have gone from Bone marrow donor to blood cancer patient in Just over a year... Guess life is what happens to you while your making other plans!

[@natelindsey7778]

@@Jair260686did you get diagnosed?

[@Rhonda-a10]

The fatigue is the worst symptom. Headache is constant. Currently being treated with low dose aspirin and phlebotomy. Diagnosed first in 2003, but it was ignored. Diagnosed again in 2014 with a very high hematocrit.

[@tgifford4]

The Jak2 gene controls the number of blood cells produced and survival. This genotype, rs12340895(G;G), is associated with a 2-4 fold increased risk for cancers of the blood such as leukemia. www.snpedia.com/index.php/rs12340895 This increased risk may be due to abnormal (damaged hematopoietic stem cells) that go on to form cancer stem cells. The body can clear damaged stem cells, however, through a process known as autophagy. Resveratrol has been shown to increase the clearance of damaged hematopoietic stem cells, which may be particularly important for this genotype. Resveratrol selectively induces apoptosis in malignant cells with the JAK2V617F mutation by inhibiting the JAK2 pathway sci-hub.tw/doi.org/10.1002/mnfr.201500166 www.vitacost.com/vitacost-trans-resveratrol

[@abdullahkhansafi4500]

R Love hi bro

[@traceyn.3421]

ApoE-ε2/ε3 thank you for this info. 🤗

[@viplodge981]

what's that mean "it was ignored? " no treatment? how high your job hct at 2003?

[@maridithtorres9604]

I have a friend that was diagnosed with this disease 😥

[@barbarag6583]

I am on 500mg of hydroxyurea. Yet I am constantly constipated, feel bloated, constant high blood pressure and an enlarged spleen. It seems that Hydroxyurea is not helping me?

[@latinaustralia]

Anything to placate the unbearable itching after a shower? For me it can go on for a couple of hours before it subsides

[@susanwesterby9672]

Some says it is easier to first warm up the body in a sauna and then go to the shower.

[@gina2190]

Anyone had severe hair loss?

[@NileshKumar-Dl1wli]

Me too

[@rajmeera113raj3]

Me

[@hoangnam3409]

I also have hair loss, perhaps because the blood is not enough to nourish the hair follicles due to thickened blood. Wish you health

[@MR..181]

Enlarged spleen from trying to deal with Rbc ..myeloma..?.low kidney function caused itching.?..1987 merck manual lists cardiac stents as cause of polycthemia..tracer bone pain.!