Huntington's Disease Q&A | What's Life Like? 🤔

[@kellys8930]

I am right there with you on the apathy:( Keep your head up. As a fellow HD patient, I understand. Fatigue seems to be my biggest issue. Happy to see you looking great. Have a fun Halloween!

[@hdfindthefunny]

Thanks for sharing .

[@terrilamarks9539]

You look great and always happy to hear updates!! You’re a rockstar!

[@hdfindthefunny]

Thanks very much!

[@kimalderson5837]

Thank you! I’m 49 and I have HD as well. Sending love from a fellow HD warrior in Indiana!

[@hdfindthefunny]

Thanks for sharing! Hang in there!

[@awilson8077]

Our Megan loves the scary decorations. It's her favorite time of year. Always roast the pumpkin seeds after pumpkin carving. Sorry to hear about the drug trial. Thanks for sharing your life, both of you.

[@hdfindthefunny]

Thanks for watching.

[@jqzielinski]

We don’t have a lot of traditions for halloween. My kiddos love this time of the year and we should do more for them, I’ve seen lots of great decorations out there… we should pick some new traditions. I like your custom idea, thanks for the update!

[@hdfindthefunny]

Thanks for sharing.

[@ayayanable]

Interesting & informative video, thanks. Halloween? Love it! But, in the 30 years we’ve been living here only about 5 kids have been by; and they were neighbors’ kids who now have kids of their own. No one wants to go down the long, dark, scary driveway. We buy microwave popcorn just in case though. No candy here. LOL. We used to eat it when no one came by. Cheers!

[@hdfindthefunny]

Thanks for sharing!

[@karenellis5498]

I really enjoyed your videos with Marj (that as my mum’s name by the way) and seeing how you’re doing. You’re in my thoughts & I hope you experience love & joy in every day. You’re an inspiration. I wanted to ask if you recall how your chorea symptoms were early on before, your diagnosis. When it started did it come & go, and get worse when you were tired or stressed? Or was it constant once it appeared? Did you find it difficult to get to sleep because of the chorea? Lastly, did you experience pain when your movement symptoms kicked off? I imagine you would be experiencing some pain with the dystonia now,. I’m referring to the kind of pain you feel after overdoing it at the gym with muscle aches and even down to the bone kind of pain? Thank you in advance for your work on raising awareness & time in responding to my questions. Great work, keep keeping on 🥰🙏🏼

[@hdfindthefunny]

Thanks for watching and for commenting.

[@juliaskalla3979]

have you tried Jala penos