Huntington's Disease: Stages and Therapies

Huntington's disease is a rare genetic disorder that causes programmed degeneration of brain cells, called neurons, in certain areas of the brain. This talk explores the diagnosis, stages of the disease, and its treatment. The Stanford Huntington's Disease and Ataxia Clinic has been named a Center of Excellence by the Huntington's Disease Society of America. This talk reflects the treatment standards offered at Stanford.
Speaker: Veronica Santini, MD Clinical Instructor, Neurology and Neurological Sciences, Stanford University Medical Center

[@speedbuggy16v]

As someone who is starting to see symptoms, I am more than a little bit terrified, but at the same time I don't want to know, a diagnosis would prevent me from getting life insurance. With there being no cure, and only minimal treatments for the symptoms. I see no reason to go to the doctor. One thing that you don't cover in your commentary on the suicide risk is those that would take that path to prevent further pain and suffering to their families. For me the scariest thing would be living long enough to not be able to make that decision. I watched a friend die from ALS, the most heartbreaking thing was the day he realized that his guns were on the second floor and he could no longer make it upstairs. We should really have legalized euthanasia, people should have a choice. Most people do not want to be a strain on their families.

[@happybergner9832]

Assisted suicide in eleven states is legal.

[@speedbuggy16v]

@@happybergner9832 It should be in all states, at least thats my opinion.

[@happybergner9832]

@@speedbuggy16v I agree w you!

[@happybergner9832]

@@speedbuggy16v if you check out Brittany Maynard's story on KZbin, you will see how difficult it is to have end-of-life laws passed. Her story is heartbreaking

[@janroach1852]

I agree with euthenasia completely. If that is the decision of the person suffering. My brother died of end stage lung cancer and he had no desire to take his life but if I were in the same situation I would not want to suffer. But I would like to live as long as possible until my quality of life was too hard to handle. I am not brave. Unfortunately, as in the case of your friend with ALS, because doctors are not allowed to help these patients die when they wish, the situation is forcing people who do not want to live to the very end stages of having to make the decision to take their life too early. I think the best move would be for people to move to Washington state where euthanasia is legal. Young children have to suffer the tortures of the damned before they die of terminal illness because doctors cannot help them. It's barbaric. But, again, this would only be done after counseling and at the direction of the patient. I think people refer to this as dying with dignity but I believe whatever the choice, all of these people die with dignity. Choosing to fight to the end is very brave.

[@goldbeachsurfer]

I was diagnosed today with it. I just turned 50

[@channelsharon5621]

I wan to use this medium to say a very big thank to dr Ehimare on youtube who was able to cure and reverse my mother in_law from this Huntingtons disease and God will bless you continiously sir🙏. You can also contact dr Ehimare on his youtube channel or what [phone]

[@dridume6042]

through dr idume I got cured using his herbal medicine and now I'm better and normal, thanks to him👇👇👇 kzbin.info/www/bejne/epLLondofs-hlZY

[@sharonwoodard5038]

My heart goes out to you. I hope you are able to get all the support you need. We definitely need more awareness and understanding for people suffering from this disease. ❤ My thoughts are with you.

[@33stevelinda]

i have sadly lost 4 members of our family to huntingtons all from my mums side of the family my nan passed away in 1987 my uncle passed away in 1996 my mum passed away in 2002 and my brother passed away in 2007 and my nephew is in the middle stages of it right now.. i have been tested and i don't have it

[@lilwilliam26]

So sorry my friend was just diagnosed. Its a terrible disease.

[@chrisbart5502]

that is so very hard. i'm so sorry.

[@spiritualservicesgodbless7641]

48:30. For me, the most difficult part of the disease was figuring out what to do as the person has a short lifespan. I Remember doing that for my dad. Someday I will have to think about it for my Ex who is 30 and he has this disease. 🎭🐚🐌

[@spiritualservicesgodbless7641]

When my Ex was diagnosed with this 5 years ago, he could not walk but now he is doing a little bit better. He goes to the doctor every day, and he takes his medicine so he right now does not have to deal anymore with the neck shaking.

[@haleberry5939]

Well done. Just so the pendulum swings a different direction in the comments section: I listened to every word. Thanks to you and your partner for taking the time and effort to share your knowledge and experience with us. The Huntington's community has hope because of the dedicated and compassionate people that are fighting for answers and advocating for the patients.

[@spiritualservicesgodbless7641]

I don't like to remember my dad sick like this. ⭐🌟

[@spiritualservicesgodbless7641]

12:20. Yes daddy almost 50 when he diagnosed. My ex was maybe 25 when he was diagnosed with this and I can't believe. My ex is so young. ⭐🌟🎂🧁🐾🐚🐌

[@tracyscanlon4587]

Great video, I would like more of this

[@spiritualservicesgodbless7641]

Smart video. A lot of details and I learned a lot about the disease. 🤷🧟🌟⭐

[@BUDDH_KA_BHARAT_TV]

Thanks a lot Ma'am for informative videos 🙏💐

[@derpate7616]

Wow this along with eds I believe both my daughter and I suffer from. I had a gastrologist have the nerve to tell me to lose weight despite only being 165 lbs and already lost about 40 lbs spontaneously over a coarse of three months and I'm still losing it without trying. I've got loads of red flags...

[@tripppl3d746]

Bist du tatsächlich erkrankt?

[@toddgilmore118]

These speakers will never truly understand just how much life sucks living with this disease!! I am 49 and have watched my Father kill himself, my Sister die from AIDS in her 30's and My Brother I can't even talk to because I can ever understand what he's saying with this disease!! I lost my son, and My wife of 12 years see me get worse and worse day week by week! More irritability, shitty attitude and mood. Terrible depression and carrying a sex offender charge over my head from when I was 19 dating a 15 year old. Trust me it couldn't get much God Dam worse!!

[@newforestpony9567]

This is very out of date. HD 1 is heavily funded and resulted in reduction of Huntington protein. HD2 has been expanded and showing very promising earlier indicators. It's a total game changer for those in early phase reducing progression of the disease.

[@laurahunter7581]

Do you have any advice on where to look for newer info, please?

[@happybergner9832]

💕💕

[@janroach1852]

Thank God they found something. Once the Huntington gene was identified then it is only a matter of time before there is a cure. Certainly new treatments.

[@darlenemestas5839]

I'm related to one of the colonial families that was researched to find that it was hereditary. The van stone family is off one of my lines. I'll make sure to have my neurologist check for this. The line of the van stones, the modern family seems to have no cases after a certain time to today.

[@hansendesigns]

Weird opening, Got the bug for loving and learning about HD?

[@spiritualservicesgodbless7641]

Thank you for the video. 🧘🐥🦈

[@The_Dirty_Dutch]

This comment section is wild

[@winros]

You are good 👍🏻

[@ilkeadrall710]

It's Paracelsus not Paraclesus.

[@rodneypauley4077]

I’ve a friend with Huntingtons he’s been on pills for the movement three or so months and will be going on other meds, will the transition be rough on him?

[@Nivsyaaa]

can someone help me with this

[@CC-vw1nd]

Her cheerful demeanor about such a horrible disease is a little off putting.

[@janemike3490]

I recommend Dr Oje Abacha on his KZbin channel for getting rid of my Huntington disease.

[@spiritualservicesgodbless7641]

Mother doesn't understand. When I found out, I called her that night and I told her and I don't know why she claimed " Oh he will be fine!!". 👙🌸🌺🐅🦎🐇

[@winros]

Who is from East Brunswick New Jersey ?😊

[@trumpsahead]

I did not listen to much of your video, but scanned most of the therapy portions, but can find no reference to the use of marijuana or hemp as a possible improvement to the patient? Has marijuana and hemp been tried, and if not, why not? I do know medical marijuana can improve certain types of seizures, and tremors of Parkinsons and MS.

[@miriamcarroll4260]

trumpsahead I was just thinking the same thing!!!!! CBD oil seems to be working for it. unfortunately it’s illegal most places, in Ireland anyway.

[@Anonymous-wb6yj]

kzbin.info/www/bejne/nHWXhGaojqeSh6M

[@taylorscott7402]

4 years ago I was diagnosed of HUNTINGTON DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including HUNTINGTON DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an HUNTINGTON DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from HUNTINGTON DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

[@spiritualservicesgodbless7641]

So many years ago May 7, 2013 Daddy died from this disease. 👀⭐🌟🕺

[@spiritualservicesgodbless7641]

Daddy died. Mother won't answer her phone. I'm helpless. 🐡🐥🦢✨💫

[@AutoWorldzz]

Huntington, Virginia , 2021 "Nice and creative Videos，I can see A lot of thought has been put into the content and editing of the video， This is really my favorite channel.:) .🌴🌴🌴excellent 👍👌👍👌👍 🌴🌴🌴 🌴🌴🌴 🌴🌴🌴 🌴🌴🌴.

[@spiritualservicesgodbless7641]

My dad died of this. Now I found out that my ex he's 30 and he has it and he will die in a year. I can't believe it. Don't know what to say.🌺🌸☘️🔥🐌🐚🌭🍔⭐🌟

[@calisun2009]

I'm sorry that you are experiencing so much distress. I wonder if you could find some comfort through a support group or an individual counselor.

[@liveitlikeitloveall2746]

Spiritual Services God bless I’m sorry to hear that, I love you please hang in there

[@irme8930]

Hi! No, he will not die. There is a remedy. I have a very bad neurodegenerative disease and I found an amazing cure: seawater. This therapy is implemented very much in the latín countries, especially Nicaragua. Doctor Maria Teresa Ilari is a pioneer. The foundation Aguamaris in Barcelona, too. Also check dr. Hulda Clark therapy for degenerative diseases. There are remedies. I drink 1 lt of water with lemon and seawater in the morning and it gives me amazing clarity. I feel normal again. I reccomend sports, especially swimming. If I don't follow my routine the cramps and mental fog and clumsyness come back again. I can send you the whole routine for your friend. I keep my illness at bay líke this, even if lately I had many friends visit, got out of my routine, got tired and I lost weight and my body became sniff. I have to start all over again. It's a terrible fight. Let me know if your friend needs help.

[@masteryola1154]

Traditional herbal doctor who healed me from motor Huntington disease this is a testimony. You can contact him on whatsapp [phone] Email: [e-mail] suffered motor neurone disease for 6years until i met doctor okoduwa who helped me. You can get in touch with him on WhatsApp [phone] Email Address [e-mail] and he can as well help you with other herpes disease

[@stankapusheaux4810]

@@irme8930 You're probably correct. I mean, how many fish have you seen with Huntington's disease?

[@spiritualservicesgodbless7641]

This is awful, butI don't want to dump off my Ex when he dying. ☠️🌸🌺🕊️🐿️🦔

[@zulemaandviolet2824]

You take up the only whole comment section stop talking about your ex

[@spiritualservicesgodbless7641]

42:22. Yes my ex is taking Tet he takes it every day. 🐏🐘🐎

[@Gail0510]

Chrorea and Epilesy Asthma.

[@chrisbart5502]

Furthermore, lots of factual errors surrounding Nancy Wexler and her family.

[@Gail0510]

I have Jeuvinile Hutingtons Disease. Pregnant. 3rd trimest

[@spiritualservicesgodbless7641]

I want to get pregnant every three months to donate to Stem cell Research.💃🌸🌺

[@spiritualservicesgodbless7641]

I pray over my Ex at least once a day and give him to God.✨💫⭐🌟

[@Gail0510]

My CAG count is 182 repeat

[@spiritualservicesgodbless7641]

45:00. Yes I will have to cut up food for my Ex into tiny pieces. 🌸🌺🍔🌭

[@spiritualservicesgodbless7641]

35:00 Yes I want to take care of my Ex. 🦐🐥🦈

[@gunterliam7411]

All thanks to dr Stanley who cured me from my Huntington’s disease I am forever grateful

[@happybergner9832]

How did he cure you?

[@spiritualservicesgodbless7641]

My ex asked me on 4th of July 2019 to marry him. I don't know. Romantically speaking I don't know if I can be attracted to a dying man. 🌟💫👸👰

[@antartic_123]

Is that even needed? Maybe look at it like warming the heart of a suffering soul. IDK

[@antartic_123]

And.... We are all dying men.

[@masteryola1154]

Traditional herbal doctor who healed me from motor Huntington disease this is a testimony. You can contact him on whatsapp [phone] Email: [e-mail] suffered motor neurone disease for 6years until i met doctor okoduwa who helped me. You can get in touch with him on WhatsApp [phone] Email Address [e-mail] and he can as well help you with other herpes disease

[@Gail0510]

I have a vry high IQ I get 11 words in Countdown

[@Gail0510]

Very

[@taylorscott7402]

4 years ago I was diagnosed of HUNTINGTON DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including HUNTINGTON DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an HUNTINGTON DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from HUNTINGTON DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

[@masteryola1154]

Traditional herbal doctor who healed me from motor Huntington disease this is a testimony. You can contact him on whatsapp [phone] Email: [e-mail] suffered motor neurone disease for 6years until i met doctor okoduwa who helped me. You can get in touch with him on WhatsApp [phone] Email Address [e-mail] and he can as well help you with other herpes disease

[@loriscook5231]

Please explain, I don’t understand what you mean

[@ashleycross3099]

id rather have her say african american then african blacks

[@joannaj.2787]

Well most black people are not american lol.

[@happybergner9832]

They may live in countries outside the U.S.A.

[@laurenm.6320]

Not everyone in Africa is black (northern African populations, European-descent Africans). She is distinguishing the ethnic populations that are and are not represented more highly with this genetic condition.

[@feedtherich11]

And MMMMMM and MMMMMMM- get some help with speaking and and and and then MMMMMM. - these are not words.