I had a seizure 😕 brain tumour information and health update..

[@diaryofeireann]

I'm feeling grand now so please don't worry 😊

[@billy.sheppard97]

Glad to hear! keep your head up. You WILL beat this.

[@diannaperry8116]

I am so glad to hear you are doing grand now, but being a mother worrying is what we do!😊

[@ct2521]

My and my Mum hope and wish that you don’t have any more seizures 🍀

[@alexleitchbscopen3905]

The Body is Beautiful

[@alexleitchbscopen3905]

I've been dead a lot f times it doesn't matter

[@Deborahblacoe]

Éireann, please re-think the go fund me. Having one less thing to worry about will leave you more energy to look after your health. 🙏

[@LittleLemon1000]

Just fyi, underneath her video where you see the like button, there is a 'Thanks' button. Anyone who wants to support her financially, can use that 😊

[@meankitten1]

I think youtube takes a portion of that money, right? @@LittleLemon1000

[@Deborahblacoe]

@@LittleLemon1000 thanks for that. Just tried but can’t use it because I’m not in an area of US$. 🥲

[@69Kevrod2012]

@@LittleLemon1000 YT takes like 30% tho

[@LittleLemon1000]

@@69Kevrod2012 Whaaaaaaat? I had no idea! Ok, forget what I said. Gofundme it is!

[@ellenmacpherson4690]

You shouldn't feel guilty about another gofundme. The community wants to help you. When you make these videos you are pouring out into the community, helping family members and patients with chronic neuro issues and tumors, let the community pour back into you.

[@Faith37471]

I agree with you

[@cholehill8638]

please set up fund

[@higreentj]

Getting friends and family to subscribe to her channel will help.

[@darrellmay4502]

Someone might have to do it for Her, she seems humble!,✨

[@jocelynprior1874]

Im born and raised in canada and girl, get a lawyer for that employer. Thats malicious dismissal

[@tracyjane1000]

Absolutely disgustingly shocking !!!!!!

[@karenchandler3875]

I agree. Employment lawyers can be well worth the fees they charge. Personal experience.

[@schnuds]

7:55 that person was fine letting someone die... seizures can get very dangerous & her not calling you back is literally her risking someones life like wtf is wrong with people in the health sector

[@krisfrazier4870]

that's the NIH for you. everybody praises the free healthcare but there are so many gatekeepers to just about everything it's nearly impossible to seek care when you need it unless you go private which ends up being just as expensive as america.

[@francinelatorraca8885]

I can’t take it

[@francinelatorraca8885]

Excuse me. Did they ever tell her if the tumor is benign or malignant???

[@francinelatorraca8885]

Those drs are disgraceful. Leave the country!!!!!!!

[@dundergud9341]

What is wrong with these people involved in your care? Constantly saying they'll call and then not doing it, to the point that you risk running out of a very important medication (despite them being well aware that this will happen). This is completely unacceptable.

[@HandbagDiva]

Welcome to Canadian healthcare!!!

[@CL-un9gg]

@@HandbagDivawelcome to world health care.

[@RubyTuesday-kx3up]

​@@CL-un9ggAbsolutely! I thought it was just USA too many people & not enough doctors. They are overwhelmed

[@dundergud9341]

@@CL-un9gg I'm a doctor in Scandinavia, and I actually don't see this type of behaviour. I've been a cancer patient myself as well, and they didn't screw me around like this.

[@Serenitynow958]

We have a shortage of neurologists in Canada. My daughter in law has epilepsy and I thought what we went through was a nightmare. That’s actually pretty fast to see a specialist here. TOTALLY unacceptable to run out of meds. Inhumane and verging on negligence.

[@robcodsall]

Éireann, you need another Go Fund Me. You cannot go through this and also have the money worries that you inevitably have with job insecurity, getting back to Ireland from Canada, Devin's visa, which I recall you saying was very expensive and who knows what other expenses. It's a tribute to the amazing, decent person you are that you feel that you can't take any more donations. Yes you can - for the simple reason that many of us are very happy to offer you some financial support in your hour of need. And yes, it is our way of giving you an online hug when we would so like to give you a hug in person. I'm so moved by your latest video and so worried about you but if anyone can be on the right side of all these statistics and averages then it's you. I'll keep praying for you and thinking of you. We're all here for you. Take care, Rob xx (and daughter Soph! xx)

[@alleyoftheoasis6830]

Gofundme takes alot in fees, even just having her PayPal for people to donate would be good.

[@melhepburn4095]

❤

[@diaryofeireann]

Rob your comments are always filled with kindness. Thank you and Sophie so so much 😊 Every single message you have sent me has been so lovely and greatly appreciated. Thank you xx

[@Ron-j5m]

Not returning promised phone calls is totally unacceptable! It just adds to the nightmare. Wishing you much strength, health and happiness. Best of wishes, you are such a brave and beautiful role model for us all.

[@HannahTheHorrible]

Eireann, please still consider a go fund me. Other KZbinrs like me who have been following your story would want to share it with our audiences! You’ve been through so much already, you have a lot more to go through, and your health doesn’t need more stress by worrying about money. Even if you don’t need it for health stuff- you would 1000% deserve just donations to go do some fun things.

[@janet9128]

Please Eireann rethink the go fund me. There are people who are new to your story and would like to give. Many blessings! Praying for you!

[@sueu6263]

What kind of doctor is this one? Time to change! Unacceptable in every way! Doesn’t call you back and then leaves the country without somebody covering for him?

[@muffy346]

Two doctors got moved after my diagnoses they told me it was all in my head for ten years having full proof guess what it was all in my head two brain tumors and an anuirism now I just pray all day everyday for him to heal me because most doctors don't speak the truth they hide behind rules of the veil of the world ❤

[@mjad7]

That’s the mandatory Canadian public health system for you, no accountability or incentive to do right by the patients

[@jeannegeiger4750]

@@mjad7yeah the one they keep saying is so great the United States should emulate it! No thanks! No wonder the rich Canadians come to the US for medical care.

[@MsMangoPickles]

@@jeannegeiger4750 the very small important detail is the RICH people can get care in america

[@princessadora]

that's normal

[@Aleex_xxd]

Hi Eireann, oh I’m so frustrated for you. I don’t understand why you’re having to be your own advocate, chase up doctors for your diagnosis/medicine. I’m sorry for what you are going through, I send all my love and prayers ❤

[@diaryofeireann]

I've been a wee bit run down by it recently lol. Having mostly good days but definitely some bad days. Trying my best to stay positive through it 😊 thank you so much ❤️

[@mehr0x]

In a perfect world it would not be this way, but we don’t live in a perfect world. The people that care the most about you are yourself and hopefully any friends and family you might have. Doctors are great people for dedicating their life to helping others but at the end of the day they are just people and they make mistakes. What I am trying to say is don’t you ever feel bad about being insistent or demanding or whatever. You are worth more than someone being annoyed by a phone call.

[@CCitis]

Canadas medical system is in total disaster

[@akitajapan1651]

I feel the same way. I sympathize with because my brother is going through the same thing- 4 months later... barely today he's beginning his first treatment! Except for he has 4 brain tumors and is stage four 😢

[@carolbutler8884]

@@akitajapan1651Wishing your brother the best. 🙏🏻

[@TinksiehTink]

The way they just left without giving you a call back or even a new prescription. I'm baffled. I'm sorry you're having to deal with it 😢

[@sharonsundae]

To have someone say they will call you back and then don't is just so horrible. I will continue to pray for you.

[@kathyhutchinson3058]

As a fellow cancer patient, I’m in year 13 fighting. Eireann take any help people are willing to give. A cancer fight is expensive, very expensive. I have lost not only my health I also lost my job, home, car, financial security when I say It has cost me everything I have , I’m not exaggerating now I’m losing my vision and can’t even memorise a floor plan because I lost our home paying for treatment so I could be alive for my husband and kids. All the best to you

[@mEE1434eva]

I agree! I'm sorry for your pain.

[@michaellawson6533]

Look up Cannabis oil for cancer. It takes 3 months to cure breast and 6 months for all others. Dietary and lifestyle changes needed for that period too. Watch a film called ....Running from the cure.

[@ксю-ю3ж8е]

😢

[@mikegutierrez7278]

May God be with you

[@joannedunford1514]

Do another gofundme for sure!! Do not feel guilty!! ... travel, bring your family over, take a trip home, get another dog, help someone else in the brain cancer community who is struggling, start a foundation, get a pedicure and a massage, a new pair of shoes. You are sharing so much, and being so brave, and being so giving of your time and energy...let some of that energy come back in money to make your life easier.

[@KookiesForJoonie]

I can't imagine how frustrating and stressful it is to keep calling people who are supposed to help you, having them promise you a call back and then ignore you. Your life is at stake, that is absolutely unacceptable! I'm livid. I can't imagine ever putting another person in a situation like that. If I'm promising someone a call back then I do call back, even if just to tell I'm not able to help. Keeping someone waiting like that is inhumane. I really hope your new seizure medication works well and your breathing gets better. You don't deserve any of this to be happening. Sending you hugs from Poland

[@kelciebartek3351]

Éireann, I have been watching all of your videos since your brain tumor diagnosis. You are such a lovely person and my heart just breaks for you! As someone with several autoimmune diseases/chronic illnesses, I know how stress and expensive being sick can be. No one should have to worry about those types of things when they are going through what you and Devon have gone through. It absolutely breaks my heart!! Please never stop being you because you are a truly beautiful and incredible human being!

[@diaryofeireann]

This was so incredibly kind of you ❤️ Please know I appreciate this but it's your words that really fill my heart. Thank you so so much and I hope you're feeling okay 😊

[@shellcshells2902]

I can't believe how bad Canada is for serious medical care!!! Keep on keeping on❤

[@heatherscarlett4459]

I live in Canada and our healthcare system is run buy the provinces. Yes, our universal healthcare is outdated and needs an overhaul, I agree! However I work in oncology in British Columbia and, if you are going to have cancer this is the province to have it in. Our funding and expertise is second to none.

[@kathme120]

I am in Manitoba and our oncology system is well run too. Many other disciplines are overstretched though.

[@fiveow666]

As someone going through initial tests after a first seizure, thank you for sharing your experiences so far. I wish you the very best of news in your journey ahead.

[@diaryofeireann]

Thank you so much for your kindness ❤️ This is way too much. You're incredibly selfless. I'm so so sorry to hear that you're going through that right now. I will be here for you if you have any questions or need someone to talk to. I will be saying a wee prayer for you today and sending you all the positive vibes so everything is okay and you get all your good answers soon 😊

[@Naomi-ev2oh]

I LOVE your idea about starting an online group/forum for people who have brain tumors! I think that would help so many people :-) best wishes!

[@diaryofeireann]

😊❤️

[@JoyceGooder-mo1fs]

There are online support groups. Those for the warrior fighting disease and for those who are the caregiver supporting the warrior. I would have done as well as I have without the support of those who loved someone battling brain cancer. Posting anytime day or night works. Also there are ones who get closer by Pm communication each other.

[@stephenmac3105]

I agree. Only positive things can come from it so it's a brilliant idea

[@JR-kz2xn]

You need to get the hell out of THAT medical system you are in. Good Lord. I would cry too Eireann. I am so sorry you have to go thru this and can't even get decent medical care. Let alone good medical care. It makes me feel just sick, I can't imagine how you are holding it together so well. God bless you dear heart. Keeping you in my prayers.

[@jamesarmstrong7836]

Hey I get the frustration of Grade 1 starting me having a seizure in a pizza restaurant got me to hospital to have the scan for Grade 3 I felt for half year before that I had something wrong but it can't be changed hoping all us brain tumour survivors to cured I still believe in it 🙏

[@diaryofeireann]

Hi I'm so so sorry to hear that. I hope you're keeping well both physically and mentally during this time. I'm still feeling hopeful for research and medication but it's just hard some days ☹️ Also yours started in a pizza restaurant and mine in an ice cream shop? lol.

[@SarahLee-rs7ks]

You are such a beautiful person, inside and out and I'm so sorry you're going through this. Life isn't fair sometimes. I love your spirit and your attitude, the way you're handling this. It is so inspiring! I pray that God grants you a miracle with your health and pull through this cancer free. Sending you love and prayers from U.S.

[@diaryofeireann]

Thank you so so much for being such a kind soul! I'm excited to be one of the first people to ever beat their diffuse glioma 🙏 ❤️

[@GirlVersusWild]

@@diaryofeireannThis 🙌🙌🙌 If anyone can, it’s you!

[@claudioricci1]

On the issue of your seizure tablets - years ago, I dropped my dosage by just a small amount after consultation with a doctor. Within a month I had my first seizure in 4 years. I went back up to the previous level - havn’t had a seizure for over a decade. The balance of chemicals in the brain is VERY delicate. Loads of respect for your strength Eireann.

[@carrielynnw719]

Praying for you!

[@robcodsall]

What a fantastic donation - you should be proud of yourself. It will mean so much to her. Well done.

[@melhepburn4095]

❤

[@diaryofeireann]

Carrie this makes me want to cry. Thank you so much for being so incredibly kind 🙏❤️ Every prayer is appreciated and you're literally an angel. I wish I had the words to explain how thankful I am.

[@user-wk8te5wd4f]

You are so, so lovely - inside & out! Thank you for the update. If it can help relieve the stress around calling an ambulance, don't be shy to ask the operator to pass on the message to turn off the lights/siren when driving down your street. I've done that twice before without issue. Sending you strength & big hugs from Ottawa!💕🇨🇦

[@diaryofeireann]

wow thank you so so much for this. I feel like this tip will be useful to sooo many people so thank you! 😊 I hope you're feeling okay now ❤️

[@user-wk8te5wd4f]

Thank you! You're so kind and such a shining light! 💫💕

[@kathieheath8716]

Oh my. You are a remarkable human. I wonder if you are aware of that. Your attitude towards this situation is amazing.

[@inspectorbeth2863]

My nephew 53 years old had glioblastoma for over 3 years. He was so brave and a successful guy all his life. Wishing for a cure❤

[@pattystallings8011]

My son had cystic fibrosis and a double lung transplant at the age of 18 and if it had not been for our community and surrounding communities we could not have made it!!! Let people help you during this process!!!! Make sure your saved!!! Praying for you!!! God will keep you in the palm of his hand. My son Brian died in 2008 he was 24 years and 6 months old.

[@luvsiberians8006]

Eireann, you are just an angel. You have looked this diagnosis right in the eyes, and said "I'm not giving up!" You are so incredibly strong, and yet so incredibly kind. We're continuing to pray and manifest ALL the good vibes possible for you!

[@hellenralesai9176]

What a beautiful and brave person you are. Hope God restore your health soon. Never mind the darkness, you'll still find the way. Stay blessed. From South Africa

[@JustJennie147]

God loves you! Please reconsider the gofundme!

[@diaryofeireann]

Thank you so much - really not needed but appreciated 😊

[@DarrianCorey]

Hi Éireann, I am so sorry you are going through all of this. You have not left my prayers since I came across your first video about your symptoms. You've been a huge inspiration to me over the past several months - I had my first seizure back in September, and am still going through tests searching for an answer. I have been absolutely in awe of your positivity throughout your surgery, diagnosis, and all of the waiting in between. Keep fighting! You have lots of people cheering you on. 💗

[@diaryofeireann]

Darrian I'm so so sorry you're going through this right now ❤️ Thank you so much for your kindness it's overwhelming honestly. Thank you for such a lovely positive message it really means so much to me. I will be thinking about you and praying for you and hope you get some good news soon. If you need anything at all I'm here for you 😊🙏

[@robcodsall]

Best of luck, Darrian - and well done for giving the lovely Éireann such a generous donation. I hope your tests will give you some reassurance about your own condition.

[@Kampfrattex3]

I can’t believe how calm and clear you are. It’s just impressive. Your strength is incredible.

[@EjaBe23]

You are indeed a beautiful young woman. (I am 72, so to me you are young!). I admire your wonderful, positive attitude in facing your medical issues. Often you have mentioned that so many medical personnel do not return your calls-especially when they actually say they will call you back. I’d keep track of their names and write a sincere letter telling them what you are facing medically and that this person has let you down. Perhaps these people will do better with their next patients- even maybe you! I appreciate your posts to let us know how you are doing

[@guus007]

Just a little help. But I hope lots of people will follow. Stay safe.

[@diaryofeireann]

Thank you so much - really not needed but greatly appreciated 😊

[@Boopzone]

If anyone here works where you speak with patients on the phone, if you say you will call them back PLEASE call them back for the love of God. Even if you cannot give them an answer of what they need, just call them back and let them know. It's better to have closure than nothing at all. Something so simple can cause so much distress and worry for patients already going through the worst. Please just help them a little, so they don't feel forgotten about. ❤

[@jenniferroy6288]

You can be a kind person and still get angry and make sure you get what you need.

[@albin2232]

Thanks for the update. We are all with you all the the time. Remember that the future is not written for any of us. Lots of Love ❤ to you and yours from Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

[@diaryofeireann]

Very well said ❤️ thank you 😊

[@SerMattzio]

Sorry to hear about your recent seizure Eireann. Sending best wishes as always. You're handling everything in amazing fashion. As bleak as the prognosis information feels, medicine has advanced so much in the last 20-30 years already. There is always hope the situation can change and improve for you. I am crossing my fingers and will be following along every video.

[@diaryofeireann]

Thank you 😊 I'm trying my best to stay as hopeful as possible so thank you for reminding me ❤️

[@thatch75]

Thank you for sharing your experiences, I've been having seizures since September, I still don't have a diagnosis, but your videos have helped me tonight and I am grateful for you! Wish you love!

[@sueu6263]

I’m so sorry , but never lose hope, have faith 💕🙏

[@diaryofeireann]

Trying my best 😊🙏

[@agustinbarquero8898]

People like you were the reason I couldn't study medicine. I really wanted to help people but the system just doesn't work for patients. That's why I chose veterinary medicine with the love of animals. I work in my clinic freely, I accept patients as much as I want, I make strong bonds and I even do medical researches. I'm so sorry you have to go through this. I hope things go well for you.

[@Pam-j6b]

Beauty, Grace and Courage. Thank you for sharing your story

[@diaryofeireann]

Thank you so much for such kind words ❤️

[@Pam-j6b]

@@diaryofeireann I had a gestational trophoblast. By the time I was diagnosed I had tumors in my brain and lungs. it was a saga and my heart goes out to everyone who is "invaded". For some reason the long term side effect was a bizarre sense of humor? Be Charmed, Hon

[@londonblack9304]

Eireann -- I've been struggling with my mental health lately, and for some reason, your videos popped into my feed...and I'm glad they did. Your positive outlook on life is so wonderful, it helps put things back into perspective for me. I'm glad you decided to allow us along this journey with you and I hope you know we're all here for you. Your videos literally make my day sometimes, and I feel like your example inspires me to be better and stronger and to try to share some of the positive energy you bring within my own circle of people, because none of us really knows what the people around us are going through at any given moment. Wishing you the absolute best outcome -- we're all pulling for you.

[@roch145]

You have a heart of gold. And a very heartwarming optimism. You are in a challenging spot in your life. Your kindness shines through and is so helpful to you and to the many others who see your videos. When I was being treated for advanced cancer, there were no support groups available due to Covid. I turned to KZbin to seek out others who were dealing with cancer. I’m so grateful to the other cancer patients who chose to take the extra efforts to put their stories up on KZbin. I hope you realize how your KZbin efforts, combined with your lovely personality, help many others who are dealing with cancer. Many thanks to you Erieann.

[@tiradoentertainmentllc.2517]

Hello Eireann, Your channel just popped up in my feed--maybe because I am following another cancer survivor (Dr Dan Says, he is a chiropractor and very inspiring man) but I really am getting an education on what some folks are having to deal with and at young ages (50s is too young too) Anyhoo, you are traffic stopping beautiiful and very sweet and well spoken and I think your channel is the first I have that is teaching me what a proper Irish accent sounds like. Wishing you the best in your life challenge. They are making breakthroughs all the time helping people live longer so don't give up!

[@lauraharwood6581]

I am horrified at the way your health provider is failing you. You have incredible strength and an incredible attitude. I love your idea of a FB group - it seems to me that we have to help ourselves in these crazy times and find strength in numbers and in each other. You have a warrior spirit like no other I’ve seen as a nurse. God be with you Éireann xxx

[@maygullordali9157]

My heart goes out to you and your loved ones ♥️🥺Sending you love and prayers 🙏🏼

[@breakinmedia]

You look so healthy, it's sad you have to face this in your younger years 😥

[@heavenlymorsels]

Dearest Eireann - so glad to see your update. I think because your situation has changed and is ever evolving I would not feel guilty starting up another gofundme and letting us as your community help you and Devon out- or even better yet direct donations through paypal or etransfer to avoid gofundme fees...please think about it! What a sh** employer so sorry that happened to you Devon. Sending love hugs and prayers from the east coast.

[@SarahJane365]

I know we're only seeing a portion of your life but you seem so calm and collected particularly after what you've been going through. How could your consultant just disappear without adequate backup in place, it's just shambolic and as for Devon's boss firing him under these circumstances they should truly hang their head in shame. I also don't think you should feel guilty about the Go Fund Me, you have a lot of support here, you are not someone begging for money because you blew it all on a fancy car or something. Let people help and support you because there is absolutely no guilt here ❤ sending you all the love and hugs.

[@themissingsock2437]

I hope that with the life that you have left that it's the best damn life you can have. It's just not fair and I'm so sorry. I just learned of the passing of a friend from cancer, and I am devistated, and this just makes me so angry. She didn't deserve that, and you don't deserve this. I wish you much peace. May you be able to still find the joy in the sunrises and sunsets, and may you feel the love that we all have for you, and may you be able to breath calming breaths and may you know peace.

[@johnatkinson8946]

Impossible not to feel great empathy for such a lovely and charming young woman. I am sure you will take all necessary measures to give yourself the maximum number of quality years. I pray that your angels protect and succor you during this challenging time. God Bless!

[@teresadombek30]

Eireann, The medical system you are living with is absolutely unacceptable. I hope you can move as soon as possible as we are all very concerned about the lack of reliability of the team involved in your care. You are a wonderful, curageous, beautiful person!❤❤❤❤

[@jonascoeman]

As a father of two young girls, in the previous video, hearing you talk about your dad wanting to be there for you had me tearing up instantly. I can't imagine what it would have to be like. Doing all that is in your power and still feel helpless. Please tell your dad that he is hero no matter what. The hero every other dad aspires to be. And please know that you are forever his treasure. I would also like to thank you for sharing your story. And wish you all the time future can give you. I hope alongside all the tears this illness brings upon you, you can find also the joy that fills a heart with the warmth of a thousand loving fathers. (and mothers to of course ;-) Keep up the fight. (and the video's 😊)

[@idraculaa]

Thanks for the update, Éireann. It’s really lovely to come on here and get to see how your doing. I hope and pray for your ease, and your peace of mind. And that any new information which will be helpful to you, finds you. I’m sure it will 💗

[@diaryofeireann]

You're so incredibly kind ❤️ Thank you so so much for being so lovely 😊 I really appreciate you!

[@jodydistefano5964]

I have been folllowing your story and you are a peach of a soul! One of my best friends has been fighting a brain tumor for 21 years! Your optimism and magnetic energy is soooo inspiring! I have a best friend who has been fighting a brain tumor for 21 years. She had a recurrence on 2014 and now the trial she has been on is in demand so she has to go without it for at least a week, so, so scary!! She never tells people her situation, ( I see it how she does,not want pity) she inspires me everyday, and you. If people WANT TO DONATE, Don’t take that from us, we want to help. This is a viable way for you to enjoy your life without the added financial worries. Just to be able to do your bucket list perhaps? God Bless You Keep fighting, stay strong Sending healing hugs❤❤

[@robcamp1962]

Wow Devon's boss was some piece of work. Speaking from his side of this, if what you're going through ever happened to my wife I don't know how I could concentrate on work period. For him to fire the poor guy because he wanted/needed to be with you for something so major shows some people really are awful. How someone like that could look at themselves in the mirror is beyond comprehension. On to you, I'm so sorry you're dealing with all this and I am keeping you in my thoughts. There are always new drugs/trials on the horizon. Never lose hope that one of those will be the "magic wand" for you. Be well!

[@jacsavickas9822]

Agreed. The boss is a real arsehole. I wish nothing but bad vibes to him. The company should be named and shamed and put out of business for being horrible.

[@patriciaflaherty]

I hope the doctors who have so blatantly failed you see your videos and change their ways. I know you've had some good experiences with members of your medical team, but the level to which you've been dismissed and ignored by some doctors blows my mind.

[@hulululu5346]

it is actually pretty normal for doctors to act like this nowadays.

[@Caroline.722]

You have been thru it! I left you a comment before. My late husband had brain cancer. He had so many issues with the seizure meds. He had to change them about 4 times until we found one that was therapeutic & didn’t have bad side effects. Please don’t let them make you feel you’re stuck with one that doesn’t work for you. I pretty much had to go to battle with some of his doctors to get them to listen. And yes, you have to slowly wean off one drug while building up the dose of the new drug. You can’t change them cold turkey. The Dr (she was a saint!) that finally helped my husband was an Epileptologist. All the other Dr’s (GP, neurosurgeon, etc) would not try him on different drugs. It was very frustrating! I wish you all the best! ❤️

[@kimberlypuravida5690]

How on earth can you be so incredibly lovely and beautiful and brighten my day while I'm listening to you talk about such a devastating diagnosis. You truly are a ray of sunshine! Big hugs for your next appointment, I hope they can find a better medication for you. It would be nice if you had one less thing to stress over.

[@kinder101]

This is extremely frustrating when doctors do not know how to treat their patients. You are not just a number, you are a person. I am so sorry you are going through this and I will continue to pray for you.

[@perpetualkarma5773]

Thinking of you 🙏

[@diaryofeireann]

Thank you so much for your kindness ❤️ Really not needed but appreciated 😊

[@Jnd.2y]

I’m praying for you sister please do not give up❤️🙇‍♂️

[@jrock2460]

To have that experience with the surgeon and staff is unforgivable. I HIGHLY recommend that you consider calling the Mayo Clinic in Scottsdale, AZ to discuss with them and to have a 2nd opinion provided. I would go so far as to say anyone who would disrespect your time and disregard the stress caused by not meeting his obligation, should not be trusted. I don’t care where they sent the tumor. I know for a fact that you will be treated appropriately and you will be given accurate information with Mayo. I know you have a lot going on with a move impending and all the rest of it. But this is your life. NOW is the time to be sure. NOW is the time to consult the best people. Don’t wait. Nothing is more important than you living a long, healthy life.

[@keepitclassy7895]

I am just seeing your channel. I am so sorry you are dealing with this health issue. I will keep you and your family in prayer. You are such a lovely person. Please know that you are not alone in your journey...

[@andream581]

Thanks!

[@diaryofeireann]

This was too kind of you ❤️ thank you so so much

[@melindaparsons7433]

I could watch your videos just to listen to you talk, and for hours and hours at a time!..I love your accent and can totally relate being from Newfoundland!..lol.. You are such a beautiful human being in every way possible!..Just from watching your videos I can tell that you have the biggest heart and are so sweet and kind and humble!..❤❤ I am so sorry that you are going through this terrible time right now!..so sorry for you and your family and loved ones!..Because it truly does effect a lotta ppl when someone is diagnosed with cancer!..I pray for you!..I pray that God will heal you and I pray that you will get back home to Ireland, and that you live a long and healthy life, surrounded by lots and lots of love!..❤❤

[@diannaperry8116]

Oh Eireann my heart hurts for you. When people tell me they will call me back that is what I expect to happen. I am so sorry these medical people left you hanging. So stressful for you. Much love and prayers for you. ❤ You are a lovely lovely young woman inside and out.

[@strive4impact]

You so courageously share what you're going through Eireann. Thank you. It's motivational and inspirational to see your courage in action.

[@andrewkrodel7976]

Many of us that follow your channel don’t personally know you but can easily sense that you are a kind and honest person. We all wish the best for you.

[@PaulineAdcock-py7uy]

Still praying for you every night, beautiful lady. Remember, God loves you! 💜

[@melissalassers2669]

You have taught me so much about grace and gratitude! I would have lost it when the neurologist did not call back and was out of country but you are so kind and loving! Thank you and know we are all here for you! The second go fund me page taught me so much to about receiving enough and not being greedy. You are such an incredible human being. Love to you and Devin!

[@qwertypumpkin]

sending you loving kindness

[@diaryofeireann]

Thank you so much for your kindness ❤️ Really not needed but appreciated 😊

[@flapjackluvr]

You are the sweetest thing! I get teary-eyed when I see how gracious you are to others during your battle against the tumor. I am praying for you. ❤

[@Alaesjess]

Hey Eirann, first time posting a comment on youtube. I found out last year that I also had a grade II glioma astrocytoma in the right temporal lobe, I had just become a mother from my little Aurora. The prognosis of 10 to 15 year olds destroyed me morally, it is not understandable to hear about the end of my life when one has just given birth but it is not more acceptable when one has begun it like you. But I tell myself that we are one of the lucky ones, we are young you are even younger, medicine is evolving there is a drug that will soon be released: vorasidenib which gives good results in low grade gliomas mutant for IDH . My husband who is a mathematician tells me that I do not fit into the statistics, firstly because of my age + the fact that I was able to have an awake surgery allowing a supramarginal removal and in my case the discovery was fortuitous. All this to say that the statistics today are based on people who had diagostics much later than you, we must keep hope. I got a tattoo after the surgery “Outlier” on my right arm above the vaines to remind me during each MRI which is always so distressing. I sincerely believe that we are not in the statistics because they are based on data before MRIs were done so often and before tumors were treated with surgery and before new drugs. I pray every evening to be with my daughter and every evening I pray that every mother can also be there for their children, I also pray for you and your family and evryone with this.

[@ytlol7244]

Eireann I am gobsmacked for you given the difference between how you ate handling in stark contrast to how some of the medicals are engaging with it. Still in awe of your qualities, wonderful family, Devon and his family. ❤🎉 Keep being you as that helps blessings for so many who love and know you. You are a resourceful couple and thanks for sharing your experiences. Lots of celtic love to you. ❤

[@EdelOBrien-b1t]

Thanks

[@diaryofeireann]

Thank you so much ❤️

[@sheinacristerbagiwa8518]

I'm just 26 when I got Chiari Malformation(a major brain disease). I undergone already twice major brain surgeries(Totally risked my life to it). 3 yrs now, I am still struggling from all the surgical traumatic post(lifetime) complications but here I am still trying to live a normal life(I also made documentations of it through here youtube)💪,we can do it Eirean! My hugs and Prayers fr. Philippines

[@laurenhepp4681]

Hope this helps. Even if it’s just to buy a yummy drink and snack to cheer you up. ❤

[@diaryofeireann]

Lauren this was too kind ❤️ Thank you so so much. It really is those wee things that make my day these days so I really appreciate you 😊 Too kind of you

[@christopherharvey5948]

Seeing you face this adversity is inspiring, and I hope that you keep making your videos. I don't want to be insensitive, but I'm a biochemist by training and wanted to add something of a technical nature. V600E indicates that the valine (V) residue located at position 600 in the BRAF protein has mutated to glutamate (E). The glutamate mimics phosphorylation of BRAF's activation site, which means that the cell can't turn the BRAF off after it has been made. The DNA triplets for valine are G-T-(G/A/T/C), while the DNA triplets for glutamate are G-A-(G/A). So your BRAF mutation was the result of a thymine-to-adenine substitution in your DNA. This seems like it would be a dominant mutation, so your other copy of BRAF is probably just fine. I never studied cancer, but it seems like they could try selectively silencing the bad copy (like through RNA interference), while letting the good copy express normally. If that were possible, it would probably solve your problem.

[@muffy346]

You stand firm on a healing honey 14 years later two brain tumors and an anuirism I'm still here sweet lady be the healing that makes all those docs and nurses and the whole youtube community believe in miracles and Jesus and the Great Creator he can and will heal u I stand firm with u or anyone on here willing and able to be the were two or more are gathered in his name with me we will rebuke that cancer and u shall be healed much love your way honey ❤

[@DoeA-Deer]

Èireann, I saw your 1st vlog, whilst in hospital yet again, a couple of weeks ago? You just popped up on my feed. I have a Diffuse Autoimmune disease, incurable, progressive and rare, with various crossover diseases. I know we have different diseases. However, you have such a beautiful way about you. I really admire you. You are such an inspirational human being. I wish you the ABSOLUTE best of care and obviously a cure. Never lose Faith lovely fellow human being. Helping others to not feel alone in a group, is amazing. And Vlogging too. I so wish you all the very best. I keep looking for your videos. Thank you, for helping me. And you will help others, and in so doing, help yourself. Until next time. X

[@alleyoftheoasis6830]

Never give up

[@diaryofeireann]

thank you so so much 😊❤️

[@Spawniiieh]

Hello Eireann - I can't imagine how frustrating it must be when doctors and nurses don't call back when this is SO important. I'm wishing you all the luck in the world and good thoughts to you and your loved ones. We're here with you!

[@annelee4035]

Still praying for you all Know how hard the wait can be.

[@Shofargirl1]

Eireann, So sorry to hear this ! I know that faith in GOD changes things... Seizures are serious .I will pray for you and ask others to pray.. Mich love ❤❤❤

[@MiguleFeenandez]

Praying for you god blessed you

[@Eliana-fw7ys]

Éireann, you're such a positive and inspiring person. I wish I had come across your channel in different circumstances. I wish you the best and thank you for making us a part of your journey

[@TashaTashaa]

Sending you lots of ❤love

[@diaryofeireann]

Thank you so so much ❤️ You're an angel honestly. Not needed but greatly appreciated 😊

[@VictoriaAnnaAdams]

Darling…, I’ve been in a similar situation. I know it sounds “weird”, but your psyche can heal you. You’re so strong, you WILL get rid of this. If you ever need anyone to talk to, I’m here for you always. It’s so hard and that in itself is an understatement. Please start a gofoundme. You will live a long life! Don’t forget it, and if someone hasn’t told you yet, you’re beautiful, strong and we will get you through this love. My heart goes out to you! ❤❤❤

[@billsfan3518]

the fact something so horrible can happen to such a sweet soul is infuriating. prayers!

[@janes1239]

Thank you for the update... been thinking about you!

[@diaryofeireann]

Thank you so so much ❤️

[@kevindailey4412]

Hi Eireann, everybody is saying the same thing, please just consider that so many of us want to help you. It would be our honor to help in a small way!!!!! Stay strong and may God bless you. We love you.

[@valptn4334]

As a doctor myself and current living in Brazil I can't even imagine such a bad medicine that's being practice in canada.. I mean, diagnosis sometimes are difficul and challenging but leaving you without medication, not even leaving someone on hold if you need any assistance and leaving the country like this is crazy!

[@bengt_axle]

It is remarkable how well you've handled this and how informative your recent video is. I think many others will find it helpful. Regarding your prescriptions: Any time you are concerned about not having enough, is not working or is causing a problem, call the pharmacy and ask to speak to a pharmacist regarding your Rx (ideally before you run out). The licensed pharmacist is mandated to keep on top of any problem related to the Rx that was dispensed to you. They can call the prescriber to ask for a renewal, a change in dose, a drug interaction or even suggest a substitute. Sometimes they will require that you return to the prescriber, but sometimes they can communicate directly and the prescriber a phone renewal because they know it is not necessary or possible to see the patient again.

[@FoodieForce]

It is exhausting having to advocate and fight but that is what you have to do. I have stood in your shoes with my dad, what I would say is with the treatment you have had I would check out elsewhere. We didn’t and we endured the worst, I am offering you our hindsight. Get out and get out quick. Ask your dad and family to reach out to all neurology consultants across the world who have experience in your tumour and see what they can share, know and examples of care, treatment and success. Trials is a key. The Royal Marsden in the UK could be useful to reach out to Liam Christopher Welsh. But if in your shoes I would be changing my care ❤

[@iamofftoneverland1735]

I have brain tumour too, I know how hard it is and I will pray for you now. You are so beautiful inside and out. I believe you have long and happy years ahead of you. I know people who had miracles. You will be one of them❤

[@suzannelentine]

Eireann, I can't imagine how frustrated and stressful it must be to have to chase down doctors to get what you absolutely must have. I'm so sorry that the system is failing so often for you. I am sending so many positive thoughts and much love to you. I can only wish for far more good days than bad days ahead - you are a positive ray of light throughout all of this. Thank you for being willing to share this journey with us here - you are surrounded by a sea of people who care very much and are here to support you. ❤❤

[@Cookiiie_1008]

Danke!

[@diaryofeireann]

thank you so much 😊