I had GAMMAKNIFE ☢️🔪 for Trigeminal Neuralgia⚡️😫 - a rarer, painful, MS side effect!

Was finally able to have something done to (hopefully) help the painful electrical storms in my face, Trigeminal Neuralgia, secondary to my Multiplle Sclerosis. i detail the Gammaknife procedure here, it was a wild day!

[@michellebuttineau1618]

I had gammaknife 3 yrs ago suffered with tn for 35 yrs I was ready I did not get 😊 Lana Cain when they screwed the cage on hurt really bad the pressure from screwing the cage on,,,, but it does ease off the pressure this was done at Toronto Western hospital. The doctors neurosurgeons don’t expect any bedside manner. They were not very nice. They don’t tell you what they’re gonna do. They just start doing it anyway it took eight months before the gambit knife worked. I woke up one day the pain was gone, it’s been three years and still no pain. I would definitely do it again when the pain comes back. I’m on Lyra Carmine clonidine, amitriptyline, lorazepam baclofen, and I keep taking the drugs as I’m so afraid to terrible pain. Will come back minus from MS which I was diagnosed when I was 30 I’m now 65😂

[@EvenSoItIsWell]

Grateful Dead. Good choice! Thanks for sharing. I had no idea how this was treated.

[@booth9666]

i was dianoised in 2012 with ms , epilepsy and tbi ...when i finally got my disablitity i was on 13 prescriptions a 135 pillls a week..then i switched to coconut oil infused with cannabis and have been on cannapaste 5mls orally daily since 2012..i was on big pharma for over 18 months..told i had 5 years left to go...yet im still here ...cheers good luck with your treatments ..cheers blessed be

[@joaniearc1186]

Hey where did you go to have your coconut oil infusion ???? Sounds interesting 🤔

[@booth9666]

@@joaniearc1186 i make my infusions...i use a regular jar for canning pint or quart not sure lol..but 93 grams of ground up cannabis and 500 mls of cococonut oil in hot watyer bath at 75c-90c or 120f -165f for 12 hours and drain away vegative material and there you go..i do shake the jars when cooking every 2 hours lid on lol..

[@margariteolmos3457]

Good luck. Let us know if it worked for you.

[@david404664]

When I started having the pain I thought I had something like bone cancer in my face, the pain was so severe that I thought I was going to blank out. I went to the doctor and was given an epilepsy drug and that has stopped it, but the tablet is horrible.

[@mldrohan]

Yep, the epilepsy drugs seem to be the go to prescription. I got to appoint where I couldn’t tolerate any more carbamazepine, because I felt it was making me so weak in my daily life. My doctor switched me to oxcarbazepine in May, and that took a while to find the right dosage and timing, but I think I’m there. The last month things have been fairly under control (knock on wood!) hoping it lasts for a while, because I’m tolerating it better, too.

[@paulweston6263]

I have MS and trigeminal N. I am going for a consultation with a neurosurgeon to see if gamma knife is a good option for me. I am also taking gabapentin. Good to see the process!

[@mldrohan]

Good luck! I occasionally still have an attack, but overall its helped a lot.

[@slobor3]

How are you doing post surgery? So hope it helped

[@budoneof15]

I’m on 1200mg a day. I feel I’m getting close to doing surgery.

[@SarahLabbett]

Did it work ?

[@thekirec]

Try the following technique for instant trigeminal neuralgia pain relief: 1. Isolate where the pain is coming from 2. Locate the mirror image on the opposite side of the body 3. Massage the area on the opposite side of the body (you should notice tenderness) 4. Check the bad side to determine changes to your pain level 5. Continue until your pain is manageable kzbin.info/www/bejne/mGfCZpaXa892eqs

[@mldrohan]

interesting, thanks

[@bobbycanterro1685]

Wow I am scared

[@SarahLabbett]

Did it work ??

[@mldrohan]

It’s definitely helped, but the effects have been wearing off a bit, which they said would probably happen. Just sooner than I was hoping, but definitely still better than before 🤞

[@SarahLabbett]

@mldrohan have you seen Dr Ben sutter on here ?