100% so true , I do it all the time and forget to pace myself . Especially with housework, I get into a cleaning zone and suffer for days later 🙄 Nowadays I only get really frustrated when there's no reason why I'm triggered. I have a few indicators beforehand that I'm aware of ! My eyes droop , speech slurred and balance goes then the energy crash . I'm so glad you decided to do this vlogging about FND awareness , it can be quite isolating at times
@marciemann68104 ай бұрын
Oh bummer - sorry to hear it, but I see you're still smiling, so that's a positive. Overstimiulation is definitely a trigger. Hang in there! Good days are coming.
@lovefromrosecottage4 ай бұрын
I can totally relate to what you are saying. It's so frustrating. I hope you are OK and have some lovely quality time with your boys 😊
@Truerealism7474 ай бұрын
Central sensitisation is a beast😊
@AndyBaldwin-kw6fz4 ай бұрын
Yep I'm the same , too much one day , then pay for it later . But we all do it , pacing is great but we have to try and remember when to stop !
@wendywebster59204 ай бұрын
You have done a lot. I am really at a stage now I have to plan things a bit in sections, before I do it. And even then with every bit I do I have to double check if I am still ok. The pay-back is often too great to do one thing after another. On the other hand, it is satisfying to have your house clean, and you had a bit of social interaction as well. What is one to do? Take your rest, and I wonder how you are tomorrow?
@ChrisCFNDjourney4 ай бұрын
@wendywebster5920 Yeah, absolutely! What do I do. My Psychologist constantly tells me that if I don't start pacing I will never recover and my symptoms may get worse. She says it as it is and is honest. She clearly can see I'm trying hard as I'm a single dad with a 12 year old lad at home with me with additional needs. Life can be stressful.lol. but my health is just as important. I will learn...... I hope lol. Thanks for your comment and I hope you're well?
@keithrobertson22604 ай бұрын
" you don't know you've done it" That's it exactly. If you're like me I already had issues with pacing. It's so hard to be honest with yourself and just stop.
@ktrean20544 ай бұрын
This is exactly it 😢
@JuliaSawyers4 ай бұрын
I totally agree with you but for me it's dealing with fnd plus arthritis and it's stress that is my trigger for which I have a lot of at the moment and I am experiencing different symptoms which are zoning out a lot and I am experiencing weird sounds in my right ear and I don't know what it is but it's annoying me 😒anybody else suffer with this?
@kamsi43054 ай бұрын
yeah. ringing and pressure in my ears…
@thebravemuriel4 ай бұрын
Hope you feel better soon
@faisalahmad33094 ай бұрын
Thank you 👍
@julietyler73003 ай бұрын
Hi Chris
@kamsi43054 ай бұрын
i took a really long walk round my estate and i could NOT get back home. my right leg was hurting so bad and i literally could not move anymore. it was so scary.
@ChrisCFNDjourney4 ай бұрын
Sorry to hear this. I seem to be able to walk for like 20 minutes and then my gait really suffers and pains in the hips and down my legs start. I have footdrop which definitely gets worse and weaker as the day goes on. It's the hardest thing to adapt. Some days are worse than others and some weeks are impossible 😞
@kamsi43054 ай бұрын
@@ChrisCFNDjourneyso sorry to hear this. i even had to ask for a leave from my office because of fnd. it is really not easy. perhaps do you have a wheelchair? i find that it makes everything a lot easier. but my parents still have this big hope that im gonna be back 100% from this. i hope but at the same time i doubt.
@ChrisCFNDjourney4 ай бұрын
@@kamsi4305 the last thing g I would want to do is ask about a wheel chair. I'm pretty mobile ATM and think that will be worse case scenario 🤞 Hope you're managing ok at the moment.
@kamsi43054 ай бұрын
@@ChrisCFNDjourney yeah. some days are hard. especially days when i know i have to go out. what about you?
@kamsi43054 ай бұрын
also do you get comments about your walking aid. like “you’re too young to be using that.” and stuff like that.
@julietyler73003 ай бұрын
I gave coffee up , i feel it dosent help me anymore, i have neoro acupuncture and it helping me
@kamsi43054 ай бұрын
hey. i just wanted to know if you’re on any medication. i’m on prozac. for about a month now and no improvements.
@ChrisCFNDjourney4 ай бұрын
Hi, thanks for your comment. Yeah, I'm on pregabalin, naproxen, omeprazole, nortryptyline, zolmitriptan and baclofen for spasms