I remember ME (full length version)

The original movie 'I remember ME' by Kim Snyder. A biographical documentary about Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. Details about the movie can be found here - en.wikipedia.org/wiki/I_Rememb...

[@hondasilverwing]

I purchased this video In 2007 when diagnosed. I wanted my friends to see it so they would understand my illness. Most kept it for 4-6 weeks & nobody returned! When I finally called letting them know I wanted it back a few of them popped it in the CD player to watch a few minutes of it incase I asked them "What did you think ". Lastly, I gave it to my only son and daughter-in-law to watch. I thought he would be interested. 6 months latter I asked for it back... they had lost it before watching.

[@samann95014]

I've dedicated my life to find a cure to this damn disease. Please wish me good luck.

[@chronicallyreal9038]

Good Luck! I wish there would be a cure one day!

[@AlabanzasCristianas1]

I wish you all the blessings of God, I wish that God would give you wisdom to find a cure for this disease , kneel and ask Him in faith , but really believe and Jesus will do the miracle. God Bless.. want share our channel has free Christian movies in English see playlist and songs made with love about Jesus, with CC in English please share with someone"s who need it.

[@samann95014]

There is something called Nanobomb which look promising & seem to be the best bet against biofilms. Personally, I had some good luck with Ozone Therapy. But unfortunately, it's not a complete cure.

[@84bravado]

Ive had it for the last 4 years.Finally feel like im turning a corner now.ive found a strict paleo diet,naturopath advice, yoga and getting my subluxation of my spine sorted all helpful. Going to include cryotherapy but shit gets expensive.

[@samann95014]

I also got some grip on this issue. I find great relief if not cure from herbs (cat's claws, japanese knotweed, triphala, cryptoleptis, sida) & ozone steam sauna therapy.

[@priscillalanders7164]

A very heartwarming yet heartbreaking film, my name is Priscilla, I'm 47 years old & in 2009 I was diagnosed with Lupus, fibromyalgia, EBV & Chronic fatigue syndrome & I go through pain & overwhelming exhaustion every single day, I've been bedridden for nearly 6 years. CFS IS REAL!!!! I Hope & Pray that one day soon there will be a cure in hopes of many of us being able to live again instead of only existing. Be kind to one another, Sincerely, Priscilla (El Paso Texas)

[@lifelieswaiting]

That sounds like Lyme disease.

[@Lionforaday]

Priscilla, your comment puzzles me because I hear this alot, where someone tells me that they have lupus AND fibromyalgia (or EBV or CFS). Conditions like fibromyalgia and CFS are diagnoses-of-exclusion, which means the symptoms can't be explained by some other illness or a medication. In fact, it's hard for me to imagine what symptoms you'd have that you'd attribute to fibromyalgia that couldn't be explained by lupus? I'm guessing that you were originally diagnosed with fibromyalgia or CFS, but were ultimately then found to have lupus - and once you were diagnosed with lupus, those other diagnoses really wouldn't be relevant anymore.

[@Lionforaday]

It's worth checking-out, though testing is unreliable and controversial. The problem with Lyme is that the symptom list is very, very broad, such that most people with a chronic illness could convince themselves that they have this. Don't get me wrong; I'm sure there are many folks walking-around with Lyme who have a diagnosis of fibromyalgia or CFS - however, I find that there are now loads of folks convinced they have Lyme, seeking treatment - some surely have Lyme, and some don't - but it's a "preferable' diagnosis in some ways, because (presumably) there's some treatment for it (and an understanding of it, as a bacterial illness), whereas fibromyalgia and CFS are "black holes." I was treated for Lyme for a year (without much success) and my doctor told me that he'd regularly see folks with ALS or MS who were hoping they had Lyme instead. Happily, a few did, but sadly, many didn't, and he was only able to confirm their original diagnosis.

[@bricepdx]

I have had to deal with this for over ten years and my experiences have been the same as most people here. I have gone bankrupt twice because people don't think you are sick. I am so glad to find this information as I was officially diagnosed as I said over ten years ago and have been treated with disrespect and scorn for years by doctors, the medical establishment, insurance company's, and employers. No one wants to think this or any disease affects a Black man, especially a educated Black man

[@Msfelixthecatz]

I was 28 with a growing family and a very happy mother playing house, cooking, planning to home school, everything!! One day my husband got a flu that totally wiped him out. Just before he fully recovered, I got sick too. The difference was, I never recovered. I was bedridden for 7 years. I slowly improved so now I'm not bedridden, but I am far from well. Frequent migraines, pains, sleeplessness, exhaustion, brain fog are but a few of the symptoms I still exhibit. I cannot work, can barely care for myself, and spend my day playing video games (which I'm totally sick of doing), and on my 'good' days I do beadwork on a loom or weave (Even on good days I must sit still). I miss my old life terribly. No friends, I live like a vampire in the dark since light triggers migraines, and can't go to church due to exhaustion plus the lights & sounds are too much for me. I am grateful to my loving husband's continued understanding and support, and my children, now grown. Those who are healthy can't be expected to understand chronic illness. It took me years to accept that, so they don't frustrate me as they used to do. Except doctors. I give up on them.

[@Lionforaday]

I think you're right - those who are healthy have difficulty understanding chronic illness, just as you and I probably would have before we had a chronic illness ourselves! I do think there are a few doctors out there who aren't frustrating (I hope I'm one of them!) - remember that doctors can be patients, too. Despite working as a physician, I too find if frustrating to deal with the medical system - I believe this illness will only receive legitimacy once a defined marked is identified that can "prove" someone has the illness. Lyme Disease suffers from a similar problem, largely because of controversy regarding diagnostic testing. It's a sad state of affairs when patients have to "prove" they're sick for their suffering to be legitimized.

[@ariellynn33]

Thank you ,what a heart felt story , especially Stephen's made me cry. Fighting Fibromyalgia and a spinal condition myself I've come a long way over 15 + yrs and its humbled me to realize the blessings of each day that comes along. Living as positive life as possible is not just a choice, but a necessity to reduce stress which can undermine any improvements. I'm encouraged by your story to reclaim your life and career.

[@IonaFabian]

I have just watched this while preparing for a very small family celebration of my daughter's 18th birthday. She has suffered with ME?CFS for 5 years now, and this documentary is the first one I've seen that accurately describes the journey we have been through. So similar even though we are in England, and a few years later. Just heart-breaking the level of suffering people are enduring with the added insult of disbelief, stigma and ridicule. I think future will look back on the way CFS patients are treated now with the same horror we think of dunking witches. Shocking, and depressing.

[@Daystar311]

This is how I feel, too. When I post information on my illness, no one in my family or friends circles even bother to look at it, either. I feel very alone in this and extremely unsupported, feeling that when someone really loves and cares about us, they'll take the time to learn about our condition and suffering in an attempt to understand. I certainly would!!

[@cordeliagreen2474]

i wish this film would've shown those of us who suffer immensely from this, but who aren't bedridden. i almost feel marginalized or not validated because i am not bedridden, therefore i must not have real "CFS". i feel for those bedridden, but that's not the entire picture of what CFS is. i'm also disappointed that she didn't get into uncovering the crimes being done to us via the gov't, CDC, and pharma companies. she didn't once mention vaccines, chemical biowarfare experiments or chem trails. the only person who touched on the "behind the scenes evil coverup" in this was Dr. peterson when he said "and that's the crux of it right there". i got very ill after vaccines almost 20 yrs ago and haven't recovered...tho i'm not bedridden. some days i should be and most days can do very little except what needs to be done, like laundry, dishes, food prep. every day is a painful hell even tho i'm not bedridden and have to work part-time due to no support coming from disability. they first make us sick, then cover it up, then turn the tables and say it's all in our heads and then deny us medical answers or help and deny us financial help and leave us alone to figure it out while sick as well as make a living.

[@JESUSthe2ndADAM]

As someone who was absolutely bedridden for 4 years, and been able to go out for a few hours twice a week for the last 10 years. I am margenelized by people who think they know what CFS is because they know someone who isn't bedridden, or isn't mainly housbound with the diagnosis of CFS. So, it goes both ways.... The more you can do for yourself, the better, cause people on the most part, don't care what you can or can't do, or what you've 'been though'. And now I'm not as debilitated, I guess I'm margenelized again, into how your feeling? Being bed ridden does not make people have a heart. Don't know how I survived, Bed ridden meant I couldnt eat, or drink water, I remember a time when I tried for 3 days of constant concentration to get up and all I could manage was to move my arm across my body, so who knows how long it was without food or drink. I do remember veiguely crawling to the sink and putting my head under the 'tap' or 'faucet', drinking as much water as possible cause I didn't know when I could get myself to the tap to drink again, and having my mother angry at me and abusing me for doing it when I couldn't pick up a glass, as my motor skills were almost non existant, I remember trying to scratch my nose, and putting my finger so hard into my eye that I cut my eye's with the nail, So I stopped scratching anything as I couldn't controll if I would injure myself. I had constant tonsillitus for 3 years and believe I've suffered permanent brain damage from the constant high temperatures until my tonscills were removed. Inability to remember anything anyone had said to me, couldn't keep a sentence, couldn't explain anything to anyone. This is sort of showing how bad it was/is. There are those who have it worse. I thought this film was light and bubbly, and didn't depict how horrible the illness can be at all. Loving families, being catered for, taken to school. Reality for me is...Being treated like an insane, drug addict(even though I've never taken drugs), that loves to be issolated and has no ambition in life but to lie in a bed, marginilized and mocked by family. I guess this documentrary was to show people the best they can be, and shame the ignorant into more compassion. I tried getting my father to watch this, and he walked out in the first 10 minutes. Lately I've been helped by taking MMS as a heavy metal detox, and anti mold/skin disease, and anti pathagen purge, like worms. It does it all.And.. It's very cheap. It's a mixture you drink with some water every hour. But it also has other healing properties. I've cured a tooth absyss with it mixed with DMSO, which I use on my teeth now to clear out my teeth canals of harmful bacteria. Taking the MMS, it get's rid of the horrible pain in my eye's and brain, doing 'Jim Humble's' proticols, I can be up and not stuck in bed all day, you can youtube Jim Humble for his video's. I also use 5 drop with 22 ML of water under my arms which have some kind of bacterial/mould infection in the skin, apply a few times, dry with a heater, and cover with a liqud mineral deoderant. MMS has been working great along with barley greens, probiotics, and all the other general stuff,CoQ10, multivitamin, krill oil, Ginko Brahmi(Helps with the memory/mental confusion, example I don't go the garbage bin to urinate, or go to the bathroom with garbage). Some idea's that could help you.

[@FMulholland]

+richard jarminski That website no longer exists. I am also working sick - it's getting harder all of the time.

[@Lionforaday]

Cordelia, you make an important point here; it's a point I recently tried making regarding the upcoming documentary, "Unrest," by Jennifer Brea. Inexplicably, Brea gives her TedTalk in a wheelchair, but makes no mention of why she's in one (sometimes, but not always), which is problematic, I think; it would have been ideal if she'd said, "I use a wheelchair for these reasons (XYZ), however, it's important to recognize that most folks with this illness aren't bed- or wheelchair-bound, and yet are still very ill." Not surprisingly, I was attacked in the comments section by those thinking I was saying, "it's not a serious illness." In fact, I was saying exactly the opposite - that one can be quite ill and yet still able to walk or even work part-time. I know one person who showed the TedTalk to their friends and family, hoping to give them some insight into her suffering, and guess what her family said? "You don't have what she has; she's a lot sicker than you - look, she's in a wheelchair!" That's why I wish Brea had made some mention of her wheelchair - and of the fact that this disease has a range of diverse symptoms and a wide spectrum of severity.

[@Froggy77100]

While I agree with the majority of your comment as well add that films should show the fight those who aren't bedridden fight as well. I'd like to say 2 things to you. First I was at a point where I pushed myself because I needed to work needed the income and looking back I have zero doubt that contributed to my becoming bed bound so please be careful. 2nd as someone who's bedridden now there's no i should be bedridden is physically impossible to not be. I can crawl to the bathroom sometimes but am unable to do most basic things like bathe eat brush my teeth. And if I do more like even talk to txt these comments is gonna be hell to pay but if i can help is worth it. I don't know if you've seen the majority of us are over achievers which I can only assume you are too. This disease does it fact feel like you're dying. Every minute every day every night. I don't know if you are in the u.s. OR abroad but have you considered filing for disability. I guess I was lucky in my case I pushed myself to work same as you are my boss was extremely supportive and let me come in at whatever hours I was able to. I didn't realize the toll that it was taking are making my disease progress. One day I went to work my normal time to go in with 7:30 a.m. I made it around noon my boss came up to me and said I hate to tell you this but I think it's better if you take some time off and recuperate. He as kindly as he could told me I looked terrible and he was seeing me pushing myself was making me worse to where I was working less and less and I know I probably looked like death warmed up. When I applied for disability I didn't have to wait the normal one year being unable to work they considered going back to the time that I was it able to work my normal shift daily. I hardly know all the details of your life but as someone who thought that they would could fight their way through it I guess it scares me to think of another human being going for a what even I that was the worst I could ever feel to even more devastation. I hope my words are coming out right and please don't think I'm trying to be bossy or think I know everything. I know we all work differently but with the support groups I belong to so many that push themselves to continue working eventually drop like I did and I don't want that for you or anyone else. I hope these days you have gotten Improvement I don't have to tell you for us the tiniest Improvement is huge. Many blessings...

[@AmericanLDS]

First let me say my heart breaks for anyone suffering with this condition. I had very similar symptoms for several months last year after several sinus infections and pneumonia that led to hospitalization from dehydration. It was like a catch 22 situation where any attempt to exercise no matter how mild would lead to a week in bed with extreme exhaustion. I seemed to be having seizures in my sleep that would also lead to exhaustion. I also had panic attacks as well. I read everything about my condition on the internet and prayed to find answers and to be healed. One thing I found that really seemed to make a difference was taking large doses of magnesium. My medications for gout, acid reflux and blood pressure had depleted magnesium from my system after 15 years on them. I stopped all meds except for the magnesium. Drank way more water and started eating bananas and drinking milk in the mornings. I also stopped any attempt to exercise and anything other than walking slow for almost 6 months. I changed my diet as well. Almost no sugar and very little wheat products. I tried to eat vegetables and fruits. It took about 11 months with this process before I began to feel normal one or two days a week. None of the doctors knew a cause so I focused on my recovery.

[@reaseAable]

I was using a high end Calcium Mag liquid supplement for a couple of years and was responding well. The changes I MADE WERE SIMILAr to what you made. For some reason I was a hard blood draw and appeared dehydrated to the phlebotomist even though I hydrated as requested. Having the Sickle Cell trait is another cog in the wheel for me. I felt pushing myself to reduce weight by exercising was damaging/shrinking muscle instead of increasing...it is a balancing act to deal with progressively deteriorating symtoms for 25 years approx...i am still here, being denied, dismissed, patronized by docs and people in general. I endeavor to take my life energy to verbally educate those who try to relegate me to a psychiatric case and snicker and make jokes that it is "depression". Depression is a SECONDARY diagnosis, not the primary and can be MANAGED up to a point apprently for statistic are not reflecting the actual number of folks who gave up. I have seen the lack of interest in the DISEASE by a deliberately uninformed public. I hope those people will stop being dependent on mainstream media for info and do their own informing. Stop the emotional abuse to patients with ME/CFS needs a foundation :)

[@justinreilly1]

Excellent film!

[@neweyes777]

Thank goodness I can see, and listen to others who are going thru what I am, but I wish there was no one experiencing this. I don't know if I have this, but I can't get up often, have some of the Symptoms they do, its been going on around 4 yrs. now! I'm far from lazy, till now I was told stop doing so much or when you get older you will pay for not slowing down, now they fuss because I don't get up much, have to make myself go to the bathroom! I just pray God stays with me, without Him I wouldn't be able to handle this. Much love to you all, hang in there till we get help, please don't commit suicide! I love you all.

[@REVKOEHLER]

Published on my birthday. Nice gift.

[@woppini]

Yeah, unfortuneatly its the gift that keeps on giving

[@mihakavcic7237]

Better?

[@DDumbrille]

The film has it's points, but I was disappointed that Snyder didn't ask the women from the Punta Gorde epidemic how they recovered…what did they do…she just left them, and us, hanging.

[@SandySaunders9142]

There are doctors & there are physicians. There are far too many doctors than there are physicians. The physicians have helped keep me/us going. God bless the physicians who really care about their patients and INVESTIGATE. So many can not be bothered to look beyond the ends of their highly pitched noses.

[@shayekisitu]

I have this too, although not as much as I used to. I had a bout of mono years ago back in the late 90's and I believe the mono was the trigger for me when I became ill with CFS. It was horrible and attempting to get out of bed just to use the bathroom was exhausting and tedious. I would literally be out of breathe and eventually would crawl back to bed. While in bed, I would sleep but upon waking up, yes my eyes would open but would have no strength to move almost like a paralysis so to speak and my brain and thoughts would be in a sort of limbo/cloud like state. It took me about 5-7 years to get past this stage of CFS. I am now much much better. But have dedicated my life to feeling better and living clean. Taking plenty of whole vitamins, not eating red meat, limiting my caffeine intake, eating plenty of protein, cutting out red meat entirely from my diet, eating plenty of fish, drinking a gallon of good alkaline water daily, exercising regularly, using essential oils, using air purifiers in my home, eating plenty of steamed vegetables, staying away from drive through food, drinking low fat or skin while milk free of hormones, staying away from artificial sweeteners but also limiting my sugar intake, not smoking and not drinking.

[@ScottRiddleArtist]

I think that this was a great Doc simply based on its raw honesty. Having devolved this disease after a lifetime of healthy living and staying active is proof enough to me that whatever is causing my symptoms? Its real and its serious. So far my experiences with Dr;s have been the same as described in this Doc. The Dr's ignore even your most desperate pleas for help and understanding. And like others with CFS, I aggressively explore any and all forms of treatment while fighting back frustrations and dark thoughts. But what I really connected to in this video was the fact of how people are so insensitive to your suffering. That brings on a whole new level of pain which can bitter your heart.

[@hollysmith3867]

Amen to that the worst thing about it is people not understanding. You should try colloidal silver as i feel that m.e is almost always an underlying infection....it has really helped me so far.

[@iqbal6918]

holly smith Which brand of colloidal silver do you use? And how long have you used it?

[@deboruth]

+holly smith FYI I read a number of trials for silver. Depending on form, can b great for bacteria, malaria, and even some fungi. Have used for pink eye and to ward off sore throat and cold. But, alas, it has failed tests on viruses.

[@DDumbrille]

I agree that stress (which can become so exaggerated when one has ME) can be very detrimental, and prevent one from healing fully. I highly recommend looking at some of the 'Faster EFT' videos on youtube. They help to change old traumas (and new ones) so that one can deal with these stresses better, so that people can't push your buttons as easily. Best of luck.

[@josefhospital]

OMG, I really feel sorry for you, this is really bad and just right now I've been turned down by my uncle trying to explain that my illness is serious and what it is, he was annoyed and didn't want to hear it, because it's something noone seems to have any empathy towards I WISH I had cancer or any other deadly disease rather than this severely debilitating ME :(.. anyway, virtual hugs from me to you and everyone else who suffers this disease, leaving us to die alone and in unrecognized pain

[@MistressTyrannus]

I have fibromyalgia which is similar but not exactly the same . I know meds effect everyone differently , but s good combo of pain meds and a stimulant has LITERALLY saved my life . Don't knock it til you try it and doctors should be giving adults more options to experiment and see how different things work . I wasted 5 years of my early 20s because doctors are afraid to prescribe so called addictive meds . They exist for a reason, like those of us with chronic illness and without them some of us mine as well be dead , just a reality .

[@niranjantrivedi570]

Millions of people need to know There is no boundary as to age , education general health , suffering and result are eye opener. Please listen your patients. In future I may bring helpful hints .I am a physician suffering from chronic fatigue Syndrome .Thanks.

[@Italian69Boi]

Niranjan Trivedi i always pray the doctors who doubt us and think we are lazy or just crazy will get it themselves. but hopefully you werent one of them

[@jamesmorris911]

i get a small fever about once a week and i have to lay in bed until the next morning. i can only work for 5 hours a day...the shakes are bad at night. i just try and hope for the best...support groups and meditation helps. ive been going to this hollistic rehab and i lay still inside a sensory deprevation tank twice a week. you absolutely have to combat the physiological part of cfs... its a struggle but im feeling better and positive. love and light...

[@amc7568]

I believe my daughter has this. She got Mononucliosis and hasn't recovered. She can't get out of bed without falling or losing her balance and it's only getting worse. She's only 31 and it's scary how a virus can make a healthy person debilitated and unable to function normal task.

[@HealinginSC]

I was in Tahoe when this happened. Dxed with CFIDS/FIBRO AND MCS FOR 23 PLUS YRS. Then IgneX tested was positive for Chronic Lyme and many co infections and more.

[@hayleyg22]

In exactly the same situation here! People whom i thought really cared can not even be bothered to read a leaflet. It hurts doesnt it. x

[@RebeccaFouts1]

I just showed this at my FMS/CFS Support Group Meeting in Doylestown, PA. Despite being over a decade old, and the fact most of our members have FMS and not CFS - I think we all still found it strongly relevant and poignant. I do believe it should come with a trigger warning. The discussions of suicide may disturb some. I personally found it troubling to watch the young man attend his highschool graduation; it was too much like a funeral procession. It would be interesting if they did an update.

[@lisakaylanemorris]

There's no sound on this video.. 🙁... I wanted to watch it......

[@hondasilverwing]

In it's worst state CFS actually causes more suffering than most other debilitating chronic illness's.....while constantly challenged to explain the "WHY'' I'm so sick to everyone most just live quiet and humbly to themselves and go unoticed. In my experience..telling a doctor that you have CFS is the worst thing you can do while seeking treatment from one of it's many unbearable symptoms. 99.9% of doctors still don't believe in CFS and most of us are too exhausted to keep looking for the .01%.

[@donna5193]

This really became apparent in 2000. I had felt bad for a couple of years and had been diagnosed several times with mitral Valve prolapse & just assumed it was that. Then a friend and I started comparing notes and discovered we had the same symptoms, same reactions to certain drugs and foods and had run a fever for years! So I did the treatments she was doing after we both were diagnosed with CFS! They helped! I felt almost normal sometimes as long as I kept them up. My own Mom said it was bogus. My aunt had and has had it worse than I for more years than I. My sister was diagnosed with MS but that wasn't it. All we seemed to have diagnostic in common was a lack of blood flow to the head! When I was in Rome, I collapsed in the Forum! I had to put up with the 15 people with us rolling their eyes! Then a few months later I started to hurt like the flu and was diagnosed with FM. The same treatments helped with that as long as I kept them up. Then 6 years ago I started having seizures and they found I had this blood disorder and that it is Hughes's Disease and that it causes all three disorders; blood, chronic fatigue and fibro Myalgia. I had the CATS and MRIS and they found 100's of tiny holes in my brain clustered mainly in the short term memory area! I was doing weird things. I kept forgetting where I was going and stopping at green lights... Mom said it was just because I was a Mom myself and remembering for everyone. It got so bad that my child couldn't talk in the car or I would get lost! I fought it all the way through college and through years of being a Christian councilor. I finally got so bad that I was missing my teaching Sunday School classes. I gave it up because it was just too hard to make it to late service at 11am! I couldn't get up! I couldn't remember anything. I gave up counseling people. I went for healing services and finally they had me on so much medication that I couldn't model anymore because I was gaining weight and I was just done in. So it all came down to being housebound and bedridden like my aunt and my sister; for me, about 6 years ago now. I can't remember things more than a second or two. If I need to tell someone something they can't interrupt or I have forgotten what I needed to tell them. Overall my doctors say I have done so much better than most. I miss being able to go places with my family most and church. I can't minister counsel now officially but I am surprised at how many have needed help and that I have been able to help from home. I wish I could do more. For me personally I think this is a blessing really because it made me focus more on God and helping people. Watching this I realize I did good! I tried so hard and until my child was in college I made myself go as much as possible. I feel guilty about church and about missing most of the college Mom-daughter events and things. We always did things together so it was really hard on her. My FM is much better now but overall my health got worse and more complex for us. Right now I am continually getting viruses. I have been sick 8 months out of 12! Mostly viral and lung problems!

[@zoeelleyn499]

Donna Carlson If you have mitral valve prolaspe and CFS like symptoms.. please look into whether you might have EDS.. mitral valve prolaspe is common in people with EDS. Also lack of blood flow to head.. that's not a medical thing, but you might mean orthostatic tachy.. which is also common in people with EDS.. and EDS is genetic.. so family would have it too.

[@amla047]

There is no sound at all at this version. No problems with my devise; I can hear other videos.

[@jackchorn]

I've been sick for just over 5 years now. It is slowly progressing. As I do have physical signs- Lymph nodes always swollen- Fasciculations- Neuropathy- Most of my symptoms fatique-cognative-pain- clumsiness-heat intolerance-faintness-weakness-muscle loss-on and on- are all symptoms the doctors must take my word. They really want to blame stress, depression, anxiety, drug abuse anything but a medical issue. Just before I became ill I had found 5 ticks on me on different occasions- one bulls eye. I have tested neg for Lyme 3 times and a lumbar puncture. I also was exposed to very-very high amounts of mold in the worlplace during this exact same time as tick bites. 5 years is a long time to think about what is making you sick. Personally I believe that it is a combination of issues. I think that the mold exposure was the trigger, and the mold may be responsible for changes in the brain. Virus/fungal. My doctor told me that mold can only give you allergies- I find that interesting since some of the mold I was exposed to is used by the DOD as a bioweapon. You attack the enemy with itchy eyes-haha. I think we will find in the near future combinations of environmental factors virus/fungal/bacterial work in combination in everyone- and to some it is very disabling.

[@Italian69Boi]

jackchorn It was prob the lyme not mold. the lyme tests suck. plus the immhne system can develop antibodies to the autonomic nervous sytem (specifically the nicotinic a3b4 receptor proteins) then cause a autonomic neuropathy where u cant exercise because the receptors u need for adrenaline pump heart when u need faster and harder heart contraction are gone. and epinephrine is also an anti inflammatory so then the mold can affect u worse than others

[@jackchorn]

Michael Caprarella Thanks-since I wrote that I had a eeg and nerve conduction= polyneuropathy, as expected. I also had a recent MRI- mildly extensive foci of white matter more then expected for age, differential of eschemic, chronic gliosis, demyelination or encephalitis from lyme- the free clinic I go to said they could no longer do anyh=thing for me and have not given me a diagnosis, that I would need to seek treatment elsewhere. I have no financial ability nor physical ability and am quickly running out of options- Oh well- Thanks for responding.

[@lifelieswaiting]

Almost certainly Lyme disease and its coinfections.

[@cpksunshine]

Most of these patients are mercury-sensitive and weakened by mercury exposure by ingestion, inhalation or transdermally. Avoidance of this disturbing frequency is the key. Read my Notes on my Timeline on Facebook.

[@AKayfabe]

I ingested an actual piece of Mercury when I was a child, as in the liquid metal itself,and was Mercury Poisoned. I grew into adulthood and have symptoms of CFS now.

[@Nunes67]

have anyone checked the" Antiviral intervention for Chronic Fatigue Syndrome From Townsend Letter for Doctors and Patients, 2/1/04 by Shari Lieberman" It's something I believe some of you who suffer from this should read . And there is a support group at the daily strength dot org under Chronic Fatigue Syndrome.

[@Ozyoud]

this is a long subject, but its not about worshiping its about understanding its a journey to find god what you seek is seeking release your self from any religious constraints and go directly to him whats here on earth its our evolution god want to see what we will do with our free will and technology there is a lot of nature laws we cant break but when souls are set free here or after life no body know,i see people having the best life but have a tormented souls that they don't know about it !

[@efiaabu]

Where can i find this movie with sound?

[@emmathornton4790]

Lyme

[@Aurora417977]

Thank you another person with an actual brain. I mentioned lyme and got viciously attacked.

[@brendaparry3292]

There’s no sound!!

[@JustME-ft4di]

The sound seems to be missing?

[@devora]

There is a sound audio problem in this video present

[@LuckyBadger]

Could you please reupload a version with louder sound, or at least put closed captions on this? I can barely hear anything. :-(

[@brendaparry3292]

I can’t hear any sound?!

[@treasurejuanitaarquieta]

Same here, no sound.

[@daughertynicole]

Is there a trick to getting the audio to work?

[@jeanam1082]

No volume for this video

[@anngarton6225]

My daughter was 15 years old and one day stood up and fainted after that she got very tired and fainted every day then in 2010 she became bed bound so we went to a Professor In London and he arranged a Tilt Test and she was attached to Blood pressure machine and heart monitor and a machine that took her pulse she fainted on the tilt test and now we know it was Pots Syndrome and the Professor also knew that she had ED Syndrome and also CF Syndrome so she also developed seizures in 2010 and these lasted day and night it was like a big cramp took over her body and when she was put on a heart tablet to slow down the pulse and a blood pressure tablet to get the blood pressure up and salt tablets including a salt steroid tablet the seizures went to one a month and six years later she is in a wheelchair and still has CF Syndrome and a seizure once a month She rests a lot and when she has energy recovered she can have a bath or go out on her mobile scooter with her boyfriend. How she deals with it is rest, rest and rest So everyone have a tilt test and find a Pots Syndrome expert if you faint every time you stand up. I think ME CFS and Pots are related.

[@Tjsan]

+Ann Garton www.reddit.com/r/cfs/ very helpful CFS community

[@OakleyANDSittingBull]

Why not?

[@vaceliagoodman297]

Why's there NO SOUND???

[@Ozyoud]

i know the answer, its divine love touch.

[@Ozyoud]

we decide our future "hell or heaven on earth" after we have the life test .

[@lifelieswaiting]

I have belonged to some fibromyalgia support groups. Some of the fibro folks want to ditch the fibro label in favor of myalgic encephalomyelitis. I agree that fibro needs a better name, but not THIS label. This documentary makes it obvious that this is an entirely different disease. Though I do suppose there are at least a few fibro folks who are misdiagnosed and actually do have ME.

[@Lionforaday]

Gosh, this is a refreshing comment! Fibromyalgia and chronic fatigue syndrome are surely different illnesses - it's always bothered me when they're grouped together. Also, while I agree that chronic fatigue syndrome isn't an ideal name (mostly because it trivializes the illness), "myalgic encephalomyelitis" isn't any better - frankly, I think people favour it because it sounds serious, but you can't simply use "any" serious-sounding name and apply it to your condition. Currently, there's no real evidence of "enceophalomyelitis," which is "inflammation of the brain and spinal cord." People may *feel* like this is what they're experiencing, and I'm not saying (at all) that this isn't a serious illness - it's just that we don't yet know what's going-on with the illness. In my opinion, it might be better-off being named after one of the folks that first recognized it, calling it (for example) "Cheney's Syndrome," as with diseases such as Crohn's Disease, Hashimoto's Thyroiditis or Graves' Disease.

[@Froggy77100]

J Rae I've had this torturous disease since 2004. I've been home bound and bedridden going on 8 years now. When I first saw this comment saying there is no evidence of brain or spinal cord swelling I thought perhaps it was an old comment very old comment actually. There has been evidence of brain and spinal cord swelling since I believe the 1930s through the original doctor who discovered this illness or I should say discovered Medical abnormalities his name was dr. Ramsey. I as well as many other people in my support groups I belong to have evidence of swelling in the brain the spinal cord or both. So as a physician I'm not sure why you haven't seen this evidence. I believe Stanford did a study of this but there are few studies done which is why the name was put there in the first place . Many of us also have cysts in our brain as well as decreased white matter and gray matter for our age groups. Some other biological findings are low blood volume white blood cells that are either way too high or way too low decreased red blood count very low NK cell function mitochondrial dysfunction or failure irregular EMG tests irregular EEG . Mine personally shows several different seizure activities and I do suffer from daily seizures muscle wasting unexplainable weight loss irretractable nausea and vomiting the post external malaise for me can come just from sitting up or walking to use the bathroom. The pain I have is Extreme from head to toe it literally feels like my bones are being crushed I also have the muscle pains which were explained to me was because of the increased lactic acid CFS me suffers have. That is one of the reasons that we were unable to exercise and exercise can make us worse especially if we go into aerobic stage and the lactic acid increases that's why many people including myself or made worse because we were told to exercise. I also have light sound and touch sensitivity or just the sheets brushing on me can be excruciating. The few times I am able to make a phone call for example or walk for my bedroom to the living room and sit up for a few I'll have to come lay flat as soon as possible because it feels like my brain literally is on fire. I also also have Painful neuropathy as well as many other neurological symptoms I can no longer write I tend to write letters backwards entire words backwards or just can't do it. Same with speaking I know what I want to write or what I want to say my body just doesn't get the connection. I'm using the talk to text to write this hopefully it makes sense and please don't take anything I'm saying negatively there are so many people including Physicians that don't know about all of the information that is out there. And I can understand in some ways you are not taught about this disease in medical school who usually so overbooked I can understand time to research isn't always there. I have been the one to supply my doctor with information from when I first started seeing her in 2010 and she was willing to listen and try to help me. Of course the information had to be legitimate for example from PubMed the CDC the NIH. Sadly since August her treatment of me has changed dramatically she actually told me well you're not improving and you're not bringing me information the way you used to. she's also decided to stop treaty right pain with this opiate brouhaha that shouldn't even be applied two people such as myself have legitimate even proven pain. I have no problem being under contract submitting to random urine tests which always come out clean. Still I told her I don't really care if it's opiates that are being used to treat my pain I just need my pain to be bearable. She agreed that we would try something else then without warning she simply stopped treating my pain at all. I can't tell you how much worse this has made my condition. I can no longer do my physical therapy or even bathe. I don't don't understand why I'm being criminalized especially when we first started discussing pain treatment and I had God down to half the dose she had started me at. also the information I provided her CFS m e experts such as dr. Goldstein suggested medications that were not even opiates ketamine was one suggestion that had been studied it showed to be the most beneficial for my disease. so how fair is that I being treated less than human because of accidental overdoses that percentage-wise chronic pain patients are the lowest at risk. not to mention all the other health factors that come with severe untreated pain heart attack stroke organ failure to name a few. It's especially worrisome not only because I have to deal with the hell of this excruciating pain that was under control but I've already had several Strokes before I pain was treated. you and others may think I'm sounding dramatic please visit the hummingbird Foundation website. It answers questions about this disease from every aspect. The patient the caregiver the physician Etc and also has the supporting data. it's sad that we live in a world where an animal isn't allowed to suffer like this but human beings are treated so cruelly and even judged unfairly by medical professionals who are not aware of this disease and how severe the pain and many other symptoms are and can be . It's avery disheartening thing to go through I've invested so much time and energy to provide her with the information on tests and treatments that we can try. Unfortunately I have gotten worse probably the last 4 years through no fault of my own I have a disease which I can't control. She's refused to try the majority of treatments I've given her evidence on even just a saline IV. The only thing she has agreed to is B12 shots there are several protocols the word she decided on what's 10 CC everyday for 6 months see if there's any Improvement I go from there. The only problem is my insurance doesn't cover the the treatments. I was able to get a few months then I lost my disability income because I have no help I was unable to fill out the paperwork. But I gave my mom power of attorney so she could try to get everything straightened out and done but apparently Social Security Administration told her it requires that I personally go. the worst part of that is I don't 100% believe that she even tried. either way I don't understand this rule my doctor has already declared be home & bed bound so you think there would be a social worker that could come to me someone I could talk to on the phone something in place for people like me who are totally and bed bound to continue back getting the benefits we are the only a title to the only qualified for but desperately need. I'm now behind on my mortgage there are no programs in place to help someone like me. So many with CFS / m e fall through the cracks not only with our Medical Care but with benefits such as disability and home care possibly palliative care. I'm one of so many that is too sick to do things that are required and there's no one to help me and there's nothing set up in the system where I live that offer us help. This disease truly feels like you're dying every minute of every day. I still talk to myself today will be better tomorrow will be better whatever I have to do to keep fighting. even if I have a hopeless day or moment I pull myself back up fight. but I can't say I don't fear that one day someone will come find my lifeless body being that I often don't have anyone come to check on me for months. it's actually pretty scary sometimes. Our medical system should it be set up that way. there is a social worker at my doctor's office now so I expressed all my concerns to her it was told she didn't do any of that and couldn't help me. I'm still trying to clarify exactly what she can do because it was my doctor who told me she could help me. my apologies if this comment is all over the place if I repeat myself it for possibly many grammar errors. talk to text it's all I canas someone do. I beg of you with this disease if you treat it please listen to your patients. there are so many of us that can have many similarities but also some differences. but at the end of the day we're looking to our doctor for help we need you. I probably provided my doctor with enough information to fill a 3 ring binder every 6 months to a year. I provided her with many treatment options one being low dose Naltrexone which unfortunately I had a horrible reaction to but another CFS patient of hers who was not as severe as me had great results. This treatment protocol is available for all to see there have been trials and it not only helps those with CFS m e it also has helped people with MS ALS Cancer And more.Obviously thePatient cannot be on opiate pain treatment Or drink alcohol being that naltroxine is an antagonist for both. And even though a treatment dose can Start as low as .5 mcgs because our metabolisms don't work right along with many of us having drug even supplement sensitivity even that small of a dose could cause severe withdrawal symptoms. There is an astronomical amount of legitimate information available out there on this disease some's been available for centuries you've just gotta be willing to put in the work to find it. If I was able to Dr's truly interested in helping us can too. Many aren't or don't take studies seriously if they're not that big. But you gotta keep in mind most of these studies have been done with little to no government funding. The cdc did update their info in July (I feel due to the increase in deaths ruled caused by ME at autopsy there were 75 abnormalities in spinal fluid as well as the increase in children getting it) so hopefully that'll help with funding and help for the millions that suffer every minute of our lives. Please before discredit the name ME do the research to find where it came from i assure you it's more then wanting a more serious sounding name. Sadly the government spent a million dollars to change the name to seid or systematic exercise intolerance disease. Which 1 funds would've been better spent on research and 2 like CFS insinuates we're just tired SEID insinuates we just can't exercise. I personally think it should be called Ramseys disease seeing as he was the first documened to discover this and find physical proof. But it's never even brought up so I believe ME is fitting for those that have all the symptoms required for the diagnosis. Thank you for your interest in this disease there are so few Drs that seem to want anything to do with it. I can only pray this disease will become a part of future medical school curriculum. Because sadly Dr's who don't know about it even when given the information can be quite cruel. And that's not OK especially when so many of us are at the stage where our symptoms are as severe as a patient with AIDS, heart failure, renal failure to name a few Dr's FamiliarWith the disease have compared it to. And there are also Some of us Who's conditions become so severe we do develop something like heart failure.

[@schwingfeldforschung9531]

" Schwingfeld vegetativ Erkrankung " KZbin Film

[@ForeverLuminous]

ugh there is no volume and cc is unavailable

[@EricRipperOfficial]

24:00 Kim says how she grieved over Michelle Akers death, though she is still alive today. I don't understand that.

[@rauulfr]

No sound :(

[@angelsabundance9274]

Many of us can relate. The boy from high school lyme disease dx? dr klinghardt in Washington state or Dr. Horowitz can help him

[@sifuerapordiriaque]

Me, I still hopeing am suck since 1994!!!! And running out if steam

[@CurryEnterprises]

I found out about Low Dose Naltrexone. Feel almost 85% better. Why I don't know other then I started taking LDN.

[@ezeid137]

Maybe people will understand now.

[@Ozyoud]

thanks for the consideration ... first you cant imaging the compassion i have for the people with this illness or any ... i never wished for any one to go to hell its even against my belief that only god can judge people who am i to judge ... i love Jesus and all god messengers and they are our guidance but we have to understand the message ... we didn't follow his massage and forgot about god and worshiped his miracle messenger. jesus came and told us to believe in what and understand what.

[@johnholt1476]

Try intermittent fasting, I contracted ME (there,s no such thing as Cfs its nonsense created by vested interest groups, psychiatrists, government and American medical Insurance companies)in 1979. I have had three doses of this disease which last 7 years then it would return 1979-1985, 1985-1992, 2006-2012 and my fourth dose 2006-to date each was triggered by a physically traumatic event, a car crash, a fall which damaged my coccyx and another crash on my bicycle. When I got over it in 1992 I was on holiday in the south of France (nice) for some reason I ate very sparingly, got plenty of exercise walking on the beach loads of sunshine and I came back from holiday I looked younger felt much better and this illness virtually left me. looking back on all this physical history, intermittent fasting gives the most relief. ps To paraphrase Richard the 111 " Kill all the Lawyers (Psychiatrists)".

[@azaz...]

how did some of these people recover?

[@cathyanderson8197]

I have rarely heard of anyone recovering unless they found out it was Lyme. Any decent doctor will check for that first. Maybe they are just miracles that happen for reasons we don't understand that people get well.

[@Italian69Boi]

Cathy Anderson miracles dont exist. god doesnt exist religion is bullshit. only science can fix this. prayer is useless while pretending ur doing something. better to study and research in ur own than pray

[@SignsAllAround]

+ Cathy Anderson Even lyme isn't the be-all-end-all. I met a woman a couple of years ago who has worked as a health care provider (HCP) with, as she put it, all the big cutting edge lyme doctors in our metro area. At least one of those is well known internationally. In a nutshell, she said that most of the patients do get better with the lyme treatment of antibiotics etc -- however, the dirty little secret that no one talks about (her words) is that some patients just tank and never get better. I've had CFS for 25 years (tho only just got the offical MD-sanctioned diagnosis about 18 months ago). I saw a lyme specialist about 5 years ago and did treatment for 1.5 years following which I have become progressively worse until now I'm one of the 25% who are 'homebound or bedbound'. Hearing what this HCP had to say only confirmed what I had already been thinking, that the lyme treatment ended up making me worse. (And if anyone wants to start in on the whole 'herxing' thing, please save it.) I was at least able, barely, to work before. I wouldn't discourage anyone from exploring the lyme option, because I do think it's likely that a lot of CFS could be lyme-related. However, I've also watched and participated in a lot of the ongoing CFS diagnosis parade over the last 25 years. From this, I say with great certainly that you can find experts with lab tests and other science to back up about any theory you might care to come up about CFS. I do not believe there is a blanket diagnosis for this thing, although maybe there will be some day. I think it's more likely there are multiple and/or overlapping disease processes and environmental factors going on here -- and I know directly at least one fabulous long-practicing MD who offers the same theory. Antibiotics and antivirals are not hazard free, and there's science to back up that claim too.

[@mattewredrlgd3993]

Why should I worship a lord that curses me with this ;every day is hell but at least now I'm better but ok

[@droidroxmysox]

it makes me wonder if this disease could be from an inability to absorb b12

[@MegaForeveraloneguy]

jkv

[@schwingfeldforschung9531]

CFS IST HEILBAR !

[@Frank-gx3ez]

+Schwingfeld Forschung Tell me how, please! I read4 books, but still do not feel good.

[@mattewredrlgd3993]

David bell is my dad I'm james bell

[@tomaszgruca4323]

i watch a lot of things and read a lot... and I see this and is it just me? or is it people that either had a chance at making it great or doing something worth while... just collapsed under the pressure and wanted a way out? not to mention doctors that wanted to make a name for themselves. listen close...and remember Z always makes movies that make u think and show you things that you shouldnt see... that being said... that being said... you cant even see it... that name sucks! name it better!

[@AlabanzasCristianas1]

I want share this verses of the Bible with anyone's who need and believe in Jesus. Psalm 118:8 It is better to take refuge in the LORD than to trust in humans. John 6:47 Very truly I tell you, the one who believe has eternal life. John 15:7 if you remain in me and my words remain in you, ask whatever you wish,, and it will be done for you. Joshua 1:9 have I not commanded you? be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go. Isaiah 41:17 the poor and needy search for water, but there is none; their tongues are parched with thirst. But I the LORD will answer them; I, the God of Israel, will not forsake them. Matthew 10:32 Whoever acknowledge me before others, I will also acknowledge before my Father in heaven. James 4:8 Come near to God and he will come near to you. Wash your hands, you sinners, and purify your hearts, you double-minded Psalm 4:8 In peace I will lie down and sleep, for you alone, LORD, make me dwell in safety. John 8:36 So if the Son sets you free, you will be free indeed. Psalm 67:1 May God be gracious to us and bless us and make His face shine on us. Ephesians 2:8 For it is by grace you have been saved, through faith, and this is not from yourselves, it is the gift of God. God Bless All and give to you the cure. want share our Christian channel has songs made with love and CC in English and free movies in English see playlist. ALWAYS REMEMBER JESUS LOVES YOU.

[@JonnyOwenTunes]

+Alabanzas Cristianas ..sod off

[@kellylittleton]

+Jonny Owen LOL! I'm just laughing at your British term, of basically saying @&$; OFF, but visit www.jw.org with an open mind and heart ~ ❤️

[@smallweights]

+Alabanzas Cristianas only sheep need a leader or false self appointed profit-get real cure youself of your illness in thinking religion is any sort of reality - its not, its control of the weak minded

[@songbratcindy]

I don't know if this would help, but a garlic pill, taken on a continuous basis might alleviate this problem. The reason I say this, is that the condition is said to be caused by a virus. Well, when I feel a cold coming on, I take a garlic pill (not cooked garlic). As long as I am not in a cold environment, I immediately get over the cold. I am not a doctor, nor am I offering medical advise. But, if I had this disease, I would give this simple method a try. Ask your doctor, first.

[@leejones8582]

I suffer with this and it is awful.

[@DDumbrille]

First, I don't hate you, nor do I doubt anyone here does. We don't know you, you're a total stranger. But sorry, but Trevor Marshall and his "cure" (he DID use the word for several years) is so 2005. His hypothesis is wrong, but he's such a narcissist he's unable to admit it. Back in 2005 7 members of our local support group tried his protocol. ALL of them had to stop, 2 almost had kidney failiure...but they kept telling them it was a herx. Google his name and "risks" or "dangerous"...

[@mynameisgladiator1933]

what a horrible production. We don't need to see the world out of focus. And the bizarre music. Combined - unwatchable.