If You Could Share 1 Thing with Your Neurologist, What Would It Be?

IAES’ “Tuesday Tries” meets on Zoom on the last Tuesday of every month. Moderated by Tessa McKenzie, IAES' Chief Resilience Officer, caregivers, and patients gather to celebrate their critical milestones in recovery and care and build a more resilient network! "Tuesday Tries" is about practicing a strengths-based approach by “normalizing the try.” Tessa provides prompts for reframing perceived failures, peer-to-peer validation of “wins, " and opportunities for relationship building. Tuesday Tries gives members the time and tools to reflect on their Autoimmune Encephalitis journey, identify best practices in healing, and move forward better poised to leverage their strengths. At a recent meeting, Tessa asked, "If you could share one thing with your Neurologist, what would it be?" Responses poured in that were so insightful, we decided to create this video as a positive step forward in relationship-building with our doctors. If you are an Autoimmune Encephalitis patient or caregiver, we invite you to register for AE Tuesday Tries here: zoom.us/meetin... The confirmation for your registration includes two tools which we share with you now. The "Growing Your Resilience Organizer" autoimmune-enc... and Gratitude Journal autoimmune-enc... We encourage medical professionals, patients, and caregivers alike to download these tools. Autoimmune Encephalitis is a group of inflammatory brain diseases that are characterized by prominent neuropsychiatric symptoms. These patients are often believed to have psychiatric presentations, but they do NOT. Common clinical features include a change in behavior, psychosis, seizures, memory, and cognitive deficits, abnormal movements, dysautonomia, and a decreased level of consciousness. Psychiatrists and Emergency Room Physicians are often the first medical professionals who see these patients. It is vital that Clinicians consider the possibility of an autoantibody-related etiology and become familiar with the red flags suggestive of synaptic autoimmunity as the underlying cause in all cases of first-onset, out-of-the-blue psychosis. A high level of suspicion is necessary as autoimmune encephalitis is treatable with immunotherapy. Firm evidence shows that earlier recognition and treatment lead to improved outcomes. It is important to note, that the disorder is refractory to antipsychotics; indeed, antipsychotic agents make affected patients much worse, even to the point of developing something akin to neuroleptic malignant syndrome. The International Autoimmune Encephalitis Society, (IAES), is the only Family/Patient-centered organization for people with a diagnosis of Autoimmune Encephalitis. Leading with integrity, IAES strives to advance services, education, increased awareness, and research for this group of diseases. IAES provides science-based information backed by trusted medical experts in the field of autoimmune neurology and relies on the expertise of our Medical Advisory Board. We are an established non-profit organization with a history of supporting all-inclusive services from diagnosis to recovery and the many challenges experienced in that journey. Visit our website: www.autoimmune-encephalitis.org Your donations help us continue our important work. autoimmune-enc...