ILBDC 2022 - Session featuring Susan Williams

A session from the International Lewy Body Dementia Conference, held in Newcastle, UK
This was a joint plenary of both the scientific strand of the conference and the Living with Lewy strand for people living with LBD and carers.
Speakers:
Professor John O'Brien, Cambridge - DLB: Past, Present and Future
Susan Williams (starts at 33:30) - Lewy body dementia: the invisible monster
Ashley Bayston & Lynne Corner, The Lewy Body Society - launch of the international coalition of Lewy body charities

[@toryberch]

Robin, I want to say thank you for your efforts in continuing learning for Robins disease. I too am going down the same path as he did. but I have one Medical System that's all inter connected by all my Physicians under one roof. But it's not fool proof. I have had to take charge and learn constantly about my disease so as to have a say on what my options were in my care I am glad that I learned to put No Anti Psychotics in my medical chart as an allergy. Many things to learn 🥺

[@257rani]

Thanks Susan and Robin, My journey living with Dementia with Lewy Bodies Dementia and Vascular and Parkinsonisam and Ovarian Cancer, I am blessed to have you sharing this about yourself and Robin, I know I have a Diognosis now .That is A terminal illness, like my Cancer. I wish I could speak with you helped by my Daughter who is my Carer.❤🇺🇸🌎🌍🌏❤🇦🇺🇱🇰🙏🦋🦜