Infantile Spasms/ West Syndrome Awareness: Unusual Baby Twitches, Seizures, Jerking, Epilepsy

[@petercammans7257]

Thank you for making this video. I am an aspiring Pediatrician and it is videos like these that truly help me actually see what this condition looks like so I can make sure to recognize it when I see it and truly attention to detail is everything with conditions such as this. Thank you so much!!!

[@kathythureen6502]

precious little boy. I hope he gets better.

[@user-pv7ep1sw1b]

God bless these children

[@jprest13]

Thanks for making this

[@maurawalsh9841]

Such lovely babies hope they grow out of them horrible things

[@parwatisamant1010]

God bless the babies

[@Childneurologycenter]

Thanks for putting up this video. It’s very important to be aware about fits in children.

[@anitachoubey4075]

Hello sir, my sister's baby which is 11 months old and is having fits since January and in March we saw more fits in him and we took him immediately to the doctor right now also he is having fits please tell what to do he is 11 months old right now .

[@munawwarpinjari4198]

Sir mere baby KO bhi ye spasms ate hai .ap help Karo. Sir.me garib hoo Sir. Call me Sir. My number. 9021987092.

[@itskuhulifestyle8949]

@@munawwarpinjari4198 Hello mere baby ko v ye hote h....aap kya krte ho iske liye

[@lucasgomesfilho]

Thanks for sharing this. It is very important!!

[@cynthiaarons9373]

Poor babies. Based on their cries, they must feel some discomfort or pain. Their cries are different. I hope those babies get better.

[@Karen-tc5gf]

Edit Sara you are obviously an heartless monster

[@Karen-tc5gf]

@Edit Sara very heartless monster

[@whufc6764]

@Edit Sara 😄😄😄

[@cindycarr3460]

Bless their hearts. They have no idea what’s going on with them ❤️. M sure very scary.

[@lbh4113]

I used to have an infant in my care who would suddenly cease drinking his bottle as he was held, and his eyeballs would suddenly go size to side as his arms went stiff, and it would happen ever so often. It was communicated to the parents, who denied it, and said they’d never seen this, although I witnessed it on several occasions. This was before the time of cellphones, and I don’t know what ever came of the baby or the family, as they migrated around to different regions and I never saw them again, after their seasonal work was over. I hope he didn’t have anything lasting. I had never seen anything like it. I would have thought it was def some kind of seizure. He seemed normal and healthy other than this. Very happy baby.

[@lbh4113]

Edit - side to side, not size to side

[@ChosenVessel82]

My baby probably been had them and is also developmentally delayed. He had 3 types of seizures in the span of 2 months. I believe they didn’t catch it and as a result he is non verbal, can’t talk etc. I’m heart broken but my faith is in Jesus

[@MrTreyba]

CBD oil

[@rochellerelampagoscocomaxe5257]

Is your child okay now?

[@ChosenVessel82]

@@MrTreyba we used CBD oil. He is missing millions of genes that are causing the seizures. So meds do not work. It will take a miracle that I am believing God for.

[@THENNA-9909]

how is your child now please reply mam

[@ChosenVessel82]

@ he hasn’t had a seizure in over 1 year and is healed. He did currently in the hospital due to pneumonia but God is still in control

[@That.alaskan.ginger]

The doctor thinks my baby has this. And we are waiting to schedule an EEG. I have to wait for the refferal phone call. I'm freaking out

[@melissapiosca5431]

Bridget Wimberly hope all went well with your baby

[@cindycarr3460]

I hope it went well also💗

[@didthatreallyjust]

Bruh, is ur baby okay?

[@jessicac8244]

Any updates?

[@alanaalbarado2357]

Every child is a blessing! 💖💖💖

[@DeRone22]

Omg my baby does this! I keep getting told its cause shes too excited but it seemed so odd to me! Thank God her doctors appointment is in a few days

[@rivasjon000]

Did they figure out the issue?

[@DeRone22]

@@rivasjon000 well it was an appointment for the pediatrician so he referred me to a neurologist because shes gonna need an mri and other tests and that app. is in 2 more weeks. I'll let you know

[@selenakhalifa273]

Giselle Gutierrez my baby does this too he’s 5months . he does this shaking thing where he sticks out both his arms. I’ve also noticed little facial spasms. like you been referred to a neurologist 😓

[@DeRone22]

@@selenakhalifa273 I hope everything turns out ok, at least whatever it is was caught early... I let it slide for months cause I was told its nothing but if you as a mom feel something isn't right then make a big deal out of it. I'll pray for you and your baby

[@selenakhalifa273]

Giselle Gutierrez thanks, same to you! I’ve also been told it could be from him getting excited but I’d rather know for sure. his appointment is on dec 17th so I have some waiting to do and it’s killing me. hope everything is well with your baby. 💛

[@jackieholmes5587]

For the babies that cry so hard after their seizures, are they in pain or just afraid?

[@bushraothman3429]

Of course pain, low oxygen, difficult breathing... I think the cases are increased due to the artificial clothes and tools... It’s need research

[@ChosenVessel82]

@@bushraothman3429 I was told they don’t know. And are exhausted after.

[@paristhepug6100]

Sorry but many of your examples are more like sobbing spasms. I haven’t slept for days because I thought my child had this. This is INCREDIBLY rare and is also marked by other signs and missed milestones. Baby’s jerk and twitch and have moro reflex and sobbing spasms and reflux etc. they developed better coordination later etc. this is a sensationalist video and really so frightening. GO SEE A DOCTOR IF U THINK SOMETHING IS OFF AND GET OFF DR GOOGLE! It will make u lose ur mind.

[@ssencri2787]

Ikr...

[@fabinhoabdala]

I’m freaking out to be honest. Went to see a doctor twice but still not sure about it. Only prescribed omeprazol but no tests have been done.

[@sailorarwen6101]

Ever think conditions are considered “rare” because the condition is misdiagnosed as something else?

[@sackettfamily4685]

@@BadMamaJama007 thanks for saying that! I'm just trying to get a general understanding because I'm not yet with a doctor. He's already passed a eeg with nothing. So I'm just researching and looking for a pediatrician. He's 6months now

[@SB-uw3fe]

Wow, it's so incredibly subtle I don't know if I would even recognize anything abnormal!

[@J25-n6g]

Mop Pet you would because these precious babies develop normally, in the early weeks they start to respond to voices and then smiles and recognition of family all the usual wonderful baby things. I was babysitting my granddaughter when she suddenly appeared to hold her breath and then seemed to have a really good stretch and I thought oh bless I've worn her out. She did this a few times but after each time she was unsettled and cried, trust me instinct kicks in. Bless all children with ws and the family. On a happy note Kyla is now 16 she is autistic but if you met her you would never know she's beautiful funny and sociable, her demons she leaves at home xx

[@susanferguson8799]

I wonder how many weren't.

[@mubasharali1485]

same situation with my child 11 month old. taking jerk after awaking at midnight once in 24 hours.

[@hiratanveer8147]

Is he alright now?

[@chatluahralo1437]

My daughter 4 months age also shaking her right thigh of legs and fallen down her head front side for some.Is this illness is curable or not sir.

[@anjalijaybhaye2346]

@@joshibhargav4454 I took treatment for my daughter in Pune , Maharashtra,she is fine now but slow development

[@fathimarashid1726]

Anjali Jaybhaye pls tell about more your daughter development

[@sibalwinderkaur7696]

Mubashar Ali is ur child alright now? Did u take any treatment for this? my 9 month old is doing same from 2-3 days.

[@indianhutiyapa1247]

My 5 month old daughter is facing infertile spasms 😢😥

[@sanjoes889]

Do u mean infantile spasm

[@ahadjee951]

How is your daughter now??

[@THENNA-9909]

how is your daughter doing now?

[@Mandy-rx7rq]

This is reassuring. My 8 month old has had strange eye moments from birth, now its stopped but a new system has accrued she does sniffing very fast, with stiffing her arms and hands in fists, then she makes a scream sound, but its not an crying scream. All these last about a few seconds all day, especially when she's eating. I will defiantly get her checked out by GP. Tics and ADHD run in my family, but mainly boys. I have ADHD but I control it well

[@christinahavice6190]

Did you ever get this checked out? My baby does the same thing

[@deekshatrivedi7608]

Plz tell me how maam

[@CindiLeeCusimano]

I’ve never heard of this before. How often a day do babies do this?

[@yalondapickrel2058]

It can be anywhere from a few, to hundreds a a day.

[@sanjamaksimovic8522]

Does it happen every day? Is there possibility to have seizure once a week?

[@RizkyIlyasa-ug9oy]

​@@sanjamaksimovic8522 my baby seizure everyday since 1 month ago 😭

[@the_re_up]

In simple terms dont listen to health visitors, dont listen to midwives

[@lraminelli]

In my opinon its not West syndrome but sandifer syndrome.

[@ChosenVessel82]

My baby was diagnosed with silent reflux. He didn’t get diagnosed with infantile spasms until feb 2021 at 22 months old. After having a regular seizure

[@rashidakachwala9787]

Is he all good now?.

[@ChosenVessel82]

@@rashidakachwala9787 he still has clusters seizures. He was hospitalized twice this year. His condition is caused by genetics. No meds have worked, but I believe that God will heal and deliver him. I am trusting for a miracle. And I know my savior Jesus Christ can do it. Thanks for asking

[@rashidakachwala9787]

You didn't have an eeg earlier? Silentreflux does cause seizures

[@ChosenVessel82]

@@rashidakachwala9787 he had eeg when he had his first seizure in 2021. The eeg showed he also had infantile spasms. He is missing millions of genes and has a genetic condition. So not only does he has the seizures but he’s developmentally delayed. 3 years old and not walking, crawling or talking YET. I still have faith. Both my husband and I were tested and we do not have the genetic conditions, and neither does our older 2 children. My baby has so much going on.

[@rashidakachwala9787]

So he never crawled or walked?? Or he had a regression?

[@anitasapkota3381]

Can anyone explain with the second baby's movement i could not find any wrong

[@takudzwachigumira504]

How it can be cured

[@HeraldQirjazi]

I dont understand ,thry look like normal movements , how to understand it??

[@sureshkumar-fn1ou]

Treatment vdos

[@cdivine011]

i love how they start to complain and the seizure cuts them off like, nope!

[@rajiguna6861]

Hi all I'm from India For my son has this problem(infant spasm) what treatment for this problem please reply for me

[@yazzyb4009]

Doctor and medical help get him checked out if India can't help try to call an USA doctor because if un treated it can become serious

[@anjalijaybhaye2346]

Treatment available in Pune Maharashtra

[@fathimarashid1726]

India pe ap Kiter he . Kerala pe good treatment milthi he

[@rahabmpho6263]

They gave my son keppra for infantile spasms is it the correct treatment for them?😰

[@nicoley3895]

Rahab Mpho my daughter is dealing with this. And in the US, they do not prescribe Keppra for infantile spasms. We have been doing high dose steroids which has helped and if they don’t go away we will try vigabatrin

[@cookie1lily]

What did the babys doc tell u about the eye movements, I'm asking cuz my baby when he was born he had weird eye movement as well he would rool his eye to the top whime we were in the hospital due to his weight we brought it up to the doc and they told me that it's my son he doesn't have controle of his eyes then when he was 4 months he had this 1 were his eyes rolled back he got stiff with his legs up amd his lil has were In to a fist after he came out of it we couldn't wake him up! Took him to emergency doc there told me it was acid reflux doc didmt wanna here what I had to say, his cardiologist seen the eye movement and said that was Seizure activity they did an EEG but didnt show anything but know he has these were he looks like he floots off in to space or it looks like his batteries r out not sure what else we can do I just need answers my son is know 6 months.

[@SuperButterfly217]

The EEG will be normal unless your baby has a seizure during the test. Keep on pressing forward until you get answers for yourself and your baby.

[@alfredhernandez4906]

Spirit healer! Sri Avinish

[@sandranegrete7]

could someone tell me what is the problem with baby in the 2nd video? Im confused.,

[@lapersonne1580]

Ho my god... I am scare...i suspect this on my 5 month baby. I did not know. Ho noooo

[@Thelastlazy]

Ha ha I think it’s so funny there eyeballs go all directions and they already don’t have control of their arms. So when they start flopping around like a fish out of water it is funny. Lol

[@LyleTuttle-b6c]

@@Thelastlazy You get a lot of entertainment with these videos. I agree with you 100% 😂😂😂😂

[@ЖенькаЛуцу-р9р]

Bonjour, est-ce que quelqu'un est au courant, quelqu'un a subi ce traitement ?

[@sajidaramees7179]

Vaccinations r not contraindications for epilepsy. We should wait one year seizure free period to give only one vaccine which is JE ( Japanese Enceohalitis) given at one year.

[@junaidsubhani5198]

Means??

[@dhamotharanp4107]

Please explain sir

[@nianbeast]

My 3 year old son has had big seizure 6 months ago. Then after he have head drop 20 to 25 times every day. What can I do...plz help...

[@THENNA-9909]

how is your son now please reply

[@antontjust5749]

I can't say with certainty about every single clip in the video, but most of these videos are definitely NOT infantile spasms but rather Moro Reflexes, which are completely natural and benign in babies. I think the creator should edit or remove the video - it creates so much stress in parents who might come across it. If you worry about your little one, take her/him to a doctor. Doctors have varying levels of experience in "baby twitches" but most can quickly recognize the most common and harmless ones. If in doubt, you will be refered, simple as that.

[@Mrjakeharrington93]

Hi Anton, FYI this video is infact very accurate. My 3 month old was fobbed off by multiple doctors/consultants and we were told it was the startle reflex/reflux and we pushed for weeks to see a specialist. Recently we finally saw a peadiatric neurologist at great ormond street hospital and my son was diagnosed within 12 hours. He displayed all of the symptoms in the video and more subtly than most. My advice would definitely not be to remove informative videos like this but if in doubt to see a specialist and NOT a general paediatrician, if that means paying private its a small price to pay to get a definitive answer. Studies have shown time and time again IS is misdiagnosed and the importance of catching it early before potential seizures start is paramount to the baby's development.

[@sleeplessnightsxxx5541]

😢

[@rajchouhan5391]

my Child is 7 months have also same problem like this videos

[@anjalijaybhaye2346]

Please take treatment soon

[@sibalwinderkaur7696]

@Raj Chouhan is he alright now? my baby is doing same.

[@chatluahralo1437]

Is spasm illness is curable or not?

[@yalondapickrel2058]

It can be cured with certain medication but it doesn't work for all kids. Kids that have had IS often develop other seizures at any time in their lives. Some never have seizures again. Some go on a develop normally, while others have mild to severe developmental problems. It all depends on the cause.

[@samyadav1875]

My son 15 month old his head moving down and arms up for half a second since 7 month MRI and EEG report are normal any one know what is that and what's treatment we do...

[@pramodteli2953]

Hi friends, I am from Maharashtra,India. How’s your baby now.? My 1 year daughter has same problem. What treatment you gave to your baby? Plz call 9004064413

[@nianbeast]

@@pramodteli2953 My 3 year old son has had big seizure 6 months ago. Then after he have head drop 20 to 25 times every day. What can I do...plz help...

[@cr4zym3x1c4n]

Something tells me cbd oil could help

[@Delilaah57]

i wonder how many of these babies were vaccinated.

[@emmawyatt932]

Don't give us that crap.

[@blissrock8929]

Emma Wyatt That's actually true I'm a nurse and these symptoms are caused by Shaking baby syndrome, dropping your child, tosing them on the other side of the bed when the parent doesn't know how to Soothe their child or vaccinations. The reason why this occurs in predominantly Caucasian children is because Caucasian parents are beetle headed at times when it comes to government health plans and will allow doctors who have little to no information on the vaccine they are giving your child the ok to do so. Doctors receive $100 for each vaccine they give out and the money comes from the pharmaceuticals not the patients insurance. willingly poisoning your child because you don't believe your government will harm you is sad and people like that shouldn't have children because all you going to do is ruin this childs life over your beliefs and cause long term trauma like this... vaccinating your children is neglect and shows your level of love for that child.

[@blissrock8929]

Emma Wyatt In addition pharmaceuticals are now lawfully protected and because they are protected hospitals can no longer be sued over bad vaccinations. This means you vaccinate your child at your own risk. be smart....

[@emmawyatt932]

@@blissrock8929 sorry, but no. My baby girl has myoclonic seizures due to epilepsy, which coincides with her having cerebral palsy. You going to tell me that is caused by vaccinations too?? She only started having seizures month ago at 16 months old. She hasn't been vaccinated since she was 12 months! Cut the crap and just accept that there are reasons for these things. Better to vaccinate your child than risk them dying from something they should have had an injection for!

[@eyekandy3000]

I can’t believe a nurse is spewing false information about vaccines. That’s scary. Maybe when you’re taking your Continuing Education credits do a course in current research on vaccines. Doctors do not get paid to administer them. There was a specific insurance company in one state that had a health wellness promotion program which included trying to get patients vaccinated- which is a good thing.

[@lpzgrv2010]

The most ridiculous thing is to see all these parents rubbing the kid's stomach. Do they actually think that helps?

[@Jessicamae1988]

lpzgrv2010 I don’t think anyone is dumb enough to believe it helps. It’s a comfort thing. 👌🏻

[@_kikizaman_]

Wtf are you on about? It’s a comfort thing, I thought that should be obvious.