Interview 9 - Managing digestive disorders in patients with Sjögren's syndrome

Ellen Wang, Programs Coordinator of Arthritis Consumer Experts (ACE) interviews Cristina Montoya, Registered Dietitian from Ontario, Canada, on managing digestive disorders in patients with Sjögren's syndrome.
Learn more:
Arthritis Dietitian: Recipes & other resources - www.arthritisdietitian.com/
Arthritis Consumer Experts: Diet & Nutrition - jointhealth.org/aboutarthriti...
Canada Food Guide - food-guide.canada.ca/en/

[@kimduff4116]

I also found that staying away from night shade vegetables, especially peppers, has helped not only my Sjogren’s but my Fibromyalgia too. Wonderful talk. Thank you.

[@stephanieg2152]

Excellent information! I'm glad this topic is finally getting more attention. I think gut health is essential for anyone with Sjogren's.

[@jillgreenaway9688]

I lived in Ontario, in a major centre for 30 years and for 15 of those years was ill and unable to work. I have now lived in BC for 20 years and this summer received the diagnosis of Sjogren’s Syndrome. I made the diagnosis and paid for the bloodwork- ska positive.I have been seen by many many many physicians - I am now so ill I am planning admission to Longterm care. This disease and lack of adequate healthcare have ruined my life.

[@deborahmcnaughton4394]

In same boat 61. I'm so sorry . They've did me in too. O help o acknowledgement of just how debilitating it is 😢

[@dianewristen]

THANK YOU SO MUCH

[@berengereful]

I get extremely bloated. Seems so random

[@lyndaholloway5469]

What can I do about inflamed gums and sores in my mouth. Thank you for the information in this video.

[@adelaspahiu5669]

I'm very sorry.I have the same symptoms 😢

[@kathyouthere]

Thank you for any info on this. I have Sjogrens and bowel dismotility. They wanted to do a colonoscopy but the 2nd dose made my disease flare and my face swelled. A lot of laxatives give me worse cramps and pain. I have tried a lot of different diets to try to help. Nothing seemed to help it. I stay off red meats and am careful about sweets.

[@JEBBY123IFY]

My gut has been a disaster and two gis can't seem to help at all! Giving me protonic was a bad idea! My gut doesn't work at all it just burns stabs hurts swells bleeds gerd and I'm so sick

[@brendaf3132]

Giving up wheat and milk helped me.

[@deborahmcnaughton4394]

Same here

[@fionabattrum7395]

Saliva has essential Enzymes in it ? I wonder the impact of this on digestion and quality of life

[@kimduff4116]

Where is your link?

[@brendaf3132]

I have Sjogren's and can not digest gluten.

[@Dizzigoth]

Hi Where is the important link please? It said it would be in the comments but I can't see it. I'm suffering so badly with this. My stomach is so painful. I have now got what they call Watermelon stomach. I've gone gluten and milk free which has helped with my extreme flatulence.

[@brendaf3132]

I have to be lactose and gluten free. I have started making my own yogurt and have gotten relief from the gassy stomach. The friendly bacteria in yogurt helps.

[@xanadu1jw]

Vitamin b1 helps with digestion a great deal.

[@kristineanderson4983]

Too bad the comments aren't getting any answers.

[@daryllawrence9398]

? p̲r̲o̲m̲o̲s̲m̲

[@artists_lodge]

What is your insta account called please?

[@ArthritisBroadcastNetwork]

Hi there, Cristina's Instagram account is: instagram.com/arthritisdietitian/?hl=en

[@draganabuha3928]

It is not funny doctor-we really suffer. Personally for 29 years and I don't live I just survive.

[@deborahmcnaughton4394]

Im very sick very with sĵodrens & feel like im dying literally. I can not get help. 1. Graves disease 2.Sĵodrens 3. Small Fiber POLYNEUROPATHY NEUROMUSCULAR DISEASE too. But i think it's the sĵodrens doing me in big time. 5 Dr's & they don't even want to discuss it. 0 help. I've been bedridden- bed bound over 2 months. 15 lb weight loss. After i eat my body uses all my energy to digest and i literally can not hardly move- every inch of my muscles become over whelmingly complete exhaustion. It's so hard to explain. It's horrifying. Digestion- fatigued so extreme i literally can not hold my body - head up. I hv to prop up in bed all the time. I hv to eat small amounts so it's not as extrem.

[@DanielleRadicanin]

Same here. Pretty sure it is Sjogren in addition to dysautonomia.

[@tanja9200]

Maybe the Coimbra protocol could help you. And gut bacteria, eg Mikroveda microorganisms

[@DanielleRadicanin]

Do you have gastroparesis? Common with Sjogren's and dysautonomia.