IS SHE TOO HEAVY FOR ME? | Another Q&A

[@tristanbarnes7318]

Ellie uses an eye gaze device. She didn't get it until 2 years ago at the age of 10, and she took to it almost immediately. She has so much to say after a decade of not being able to communicate fully. We are still working daily on building those skills, but if you are willing to put in the work it is totally worth it! These kiddos are in there.

[@mummyandavery]

I bet that felt amazing. This is something I wish for with all my heart xx

[@sheenasmith275]

Look at Avery’s plaits….. soooo cute. She is such a beautiful little girl. I love how you dress her and do her hair but today she looks really pretty. ❤

[@1960mjw]

Avery is such a beautiful little girl! You are such a caring and loving mom. The way you treat her like any other child and include her in all activities, etc. shows your love and devotion to her

[@kimcheek8027]

Avery is getting to be a little big girl! Avery looks very happy & healthy!!

[@karenfitzpatrick6256]

Thank you for taking the time to touch base with us! I fully understand your struggle to balance everything in your life and you are doing amazingly well! Much love to you, Avery and the rest of your family. From Vermont USA ❤️

[@candy8616]

I used to teach children with severe learning difficulties how to use assistive technology so yes it is possible foe avery to communicate. Ask for an assessment and for training

[@lindsayforney7575]

Wow I haven't watched in awhile! She has gotten bigger! She's almost to big for your lap! So cute I love her braids!

[@jeanniefox3350]

Crissie thank you for answering my question, on whether they make something that would mark it easier to carry Avery. I only wish there was something that could help you out. Avery is such a beautiful little girl, and she looked gorgeous today in her long braids! Thanks for the update, sending y’all loads of love and prayers!👋👋NC🫶🙏

[@WalkingwithGod-u6b]

She is so so precious and yes she is getting big. Her smile melts my heart. Thank you for answering a lot of questions we think about. I have often wondered how you will how you will take care of her the older and bigger she gets. Her braids are so cute,she doesn’t look Ike a baby anymore,she’s a bright and beautiful little girl. God Bless you Crissie. ❤

[@emilydale2856]

Definitely start looking into options now in regards to how big Avery is getting & being able to care for her & yourselves ❤

[@janicemichaloski5292]

At the end she was smiling Avery has a very beautiful smile ❤

[@MrsGriffin1]

Slowly catching up on your vlogs. Been so busy last few weeks. Thank you for the vlog! 😊

[@marilievanrooyen8323]

You are such a good mum 🥰💚

[@patriciaberns4254]

I see how busy you are, but would like to see more of all of you. Love your vlogs.

[@mariabottiglieri3047]

Hi chrissy, thank you for posting. Avery is growing so fast

[@janicehedley1006]

I love the Q&A's. Thank you. Love Avery's smilies.

[@smokindragon04]

Avery looks beautiful love the hair flowers ❤

[@carolemoores8070]

Averys hair looks gorgeous. Another lovely video 😍

[@rebeccaseal4182]

Hi, Avery and mummy. This is the most bright and glowing I have seen Avery. We spoke awhile back about my sons medical conditions he just had scoliosis surgery. If you ever want to chat, I am here ❤ my sons was caused by his nerve damaged he developed when age 4 is now age 15. His was growing fast within 6 months . Be carful my sons lungs was in his chest and lung function was poor. If the curve under 40 degrees then they like to brace over 40 like to do surgery my son had thoracolumbar scoliosis and was over 100 degrees. ❤❤❤

[@mummyandavery]

Thank you I appreciate it. It’s early days for Avery but I imagine we will have challenges with it as she gets bigger xx

[@candicesailsbury1355]

Enjoyed this Crissie ❤ Avery is starting to look a bit like Eli 😊 Hello 👋🏼 Zach Hello 👋🏼 Eli Love y’all bunches 💙🩷💙💙💙🩷

[@suzybausch8587]

Very interesting q and a! Thx for sharing. 😊

[@bunglejoy3645]

I would imagine you really need ceiling hoists that can run from room to another and a shower bed hoist cant nhs supply it all averys looking well

[@mummyandavery]

Yep most definitely, that will be the first thing we ask about when we have a house that can be adapted xx

[@jeanmorgan5410]

Eye gaze I highly recommend it.

[@briceliaical527]

Hi i agreed with you and do your best and she is a healthy girl and she is a wonderful girl and i like your amazing comments you are a lucky mom too ps♥️💚💙

[@lauravannevel5183]

She is just darling!

[@biddiemutter3481]

You're still 3inches taller than me. If you sitting on a chair is safer than walking down the stairs with Avery, It should be possible to get a chairlift which attaches to the stairs rather than the wall, in a rented property, (with permission) restored ones being cheaper. Obviously not for her to use without you.

[@mummyandavery]

Yes this is an option we will be discussing with OT when we move. But the ideal would be that Avery had a ground floor bedroom and bathroom xx

[@lindsayforney7575]

Coukd her Involuntary movements be turets?

[@mummyandavery]

As far as we’re aware it’s Dystonia and over extending due to her tone cx

[@miamartin479]

Hi Chrissy, how are you and Avery? so sorry this comment is so late- been so busy lately xx

[@mummyandavery]

We’re ok thank you. Not a problem at all, I know the feeling. There won’t be a vlog this week, I’ve been so scatterbrained xx

[@ThewaughCW]

I got my hoyer lift off amazon

[@Lucy-Wilkinson]

I don't know wether this would work but was thinking when you have her on your lap like this would a neck pillow help control her head ?

[@mummyandavery]

She seems to like having the ability to move her head. I’d feel bad restricting her of it xx

[@hollybennison4802]

I am so scared I have to have my gallbladder taken out as I have gallstones I hope your all ok xx

[@mummyandavery]

I hope it goes well xx

[@lesliekriel6498]

❤

[@cindiegrimm5983]

💝

[@abigailmagiera9938]

Hello

[@Hometeam683]

The blends make no difference to her because she’s not tasting anything. She won’t be able to see or feel any different so it’s really just extra work for you.

[@karenfitzpatrick6256]

On the other hand, no one but Avery knows what she can perceive or how she understands life within herself. For example, people who can't see with their eyes often have greater hearing acuity. My mom had no sense of smell, yet she could taste very subtle differences in ingredients none of the rest of us could. I'm just saying we can't know until she can communicate more clearly just what her world is like. The variety in diet her mom gives her isn't harming her in any way. And if it gives Avery some pleasurable sensations and mom a chance to feed her daughter real food, why not?

[@mummyandavery]

It makes a big difference internally even if she doesn’t notice the differences. Her enteral feed provides her with all the nutrients she needs but there are lots of foods and herbs that have properties that can be beneficial to her just like they are for us. I made a video a while ago discussing the benefits of a blended diet xx

[@mimijulene6307]

@@mummyandavery I completely agree! Wonderful benefits to using blended foods!!

[@aimeesalter9521]

Has Avery got her special bed yet ?💕💕💓💛💛💛💛

[@mummyandavery]

Not yet but things are finally moving forward. She may be getting the same bed as before xx

[@jeanmorgan5410]

I wonder if she could use an electric wheelchair to get around as she gets older

[@mummyandavery]

I hope so xx