Jack Sees a Different Life after LUXTURNA

[@QuorkEx]

Luxturna was approved in 2017. Now it's 2021 with no sign of another treatment for years to come

[@immigrantworld4899]

Yes most of ongoing clinical trials are still in phase II like AMD, RP, Achromatopsia and etc. There is still long way to come. Funding is very helpfull to boost these candidate treatments. And morever, the scientists are very busy and focusing to combat covid -19 right now.

[@triangle4404]

It was recently approved by the SFDA and this makes me so happy

[@FROSTYFIERYGAMING]

Hi

[@elisaquarantasei3813]

God bless you all. I'm waiting for my light too.

[@benmat6573]

me too since i am living with juvenile retinoschisis on one eye .i hope and pray that you find the cure soooooon

[@Blackwhiteshamu]

As a receiver of Luxturna in the United Kngdom. I'm so happy for the young guy. I wish him the best of luck for the future.

[@jonnyhost3795]

How do you get this in the UK, the NHS?

[@Blackwhiteshamu]

@@jonnyhost3795 yes sir

[@jonnyhost3795]

@@Blackwhiteshamu I have RP did you just ask your consultant?

[@Blackwhiteshamu]

@@jonnyhost3795 you have to have Ruth’s specific rpe65 gene missing but yeah just speak to your specialist

[@jonnyhost3795]

@@Blackwhiteshamu Ok thanks for that.

[@immigrantworld4899]

Color blindness gene therapy please. Continue AVA-322 and AVA-323 program. Color blindness ruined my life. I pray to God for over a decade of waiting for human trials since 2009🙏

[@Rajivrocks-Ltd.]

I might be able to get LUXTURNA soon MAYBE. but I read about the possible side effects and they sound pretty bad and the possibility of blindness if it does go wrong. I'm going to talk to my doctor about it cuz if I would be able to get this that would be a life changing procedure for me.

[@manzoormalik1821]

how much cost

[@amitchaurasia1874]

its a question for both. will this gene therapy still work after covid infection or vaccination? i m asking because after infection body develops some immunity against viruses and covid vaccines are to stop virus infection and hence viruses are not that effective. gene therapy is also based on viruses. please provide some knowledge.

[@89loal68]

It's a different type of virus

[@immigrantworld4899]

It used lentivirus which has no imun response so it’s harmless into your body

[@amitchaurasia1874]

@@immigrantworld4899 Thanks but what i wanted to know is will it be still that effective?

[@immigrantworld4899]

@@amitchaurasia1874 I think yes it will. The modified virus (AAV virus) will directly hijack the faulty gene in your retina, RPE65 and produce the protein of interest to make the normal RPE65.

[@immigrantworld4899]

@@amitchaurasia1874 the virus is only the vehicle to bring the normal protein to make the normal gene/cell

[@zahedah80]

Was it covered by insurance?

[@miui854]

Cost of treatment

[@varmamadanca5015]

Nearly million dollars

[@loginidgol2849]

I hope i believe