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Daniels Story Part Two
In Daniel's later years, we finally got Medicaid benefits around 2007 and received nursing care help for the first time. Since Daniel was 7 the following things (among many others) come to mind. Daniel could no longer eat by mouth and had to be 100% g tube fed because he no longer protected his swallow; Daniel had stomach surgery for a Nissen Fundoplication due to severe reflux; Daniel had a second hip osteotomy surgery left side; Daniel had a femur fracture right leg; Daniel had an onset of progressive scoloiosis' Daniel needed to begin bone strengthening therapies because his bones were demineralized: He had a complete spinal fusion in 2012. He also had another surgery not mentioned here, for the Baclofen pump in June 2015. There were many pnumonias (before the fusion) and several illness related hospitilizations. It's been quite a journey. It was especially difficult because Daniel had a terrible case of pancreatits after his spinal fusion, and stayed in the hospital for 37 days (all during the days following the shooting in Sandy Hook)
I'm so glad that you have come to watch. Thank you.
SARAH'S BIRTHDAY 11/20/1995 SHE IS TURNING 20!!!!
DANIELS BIRTHDAY 11/22/1997 HE IS TURNING 18!!!!!
THOMAS'S BIRTHDAY 02/25/2001 HE IS TURNING 15!!!
JOHNS BIRTHDAY 11/1/1966
JULIE'S BIRTHDAY 07/27/1966
We LOVE mail: Julie Hasselberger
PO BOX 3611
Newtown, CT 06470
About my channel.......
My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. The deformity happened due to a virus called CMV, or cytomegalovirus. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 17 years. We are a family of 5 from Sandy Hook, CT and this is our journey.
Every day is full of new things that we don’t expect. I am Julie, Daniel’s Mom. I left my full time career as an HR Director 11 years ago because Daniel needed me. The struggle, the sacrifices, the sibling love, and miracle after miracle.
Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc.
Julie Hasselberger
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Julie Hasselberger
PO Box 3611
Newtown, CT 06470
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Please watch: "HANGING BEACHBALL"
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