Keep Memory Alive - Frontotemporal Dementias

Cleveland Clinic Lou Ruvo Center for Brain Health provides state-of-the-art care for patients with Alzheimer’s disease, Parkinson’s disease, multiple sclerosis and related conditions. The center provides "patients first" care, support for caregivers and family members, and clinical trials to advance new therapies for neurological disorders. The Lou Ruvo Center for Brain Health offers a multidisciplinary patient-focused approach to diagnosis and treatment, offering patients a complete continuum of care and infusing education and research into all that it does. The facility, designed by Frank Gehry, houses a diagnostic and care center, MRI and PET scans, physical therapy, clinical trials suite, and the Keep Memory Alive Event Center. www.clevelandclinic.org/brainhealth
Over the course of a disease, patients and families strive to find a sense of balance and maintain their quality of life. To help, we offer education programs and social services designed to increase knowledge, coping skills and a sense of well-being. A full calendar of no-cost social services programming is online at www.keepmemoryalive.org/socialservices
We are located in Las Vegas, Nevada. Please contact us:
For information on our free social services: 702.483.6055 or [e-mail].
To make a medical appointment: 702.483.6000
To participate in a clinical trial: 855.LOU.RUVO (855.568.7886) or [e-mail]
To make a donation: 702.263.9797

[@cynthiaarons9373]

I have watched a few presentations on frontotemporal dementia and they are too difficult to digest because of too much medical terminologies. Your presentation was excellent; in-depth but easy to understand. Thank you!

[@lucybrenner3395]

My son was recently diagnosed with Frontotemporal lobal dementia. This is very informative and I appreciate any information I can find. He apparently becomes nitpicky about something and will become very aggressive, then out of the blue will not find anything wrong at all. He had delayed speech until he was 5 to 6 yrs. old. His speech is declining more. His speech was never perfect, but he was easily understood. The family is just bewildered at this news and trying to understand the possibilities ahead.

[@violet9853]

I'm sorry. Thinking of you and sending prayers.

[@violet9853]

It helps to fill in words for them. They appreciate it.

[@mrhaci7747]

He had delayed speech until he was 5 to 6 years old???

[@AbsolutumDominiom]

Well done easy to understand. Thank you

[@scottweatherman3266]

Had I have known you were in Las Vegas, I would not bother tuning in.

[@maricedixion3357]

This is scary for older people and younger people I saw this week when bill whitaker was talking about dementia on 60 minutes and now they don't have anything or a cure to stop the disease

[@starsapphirelee5714]

Really scary that there's no treatment!!!

[@jackson2009ify]

Still today no treatment

[@roseliekane1060]

Approx 9 minutes into the clip, several tests have been performed and varying diagnoses have been presented over a relatively short period of time. Several treatments with various medications have been tried. What strikes me is that this "process of discovery" to find what is wrong with the patient feels more like people are making "educated guesses" rather than actually doing a proper diagnosis. All those meds are, in fact, impacting the man's brain / brain chemistry and they have other side effects. It is early in the lecture and video....however, all that "guesswork" dose not give me a sense of confidence in the diagnostic abilities on display. It's worrisome.

[@bluefluke7585]

you should see how many psych meds i take for my guessed at, let's see if this works, illness.

[@kinkle_Z]

What happens when you restrict carbs to

[@femckay]

Not a disorder, an atrophy of the brain. There is no way to reverse that. My husband died of FTD 1 1/2 years ago. He was 81.

[@trudiewells9446]

I would like to hear more about dietary support. Are there foods that stress this disease or aid in attaining optimal brain function?

[@sheriarichey9965]

I think I have this.,there are so many kinds im getting tested soon. I know something is wrong and has been for about 5 years. I'm too young to have 'Alzheimers'....the frustration is immense with this trying to communicate etc

[@MBT372]

Did you get tested?

[@brittanyp.schaum9507]

34:10 Well actually, she does have some idea... She didn't just run out of room, she stopped after 60 (seconds),

[@bluefluke7585]

BTW. anyone who may be given these tests, as have i, many times, here's basically what to expect in the verbal mini-exam: they will say, here are 3 items, repeat them after me (not always the same, but very often similar to desk, window, apple, then the patient is to repeat them back later in the test; spell the word WORLD, now spell it backwards; my favorite, though, is count backwards from 100 by 7's. if you ask me, those questions only show how smart you are, but what do i know?

[@darlenelawson1255]

The counting backwards from 100 by 7 is difficult. Especially if you are tired or on certain meds.

[@violet9853]

@@darlenelawson1255 or if you never "got" math...

[@NinoNlkkl]

Doctors are clueless.

[@violet9853]

They know a lot more than us, they have it deal with it all the time.