"Kickass Healthy LADA" - An eye-opening look at a misunderstood diabetes diagnosis

[@robertjones8598]

I was misdiagnosed for over a year. I presented as an active, fit 46 YO with an a1c of 6.9. I could still pass a fasting glucose test at the time, but was diagnosed Type 2 and put on Metformin. That helped but soon the numbers started rising again even when I went to max dose. I think the next line was Juniva and then Victroza(?), both T2 drugs, with similar effects-short term improvement but soon back to rising BG, a1c. At that point I dug into the medical journals and learned about LADA. The next endo appt I mentioned it and said I wanted the antibody test. The endo doc wasn’t too keen on it, but I insisted. When I returned on follow up a NP came in with the report which was positive for antibodies and immediate Type 1 diagnosis. That endo never showed his face and I never went there again. I was actually relieved and was ready to go to insulin. I was on Dexcom and Omnipod after a short time of finger sticks and MDI. With todays therapies and technologies I would prefer to be T1 than T2. I did have the insulin honeymoon period where management was easier but it’s not bad now-occasional sweaty lows if I take my off off the ball. I tell people the difference between me and a child diagnosed with T1 is that the child will almost be diagnosed in hospital with DKA within a week or so of the autoimmune attack where LADA is much more gradual but still an autoimmune condition. Coincidentally I became acquainted with two men from my tennis club, one around 30 and the other in his 40’s who imo were going through the same thing-diagnosed with T2 but I was confident were LADA. Both fit, not typical Type 2 and their stories were similar to mine. I did my best to counsel them on getting the antibody test. For some reason both were reluctant to accept they may be T1 (which I prefer to T2 and explained why) but I would bet both of them are on insulin now-I left that club 5 years ago so don’t know. Lastly, I was seeing an endo not a GP. My BMI was 22 and I was an active 46 YO lifelong tennis player on the court 3-4 x week. I had told him that my grandmother was T1, diagnosed in 1927 at age 26. She had two siblings that died in childhood from T1 prior to insulin being invented. Despite all of this and a specialist in endocrinology didn’t even consider LADA or running a simple antibody test until I forced it. Shameful for a specialist to be that out of touch and ignorant but I think it’s pretty common.

[@politicsreligionshow]

Medical professionals abandoning their common sense and decades of ID evidence and training during the 2020 virus caused me to lose all respect and faith in them. In addition, to what you state about how more updated and knowledgeable patients present about latest research than they are. They like to put down info from the internet but go to an ER and what are they doing Google searching things in PubMed and their Pharma protocols just like we patients. How do I a patient now know to ask for these advanced tests like c peptide and my Internist and Gynecologist (who diagnosed me with prediabetes) have not suggested it. The gag is it was doctors and others ON THE INTERNET who clued me in to these test as I’m not feeling well and I have to fast 24 72 hours almost weekly if I screw up and eat too many carbs to get my BS in the 70s to low 90s. It was NOT these arrogant, lazy, antiquated thinking, sheepish, slaves to BigPharma MDs. Saw 3 family members die (one I now suspect from complications of undiagnosed LADA. My mom had an amputation after years of just being treated for the results of type two. She got CKD and was not put in metformin cause her kidneys were too bad. I never knew she had this until I was called home to be caregiver and looked in her chart. By this time dialysis was being recommended. This was her fault ultimately due to life style choices. But in her 40s and 50s this could have been prevented had a doctor told her this

[@amberrobinson883]

Wow I’m so glad I found this video. She hit a lot of my experience and feelings during my diagnosis journey. I’m recently diagnosed as type 1 (lada). It’s been rough. I’m looking forward to learning more. Thanks for this!

[@johnwalterhanna]

I just got diagnosed. Misdiagnosed for over a decade.

[@zhenshi4296]

Thanks for the video. I was misdiagnosed for three years.I just got LADA last August

[@stevebritt7369]

Misdiagnosed for 5 years

[@yennyjen5742]

Would it be possible to be negative for islet cell antibodies and gad-65 but still develop lada later on? My dr told me I don’t for for type2, I was tested for type 1 and kada but Dr said results came negative… I was tested for mody too and negative.. I am lost. Now we are going back to recheck for lada again 😢

[@jgriffin282]

How is type 1.5 diabetes diagnosed?

[@yennyjen5742]

Does metformin works for lada?

[@bnuh1987]

It can help your blood sugar not increase as much when you eat (not meant for when you wanna eat foods high in carbs/sugars. Even though I know many w/ diabetes who do.) It made me sick and the dr's wont admit that long term use can cause kidney failure. My dr tried to push me to continue to take it saying that I'll get used to the "uncomfortable" side effects (chronic fatigue and digestive issues). I refused. Also it depletes your B12.

[@norrisallison1725]

'Promosm'