Living with Autosomal Dominant Polycystic Kidney Disease (ADPKD)

Do you know the facts about autosomal dominant polycystic kidney disease (ADPKD)? What about the signs and symptoms? Join us for this special NKF Live where we are answering your questions.
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[@hellopaji89]

I recently learned to have ADPKD during a preventive health checkup. This video was very helpful in getting over some of the stress and anxiety and to Identify the right questions to ask as I find out a nephro to work with. Look forward to more info and I pray that there’s a breakthrough in medical science to treat this genetic disorder.

[@patriciapopoola6501]

I wish I can share my results. I started visiting the nephrologist since 2020 before COVID. No treatments, no education, etc. I just take my BP drugs and I am really concerned about getting help. This video has been helpful though. I would be grateful to know preventive measures to stop the cysts from growing bigger

[@Sheshinesherlight]

I’ve learned that some of the Doctors don’t really care. You have to educate yourself. What I do is watch videos like this to learn more.

[@werollins]

Great work but the sound is problematic, especially with hearing impaired ears. Maybe you can remix the audio and equalize the voices. Thank You

[@Riley_bacon]

Allah give you health dear.

[@kellyclover5953]

One thing you did not mention is the 7% of cases which are not PKD1 or PKD2 but another bad gene. I have polycystic kidney disease caused by a bad IFT 140 gene. It's known to cause large renal cysts but has a smaller impact on overall kidney function than PKD1 or PKD2.

[@KHiimzaii23]

Hi there! I also have this case too. My cysts are relatively big (can be counted as well). I was at late 20s when I found out and was devastated. Function-wise my kidney is still well, creatinine is in good level, no high blood pressure and whatnot. Tho I do have that MVP (Mitral Valve Prolapse - floppy valve). Still in my late 20's, I'm also careful with my diet.

[@candacejackson6367]

I have one kidney due to cancer, but it's stable. My son wants me on a kidney waiting list and my daughter-in-law is willing to donate one of hers. Is this possible. 19:28 19:28

[@pollogmoody5746]

Reversed with Carnivore!