Kienbock's Disease: My PRC & Recovery (Motivational!)

*If you don’t have Kienbock’s Disease, but want to be inspired, watch the last 5 minutes*
Kienbock's Disease & Proximal Row Carpectomy
Thank you for clicking on and watching this video. We hope that it gives you some hope and inspiration regardless of whether you're struggling with Kienbock's or not.
I recommend to anyone with Kienbock's to do a lot of research and find a surgeon you have full confidence in. Work hard in physical therapy and don't be afraid when your therapist is pushing you. It will all pay off.
**If you want to contact me on Instagram to chat about Kienbock’s use @life.as.a.buckholz, I don’t use the @hello.fit.jess anymore**
Websites:
Allen R. Groebs, MD
intermountainhealthcare.org/f...
Aaron Harward, CPT
fit-pt.com/our_staff/aaron-ha...
Kienbock's Disease
www.assh.org/handcare/hand-arm...
#kienbocksdisease #proximalrowcarpectomy #keinbocks #wristsurgery

[@TarenDonneaud]

My hand surgeon acted so shocked when I told him my PCP said I just needed to lose weight and my wrist pain would go away. 8 years later and after losing over 200lbs I finally got a diagnosis of stage 4 kienbock's disease. I am going to meet with him on the 14th to schedule my PRC. My MRI was today to make sure I have enough cartilage for it to be successful.

[@haroldvietti2233]

Thank you for telling your story. I am 74 and was diagnosed with Kienbocks Disease a week ago. I had an MRI two days ago and seeing my hand doctor next week. You have given me hope.

[@hollyproulx8886]

Thank you.. I met with my surgeon yesterday and was scare about what he said. I lift weights and want to keep doing it. I'm 59. Thank you for sharing

[@katmamajams]

This is great! I'm 2 months out of PRC (not Kienbocks but arthritis) and doing well. I've been doing firewood, hauling rocks, and playing piano, but I've got a ways to go yet with grip strength and flexibility. You are inspiring. Thank you for sharing!

[@Matthew-bf8lq]

I’m 16 jus got diagnosed with this been looking for videos every where and found this

[@bettyswollocks9178]

Fantastic video, after 11 months I finally got a proper diagnosis this morning. I'm a 29 year old bloke and unfortunately my job as a stonemason involves lots of heavy, hands on work so I'm very concerned about the future. My hospital spent ages trying to get to the route of the pain and swelling, they looked into a break, sprain, arthritis and several other causes, I wish we found out the cause earlier so we could have minimalised the damage, unfortunately my lunate is completely knackered! This video has provided far more information and hope for the future than the doctors did!

[@jessicabuckholz6368]

I’m glad that this video was informational to you Betty! How has your journey been? We’re you able to go back to stone mason work?

[@sheldonpineda8917]

Thank you ! I really needed this type of reassurance !!!!!!!!!!!!!

[@Pablo-ht3ug]

Thank you so much for this video. I have been suffering from this disease for a few years now, I was just afraid of the outcome of surgery. Thanks to your video I'm taking the step further in my journey to recovery.

[@matthewdethrow]

Just got diagnosed today, thanks for sharing this🙏

[@anutekanawitathunderthepol8876]

Thank you for this video 😊

[@j.p.7708]

Before watching the video…. Terrified like an abandoned dog….. after the video….. SUPERMAN. Thank you for an awesome video 🇨🇦👍

[@pabloreyes1755]

Thanks a lot for sharing your story. My doctor has suggested PRC for my right wrist diagnosed with Kienböck’s disease. And your story gives me hope. Thanks.

[@JohnathanSadler-ks5bk]

How did it go? I have to find a surgery option asap. Dealing w this in right wrist

[@kishanabear]

Thank you so much!!!

[@frankrambo963]

it been 8-9monts from my surgery, i pain came back from 4days, hope its gonna leave soon ! hope u recover faster then me!

[@damiancorr2022]

Thanks For sharing your experience and providing valuable information for everyone on this rare disease. I was diagnosed in early stages 3 days ago. I was in shock at the news and left my specialist hastily with treatment going forward of just wear a splint and come back when it gets worse. The news was devestating. Since researching what Kienbock is....which i would also like to thank you for providing. I have booked to go back to my specialist in a couple of weeks where i want to discuss the potential for VBG as this really seems like my best option right now if my lunate isn't dead yet! Good luck and again, thanks for taking the time to share it really helped me.

[@lyndadenford6292]

Damian Corr My hubby has keinbocks and even though lunate is completely dead his surgeon said he can bring it back to life by scooping out some of the dead bone, then putting a graft from the bone leading to the wrist. He will make sure graft has its own blood supply. Then he will give the lunate a better blood supply and that’s the tricky bit. He said the surgery takes all day. Long waiting list on nhs, but hopefully after Xmas he may get the surgery. He wears a splint and is in quite a bit of pain. It would help him to talk to you so you can share experiences, he’s on Facebook Kevin Denford. It’s in his right wrist, he is right handed. Hope you don’t mind me asking this but as it’s so rare I think shared experiences is vital just at least to check you are both getting the right care. Good luck.

[@lyndadenford6292]

We live in Bristol UK. His fb pic he is holding our small black dog.

[@jessicabuckholz6368]

How has your journey been Damian? Sorry, I never check these comments....

[@terrencehall5952]

Very informative thank you.

[@danm2422]

Thanks for the video, was just diagnosed with this had a mri today waiting on word from the surgeon, this helps me get an idea of whats gunna happen thanks!

[@lifeasabuckholz6875]

dan magda you’re welcome! Glad it could help you. Hopefully you caught it early and have a lot of options.

[@danm2422]

@@lifeasabuckholz6875 thanks im hoping its not too far gone but it's been hurting for a while so idk lol

[@carlywheelhouse68]

Thank you! I have Kienbock’s and am scheduled for radial shortening next week, I’m very young so it was scary for me to hear I had a disease with very little information on surgery and recovery. I’m glad you made this video and it’s made me less nervous.

[@husan_sumal07]

How’s your wrist now and have you experienced any pain now ?

[@carlywheelhouse68]

@@husan_sumal07 My wrist is great! After surgery I did a bit of physical therapy to build the strength back up and in that time I noticed I had less pain than I had before. Within six months, all the aching pain I had from before surgery had disappeared entirely and I haven’t had to worry about it since. I will say, because there’s a metal plate holding my radius back together after shortening, I have occasional trouble bearing heavy weight on that arm, but it’s not a problem at all in my daily life (and this weakness is in a different place entirely from my original pain). Overall I’m happy with how it all went and I only remember I had the surgery when people ask about the cool scar on my forearm :)

[@husan_sumal07]

@@carlywheelhouse68 thats great brother I also undergone this surgery about 1.5 years back and from the past week i am using the forearm hand gripper to gain some grip and strength but the sound of bone crackling made me afraid. Can you tell what type of therapy or exercises you done and also can you lift heavy weight now ?

[@jessicabuckholz6368]

I’m inspiring the hell out of myself!

[@mattwilansky5748]

Great video. I’m two weeks out from PRC and, like you, I am a little wigged out by my alien hand. It’s such an odd feeling; hard to imagine I’ll ever get my strength back, but I’m still quite swollen. Appreciate your perspective.

[@arunps7719]

How do you feel now sir? I'm in the same situation you were even you wrote this comment.

[@kelseyevans7806]

Thank you so much for sharing this! I just got told I may have this disease and there is nothing that can be done and it will slowly deteriorate over time and just get worse and worse! Would love to know how you are doing now in 2023?

[@cbomb25]

I may have kienbocks-disease. I'm not sure on the stage as my specialist wants me to come back in 3 months after resting it with a splint and medication. It's pretty scary. I've had an issue with this wrist for over 7 years, I thought my Dr would diagnose me with carpal tunnel or RSI or even possibly tell me there's nothing wronv with it, not this possibility. Thank you for sharing your story, it's good to know it's possible to mend back to normal.

[@harjeemann]

I am also suffering from the same, today get operated to see what options are there, one of which is PRC, scared of moving out my bones, this video helps to understand better.. thanks

[@thefutureh]

How is your range of motion ?

[@grominwithrob1339]

I was diagnosed with Kienböck's disease. I still have all my strength and no pain pressing any where on my wrist. I have reduced range of motion and I feel pressure around the wrist. They told me I was facing PRC. My x-rays and MRI show normal bones with a small spur on my lunate. The Surgeon suspects a fracture although I had not experienced any trama. He has ordered a CT scan before they do anything. I am terrified because I am a father of 2 and dream of playing basketball with my children.

[@jessicabuckholz6368]

Sorry to just be getting back to you! For me the PRC healed my pain and range of motion issues SO much. Obviously the outcome is different for everyone, and my PRC was on my non dominant hand, but I would definitely say I am now on a level where I could play recreational basketball, sometimes I feel like my PRC hand is better than my other.

[@trevorscott3275]

I'm actually at 90% ROM too!!

[@thefutureh]

What was your surgery ?

[@tommorton647]

❤👏👏👏👏👏 I hope I have the same success story

[@vasscownage]

I have had my surgery a little over 6 months ago. Radius shortening i was in stage 2. Im still having pain in my wrist (close to the feeling before the surgery) even tho my bone has turned more white after the surgery. How long did it take for you to be out of pain after surgery? Love to hear from you and i love the motivational part, i really want to go to the gym again and lift weights!

[@jessicabuckholz6368]

Sorry I forget to check these comments! How are you doing now?

[@rogerlosiniecki6446]

I'm recovering now , 25 days after prc because of kienbocks your video is extremely helpful thank you for doing this. PS I'm a 48 year old male and my dominant hand , right hand was done. If possible could you put a picture of the brace you were in towards the end. I run a machine ( joy sticks) and really need to get back to work.

[@jessicabuckholz6368]

Hi Roger! I’m glad this video was helpful for you! How are you doing now?

[@rodolfolinares2532]

Hello Roger i do the same work you do , and i have the same desease but im afraid to do this surgery , can you tell me how is your hand and how long it take to go back to work please ? I apréciate this video as well

[@rogerlosiniecki6446]

@@rodolfolinares2532 Hello. I was off for a month. Dr. Was going to try longer but I showed him a video of me using the joy sticks . So he gave the OK. Big thing to watch is of course getting in and out of the machine. I did get pretty good using my left hand to. I even made a way to mount chainsaws down on my picnic table so I could start them one handed ( I work on them on the side) .

[@rodolfolinares2532]

@@rogerlosiniecki6446 so how long is bien since the surgery , and how is your Wrist now, can you lift and do things normal.?

[@rogerlosiniecki6446]

Ps. Now after the surgery I notice I can't set a full glass down on the table without bending my knees , and can't Crack the throttle wide open on motorcycles 🙂🙂 . Therapy helped it was many months though before could just lift 5 gallon pails of oil into the back of my truck.

[@gnnauss]

Thank you so much for sharing your journey. I recently learned that I have kienbock disease, and that there are more options to help me fix my wrist.. The surgeon I saw only spoke of fusing my bones and my range of motion would be around 20 to 30% . I'm terrified, my job is all hands on i take take blood and I'm also an artist who loves yoga and other physical activities. This has come to a hault, I have had been limited to what I can do. Which is anything that doesn't involve my hands. I don't have a surgery date yet, but was told to stand by. My journey with kienbock started a long time ago and no one caught on as to what was happening until the lunate bone was not only dead but had started to deteriorate. I only found out because I broke my wrist bracing myself from a seated position. I'm wondering if replacing my bone with something else would help because like I said before I was only offered a fusion of my bones. I don't know if we even have any Dr's that can perform such a surgery where I live? What was your lunate bone replaced with? Did they use a piece of your knee or something else? Thanks again for the education and the hope🙂.

[@mazzu5119]

Hi! i did a surgery 2 months ago, and i removed my plaster 2 weeks ago. The first surgeon said the exact same thing of yours because my lunate was already completely broken, i contacted another surgeon that offered me another way ( that is quite rare, it has been made only 5 more times in the history, so it was pretty scary ahah). they basically replaced the lunate with a 3d printed copy of my old one in pyrocarbon. if i was you, i would see at least another surgeon, more views are always better than one :). good luck and have a good day :)

[@gigagege]

hello, thank you for your video I too had surgery for Kienbock's disease. do you take food or other supplements to relieve pain or prevent it? thank you

[@fernandoking8236]

I thought I just had a broken wrist kept working Etc. But it kept getting worse. I took the mri and surgery im still on disability and it’s painful and terrible. Prepare before you do the surgery financially. Depending on how you recover and adapt it’s going to be really hard if you don’t have help. If you have time they will open up your hand and take a prince of the knee bone out and replace it. It’s extremely painful im a month in after oct7 2022 it’s currently nov 8 2022 and it’s still difficult to walk some what but I’m getting better. If it’s to late that your hand has to much damage it is to late and the must fuse your hand together with screws.

[@JohnathanSadler-ks5bk]

Thanks for the video. I’m super sad about my situation. Keinbocks in right wrist. I’m pretty much lost and not sure which doctors to see. Not much info out there. Anyone that sees this know any docs in Los Angeles that have had success with keinbocks? Gotta be someone out there… I have been active my entire life it’s hard to comprehend I am unable to do the things I love moving forward. It’s unreal and depressing. Been dealing w this for just over a year now. Cortisone Injections have helped but it’s just a cover up I know. Once again, If anyone can provide me with doctors names that have success or info with this disease it would be much appreciated. Thanks

[@Christfollower48]

Happy for you, I have AVN in scaphoid, was shocked when he said remove scaphoid, dont remember if 4 corner fusion or PRC was the procedure, my pain isnt that bad except when I am dumb enough to play tennis which I love, do recover pretty quick though.It really sucks as I am a tennis addict, never had any trauma, had 2 cortisone shots from a scapholunate ligament tear, had multiple x rays to make sure I had no fracture and last one said AVN in scaphoid, no fracture, which is hard to find on web as AVN is almost always from fracture causing bad blood supply to the bone. Like I am sure you felt this seems never ending! Being in dominant hand is even worse. Most of the time I have texted 4 corner fusion and read about PRC being done and rehab isnt very good, most are not satisfied, feel worse, was your lunate removed? If so maybe a easier PRC surgery than removing scaphoid, thanks for sharing, sorry had to vent my frustrations!

[@marissaklingseis1082]

Same I have AVN of the scaphoid. Have you received any treatments for it?

[@kyststudio-epicartadventure]

The pain without the nerve block is excruciating but with it is 70% of that. Either way it sucks for a while but that doesn’t last for weeks and weeks.

[@telmobruginski]

Também tenho Kienbock... Como.esta se sentido hoje? Tudo normal? Deus te abençoe

[@Luisfigueroa999]

I just got a pcr 2 weeks ago how swollen did your hand get after?

[@bryanarango208]

What type of anesthesia did they put you in

[@bryanarango208]

What type of anesthesia did they put you in?

[@varsharaiput3670]

Can it cure without surgery

[@KatzWorldOfficial]

I was 14 when I was diagnosed I was so far gone when they find out they said nothing could be done. It’s on my left hand and now I have one lower arm bone cause they fused together so lol

[@SirShoddrick]

I’ve got a busted scaphoid with a screw through it already. I’m Military, and have to be able to do push-ups. Can you do push-ups after a PRC?

[@jessicabuckholz6368]

I *can do push-ups. It is possible, but I usually try to modify up on dumbbells or my knuckles to not put too much stress on my wrist because I want it to last as long as possible.

[@SirShoddrick]

Jessica Buckholz yea, I’m afraid I’m going to have to adapt to knuckle push ups. It is going to take some getting used to...

[@prakash3295]

Thnx for this.....im prakash frm india ,and its been 8+ months that im hving pain frm acute to chronic i guess,as per advised by dr. I take mri and its shows im in 2 stage,then aftrwards he said that i shud think abut surgery but i refused and been since on homeopathy medicine but its not helpful and im very afraid of surgery and guess what im a medical student. So my qst to u is that i dont hv that courage to say yes to surgery. I would love to know ur thoughts on my condition.plz reply

[@sanakouser7955]

I am also suffering from kienbock's disease

[@arunps7719]

Did you go with the surgery

[@CJ-ki1wb]

I am 15 it's last stage doctor surgery after 18

[@zpschool601]

I'm 30 yrs old, I am also suffering from kienbocks diseas.& Dr said to me that you have to do surgery for this.is this type of surgery is useful or not

[@sanakouser7955]

Same here

[@kenzgaudet3907]

Please how do I contact u?

[@suhelpatel3074]

Pls hive me some info I am suffering from same disease

[@buffy611]

Ok but how are you now?

[@Yashsingh_14]

Please share in hindi

[@AliA-fn1lb]

Just sent you a DM on Instagram!