Love seeing hope for our kids! We need to continue with ongoing research because there are many kids in the approved age range like my son that have been disqualified for this treatment due to pre-existing antibodies. Research needs to continue so we may overcome these obstacles with using AAV gene therapies. We also need to support more research so ALL kids with DMD have the opportunity to change the natural history of this horrible disease. Ongoing research + financial support = CURE!
@balvantrajput64678 ай бұрын
So Many DMD patient are also in an india, kindly support them for treatment
@teresagrant69959 ай бұрын
I have three boys with duchennes and this is so hopeful!
@bench-clearingbrawl77377 ай бұрын
God bless their little souls 🙏🏽
@paroshmahmud61512 ай бұрын
Did you get any treatment?
@blessedservantАй бұрын
FDA approved it for older boys.
@michaelb418 ай бұрын
God Bless you Terry Campbell. Died 1962 age 12 Muscular Dystrophy.
@samsep02 ай бұрын
I'm happy for him. Hope all patients can get this.
@SalvadorSonOfZedicus19 күн бұрын
as a person with the same dystrophy, this gives me hope.
@briv18109 ай бұрын
I hope its for kids older then 5
@asasjowel.78282 ай бұрын
From Philippines.. My kid diagnosed DMD at the age of 4 He is now 13 yrs old. I was hoping to find cure to my kid and to all other patient who suffered this kind of disease at the very young age.
@TapanKumarSikder4 ай бұрын
MY Son is Suffering from DMD from 3 years.
@jaysimoes37054 ай бұрын
Well...."you are so lucky to live here"...If you are in Europe you do not have to battle anything to get things covered. Everybody is covered in every nation. So if this treatment is accepted in Europe, the fight about the price is with the government. Then the insurance must give it to your kid. No extra costs, nothing. Suppose you have a kid and you cannot get it covered for that kid, how lucky are you? The US has loads of money, but seems to find it very difficult to give everyone a fair share.
@110311DONTWANTCHANNE2 ай бұрын
3.2 million for the therapy....or a lot more on life time care....hmmm....i could see private insurance balking as they don't pay for the nursing care, but there should be special medicaid waivers for things like this.
@rowenadavid39789 ай бұрын
Thank you Jesus🙏🙏🙏
@candist6 ай бұрын
Not say thank you Jesus say thanks God better God is the best God created Jesus
@jaysimoes37054 ай бұрын
@@candist And he created Duchenne. That is just wonderful isn't it...
@CarolBallard-ve3em4 ай бұрын
There has been me and my two brothers with Duchenne muscular dystrophy but unfortunately, my two brothers had passed away from this disease
@CarolBallard-ve3em4 ай бұрын
I believe I’m still here Because of God But I don’t care what anybody thinks about my belief because I know in my heart God is why am here.
@bhavikpatel6621Ай бұрын
I'm suffering from DMD from 10 years 😢😢
@GrandmaChickens8 ай бұрын
Fingers crossed!
@asrafuljoardar28694 ай бұрын
hi I'm asraful From Bangladesh My baby age 8. Attack from DMD dieses.I want to get my son treated,How can we treat it? Where is your hospital?
@LeanneCaster-np8xi7 ай бұрын
Would like to know if it would work for adults with OPMD?
@user-uw4ft4kn1q6 ай бұрын
❤❤From Nepal My Son 7 years Old He Also DMD Pesent😢😢
@CarolBallard-ve3em4 ай бұрын
Yes, I agree. All children deserve a chance. But what about us the older people With it You guys don’t think about us I have struggled a long. Journey. In this life. With lots of opticals. What about me and other people? Do we just not matter Because we are adults I guess we don’t
@rajarani4796 ай бұрын
my son is 9 years old he is Muscular dystrophy patient
@manishojha78569 ай бұрын
Hope for the best 👍
@sahiljindal7274Ай бұрын
Good now lgmd2a treatement
@snehakilifelineshreyansh2942 ай бұрын
My son 9years boy .dmd problem
@hrorwaan19434 ай бұрын
I have muscle dystrophy put I don’t have money to pay bills 😢😢
@jigneshvkatrodiya17059 ай бұрын
Good news
@kaluram5385 ай бұрын
From india my baby 14 years LGMD type 2e pesant
@majidvlogs57114 ай бұрын
Can you halep me same problem
@Rashvanth20217 ай бұрын
My son age 3 he affect DMD (14 exon 30- 43 is duplicate or deletion in genetic report ) which treatment is suitable for my son please ....share me. I am in India (Tamil Nadu chengalpattu) in the surrounding there is no treatment to say and only issue striod tablets my baby used this striod tablet now so please...... Share me for suitable treatment for my baby genetic report
@jaysimoes37054 ай бұрын
I am not a doctor but if it is exon 30-43 skipped I think he could use Elevidys. Check it out, it is quite easy to find out. I do not know about your healthcare system though. The costs are 3,2 million dollars. Pretty absurd and while I do not know the details, I do know how BigPharma works in general.
@balachandarsenthupandi3 ай бұрын
போன் number plz share
@balachandarsenthupandi3 ай бұрын
Phone number please
@arshadmalikarshi85138 ай бұрын
My2 son muscular dystrophy pashint in need help
@Serenoj696 ай бұрын
America. Richest in the wotld. Best nedication. Awful healthcare, no compassion. In Europe this will be covered and will cost you zero euro. Society, we all togethet, cover eachother.
@therightgame32 ай бұрын
But America is the country where most of the research is happening.. So there is something that is right. I hope every child and adult going through this gets the medication..
@aimatayyab19606 ай бұрын
Is it pissible to treat the DMD Patiebt at the of 15 years?