life update ❤️ endoscopy - nausea - mystery illness

[@ColourwithClaire]

I just want to say a massive thank you to those who have taken the time to respond to this video and share words of support and empathy- it means so much to me because my “real life” circle is VERY small, and as I said in the video, not all are understanding… I’m also really sorry to hear about the struggles some of you have been through with your health. You have a friend in me always. ❤️

[@studioandromedawn4838]

Thank you, Claire. You are my fave colourist, asides from obviously a stellar person(imho). My big sis who lives in the UK as well has told me the same about the lack of empathy with a lot of the health care personnel there. Thank you for being so open with us. I have been thinking of you, and hope that you are feeling better….if not, hang in there, Claire. I am sending you a lot of positive energy and thoughts. ❤️

[@aliciabushman7806]

Hi Sweet Claire. I am a Rn living in the USA. I have to first ask you to discuss what I am about to tell you with your doctor. You did not mention having a CAT scan. You symptoms could be caused by a structural problem. The scan is not invasive. It should be ordered with contrast. As long as you are not allergic to Iodine. Also you may have Celiac disease. Not as scary as it sounds. It is an intolerance for gluten. A substance in wheat products. If that is the issue there a good tasting substitute foods that you can easily buy at health food stores and supermarkets. Have you been tested for food allergies? This is something else to look into. Also a blood test for Hepatitis C. You might have gotten this while you were traveling. I personally suspect that you have a food born illness because of when your symptoms began. Try to get an appointment with a gastroenterology doctor. A specialist in diseases of the intestinal tract. Please start to eat blander foods. Chicken soup, bananas, applesauce, mashed potatoes without any toppings and jello. The best thing is to stay with the path of getting diagnosed. DON'T GIVE UP. I am holding you in my heart . I know that you are going to get through this.

[@karenwilson9218]

How would one catch Hep C while travelling? I thought it was from chronic Hep A or body fluids?

[@Dogs538]

I had her symptoms, had a biopsy with Endoscopy. I had Barrett's Esophagitis. Went to specialist who burned the entire part of my Esophagus. I get an Endoscopy every 2 years now, it is gone. I take an anti-acid pill to help.

[@Janalla808]

Claire, I understand how horrible nausea can be. I get intractable migraines which leave me with severe nausea, vomiting and head-in-a-vice pain for 24 hours at a time. I also know how difficult it is to get doctors to take you seriously sometimes. It took months and months of visits to 4 different doctors for me to finally be diagnosed with breast cancer. I asked for the test that would diagnose my enlarged axillary (arm pit) lymph nodes but all these doctors refused to do it. As a veterinarian, I knew exactly how I would have approached my case if I was a dog (do a mass aspirate on the first visit) but I couldn’t convince these MDs to do it. I know it’s difficult but keep track of all your episodes and medical care visits in a log book (as others have recommended). This will be invaluable to keep the timeline and various treatments straight. I’m currently on my 17th medical log book! Also, there are a variety of anti-emetics (anti-vomiting) meds so if one doesn’t help, insist on trying another. There are some real good, newer drugs for nausea. Of course, you need to pursue a diagnosis but if your nausea can be better controlled with medication, your life will be more manageable. Be persistent. I hope you feel better 😊very soon. Following from Hawaii.

[@lizmo6393]

Claire, 1) I have horrible nausea from medication side effects for MS and fibromyalgia pain. I use Altoids Curiously Strong WINTERGREEN (peppermint isn’t as effective) candies to combat it. I also advised a family member on chemo for cancer to pop 3 at a time and chew them up. They work almost immediately. I do not know why. I just take them because they simply, surprisingly work. 2) I am borderline anemic. Iron tablets make me constipated and uncomfortable and add to my nausea issues. I had a nurse recommend Flintstones children’s multivitamins with Iron. No constipation and as long as I take 2/day, no anemia. Good luck and keep us posted. We want you well.

[@michellenash6802]

Retired nurse here, so sorry you were treated this way! That’s horrific! Just off top of head... Pregnancy, hormone imbalances, ear infection, inner ear issue, tumor growth. Do not let those dismissing you discourage you from getting to bottom of what’s going on! Keep fighting!!!

[@ColourwithClaire]

I’m thinking hormone imbalance but I don’t know where to start xx

[@JoieManatad]

Im happy to see ur better now, and live to tell your story. It's sad you go thru these episodes alone. I admire your courage and let-me-figure-this-out attitude. The closest i get to your discomfort is migraine and i dont get those now. I went thru and learned healing methods that allow me to handle pain of every sort. I dont know if u have access to neuromuscular therapy and pranic healing where u are. You might want to google and see what can help. Keep on meditating, and breathing exercises. Stay strong! You are right, we should actually care and help one another. I can do remote pranic healing on you but i have to time it when ur about to sleep (sleepiness is my happy side-effect!). So if you like that, let me know what time (im in the Phils.).

[@TerriReuserHVR90]

Oh, you poor girl! I'm a retired registered nurse from Canada. Sadly, I've heard and seen stories like yours too many times over the years. I also had problems getting a disgnosis for severe dizziness. I was even asked if I ever heard voices!! It took about 10 years of this intermittent, debilitating dizziness that I was finally diagnosed. From both professional and personal point of view I remember thinking, "Why is it I have to advocate so hard for myself when I was so sick when *they* should be advocating for *me". This is exactly how people end up depressed, possibly losing their jobs and then being labeled. I won't go into all the reasons I think this happens. I'm glad you quit vaping! Do you have a primary care physician or GP? It is really more difficult to navigate through the system without one. Here, there are "nurse navigators." So many in this country and I understand in the UK are without primary care, so nurses are filling this part of the gap. Their job is to help people like yourself. "I'm not a diagnostician, but there is a process to diagnostics whereby they start with the simplest and move to the more complex. There are many things that could cause nausea, so they start with the most common causes. This is called "differential diagnosis." The problems with self- treatment are that people tend to try all sorts of things at the same time. If your situation gets worse, it's that much more difficult to figure out what treatment helps and what didn't and why. However, I understand the frustration in that you just want help, and believe me, I did the same thing! If you aren't already, keep a diary of all the dates you felt ill, the symptoms, and everything you did to help yourself (and this is the exhausting part when you are so sick). Write down bowel movements and even mundane things you don't think matter. because it just might matter. If the UK has your medical records online, get a copy of those and go in and read doctors notes and "differential diagnosis" and any plans or suggestions for follow up they may have written. This includes all lab work done. The notes will also include any comments about your mental/psychological status. Sometimes, comments and assumptions are made that will affect how other professionals see you. It seems to me that if your blood work has come back "within normal parameters," they must start going "farther afield. Expanding the basic lab work to include things like liver enzymes as an example if they haven't been done. Diagnostics does take time, but they do the simplest things first before moving to the more complicated and more serious and less common. What is interesting to me is the regularity of these cycles of nausea. Did the lab work include hormonal assessment? I dont recall you saying that you did. Have you had xrays or ultrasound or CT of your abdominal, and pelvis to rule out anything to do with your ovaries and kidneys? The next step might be an evaluation of your your pituitary and other structures in your brain using MRI. This is very much detective work and hard to do on your own. Doctors don't like people referring themselves to Doctor Google, but your situation is exactly why. People are desperate for answers. Sorry this was so long, but I hope I've helped by passing along some of this info. I wish you good luck. Remember, you are Captain of your own ship!!

[@judymcintire7095]

I have experienced the same thing off and on for years. Dr thinks it’s nerves. Becareful of the iron and B12. I took B 12 shots for a long time and now i have neuropathy in both feet and legs. Saw a neurologist for pain management and he told me about the B12. I take Ativan for years for the nausea. Makes me tired but helps. I had an endoscopy about a month ago and it was fine but told me to take reflux meds also. Fighting constipation now. We both could write a book. I’ll buy your if you buy mine. Lol. Not funny what we have. Debilitating and afraid to go anywhere for very long. You’re too young to go thru this. I’ve battled this for years and I’m 77 now. I pray you get an answer and please share it when you do!

[@CrazyCatLadytimes5]

You are your own best advocate. Keep seeking an answer. I’ve found that most doctors think if you’re bloodwork says you’re fine, then you’re fine. They think they know your body better than you do. They need to listen to what you’re saying and start thinking outside the box. ~prayers~

[@suegibson850]

So very sorry to hear your going through this. Hopefully you will find help. ♥️

[@hazeljenkinson1741]

So , So sorry to hear what you have been through , it sounds horrific . I know how it feels to be dismissed by medics as i have been through a bad time with Vertigo , this came out of the blue in February this year and still hasn"t really gone away . The nurses and doctors told me that i must be stressed but like you i wasn;t feeling stressed at the time it happened . it is all to easy to pass things off as stress instead of looking for the cause . i really hope you get to the bottom of what is causing it , and i wish you all the best , your channel is so inspiring , your colouring is amazing .

[@alongway99]

So sorry that you are going through a rough time of it. I am 62 years old and have learnt that hormones have a lot to answer for. I also know that trauma as a child has come up to be worked through as I got older. Please take care Claire, always look after number one - yourself.

[@JuliaHoustonebikeTouring]

Totally agree, hormones!

[@darryl2304]

Claire. I may be the hundredth person to say this but I suffered similar over ten years ago. Every morning for nearly a year. I had no idea what was going on. Like yourself a battery of tests and nothing to explain the nausea. I finally went private to a gastro specialist. £150 at the time. Mine turned out to be IBS. There is no blood test for this. But to get rid of the nausea he said he wanted me to drink 5 cups of Ginger tea a day. Proper chopped up ginger in water boiled up on the hob. That worked a treat straight away. Then he got me on something called Optibac Probiotics. Still take them today. As soon as I get the nausea feeling again. Straight back on the finger tea. You are so right that level of nausea is incredibly debilitating and GP’s haven’t a clue what to do. I really do hope you feel better soon.

[@annettelowe405]

Hi Claire Sounds absolutely horrible. It does sound like Omeprazole could be your culprit. There's lots about it on the Internet linking it to nausea. As all your blood, stomach and bowel tests have come back ok and you have adjusted you diet to simple whole foods then look further into the Omeprazole as the cause. Try cutting Omeprazole out for a while and adjust your diet to foods that will prevent your acid reflux returning while you cut out that medication. It's worth a shot. And maybe take magnesium and potassium supplement for a while as a precaution in case they are low. All the best! Thank you for the colour wheel video. I have been painting for a few months and just discovered your colour wheel video. It will be a valuable source for me navigating myself around colour. Thank you xxx

[@PensPensPens-gs1by]

Totally agree. That's exactly what I thought. It could be worth trying to wean off them for a while. Other medications can really mess with the digestive system too, such as Levothyroxine. I had some very severe gastro issues to the point I thought I was going to die. Severe anxiety too. I had blood tests, CT scan, Ultrasound and Colonoscopy. All ok! It was my thyroid medication all along and the doctors did not pick up on it. I actually figured it out myself after 4 months of torture. I weaned myself off the Levothyroxine and my issues disappeared. Hope you get it sorted out soon, Claire ❤

[@carolfox1647]

This happened to you after a long flight. Six years ago I flew from the US to Ireland. After I got off the plane I had nausea and dizziness. I had developed vertigo. It had to do with the compression on the flight. It only happened to me and not my husband. This is an inner ear imbalance and if you have an inner ear imbalance it is easy to resolve with a physical therapist trained in this area. I would check into this first as it will cost far less than more hospital testing. Good luck.

[@ColourwithClaire]

Thank you, I had considered it might be to do with the flight but I have no dizziness with the nausea ever, it doesn’t feel like room spinning vertigo. Plus it started 3 days after the flight. Then came back twice over the next 3 months… I can’t make it fit with what I experienced xx

[@grannieannie40]

That is exactly what I was thinking because I have had that too although I couldn’t put it into words as well as you have, I too had vertigo at one time but mine was so severe I felt like I was falling I had to grab to sides of the bed & I did vomit, but it only lasted a couple of days & never came back. My doctor prescribed some medication but I don’t remember the name of it as it was more than 30 years ago. If I can find the name of it I will get back to Claire. It might be that she has already taken it. 0:02

[@addie1056]

Hi Claire, I understand the helpless feeling you’re going thought here, I have endometriosis and I was at one stage told to go home and google idiopathic pain, which means all in your head and was left to drive myself home having been on morphine for the pain! It took over a year in and out of A&E to finally be believed, I had surgery to remove my appendix, thinking it was a rumbling appendix but they discovered endometriosis during the surgery. I was sure I couldn’t be in so much pain and not be dying! The not knowing and not being believing infinitely increased my pain and anxiety! Also the sleepless nights worrying and then being tired reduced my ability to handle the pain, so it was a vicious cycle. As a suggestion I know when I was pregnant I felt as though the iron in my prenatal vitamins definitely increased my nausea and morning sickness, I started on a non iron prenatal and it completely subsided, but I had made sure my iron levels were ok first! I researched it at the time and lots of women had a similar experience! So maybe if you happen to be taking iron consider that as a cause? Hope you get to the bottom of it all and do keep us posted xx

[@rens3396]

I'm so sorry you're going through this and I'm particularly sorry that some of the health care professionals you've encountered have been 'less than ideal' (understatement!). I've been in and out of hospitals since I was 15 years old, I'm now 49. I have Crohn's disease and for the last 20 years I've been very ill. I mention this for two reasons - I completely understand and sympathise how it feels to be so unwell and secondly, I've had such terrible experiences with some doctors and nurses I was left with PTSD. I still have regular nightmares and panic attacks. Most importantly though, as you were talking it rang a few bells with me. (Don't panic, I don't think you have Crohn's!!). One of the problems with Crohn's though, is that a person can become dehydrated and lack the ability to absorb the necessary electrolytes. I don't think you're dehydrated either, but it could be you lack certain electrolytes. You say you've been taking Omeprazole for years now? I don't know if this is prescribed or over the counter, but long term use (over 1 year), your GP should be monitoring your health. One of the long-term side effects of Omeprazole use can be low magnesium. As a result of my Crohn's, I had extremely low magnesium. Magnesium has a direct effect on your other electrolytes including potassium (which you mentioned was lower too). Even if you have a magnesium rich diet, the Omeprazole may be interferring with your ability to absorb it. Magnesium is really important and low levels can include nausea, loss of appetite, shaking, pins and needles, fatigue and weakness, areas of stiffness and soreness, irritability (who wouldn't be irritable!). Feelings can come and go. My experience was like the worse sea-sickness I'd ever had - a "get me off this boat, god help me!" sort of feeling. No respite, nothing eases the feelings - no McVities' Ginger Nut could touch the nausea! Once a healthy person has low potassium readings, the doctors should really test for magnesium, but they don't! They didn't even test mine, and I had no bowel absorption and they wanted to put a tube into my heart! I don't know if that's what's wrong of course, but see if that's on you private blood test panel. It's worth a shot anyway. Sorry for the long comment, but I was really feeling for you after your post. All the very best and let us all know how you get along. My sincerest best wishes to you, Ren

[@ColourwithClaire]

Hi Ren, thanks so much for your comment. I'm not sure what my potassium levels were in Italy, they just said 'a bit low'. That is unfortunately not included on my private test. However, magnesium is. I will be very interested to find out that number because you're not the first person to have mentioned magnesium and those symptoms you listed pretty much tick every single box for me, especially nausea (obviously), fatigue and weakness (I feel tired all the time which could also be the low iron, but I'm also lacking in energy to do even the smallest of things), irritability YES! I have such a short fuse for anything that feels irritating to me, no patience or tolerance at all. Your ptsd comment rang true with me- I feel like I have trauma from how I’ve been treated as well as the severity of the symptoms. Like you say, NOTHING helps when it’s that bad, not medicines or ginger or anything! I know I do not have Crohns because my colonoscopy was clear, but I wouldn't be surprised if I was low in magnesium due to the Omeprazole. I've been on them for 5 years now. Not sure I can ever get off them though because they were the only thing that worked for severe nightly reflux at the time, and I don't want to suffer rebound symptoms by stopping them. I did get myself down from 40mg to 20m last week though, as I was concerned the higher dose might be contributing to my fatigue. If my magnesium comes back low, would you recommend a certain type? I've read Glycinate is the best one and can even help with hormonal issues, but needs to be taken with B6 to absorb, is that right? It's a minefield! Thank you so much for commenting, it's so helpful! xx

[@Foxyfox28]

Hi Ren, I just wanted to thank you for sharing your knowledge about low magnesium and PPI use. I’ve been experiencing signs of low magnesium and hadn’t clocked that it could be as a result of PPI medication. That’s really helpful to know, thank you. I hope one day they find a much better way to help people manage Crohn’s disease, it must be so debilitating. I have regular ongoing bouts of gastritis and I know how much that depletes me, so I can’t even begin to imagine what you have to experience each day with Crohns 😞. I can certainly empathise with being treated poorly by the medical community too and dealing with the subsequent PTSD that we are left with. I’m so sorry you’ve experienced this too. Sending hugs 💖

[@rens3396]

@@Foxyfox28 Hello! Hopefully, like yourself, when we share little nuggets of our experiences and discoveries around, it may just land in the lap of someone who it can help. My journey through Crohn's and a multitude of accompanying issues as a result, I've always been left astounded at the lack of knowledge of some health care professionals and their lack of empathy and understanding - sometimes even cruelty. I felt very lonely and isolated in my experiences, but over the years I've discovered I'm, sadly, far from alone. I also secretly suspect most doctors don't know a thing about hormones, vitamin and electrolyte levels and how they significantly impact the body. I think there's an army of women walking around feeling just god-awful and being told there's nothing wrong with them. I do hope you feel better soon too, it really is madness that we're all trying this, that and the other to work out what's wrong. Do take care, best wishes - Ren

[@colourpalettesbymichelle]

Thank you Claire for sharing your experience with us and trusting us with what’s going on with you! Oddly enough, you don’t know many of us, but many of us know YOU (in a way!) I know we would miss you if you were gone for any long period of time…we are your community and are here for you! ❤️

[@paulavance5096]

Oh Claire! First, hi. Second, this will be a long comment. I just want to hug you! I'm not a healthcare provider or specialist, I'm just sharing with you what I've learned from my own experiences. I've found it to be rare for any symptom or illness to be in one's head. Hard to get a diagnosis and time consuming and beyond frustrating, yes, absolutely. Don't second guess yourself or your intuition. That will only make you feel worse. While it's beyond hurtful for those that are family and friends to even suggest such a thing I've learned the hard way over many years that those who have never dealt with chronic illnesses or pain just don't have the capacity to relate but they absolutely could be compassionate or heck even kind! I know how alone you feel. I want to scoop you up and bring you to America and help you navigate this until someone can get to the bottom of this but I know it isn't possible. My weakness so to speak has always been nausea. I have daily chronic pain from several injuries and arthritis that began when I was in my teens, clinical depression and an anxiety disorder and as bad as these are to deal with, I'd choose them any day over nausea. It took my Mom years to get the diagnosis of lupus. I know the darkness you have felt and it may not be over yet. But don't allow yourself to stay. If one Dr or place dismisses you or doesn't give you an answer, go somewhere else. Don't feel bad for seeking help or calling an ambulance. You should hear the reasons here in America that are used to call first responders. Absolutely ridiculous! I've come to learn through my dark and painful journey many things; I'm not alone, I'm much more strong and determined than I ever dreamed I could be and regardless of how dark or painful and unbearable it seems and is at times, and especially during the looong times of what I mentioned, it will get better and for some reason, the creator saw reason to keep me here regardless of how bad I didn't want to be here anymore. I truly believe you will find answers Claire. As much as I hate to say it and at times sure didn't have any myself, be patient with the process and most of all, be patient with yourself. There are brighter, better days ahead. I promise! Hang on. Sending you so much love and light, compassion, and warm, caring energy dear Claire.

[@valwadsworth3044]

Claire i am so sorry you are feeling so bad but don't give up. Keep on getting tests like a cat scan etc. My husband has ulcerative colitis and when he has a flair up it is horrible! Hang in there abd keep going after getting the 29:38 answers!

[@lisakaye75]

I am so sorry to hear you are battleing with this. I can not handle nausea myself. It is so debilitating. I thought for sure you would say the endoscopy would reveal the answer. Changing your diet and starting to add foods back sounds like a smart way to go. Along with keeping a food diary to see if certain foods trigger the nausea. All the best to you and continue to take care of yourself.

[@Crystalwren]

You’re doing the absolute right thing by speaking up, and out, about this. Someone might have just the link you need. All the best to you, and I’m sending you positive vibes to get through this 🙌🏻🙌🏻🙌🏻🙌🏻

[@pamcarr4963]

oh things sound terrible for you Claire, i hope you get some answers soon, i struggle with chronic pain and can often get nauseous from the pain, and i understand how awful it makes you feel - thanks for sharing your story, dont stress about videos, your health is your priority

[@Jana_banana53]

Claire, this is just awful, I am so saddened you have had such a horrible time. You may be tired of hearing what it might be, but I thought of something while listening to you. Gallstones or something with the gallbladder. When I had gallstones it came in waves it was pain and nausea. My gastroenterologist thought I was making it up because it wasn’t the typical symptoms or the typical area of the abdomen where gallstones are felt. He did an ultrasound anyway and I had major gallstones. It was debilitating, I swear I couldn’t move speak or eat when it was happening I would curl up, the waves would come out of nowhere. Like you I changed diet, lifestyle habits etc before being diagnosed. It was just a thought. Thank you for being so open and vulnerable it shows great strength.💕

[@ColourwithClaire]

I had my gallbladder checked by ultrasound but there were no stones found xxx

[@i2wkd4blu]

My heart goes out to you. I know my first perimenopause sign appeared to be vertigo and that was bad enough, I can’t imagine that nausea feeling constantly. Fingers crossed that you get to the bottom of it very soon xxx

[@twingytwango6971]

Hopefully the full blood tests might turn up something. I’m feeling really badly for you going through this. You can come here and talk all you want, it’s your channel, those who can’t empathize with you can just go.

[@phyllisjett9650]

Claire, I'm in the health care field and wondered if you've thought about having your gallbladder checked? It can certainly cause nausea especially if there are stones that block the common bile duct. Just a thought. This isn't anxiety or in your head. Keep pursuing answers. You are in my prayers ❤

[@ColourwithClaire]

Hi Phyllis, thank you for your comment. I had a ultrasound check gallbladder for stones but it was clear xx

[@drbettyschueler3235]

I feel for you. I was going into cardiac arrest for years before a cardiologist finally put a portable harness on me and discovered I went into cardiac arrest 13 times on the test day and it wasn't for just a few seconds. I had been in arrest for as long as a half hour before the test. I had a pacemaker implanted and it was literally keeping my heart pumping 100% of the time for awhile. Btw, it can cause nausea and a feeling of overwhelming doom making it impossible to function very well. Fast forward a few years, stage 4 breast cancer, a few strokes, heart attacks, and COVID and its dreaded cytokine storm, which I somehow managed to survive. You would think this would create a little empathy from a new physician but all I got was, "Well you must be doing alright because you have a lot of hair." So I understand your frustration with the medical system as our system is worse than the UK's. And while your illness is defiantly in your head, it is also somewhere in your body. Keep researching your symptoms. There is an answer somewhere.

[@donnaclayton2894]

I can’t even begin to imagine how you are feeling and how on earth you are coping with this. Nausea is the absolute worst especially if you can not relieve yourself of whatever is making you feel that way. I have panic attacks and PTSD and have been coping with this for more than 25+ years. This past year I get brief bouts of nausea in the morning daily…but it passes as soon as I get something on my stomach. With that being said I hope you get some answers to your ailment very soon. Nausea is awful and the horrible bouts you are having with it is in my mind unimaginable. Prayers and hoping you get some answers soon!

[@ColourwithClaire]

Thank you Donna, it is truly unbearable xx

[@MimosaLockjaw]

Hello Claire! I heard all your symptoms and it made me think about my mom. She had exactly the same things as you. For almost a year she barely ate and lost 30% of her body weight and it turned out it was hormonal and it was her body preparing to menopause. She then had menopause after a year or so of all that sickness. Doctors always told her it was anxiety, until menopause occurred and they associated it with menopause. I dont know your age, you look very young for it to be menopause but it can be hormones playing with you.

[@ColourwithClaire]

Hi, yes I had considered that but being 35 with regular periods it’s unlikely xx

[@amandacolours]

I’m so sorry for the awful experience you have been through. I too have been through some truly traumatic medical experiences. On top of which I went through 4 years of doctors dismissing me telling me symptoms were in my head and the rollercoaster of going through tests for everything to be normal. I eventually found a doctor who would really investigate the issue and finally got a diagnosis of Fibromyalgia and some other things. Fibromyalgia is that level 7-10 pain all the time! ALL the time. I’m sorry it’s such a battle, but keep fighting keep pushing and trust that instinct that something isn’t right. Our bodies tell us when something is wrong. If you do want to look into further psychotherapy EMDR could be helpful, but chances are it’s a physical, not psychological thing. Praying that there is no further reoccurrence and that answers will come quickly and definitively. ❤❤

[@JessicaSzempruch]

I am so sorry to hear about your health struggles. I can empathize. I have anxiety troubles and migraines, and I have been where you are at where I would feel ill and know it’s not my anxiety or a migraine because it’s different. Family dismisses it, healthcare definitely dismisses it, and the frustration leaves me in a very dark place. Unfortunately women especially are not taken seriously by healthcare professionals, and it’s very difficult to get the care you need sometimes. I applaud your efforts and steps you have taken to be your own advocate. It takes a tremendous amount of strength. I pray that you get answers and the help you need. Stay strong, dear Claire. I will keep you in my prayers.

[@ColourwithClaire]

Hi Jessica. You’re so right - medical misogyny is real! The dark thoughts are very scary. When they tell me just to deal with it cos it isn’t life threatening, I feel like saying “well I don’t want to live like this much longer so I’d re-think that if I were you” xx

[@studioandromedawn4838]

For real!!🤬

[@marshabraswell5681]

I completely understand! I have chronic pain and it can be excruciating! Way off the 0-10 charts!

[@melbacarter618]

Praying you get answers!!! You are in my thoughts and prayers.❤️🌹🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🌹❤️

[@cherylquinn6818]

Hi Claire hun,hope your okay.sorry you've been poorly.also sorry you've been made to feel that way, there's nothing worse when you know something is up with YOUR body but your left feeling like a hypochondriac. Hope you find out once and for all what is wrong with you sweetie so your not only feeling better again but so the docs and whoever get to eat their words.sending love and big hugs. Xxx

[@cheryldodge5126]

Claire You may think of me a little excessive however I was so touched by your issue I found myself doing a little research. One, Acupuncture can help reduce nausea. Not certain how available this may be in your area. In the US they are very available. Friends have their dog treated this way. And then I thought about your eyes. There are 2 common forms of something called Binocular Vision Dysfunction which in addition to nausea you could experience anxiety and pain in your neck. I enjoy your coloring style and and wish for you all the best. Be well.

[@sarahstevenson6088]

I hope you get solid answers very soon claire xx

[@lisataylor9079]

Claie, thank you for sharing this very honest account of your health. I'm so sorry you've felt not listened to...that must have made coping with these symptoms so much harder. I really hope you don't suffer another round of symptoms. Ive missed your videos as you are so talented and you have taught me a lot. I hope you get some answers soon. Best wishes, Lisa x

[@bethbrady8146]

Hi Claire...I am so sorry!! Medical here is awful as well. Good for you for taking things into your own hands!! Take gentle care of yourself. You are very brave...keep fighting and posting!! Someone will know something!!!I had a terrible doctor for one of my colonoscopies as well. I understand what you are going thru. You are worth the fight so keep it up!!!!❤

[@emmawilliamson457]

Bless you, Claire, sending lots of love ❤️ No advice, no idea what to suggest - just thinking of you and hoping you find answers soon ❤xx

[@charlabillington6273]

Praying you get answers and relief soon. Take care.

[@bobbichamberlain718]

Anxiety is what they say when they don’t know. Trust yourself. That is not anxiety. My very best advice is get yourself a functional medicine doctor. I’ve been through something similar but different. There are stomach issues that the endoscopy wouldn’t see. Like sibo; candida, Crohn’s disease. Big hugs❤

[@ColourwithClaire]

Do you know if we have those in the UK and how I would find one? Xx

[@bobbichamberlain718]

I would start searching for functional medical doctor or Integrative medicine. They take more of a holistic approach and try to find the root cause. Try looking under “The institute for functional medicine” you may need to do some digging and research. Good luck😊

[@Sullykitten555]

So sorry you are feeling this way! I think hormones play a massive part in women's health so that may be something to definitely look into. I'm not sure how old you are but lately I have felt awful (I do have severe anxiety so everything is always worse because of that), I have had all sorts of things going wrong in my body, various tests etc, but I have come to realise that even though I'm only 38 I'm starting perimenopause, it's unfortunately the only explanation. I hope you find answers soon, just knowing what it may be will make all the difference. Sending lots of love and hope you feel better soon!

[@blacktiger675]

Hi Claire, I'm so sorry that you're going through this hell. I was a Certified Medical Assistant here in Oregon but am permanently disabled now and can't work. So I'm not a doctor but do have a few ideas. Have you had your heart checked? We women have completely different symptoms and nausea, neck and/or shoulder pain are a couple. The first thing I thought of was an ulcer~ I had the same symptoms you're having back in 1988 and I ended up with a bleeding ulcer. It was absolute hell but after a year I was healed. You're not crazy! Advocating for yourself is crucial, keep at it. These doctors take an oath and then seem to so easily forget it!! It breaks my heart when I know how kind and generous you are with us! So keep pushing for yourself until you get answers!! Much love to you. Renée💖💜

[@ColourwithClaire]

Hi Renee, I had a ECG when the ambulance came which was fine. They didn't see any ulcers on my endoscopy. xx

[@valeriel3103]

Was hoping you found answers by now. So sorry to know it continues. Not sure if this would help but I would start keeping a daily journal of literally everything. Your stress levels, exercise you did what you ate, hrs of sleep, what you drank, meds taken, symptoms, etc to see if there is some type of pattern that shows just before another attack of nausea. You should never be aware in a colonoscopy or endoscopy. I would try a neurologist for a possible migraine. Wishing you well!

[@julieburrows2757]

Hi Claire I'm terribly sorry to hear you're still experiencing the trauma of nausea. It's so frustrating because you know your own body & instantaneously know when somethings wrong. How awful not to have support & understanding during such an incredibly frightening time . Not only are you trying to discover why you're experiencing these debilitating symptoms but you're also desperately trying to get through each day feeling this way. I'm pleased to hear your Endoscopy went well as I know how anxious you were beforehand. Its fabulous news that results were positive for you, I imagine you're relieved but even so it's a bittersweet moment, if something had shown up then it would give you the answers you desperately seek. You feel happy but saddened at the same time, difficult to explain but I understand personally Claire. You're a beautiful, strong & courageous lady who illuminates life with immense love, inspiration & kindness. I feel incredibly fortunate & blessed to have your wonderful friendship of which I treasure deeply. I'm thinking of you, I truly hope you regain full health soon. Sending love, hugs & best wishes, Julie ❤😘💐

[@ColourwithClaire]

Thanks so much Julie, love you xx

[@christianegreven7011]

I so sorry for you. This is a horrible experience feeling so bad and not been listened by medical staff. I sincerely hope you will going well soon. Big hugs from one of your friends in Belgium ❤❤❤

[@crreaasbaum]

The unknown is hard to deal with. When we went to France, we were so careful, but I didn’t think about how the Orange juice was made. My first week in Paris was hard. Bathrooms are no free in Paris. No place to go. We had so unpleasant moments. Drs like to make you go away! They like to place the blame on anything else. I won’t eat much before a trip. I take safe foods. Snacking foods. I also take in anxiety med, which I can’t bump up if needed. I’m just so allergic to so many things.

[@LisasColoringCorner]

Oh Claire I feel so bad for you. I have cancer and go through bouts of nausea from the chemo but nowhere near to the extent that you are experiencing. You’re right though when you say how completely miserable being nauseous is. I sure hope you get the answers you deserve soon. I think you’ve been patient enough.

[@KarenHavenaar]

So sorry to hear this, Claire. Don't know what to say except I feel for you and hope your health will improve or they will find out what it is that is torturing you.

[@dcreas]

I took a trip to Paris, after a few days, I started getting sick. We were on the metro, I had to use the bathroom. We found an icky gas station, and I had to use that bathroom. My husband is a French teacher, and was able to get me medication. I too only used bottled water. But I wondered about the orange juice, they might have mixed it with the water. Those stomach bugs are terrible. Bless your heart! I always travel with an anxiety pill. I have IBS.

[@cmnghostly]

Claire I’m so sorry. I had a similar experience when I was pregnant. I felt so, so nauseous for the entire time, to the point where I seriously wanted to not wake up. It’s so sad. I think many people don’t realise how debilitating it is. I didn’t have any more children after my beautiful daughter was born. I was so scared of being that nauseous again. I totally agree with your comments ❤️❤️❤️

[@raggedblossom508]

I'm sorry that you're going through all this, Claire. From my own experience I can say that many doctors are far too fast to dismiss women's physical distress as psychological, especially if it doesn't show on the outside. I hope you find out what's causing your sickness, or that it goes away for good. Sometimes bugs or viruses can hang around for a while. Do remember that we all care and wish you well. 💗💗💗🙏🙏

[@TheBibliophilePuzzler]

Hi Claire. So sorry you are going through so much. You will be in my thoughts and prayers.

[@Debbyx4]

Aww claire. I’m so sorry. I can hear your emotion

[@StinkDogPhotos]

I’m sorry you are going through this. It’s so upsetting when doctors aren’t listening or taking you seriously. Please be your own advocate and keep pressing them for answers, and don’t apologize or feel like you shouldn’t seek help, keep after them until you have an answer. You deserve one. Hope you’re feeling well soon.

[@allisonjames3457]

Just came across your channel Im praying for a full recovery..it sounds like a terrible time...I don't know what this ilness is or why but this I do know you are your best advocate...I am sure it's tiring but you can't give up on feeling good...I know your breakthrough is right around the corner..joy is coming soon❤

[@chhingse7989]

I am sorry to hear you have been so sick. May you find out what’s wrong and please don’t feel down we are all rooting for you ❤❤

[@Alise007]

Praying that you get the answers you need and deserve. Feel better soon and continue to advocate for yourself. Don't allow people to make you feel bad about how you are feeling because you know what feels normal to you better than anyone else would including the medical "professionals". Sending you positivity and compassion ❤️.

[@vivianrushing9405]

I’m no doctor but it doesn’t sound like anxiety and it’s not in your head, I really hope that you find what it is and get better, just sending prayers for you, feeling nauseous is a horrible feeling and to feel it continuously is terrible. Thanks for sharing with all of us ❤❤

[@linseybuchanan6353]

Claire, i am so sorry to hear you are going through what sounds awful. I started colouring with you a few weeks ago and you are such a beautiful person. Thank you for your honesty and being brave. I have severe mental health from trauma as a child and on daily medication for this and i dont have this kind of sickness. I can tell you are desperate to get answers. I am sending you so much love and hope you get answers. Xxx❤❤❤

[@ColourwithClaire]

Thank you Linsey xx

[@karenwilson9218]

Oh, you poor thing. I had gastroperesis 15 years ago and it lasted for 2 years. It was just like this. My doctors took me seriously when I dropped 40 pounds in a few months. Nothing they gave me for it helped. Then one day I woke up and it was gone and it hasn’t come back in all those years. I also had incredible fatigue. I fell asleep driving ad in meetings at work. Sometimes I couldn’t drag myself to work for a week. It was the most dreadful thing I ever went through. I wish I could tell you that the doctors cured me, but I woke up one day and it was gone and has never come back. I was diagnosed through a test where they gave me food with dye in it that they could track going down. For some reason, the food was going incredibly slowly, so slowly that the food went off and made me sick. I somehow kept working those 2 years, even though I sometimes would miss whole weeks of work. I eventually divorced my husband and remarried a chef who would not let me live on smoothies. Eventually I got my appetite back. It’s been gone for 13 years now. I don’t think it was stress, but I did get better after my separation, so who knows. I’m. I sorry, Claire. T does feel like you’re a friend so I hope so much that you can get this sorted. Unfortunately, there isn’t a good treatment for gastroperesis, so I hope that isn’t what you have, but please look into it. I understand the dark thoughts. I was so ill I would cry when I had to crawl to the bathroom because standing made it so much worse and it feels like it will never stop. But it did, and life is good now. Don’t let the bad thoughts get to you, Claire. If you ever want to talk, I’m Karen Wherlock on FB and on your page and in your group. I was shocked when I first saw your face because you’ve lost so much weight. Keep fighting, Claire. We love and need you!

[@grannieannie40]

Claire, I am so sorry to hear you have been this sick without finding relief. Although I cannot offer any advice I can commiserate with you because I feel exactly like you do about nausea, I would much rather be in pain than to be nauseated. I hope you find some relief soon & start to feel better.

[@caerhardt]

I’m so sorry you are experiencing this. So glad you are speaking out and being your own advocate. I’m not a doctor but it does not sound like anxiety. There is something causing this! It is not in your head. I’ll be praying for answers and healing.

[@judymcintire7095]

I so hope and pray you’ll be ok. It does make you rethink things. My daughter is planning a trip next week to Ohio where she grew up and so wants me to go but m too afraid. All I can do is lay down when I feel that way. Please keep me updated. I so admire you.

[@ColourwithClaire]

That’s exactly me, just have to lie down and pray/beg it to go away xx

[@claudiacameratti-baeza4157]

Claire, I am so sorry to hear this is happening to you. I am curious if you have been tested in your ears? They control your sense of equilibrium and can really mess with you and give you incredibly nauseous. It doesn’t seem to be anything in your stomach. And you know best if it is anxiety or not.

[@ColourwithClaire]

Hi, it’s not my ears, I don’t get any dizziness, vertigo or balance issues xxx

[@peggywilliams2159]

I'm praying for you Claire. May the Lord Jesus bring you hope, peace and comfort. He is a good God who longs to be there for you. I've had many life experiences that without the Lord I don't know how I would have gotten through them.

[@jefferythum9445]

Great video Claire hope your ok ,and feel better soon.

[@helenwalker5432]

The dark place in your head, is somewhere I recognise. It's a place most people never visit or understand. Sadly any longterm illness provides a free visit there. I understand & empathise with your experiences physically & medically. I hope you finally get a title & a cure. Xxh in 🇬🇧

[@FloralHeart]

Hi Claire, I've been going through the same since last October. I visited two doctors here in Switzerland where I live and did a battery of tests including endoscopy, found nothing but high cholesterol and I was told that my problem is anxiety. I say no, it's not. My sister suggested that I should take a vermifuge and I accepted the suggestion. I took 2 doses and since then the symptoms are disappearing. I suggest you do the same, as your problem may be related to the food served on the plane. Wish you well. Thank you for sharing.💞

[@ColourwithClaire]

What is vermifuge? I didn’t have any food on the plane and I was incredibly careful about what I ate drank and hand washing in Italy x

[@dawnmcfeeters5204]

Claire, Keep advocating for yourself. Drs. Always blame anxiety, always, I wish just for once they would say we do not know. Instead of making you feel like your crazy. But if you do not fit their text book, they don’t know. I have had strokes, and they still don’t know why I have had these strokes or why I feel like I do. But I said all that to say YOU live in YOUR body. YOU know YOU. Don’t let anyone tell you different. Your are amazing…..please be strong.

[@ColourwithClaire]

Thank you Dawn xxx

[@hcelliston]

Omg hun. You’ve had a rotten time. Really do hope you get to the bottom of it and really hope it doesn’t reoccur. Sounds like you’ve tried every angle to try to solve it. Fingers crossed for you that it doesn’t come back. Good for you for pushing to try to get answers even though you don’t have any. Wow. Big hugs xxx

[@anntaylor3156]

So sorry to read about all you are going through. I can imagine your frustration at not being able to get to the cause of the problem. Hope you get answers soon. It sounds like you have explored every area, but stay strong and keep fighting for answers. Sending love xxx

[@eileenduckett3012]

Hi Claire so sorry to hear you are so poorly. I do hope someone can help you soon . Much love you are in my thoughts. Please keep us up dated beautiful lady.xx

[@tiffanycolors7984]

Thank you for sharing. ❤ I will be praying for you 🙏. Please keep us updated. So many people are having rough times with their health and I also feel like our health-care systems just don't care anymore 😢. Sending you healing energy ✨️

[@tiffanycolors7984]

By the way.....have you heard of the Medical Medium? I know he has helped so many people with mystery illnesses. kzbin.info/www/bejne/g6mbgmiYgrGJZ5Ysi=Bcc07isTPuqYKvTn

[@emmawheeler4624]

gosh claire this is awful. and worse when the ‘professionals’ don’t listen. i’m going through this not listening at the moment, and it’s so frustrating, you know your own body! i see you’re feeling a bit improved, i hope it stays this way and you get answers xxx

[@mimiff6343]

Suertes, Claire! Espero que te pongas buena pronto. Eres la mejor you tuber en el mundo del coloreo. Besos.

[@dcreas]

You did the right thing with your diet! One food in a week, add another food the next week. Etc. I lost 25 pounds with this last migraine attack.it’s not in your head. It took years to get some of diagnosis, like fibromyalgia and interstitial cystitis, and since the vaccine I’ve had heart issues and migraines for three years I finally told them I have something called the drop attack where I become unconscious and hit the floor or the wall and now they’re doing the test to try to find out why because there’s about 10 different things you could have when you pass out like that keep fighting keep pushing❤❤❤❤

[@AshleyLafferty-u4s]

Thank you for being so honest and sharing, keep pushing and I really hope you get an answer soon and feel better xx

[@colorfulchameleon7944]

Never stop trying to get answers! It took me 10 YEARS for my primary to finally listen to me. 10 years… and when he finally sent me to a rheumatologist, I walked out with 3.5 autoimmune diseases with another diagnosed a few months later after a colonoscopy. I have Crohn’s Disease, connective tissue disease, psoriasis, hashimoto’s hypothyroidism, AND fibromyalgia (that’s the .5). But I had to wait 10 years to be taken seriously… I certainly hope you don’t have to wait that long for relief!

[@ColourwithClaire]

I’m so sorry, isn’t it awful how we are disregarded xx

[@karenwaters4507]

Hugs! Trust yourself. Advocate for yourself. Don't be afraid to tell the doctors that you don't agree and give them a push to get you to the next step or a different specialist. Maybe get them to check your gallbladder again as it can not be well and make you sickly without having stones.

[@BUBBLEGUMGIRLONE]

I stop by because some of the coloring books you recommended I have bought. Based on your review. They’re very good books.

[@Orifamesenja]

Dearest Claire❤ Hope you’ll be better soon. Believe in yourself in all times ❤

[@BUBBLEGUMGIRLONE]

Hello I think every thing you described is very similar to what I went through. After my grandma died, I got very sick. We were very close, and I couldn’t cope with her death. I developed a thyroid condition. I had severe migraines. What helped me is prayer to God and relaxation techniques. Next time you feel nauseous, have some one rub the palm of your hand. Massage gently. The top of your hand the palm of your hand. You will notice relief from pain, anxiety, dizziness and severe nausea. Control thoughts. Pray like this. Say thank you Jesus thank you Lord for your healing your restoration. Just keep saying thank you Jesus thank you Lord for your healing. Thank you for taking away my pain my nausea. The pain of my heart the pain of my mind. Help me Lord to live with this tremendous loss. Comfort me, Lord. Your symptoms are valid. Your sickness is valid and you’ve lost some thing very precious and priceless. Your love your grandma. Ma’am, if this helps you I hope you let me know.

[@mariapelaia1083]

Hi Claire, I'm so sorry you're going through this horrible experience. You had mentioned that your neck hurts just before you get this horrible attack. Now I don't mean to scare you but have you considered having the doctors check to make sure you don't have meningitis? I hope they find a cure for you soon. I'll be thinking about you and praying so that you get some kind of answer and help. I truly enjoy watching all your colouring videos. Try and keep strong and please keep us updated. ❤

[@ColourwithClaire]

Would it keep coming and going over months if that were the case? Xx

[@nancyflaherty7038]

We love you, Claire! Praying for you from Nancy in the USA 🇺🇸

[@casstwentytwo]

Hi Claire, I'm a long-time subscriber (I used to use another account) but I don't know if I've commented from my new account before. I have anxiety related to commenting for some reason, but I've been trying to leave more comments. Anyways, just wanted to say that I went through something like what you're describing for many, many years until I finally found a doctor who listened to me and was determined to get to the bottom of what was going on. It took years and years, but thankfully we finally figured things out. If you are interested in hearing the results of a similar journey to the one you've been on, I am happy to share. Just let me know. And if not, I still just wanted to be one more voice that says it's not in your head. You know your body better than any doctor ever could. Your body keeps score of everything that has happened to it and sometimes it screams out at you to tell you something is wrong in any way it knows how...you're not crazy. I know you know that, but when I was going through the years before any answers, I still needed to be reminded of that fact at times. Sending you love.

[@ColourwithClaire]

Thank you Cassia, yes I would love to hear about your journey xx

[@casstwentytwo]

@@ColourwithClaire Sorry I didn't reply until now. I've been having a flare up for a little while. I was wondering, is there a way I can send you a private message reply when I'm feeling a little better and am able to share more about my health journey?

[@ColourwithClaire]

@@casstwentytwo yes of course, you can email me on Colourwithclaire at gmail dot com xx

[@brendachambers8456]

I had a similar experience several years ago. Nothing was ever found and it eventually went away but I know what you’re going through. I wish I had some good advice for you but it seems you’ve tried it all. My heart breaks for you and you’re in my prayers. Please keep us informed on what’s happening. Sending Love.

[@aliciacampos5789]

Claire, I’m so sorry you’ve been suffering. I wish I had ideas. All I can say is keep advocating for yourself. Sending much love your way

[@Gwenluvsmusic]

The fact you have identified the pain in the neck a couple of days before would make me lean towards a type of migraine. Not all migraines come with head pain. A prescription for migraine spray, which you could take as soon as you get the neck pain would answer that. Might be no harm requesting a neck scan, just to rule out arthritic problems. I really hope you get answers soon, and preferably before any other episodes.

[@ColourwithClaire]

Hi Gwen, I thought that too. A migraine without the pain. But people said I would at least have aura/visual disturbances if it was silent migraine. I tried Sumatriptan but it didn’t help. I will try to ask for a neck scan if I can get to see the doctor. I just don’t know why it would come in cycles for 2 weeks then disappear. That’s why I thought maybe hormonal. Xx

[@Gwenluvsmusic]

@@ColourwithClaire I hope you get answers ASAP .

[@heidi09]

Hi Claire I'm from Australia and have found your colouring channel by chance which I love. But what has also sparked my interest is your video regarding your health issue. My heart goes out to you with your nausea, as I experienced something similar a number of year's ago. Back in 2011 I was admitted to hospital with nausea and vomiting. A gastroscopy was done along with a biopsy to rule out a bacterial infection - no diagnosis. I went home with medication and was okay for a week, then the nausea and vomiting returned. This was a daily occurrence to the point I couldn't keep water down let alone any food. Went back to my gastroenterologist, he asked me a lot of questions re. any anxiety, my diet, etc and then did the process of elimination to rule out the serious illnesses along with ordering scans. He also gave me medication for the nausea/vomiting which didn't help. After further research into my case and his knowledgeable gut instincts, he ordered for me to have a 'GASTRIC EMPTYING TEST'. This test revealed that I had delayed emptying of my stomach. My diagnosis was the idiopathic chronic disease of 'GASTROPARESIS', or paralysis of the stomach (damage to vagus nerve). Although I had a very severe case (ended up tube feeding for 9 months as I couldn't eat), I was very lucky and recovered after 12 months. There is no cure but my condition is now dormant or in remission. I tend to experience a flare up if I am under extreme stress, therefore I have changed my lifestyle and now will always put my physical and mental wellbeing before anything else. Basically I was given my life back with the care of a wonderful gastroenterologist Dr Raouf Bassily. I sincerely hope Claire that you get some answers, so you can work towards a full recovery with your health 💕💕🤞🙏

[@karenwilson9218]

I had it too. It was dreadful and then one day it was gone. I wish I’d known others at the time because I felt dreadfully alone.

[@lo3551]

My best wishes to you Claire. It sounds like your health system is in dire need of renewal. Have you seen a specialist that deals specifically with your symptoms? It took me over 25 years to be diagnosed with my issues and only when I finally saw the right specialist was I finally diagnosed. I have rare diseases and I had to find a Dr who cared enough to keep looking before I finally got the proper help. I can only hope you keep advocating for yourself amd that what is wrong with you is diagnosed.❤️🌹

[@ColourwithClaire]

Hi Lo, I'm not entirely sure where to begin when it comes to specialists because this nausea could be stemming from any number of problems in the body... do I go to a gastroenterologist for more digestion tests, or a neurologist for neck/head scans, or a naturopath for parasite testing... all costs money :( xx

[@lo3551]

@@ColourwithClaire That should be a question your Dr should answer imo. Patients go to Drs because they have medical degrees, we don’t so how can we know who to go to? Our health system is far from perfect but I’m stunned at yours. The callous attitudes you spoke of were so disappointing to hear about :( What I could suggest is one I used once to find what might be wrong with me and it was a physician. They cure no one but their specialty is finding what is wrong with a person. Then you know which specialist you need. I can understand the finances needed so I hope you can find a way around that problem so you can be helped. You need a starting point and that’s why I suggested a physician because they diagnose illnesses and then you would have a starting point to a specialist. Sending you all the luck in the world and huge hugs.🤗🌹

[@lifeinmulticolour640]

I'm so sorry to hear you've been going through this. Unknown medical conditions are really hard to deal with, and feeling like you're being dismissed by professionals really doesn't help. I understand how tough it is to deal with I spent almost 20 years going to various doctors before I finally got my diagnosis of EDS only a few years ago, and I only got that because I went to a private hospital in London! I wish I had some helpful suggestions, but my experience has mainly been with pain, though I've had some stomach issues and was also diagnosed with IBS. The only thing I can think that can cause nausea you haven't already mentioned is magnesium deficiency, but it sounds like you're already looking in vitamin deficiencies. I really hope it either doesn't happen again now or you get some answers very soon!

[@ColourwithClaire]

Hi lovely, I am getting a magnesium blood test next week so I will see what comes back. It’s so crap how we’re brushed off, it’s like they don’t want to bother investigating anymore xx

[@Mary_CS_Fernie]

Hi Claire, I'm so sorry that you're still not feeling well. I've never experienced that type of issue so, sorry, I cant help. My issue seems to be peri-menopausal. I got fobbed off at the docs last time I was there but after this week, I'm going to make another appointment and go back. I hope you find something that gives you some relief, it must be awful. xxx

[@hannahavila8572]

I’m so sorry you’re going through this. Have you looked into abdominal migraines? It’s rare in adults but certainly possible. I really hope you get the help you need soon!

[@ColourwithClaire]

I have but I don’t get the pain associated with them xx

[@rosalynpowell3310]

I watched your video last night and a lot of things resonated with me. It's appalling the level of medical care we receive in this country at the moment. I know you mentioned you take Omeprazole. One of the long term effects of taking Omeprazole is severe nausea. It has been withdrawn in some areas of the USA. It may be worth seeing if you can take an alternative instead? Good luck xx

[@ColourwithClaire]

Hi Rosalyn, I've taken myself back down to 20mg /day from 40 because I thought it might be contributing to fatigue. I've been on the 20mg for 5 years and only tried the 40 after the first two nausea episodes this year xx

[@anniefiquet8792]

Bonsoir, Claire. Je vous souhaite de recouvrer votre santé rapidement. J'ai aussi eu de lourds problèmes de santé, à cause d'un medecin qui ne m'a pas écoutée. Tenez bon, et peut-être serait-il important de consulter d'autres médecins afin de vous permettre de vous sentir mieux. Certains savent mieux écouter que d'autres. En tout cas, sachez que nous vous aimons et penson fort à vous, vous êtes dans nos pensées, toujours.❤

[@jackiehull1469]

I have been there and the only thing that works for me is Alka-Seltzer Heartburn Relief Lemon lime. Take the two tablets in water then drink it...Wella you will feel so much better!!! So sorry to hear you trip wasn't what you would of wanted it to be.

[@moderncoloring-jenniferzim6122]

Claire, perhaps a functional medicine doctor can help. Most don’t take insurance here in the states, so you have to pay out of pocket.. but instead of ordering your own bloodwork, they would do that and offer alternative and sometimes naturopathic therapies, thinking outside of the box. Hugs

[@dubbeljapp]

I’m sorry to hear about your struggle. I have a son who have experienced something similar since birth and we haven’t found a solution but lactose free food is better. And eating regularly. I’m a psychologist and work a lot with ADHD and Autism and my based on my experience I believe that some people are more sensitive to bodily change. Stimuli from inside and the organs and so on. Some people feel pain more than other, some people feel nausea more than other. I cannot wear clothes with wool because of the discomfort, other people feel warm and cozy. So point no 1 - your discomfort is real. Some people experience nausea when they are tired. Do you snore or have sleep apnea. Do you take sleeping pill. I’d your body is tired or even depressed a person can react with nausea. It’s not anxiety, it’s a bodily reaction. No 3 - do your stomach empty food? It can be a problem with pancreas - I had it when I was in my 20. Got a medicine and got well. Sorry for bad English. But iron and b12 is super important and my bet is on that. It’s connected to the nervous system and effect everything from movement to breathing. I think you will feel better with your diet. Hope you get bette soon. 🙏

[@ColourwithClaire]

Hi love, funnily enough my sleep has been fine - even when the nausea was at its worst, I was sleeping all night. Then I’d wake up and the horror would begin again. Not sure about pancreas. How would I be tested for that? Xx

[@deniseblair8146]

Oh honey, I really do feel for you. So glad you’re endoscopy went well and sorry you feel that you haven’t got any more answers, sometimes it takes a long time and it’s very frustrating when all your results come back “ normal”, when you feel anything but. Sorry I’ve been a bit quiet this week after our long conversation but I have my first appointment with yet another new therapist this afternoon and I’m dreading it tbh because it means going through it al for the 99th time and makes me feel worse usually. This is my last chance on the NHS therapy list and I m still just as totally fatigued as I was when I didn’t go to see the therapist I clicked with and spoke to on the phone all the way through covid before my fatigue got really bad again. I wish I’d forced myself out of the house to her, cos the last guy was worse than useless and I still feel like shit physically. I will try to get around to a longer conversation with you again when I feel a bit less negative myself, and hopefully this one I;will click with, who knows? Lots of love Denise

[@nats92lilac]

Clair I really do hope that those episodes won't come back and if they do stay strong! Hopefully you'll find the answers that you need and you'll get better.

[@janineclemons746]

I'm struggling with IBS. When it gets really bad I will fast for a day. It messes up nutrient absorption. I have food sensitivities that are almost impossible to avoid. You may have to work out elimination and adding back slowly. Also, probiotics are very helpful.

[@tinniaphillips4059]

Oh Claire! I am so sorry to hear this. I was sick for 2 yrs before they found out i had gastrophresis. Its where the stomach stops working and gets lazy about digesting food. I went through tons of testing till i was sent to Stanford here in the states. Basically the best of the best of professionals and medical tech stuff. My wieght dropped down to 89 pds. US wieght. I dealt with severe stomach pain and sick to my stomach for 2 whole yrs. I too was told it was all in my head. It would flare up out of the blue. It had nothing to do with my anxiety or my diet. My stomach would just stop digesting. I pray you can get help and answers to this. Stomach issues is no fun. Specially when you know its not all in your head and no one is compassionate to what your feeling. Prayers sweetie.

[@karenwilson9218]

I just told Claire the same thing. Did yours resolve? Mine just went away on its own eventually, but it was the worst thing I ever went through. There weren’t FB groups then and I knew no one else that had it and I felt so alone. Hope you’re well now.

[@tinniaphillips4059]

@@karenwilson9218 hi! It has gotten a lot better but i do have what i call flare ups sometimes. But over all i am a lot better now. I felt like you did. This condition wasn't well known 12 yrs ago.

[@karenwilson9218]

@@tinniaphillips4059 I’m glad you’re mostly better. Funnily, I’m in bed with a flare up today. I woke up in the night feeling dreadful, but my body seems to be better able to handle them now and I’m sure I’ll be at work tomorrow. I hope your flare ups are few and far between!

[@tinniaphillips4059]

@@karenwilson9218 oh no! Hope your up and feeling better soon.

[@karenwilson9218]

@@tinniaphillips4059 Already up and better, thank you!