Life with a Cochlear Implant - Interview with Jill Rivoli and Lauren Deckard

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This Week in Hearing

This Week in Hearing

Күн бұрын

Пікірлер: 71
@RosemarieEgee
@RosemarieEgee 7 ай бұрын
I suffered SSHL in my left ear in October of 2023. After much testing and, having to qualify, I am getting my CI in April of 2024. This video just justified that I have made the right decision to get a CI. I am a Nurse and it is almost impossible to perform my duties with SSHL, reactive tinnitus, and hyperacusis. I definitely connected with the participants. Feeling the same as them. I am praying that I will be able to go back to my nursing job after the surgery. Thank you for this video!
@weetabix2
@weetabix2 3 ай бұрын
Just reading this and realised we are in July 2024. Hope the Op went well and that your life is really good now and you’re back to your nursing😊
@jerrysabino9079
@jerrysabino9079 Жыл бұрын
I have been deaf in my left ear for about 10-12 years and wearing a hearing aid in my right,since 1995. My hearing loss is from a combination of working around military aircraft and head traumas. The VA suggested I might be a candidate for a CI. Well long story short my surgery date is 5 April
@tonyquinlan7341
@tonyquinlan7341 Жыл бұрын
How is your CI working out.
@pake000
@pake000 9 ай бұрын
I have been activated for one month, and I'm impressed with the CI. Before I got it, I really had a huge doubt, I just took the risk since I was close to deaf anyway
@Medelcochlearimplant
@Medelcochlearimplant 6 ай бұрын
i am a total deaf individual since birth and went to deaf school and at the age of 20 i got my first implant. then 21 years later my implant broke i got it replaced and got one on the other side and became a bilateral cochlear implant user with Med El in 2023. Great Technology
@NID85
@NID85 5 ай бұрын
How did you get it replaced?do they do the surgery again?
@5RAMAR5
@5RAMAR5 Жыл бұрын
Love it !!!Thank you so much to you all.Really encouraged by you guys .I started my hearing loss journey 5 years ago and today I’m surviving with my residual hearing on my right side (left one is gone) so as audiologist said you got nothing to lose (with the implant).So after this video I will go back where I left with the process.Again Great Video Thank You ,Thank You ,Thank You!!!
@emilypacheco2074
@emilypacheco2074 2 жыл бұрын
This was great to help me understand more. My audiologist said it was like a robot in my ear but Minnie Mouse with Darth Vader for the first two weeks is not so bad. I thought it was forever. My hearing aid lets me hear noises but comprehending what is being said is almost nonexistent. Not knowing where the noise is coming from is very scary at times and I feel lost so much of the time. Thank you so much for all the information and now I know I’m not alone.
@denise3250
@denise3250 Жыл бұрын
I couldn’t agree more - I’m deaf in my right ear - have no idea where the noise is coming from - I don’t know which door to go to when someone knocks at the door - very frustrating - been like this for 5 years now ~ they say get a cochlea implant - still thinking about it - 😎🇦🇺
@danclark3144
@danclark3144 2 жыл бұрын
Thank you, I just got activated a week ago. I have a single sided hearing loss with mild to medium loss in my other ear. So, I am bimodal. For me, the sound was like the Cylons out of the 1978 Battlestar Galactica television series. Very robotic and disharmonious. But, I was prepared for that and have done lots of rehab. So, it has improved significantly.
@demonslayer1196
@demonslayer1196 Жыл бұрын
So how natural does your cochlear implant sound now? How long since cochlear surgery?
@danclark3144
@danclark3144 Жыл бұрын
@@demonslayer1196 I had surgery in July 2022 and activation in August 2022. So, it’s been about 9 months since surgery and 8 months since activation. I have a 95% word recognition in my implanted ear. Sounds are very natural and balanced for me. Even music sounds normal. But, my audiologist says my results are in the top 1 one percent of her CI patients. Everyone will respond in their own way, just as with any other surgery.
@curtisbme
@curtisbme Жыл бұрын
So you are part frakin' toaster now? ;-)
@danclark3144
@danclark3144 Жыл бұрын
@@curtisbme 😂
@TheChernch
@TheChernch Жыл бұрын
Today my one month old son was diagnosed with deafness and this information has given me a lot of hope, thank you.
@jimmorton3009
@jimmorton3009 Жыл бұрын
Thank You so much for this GREAT information, Today is exactly 6 months since my Cochlear implant procedure. I used the interview today as my Brain Training exercise but it was Great to also obtain the information from all 3 of you at the same time
@kathmetro8918
@kathmetro8918 4 ай бұрын
That is what I am doing too. Thank you for this great video.
@RobinTalmadge
@RobinTalmadge 9 ай бұрын
Thank you so much for all your life stories they were very helpful,as my implant is coming in 4 days.
@rcmurrow
@rcmurrow 2 жыл бұрын
Thank you for providing a transcript!
@ThisWeekinHearing
@ThisWeekinHearing 2 жыл бұрын
of course :-) all episodes will include transcript
@cyndichanou
@cyndichanou Жыл бұрын
I was activated on November 16, 2022 and am still working at recognizing the sounds I am hearing. Can you tell me what websites you used to help with that? You said one was like a game of "What's that sounds?"
@jodynoble9982
@jodynoble9982 Жыл бұрын
Tremendous interview! Thank you! Going for my first eval for CI in a few weeks. This was extremely helpful!
@jholland838
@jholland838 9 ай бұрын
Lost hearing in both ears to Ménière’s disease, left first and right a few years later, fixing to get right one activated, left one took a while to get used to but it’s a lot better than not hearing anything
@andreasfromswitzerland4096
@andreasfromswitzerland4096 2 жыл бұрын
Thank you very much for this video and all your information. I got implanted a Cochlear Osia 2, left and right side, 3 months ago, but my doctor told already, in around 3 years I will need a CI because of problems understanding speech, like words and so on. Luckily all is covered by my health insurance. I started 40 years ago with hearing aids, 8 years ago with Baha 5, 2 years ago with Baha 6 and now Osia 2 from Cochlear. I appreciate the technology and I am thankful being allowed to hear. Thank you
@shoaiburrehman3196
@shoaiburrehman3196 2 жыл бұрын
How much is the cost of cochlear implant of osia 2
@andreasfromswitzerland4096
@andreasfromswitzerland4096 2 жыл бұрын
@@shoaiburrehman3196 I am very sorry for my late response but I was out of the country. In Germany the Osia Implant and the Osia 2 soundprozessor with the operation at the hospital cost around 12000 Euros (one side) activation included. Fully covered by health insurance.
@kellygray8555
@kellygray8555 2 жыл бұрын
Im very scared to get my surgery… will I hear music the same??? Ive basically lost all hearing, deaf in my right ear and profound loss in my left due to Ménière’s disease…but I can still hear some great tones associated with my favorite songs. Music saved my life, I would truly miss it. Thank you for this video.🤍
@dianeburch3642
@dianeburch3642 2 жыл бұрын
Wow Kelly! You sound so much like my situation. I just had cochlear implant 7 weeks ago in my right ear. Waiting for my activation. Wear hearing aid in left ear. I too am a HUGE music lover and have been totally without it for almost a year now. Have felt LOST! That is one thing I am very much hoping to get back along with being able to function as a human being again. I also was told hearing loss was because of Menieres disease. I didn't want to do surgery, I just wanted my natural hearing back. But that wasn't going to be, so my only option was surgery. Surgery went great and I had no real pain. Unfortunately I am having balance issues from it, which not everyone will experience that. I'm working through that with exercises and hope to be back to normal soon. Sorry, I can't tell you about listening to music again because I am also waiting very anxiously for that moment. I've needed music to fill a void in my life because I lost my husband of 43 yrs of marriage due to covid complications just about a month and a half before I lost my hearing. So losing two things very important in my life has had a huge impact. I too was afraid of surgery because it was my very first at the age of 66. But, like I mentioned, I knew it was my only option. I hope to be able to update you on music. I have been reading about other people's success with music listening and I'm hoping to be one of them. Best of luck to you.
@danclark3144
@danclark3144 2 жыл бұрын
I think the first thing to keep in mind is that everyone’s recovery and rehab results will be unique to them. That being said, I am about a month after activation. For me, voices are normal and music has returned. A couple of things that I think influenced this outcome are my hearing loss was a little over a year ago, I had worn hearing aids for 15 years before and had built up some good habits, and I put in the rehab work. The very best advice I have is if you have the implant develop good habits and put in the work on rehab. I wear my CI from the time I wake up until I go to bed. I average about 6.5 hours in active listening situations. This include the rehab practice sessions, streaming tv and KZbin, streaming music, going to stores, and going to restaurants. I suffered a stroke when I was 49 and learned the hard way the more effort I put into rehab, the more I got out. After a year and a half I fully recovered. That’s the exact same mindset I went into CI implantation with. There are no guarantees in life. But, it’s a sure bet that things won’t improve if you don’t do anything. I wish you the best in your future.
@machoquietmangray92
@machoquietmangray92 Жыл бұрын
@@dianeburch3642 you are strong Diane in every way imaginable. Thank you for replying and taking the time to read what was going on with my hearing loss, and also for sharing your journey with me to give me insight and hope. I want you to know that you didn’t lose your husband, he is with you forever guiding you with purest form of love. Energy can never be destroyed.
@shrutinvlog3778
@shrutinvlog3778 Жыл бұрын
Have u tinitus
@shrutinvlog3778
@shrutinvlog3778 Жыл бұрын
Have you tinitus at right ear
@michaelgrant6862
@michaelgrant6862 10 ай бұрын
I just had my Cochlear Implant two weeks ago and I tested to see if the Kanso 2 would attach #4 magnet. Cannot feel any magnet pull. Cochlear representative said it takes several weeks for the swelling to go down. I do not feel any swelling. A paper click will not even stick. Has anyone experienced this?
@sirijensen9839
@sirijensen9839 Жыл бұрын
I do not jave a hearing loss, I just wanyed to learn and understand! Thank you this was so interesting! The interwier was a really proffesjonal one.
@KawtherHaneefa
@KawtherHaneefa 6 ай бұрын
Is this cochlear implant available for 30years adult
@braceletsbykatrina1424
@braceletsbykatrina1424 Жыл бұрын
Do you think I will get my herring back on my ether side with my 2 ci
@humanexpert2088
@humanexpert2088 Жыл бұрын
did the Cochlear Implant reduce Tinnitus? I have SNHL in left ear and a candidate and wanted to know if Cochlear implant will reduce or get rid of Tinnitus?
@denisenguyen9542
@denisenguyen9542 Жыл бұрын
Yes, it helps my tinnitus tremendously. Before my cochlear implant surgery, my tinnitus was loud because I lost all my hearing in my left ear. After the surgery, I can barely hear my tinnitus during the day. But at night time, it’s more apparent since I have to remove my processor.
@Goldgirl1020
@Goldgirl1020 6 ай бұрын
Same here with the loud cafes and restaurants and music etc. live bands are hard too.
@LovedbyYah
@LovedbyYah Жыл бұрын
I’m still scared of getting this I have preexisting conditions so I’m Just nervous
@dezal317
@dezal317 Жыл бұрын
My mom is getting today and is very nervous I’m praying her and you and I hope all is well 🙏🏾
@aopet7615
@aopet7615 Жыл бұрын
im not sure if it works for the hearing people (19:03) but when there's a lot of wind I use my hand and make a bowl shape and cover my ear and it prevents wind from blowing onto my ear.
@donaldtrumpy5914
@donaldtrumpy5914 8 ай бұрын
Me i'm planning to get a cochlear implant for my right ear because i don't have eardrum on my right ear due to infection..
@Familylawgroup
@Familylawgroup 7 ай бұрын
The biggest fear for me is that you loss all hearing, no matter how little you have, in the ear that gets the CI. It’s hard to know when to cut that tether.
@markreddoch6047
@markreddoch6047 2 жыл бұрын
How expensive is it to replace the processor when needed?
@Imatopher218
@Imatopher218 2 жыл бұрын
Insurance should cover the replacement when the device is at “end of life”. Typically every 5 years.
@aopet7615
@aopet7615 Жыл бұрын
for a waterproof kit will cost you around $300
@iulianatatianina2160
@iulianatatianina2160 Жыл бұрын
Thank you for sharing!
@donnalichtfuss7527
@donnalichtfuss7527 Жыл бұрын
I can hear on my phone if it's on speaker, but not if it's through my ear. Phones in general are miserable.
@rydhian444
@rydhian444 9 ай бұрын
Hola!! les escribo desde colombia soy sordo de nacimiento (padezco de hipoacusia bilateral profunda) ya voy para un año de ser implantado y 5 meses de la activación del procesador de audio (processor 7S) de la marca COCHLEAR al comienzo fue muy duro el post operatorio (5 días) luego recibir el procesador y su activación 3 meses después la verdad en mi apreciación personal me deja con esa sensación de que escucho con mucha interferencia ( como un radio con señal con interferencia) los ruidos potentes se escuchan bien los animales también pero las voces humanas en ocasiones son inelegibles o no se escuchan bien aca en mi país más exactamente en mi ciudad natal (Bucaramanga) el otologo me asegura que esto es un proceso largo que puede durar un año o un poco más para adaptarme a la audición con implante cochlear a veces me siento defraudado por esto teniendo en cuenta la avanzada tecnología y su alto costo y aunque voy a ser implantado en el oído derecho tengo muchas dudas de si operarme o no voy a esperar a que me hagan el 3er mapeo (en julio) y veremos como me siento y qué decisión tomó , gracias por este video y la información que nos dan para entender mejor cómo escuchamos nosotros los implantados alrededor del mundo deberíamos tener un grupo en whatsApp o Telegram !! o un canal en youtube !! ah les cuento que mi ingles es A2 y mas o menos les entiendo ! pero les escribo en español pues no soy muy buen en escribir en ingles aun !!
@mannyespinola9228
@mannyespinola9228 Жыл бұрын
This video made me type "voice of Minnie Mouse" in the search bar
@vegetossgss1114
@vegetossgss1114 Жыл бұрын
Thanks for this but WE are waiting for hair cells REGENERATION in the inner ear. All our focus and energy should go on that, to restore full and natural hearing abilities, instead of CROS, BAHA, or cochlear implants, that are just substitute, and may prevent someone to benefit from hair cells regeneration in the future (it's the case for the cochlear implant).
@carols65
@carols65 Жыл бұрын
So you’re saying that if a patient gets a cochlear implant, they will be unable to receive hair cell regeneration therapy after the implant? That’s my biggest question.
@rydhian444
@rydhian444 9 ай бұрын
@@carols65 how many years for this ?
@Kainkrup
@Kainkrup 2 ай бұрын
I think that yes the patiebts with cochlear cant benefot fron the stem cell regeneration but that no exist so we have to wait until know if works of its possibble ​@@carols65
@LovedbyYah
@LovedbyYah Жыл бұрын
I love music to much even if i only beats
@Kainkrup
@Kainkrup 2 ай бұрын
Maybe the ai could make an improvement innthe ci its so frustrating know that this isnt a real solution has i used to think, maybeb the ai could make an improvement to hear clearly and understsnd músic its hard lost music the humans heal with the music and everybody had the right to enjoy it
@mattgibbs9576
@mattgibbs9576 Жыл бұрын
Soooo does the Minnie mouse go away or do you just get used to it?
@kimbarber4526
@kimbarber4526 Жыл бұрын
Hi, short answer? Yes. It’ll take time, and in my case, several repeat visits with my audiologist (for retuning). I probably had 90% comprehension after the first year, but it took 3-4 years before I got the best it’s going to get. I recommend listening to any and all the music you remember (over and over, it was a great “training” aide). I “switched on” in 2005, and it’s been life changing
@tenniskinsella7768
@tenniskinsella7768 Жыл бұрын
I on my second implant the sound gets more normal in time Anti cochlear people slways ssy the sound is not normal it isn't at first but it sounds normal pretty soon.. First time I had implant I took did weeks to hear birds Rest assured the doeevh will sound normal soon My situation is I had an advanced bionics speech processor which they stopped otoduces fo then gave me a horrible body worn one. Doni had operation to have advanced bionics marvel one but I had complications and it didn't fit. So they gave me a cochlear one I was a bit upset when I found inhad been given a different one but I think it's going to be fine. It's much neater than the marvel one.was
@sterlingferguson1704
@sterlingferguson1704 Жыл бұрын
For most with, the cochlear implant, there is no clarity.
@linorful
@linorful Жыл бұрын
Holistic healing and she lost her hearing that tracks. So if you are not a doctor dont pretend to now what you are doing
@scallawagon713
@scallawagon713 Жыл бұрын
Lauren has the itches!
@waynetaylor5227
@waynetaylor5227 Жыл бұрын
you are missing nothing without rap music. there is some good poetry in it but the "music" is all the same
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