Life with EDS and P.O.T.S

[@Eva-vv7ox]

Thank you for sharing Rain.... Your beautiful girl. 💕💕💕

[@MountainRainRain1luv]

Love you Eva miss you bunches 🤗💙

[@Eva-vv7ox]

@@MountainRainRain1luv I miss you to. Dont you ever think your a burden sweetheart.

[@mikeumphrey-waytogokennels2526]

Rain with everything u have going on your still beautiful inside and out! Please take care of yourself and as always I'll be praying for you! 🌹❤🤗

[@MountainRainRain1luv]

Thank you Mike 💗🤗

[@ToddTheGunGuy]

Keep up the good fight and thx for sharing. Need to keep u healthy and rooting for ya. Keep fishing and living the outdoors. Great medicine🥰🥰

[@MountainRainRain1luv]

Thank you so much. You all help me so much 🙏🏼💙💙

[@shookup6599]

Todd The GunGuy..💯💯

[@ginalberio2173]

Shout out done from babe alberio thank u

[@elliegoldie6140]

Darlin Rain💖 you are so beautiful and like these autoimmune conditions you cant see them.At least your family understand. MY husband spoke with my daughter and what I've been hearing from others I put illness on.l make excuses not to do things.lm in hospital every fortnight to get IV magnesium as I'm losing it and the nausea,cant lift my head,sweating soaking wet yet my body is stone cold,l put some make up on to look better so I'm accused of faking illness.Rain 💖at one time you couldnt keep me in home,Now bed is my new home.l try to do little bits then pain starts so l have to lie down,who in their right mind would fake or want to live like this, This is about you today but how different families are .Your momma loves you dearly and you her ,the sun shines when you laugh and talk together and make us laugh.you have your 2 boys I'm sure they love their mama.thankyou for coming on today and explaining these illnesses. Why us and many thousands more who struggle each day, If you can we all love to hear you sing and play with grandma💜.only when you feel up to it. Love you Rain💖 you are like the sunshine after the rain.xxxxxx💖👍👍👍👍💖

[@MountainRainRain1luv]

Ellie you have a big piece of my heart! I know what it's like living in bed. It can be very hard most days. Just keep your head up and find something in everyday that is good. Keep a sweet heart even tho it's hard . my heart and prayers go out to you always ❤🙏🏼. And everytime I see a comment from you it makes me smile so big. I just hate that you are so sick too. Just remember days you are at your worse , say tomorrow will be better..i hope you get to a heart doctor soon and eat bananas the are full of potassium..please keep me updated 💙💙😘xxxx💙💙

[@KatherineWithFriends]

Your s doll God have you here for a purpose love you to the 🌕 and!! When you get your gift don't go shaking real hard to make yourself tire love you

[@MountainRainRain1luv]

Aww Katherine I love you. Thank you so much. And thank you for making my dream come true. I won't over do it 😁🌹🌹🌹

[@KatherineWithFriends]

@@MountainRainRain1luv please dont lol

[@whatujackintv.talkcast]

Peace and blessings: continue you music and we stand by you

[@MountainRainRain1luv]

Thank you so much..you have been a big inspiration to me everyday. I thank you for that 🙏🏼💙💙

[@CoffeyOutdoors]

Nice video. Take care of yourself mam Have a great evening

[@MountainRainRain1luv]

Thank you Coffey and thank you for your videos I love watching them 💖

[@anthonyholmesoutdoors1837]

We have a son with Cystic Fibrosis. Everyone has problems but some are extreme. It sounds like you have a good bead on things, please take care of yourself. I know it is hard to do on bad days, but your worth it. Praying for you always.

[@MountainRainRain1luv]

Thank you so much. And your Son is in my prayers. Bless you and your family 🙏🏼💙

[@TheJuggaloFishingPosse]

Prayers your way rain. You're tough!!! Much love

[@MountainRainRain1luv]

Thank you very much..im still smiling through it all 🙏🏼🤗

[@witchmoon11]

Thank you for sharing this. I am going thru a auto immune stuff. Had heart attack at 43 Spondololethesis in spine and small fractures Skin hurts Heat intolerant And omg.... The guts.... And much more..... I had syncopy the other night first time. Scared me. I am having heard time no insurance. Filed for disability. Need insurences soooo bad rain. They turned me down first time, speaking now. Yes hard to function. The dishes can feel like climbing mountain with no sleep in the heat! Omgosh.. thank you... Yes.... KZbin has been theraputic. Met some great. Goodness how do you deal with the guts? Struggling right now with this. Tried soooo many things. I'm so glad you made this video. Goodness me. It sucks feeling sick all the time. I feel like a burden too. I know people who love me hate to see me in pain. They don't know what to do. I try to hide it but I been in a task chair for almost three years now. I can't sit or stretch out like I used to. It's to painful. The steroids they keep giving me for pain is so awful. The guts are just....like liquid acid n glass. No one I know personally really understands the distress. I cry over everything.. of course laughing in between. I been trying to heal myself in the mean time. Since I'm not working now it's hard to go to Dr. And my teeth.. I've had all the top ones pulled... Now I have nerves showing on the bottom. So I must go have these 9 teeth pulled and get fit for upper n lower dentures. Goodness. But I am thankful to even be here to feel anything because I love life too. I hope disability comes thru so I can get some help... Good help. Sometimes it's like I'm sitting screaming for help and the world just keeps turning, cries unheard... Bless you for holding this spacing n allowing the sharing. We are ok.... We are... I love you. So appreciate your channel. It has been hard loosing my mom. I just want to lay in her lap and let her hold me. I I love you mountain Rain❤️🙏✌️🥰 I'm okay... We ok girl!!

[@witchmoon11]

PS.... I would so love to go fishing with you❤️

[@witchmoon11]

kzbin.info/www/bejne/sIHGiWZ3lrJ1opY A song my daddy used to sing to us.. I sang it here... I love you❤️

[@MountainRainRain1luv]

@@witchmoon11 aww Honey I'm so sorry you go threw this too. I am tired everyday of my life and I really don't go many places...mentally it's been hard. But, Jesus Christ has help me so much. Took all the depression away ...i laugh a lot now. I feel me getting better daily but only through God Jehovah and his son Jesus Christ.. I do feel your pain , and your hurt. I will be praying for you always. And, I am very happy we met on here. Your comments brighten my day. But, I really understand your pain now. I'm with you hun and let's not give up together 🤗🤗💖🤗😘

[@witchmoon11]

@@MountainRainRain1luv No ma'am, never give up on either of us!! Thank you for being a ray of sunshine to me. I don't have any friends physically around me but I have two grown kids n 5 grandbabies... Really ornery cute ones!!! They are my every breath. Thank you for being here and for being so kind. I love u... Night night Rain🌹🙏❤️

[@CruzesLouisianaOutdoors]

Happy New Year from Louisiana :-). Hope its a great one!

[@MountainRainRain1luv]

Thank you and you too 🤗💙

[@Andrezzz2u]

Despite the obstacles that has been givin to ya, You ought to be proud of the person you turned out to be.♥ Thank You for the video.

[@MountainRainRain1luv]

Thank you so very much for your love and support 💙

[@garyYeshuaisking]

Andre' yes your a nice person on KZbin 💖

[@victorservantofthelivinggo8081]

Hello Rain..Praying for you always. 🙏 Regards Victor. ☝🤗

[@MountainRainRain1luv]

Thank you for your prayers and your videos. They mean alot to me 🙏🏼🤗

[@victorservantofthelivinggo8081]

@@MountainRainRain1luv I have healing scriptures on there. Also I met your mom online today. ☝🤗🙏

[@MountainRainRain1luv]

@@victorservantofthelivinggo8081 I would love Scripture 💙💙 and I am so blessed to have my momma. I think she is my biggest fan lol 🙏🏼🤗

[@victorservantofthelivinggo8081]

@@MountainRainRain1luv By the way I am going to a private beach and cabin on the beach to shoot for upcoming videos. Will post some ocean and beach pictures/ for you. God bless praying for you. You are welcome to my channel aways.☝🤗🙏

[@MountainRainRain1luv]

@@victorservantofthelivinggo8081 God bless you thank you so much 🤗🙏🏼

[@rollinglloft706]

I had no idea 🙏🙏❤ thank you for sharing a part of yourself with me

[@MountainRainRain1luv]

This is why I'm not on YT a lot..its been a rough 5 or 6 months for me now. But, I am having surgery next week. So, 🙏 I should be feeling better soon 🙏 ❤❤

[@legholdchuck]

Bless u my friend stay strong u got this 💪

[@MountainRainRain1luv]

Thank you I'm doing ok. Just wanted to share alittle about me. Bless you so much 🙏🏼🤗

[@MaiLingLemPrettyflower2618]

Hey love. Praying for you 💕🕊

[@MountainRainRain1luv]

Thank you. I pray for you too Mai ..you are beautiful inside and out 🤗

[@mbarreto8133]

Stay strong 💪

[@MountainRainRain1luv]

I'm trying always 🤗🤗💙

[@shookup6599]

Thank you,,Mbarreto 13

[@fordfan47]

Praying that the Lord gives you the strength to keep going

[@MountainRainRain1luv]

Thank you so very much God bless you 🙏🏼🤗

[@TrappingTheMitten-JohnHowell]

Many hugs MR

[@MountainRainRain1luv]

Thank you so much John 🤗🤗

[@garyYeshuaisking]

Sorry not feeling so great but you push out such a good vibe 100%💖

[@MountainRainRain1luv]

I love life and try everyday to see beauty in everything thank you. And I love you singing so much. I smile everytime 💙🎸

[@shookup6599]

We,always Gary Coughlan, listen🎶🎶

[@mp3ste1]

wow Brave lady getting on with it , not once do you moan and winge with self pity , your an inspiration x

[@MountainRainRain1luv]

Aww thank you Mp3 I just take one day at a time and find good in something 🙏🏼x

[@OddGawd]

🤗💙🤗💙🤗💙🤗💙💯

[@MountainRainRain1luv]

Yungp you are a sweetheart sending you big hugs 🤗💙🤗💙🤗💙🤗

[@MaiLingLemPrettyflower2618]

It’s like you’re describing my health to a T with everything 😣

[@shookup6599]

We,love you,,💜💜

[@MountainRainRain1luv]

I'm here for you. Love you so much Mai 🌺 you are like family to me 💖

[@garyYeshuaisking]

Wow you can still put your feet over your head wow 😮 xx

[@MountainRainRain1luv]

Lol yes 😂 xx

[@scottiepimpin9043]

❤❤❤

[@MountainRainRain1luv]

Love you Scottie my Brother ❤️🥰 🙏🏼

[@garyYeshuaisking]

Have you tried manuka honey for your I.b.s it has really had help a lot of people I know and me hope you can get it in the u.s 💜

[@MountainRainRain1luv]

I have not tried that. But, I definitely will...thank you very much Gary you are a blessing 💙

[@garyYeshuaisking]

It’s really good for so many thing look into please 🌈

[@MountainRainRain1luv]

@@garyYeshuaisking thank you I will 🙏🏼

[@shookup6599]

Baby girl, I am coming over to your Channel,maybe I can Help you,,Love you,,🙏👼💓💓

[@MountainRainRain1luv]

Love you momma 💙💙🤗

[@urbanproductions4852]

It could be worse...you could have a flat head.

[@MountainRainRain1luv]

🤣🤣 so very true xx