A Day In My Life With POTS

In today's video I vlogged a day in my life with POTS, from the symptoms I have on a day to day basis to some things I do to help manage it. Hope this video can spread awareness and help others out there who also have pots!
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For this video I filmed what a day in my life with POTS is like! I had so much fun making this video and I hope you enjoy!
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How old am I: 19
Where do I go to college: Towson University
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[@ericajean2828]

Wow you’re way more active than me! I’m so fatigued all the times and nauseous after everything i eat 😭😭😭

[@ChronicallyLindsay]

Yeah its def different for everyone and some days I am def more active than others. Fatigue and nausea are the WORST, sending love your way!

[@mollylpstv]

ME TOO!!!😭

[@saskiabullen5487]

Same

[@prathamrballal1229]

How is ur pots now?

[@troublezmalone8591]

I get sick or exhausted every time I eat too.

[@randrwilliams5732]

Thanks for sharing Lindsay. I went for 13 years before I was diagnosed with POTS. I used to take those same salt tabs and just started keeping Sea Salt and water through the day. I take at least 4-8 crystals at a time and when I get the tremors I always take some salt and water and just relax for a while. I wear thigh high or full compression stockings every day from the time I wake up until I get back in bed, which help tremendously. I actually use a wheel chair with no foot pedals and walk and stand frequently. This helps my daily energy. Small frequent meals helps with the nausea. Unfortunately heat exacerbates our condition. I monitor my blood pressure and sit as soon as I feel my heart racing. I thank God for the Mayo Clinic and finally getting a diagnosis 6 years ago. None of my previous doctors had even heard of POTS, including all of the neurologists specializing in MS and so many other conditions.

[@mercedes.de.losangeles]

The stairs! The stairs are what kill me and I get what you're saying. I'm a dance teacher and for the most part I'm fine in class, but make me go up a set of stairs and I feel like I could fall flat on my face!

[@atthecrosshealing]

Yes! I use to teach dance also and could dance fine. But go upstairs and I suddenly becomes quick friends with the steps

[@prathamrballal1229]

How is ur pots now?

[@luxsarrazine1141]

I also have POTS and I want to thank you for including the stairs. This semester (high school) it seems like I never have two classes next to each other so I’m constantly having to walk across my school and go up and down flights of stairs which I also have problems with. I can’t count how many times my friends and I have been late to class because I had to sit down at the top of the stairs due to difficulties breathing, chest pain, and lightheadedness and they don’t want to leave me. Thankfully most of my teachers are understanding and have worked with me to even on occasion send a friend to my class to inform them I’ll be late. Thank god for good teachers

[@chronicallyjanine1506]

I'm also in high school and I have also have pots and I cant ever make it to class on time stairs are so hard for me

[@troublezmalone8591]

It is really nice to know that I'm not the only one. There's not many here that understand what this is and I get weird looks all the time, even from Doctors. I was just recently told that Neurologists are not staying in my state. Hopefully people feel inspired to learn how to help people who have POTS. Thank you for these videos.

[@ellemcallister2157]

I have pots and have to go children's hospital and another doctor for my pots and this video has helped so much thank you!!!

[@cliffpelletier1405]

I recently have been having dizzy spells and I can't stand on my feet for more than a few mins, have fallen several times. Using a cane now. Started back in january when I was on an anti anxiety med. Can't really go too many places without falling asleep standing up. Thought it was narcolepsy, seeing a neurologist monday. Stay strong you are a beautiful person ❤️

[@annapatty4608]

Thank YOU, the stairs part confirmed what happened to me one day. I went up stairs and it was like I was dying I couldn’t catch my breath at all, no air in or out. Heart beating so fast. My friend was visiting and she was in shock she never saw me that way. I am going in for testing on Halloween. I sure hope they see I have it, I been sick a long time with no help from doctors.

[@annapatty4608]

Mia Folwell Awww good luck!

[@atthecrosshealing]

Sometimes going up or down stairs makes me feel like a drunk person looks. Everything spinning and swaying.

[@MrsYoung-in9ov]

I feel so validated now, I have always made my daughter or husband go up or down the stairs to get stuff because the thought of getting up from the couch and dealing with stairs is just so overwhelming. Maybe I’m not just lazy, I have POTS! 😂

[@philiplaw5789]

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[@prathamrballal1229]

How is ur pots now?

[@Tiffythompson17]

I just ordered a pair of those socks and scoped out some holiday patterns for later🎉🦓

[@morganleah5053]

I have POTS too. My symptoms started gradually and hardly occurred. Now they have turned into a daily occurrence and is something I have been monitoring (I am also a nursing student) so this has been extremely difficult to deal with in nursing school. Has anyone else in these comments dealt with their symptoms getting worse almost suddenly with time?

[@ChronicallyLindsay]

Same thing happens to me, i'll be fine a few days here and there and then all of a sudden out of nowhere it's like my POTS is like heyy. One of the many annoying things with pots, its so unpredictable and can get worse for no reason or for a clear reason!

[@prathamrballal1229]

How is ur pots now?

[@chronicallyc]

omg you go to towson thats so cool i just transferred there!

[@ashyyyr8131]

and salt stick brand is amazing!! ive never been able to find them at the store so i do amazon

[@Ana-dq5tm]

very accurate day in the life as said from a fellow POTS patient!

[@ChronicallyLindsay]

Thank you so much! I’m glad it was an accurate representation!!

[@prathamrballal1229]

How is ur pots now?

[@ashyyyr8131]

this just fills my heart with joy knowing im not alone...ive been having a rough week and yesterday i got admitted to the hospital....curently on an iv and breathing macine

[@ChronicallyLindsay]

You are definitely not alone ❤️ sending you good vibes lots of hugs and well wishes! ✨

[@ashyyyr8131]

awweee ty!!!!lots of love to you too!!

[@extragum6091]

I have POTS too! I'm glad I'm not alone

[@pawzforlife3783]

Yes the truth I have pots and I'm sitting here watching it going yep that's what I do

[@Thelittleclipstore]

Thanks for sharing this made me feel less alone in this.. I’m curious if u tried any diets like keto or carnivore and if it helped ?

[@heidiahover6096]

I take the same salt tabs and I get them from CVS. They are at the pharmacy so you have to ask the pharmacist for them

[@atthecrosshealing]

My cvs never heard of them

[@kyq1000]

Seriously appreciate you sharing this!! #potsie

[@ChronicallyLindsay]

So much love ❤️❤️❤️ #potsie

[@Hannah591]

I wear compression socks all day in work and I take angina medication to slow my heart. Why don't you try those?

[@snowbunny2863]

I have had pots since I was 18 I'm 31.i understand how u feel.

[@prathamrballal1229]

How is ur pots now?

[@EvaAntonia1]

Interesting video^^ I think, I actually never heard of POTS before you mentioned it:)

[@ChronicallyLindsay]

Thank you! I’m glad you have now heard of it! :)

[@marcgomez6404]

My blood pressure shot up when the cardiologist stood me up after sitting that's why she wanted the tilt table. Is that a pots thing?

[@amberdomander487]

Your experience is identical to mine :( What have you been able to do for brain fog, if anything? Raising awareness is key, thanks for sharing 🌺

[@ChronicallyLindsay]

I do lots of sticky notes + write everything down on my phone or try to get someone to remind me bc I will forget bc of brain fog if I don’t! Sending lots or love and spoons!

[@heyitssharmander]

Have you been tested with asthma or small fiber neuropathy? I have SFN which is the reason for my crappy lung function, and likely POTS - I have a test in Dec. I also had unbearable pain with SFN so I'm on gabapentin which changed the whole shitty health game to bearable. Haha

[@heyitssharmander]

Also holy sh**, I also went to TU

[@abigailjackman1445]

I have Pots but I usually don’t faint but I always feel like I’m gonna go faint and I have to sit on the floor

[@pyro2521]

I was just diagnosed with POTS and I'm starting college in the fall. I would love hear your advice on how to survive a 20 minute walk across campus.

[@elijahnlindaallen383]

When I was walking across campus I always sipped water as I was walking from a water bottle or sipped gatorade and tried to pace myself and would carry like a handful of salted peanuts to eat. Otherwise I'd be sweating profusely and out of breath and shaking.

[@krissarasexydiva1781]

How often do you wear compression socks

[@ChronicallyLindsay]

Mostly only during times where I may be standing for long periods and a lot of times when I exercise!!!

[@aracelirebollar2616]

Wow girl I was diagnosed with POTS the doctor gave me metoprolol but I just took that pill one day and i stopped bc I’m scared of it like I don’t want to be taking any medications... like honestly living with this it’s hard I feel sad bc I can’t do the things I used tooo do like I used to have two jobs now I don’t even work and it’s crazy:( well I still feel blessed but yeah we gotta learn to deal with this but like I said I don’t want to take pills for my entire life. God bless y’all

[@prathamrballal1229]

How is ur pots now?

[@atthecrosshealing]

I literally just got dizzy when the video started 🤦‍♀️

[@nickfitz9800]

Is there any testing to confirm if you have POTS. This describes a lot of symtoms I have but my Dr. hasn't been able to tell me whats wrong yet.

[@christopherryder87]

Nick Fitz unfortunately pots is diagnosis by elimination so you’ll have to disapprove every other possible thing wrong (I had to go through about half a year of testing I went to a pots specialist by the end as I wasn’t able to do anything but the medication really helps)

[@nickfitz9800]

@@christopherryder87 Thanks for the information.

[@paulconner4614]

Nick, Ask your Doctor for a Tilt table test. This is usually done by either a Neurologist or Cardiologist. What they do is have you lay down and they take you blood pressure and heart beat. Then you stand up and they check it again. If you heartbeat increase by more than 30 beats a minute then that is pretty conclusive that you have POTS.

[@lillicommers147]

go to a cardiologist. they performed a test for me where they had me do postural changes and monitored my heart rate and blood pressure :)) a lot of people don’t get diagnosed for a long time and with a lot of testing and this is the easiest way to get a diagnosis

[@kittykatkattitude9777]

There are test that can be done, to check for pots. tell your doctor you think you may have pots.

[@deanabele1622]

Have you had an MRI? They might be able to see something useful in your brain. Have you gone to a doctor to ask about medication instead of salt tablets? Also I think compression socks that go up higher are more useful.

[@robtheslob1157]

I’m pretty sure I have pots just don’t have a diagnosis yet

[@petrapack3897]

Rob The Slob do you have a diagnosis yet? I’m pretty sure I have it too

[@robtheslob1157]

Petra Pack yes I got diagnosed it’s horrible but gotta make it work

[@debrav5702]

@@robtheslob1157 have you found anything that helps

[@janedavis9930]

Vitamin B1