Liver Transplant Patient Testimonial - Emory Liver Transplant

[@brooklynnchick]

I’m so grateful that you got the help you needed, Simone. My transplant is coming and stories like yours are encouraging and inspiring for me!

[@jjbentley9]

Did you get you're transplant how long did you have to wait.

[@brooklynnchick]

@@jjbentley9 I did get my transplant! My surgery was on October 31st, fitting enough considering I woke up with about a dozen IV lines feeding directly into my jugular; I bore a striking resemblance to Medusa 🥳. My transplant was done by living donor so I was only on the list for as long as it took to find someone with matching cellular markers who could donate enough tissue to get me healthy again. I was seeking a donor for around 9 months before my transplant team located my match. He’s married to a good friend of mine. He was in hospital for about two weeks, recovered at home for about three more weeks and then went back to work. I was in hospital for three weeks after the surgery but in and out since about a week ago; my surgical and liver teams have since realized that I was quite a bit more ill than they initially believed. My physiology looked at the list of complications and began treating it like a bucket list. I had a wound infection, blood clots, chest pain, drug allergies, internal bleeding and fluid accumulation, the list goes on. We had to live away from home for nearly 3 months. It is a major surgery with major risks of complications; none of what’s happened is anyone’s fault, it was the risk I took agreeing to the surgery. You pay up front for big reward later in any transplant surgery. Are you waiting for a transplant?

[@garyrygh6181]

I had my Liver transplant done at Emory also on 3/19/2017, great Hospital with great people. I will be coming up on five years in another month, it was an adventure I will never forget

[@jjbentley9]

How long did you have to wait for transplant. I have this and I am scared.

[@garyrygh6181]

@@jjbentley9 I think it was about a year before I received my transplant. This March 2023 will be my sixth year post transplant, every three months I go and get my Labs done locally and they are sent to Emory and if everything is OK I won’t hear from them. I still take low doses of Tacrolimus (Prograf) and I will for the rest of my life.

[@brooklynnchick]

@@jjbentley9 You can do this! There will be hard days and you will hate protein supplements/powder/drinks/bars/snacks/etc. because they will make you eat so much high protein food afterwards but you can DEFINITELY do this. Feel free to reach out with any questions. I just got home after 3 months of recovery in UC’s program at the Aurora CO campus. I can send you a packing list 🙂 whatever you need, dude!

[@laquishajordan7076]

Grateful, Grateful, Grateful!!! For the entire liver and kidney team/staff at Emory. July of 2016 I was given a second chance at life. I can't describe the amount of relentless effort, compassion and dedication of the physicians, surgeons, nurses and team at Emory. I'll never forget that life changing moment and I live everyday with much gratitude. Its truly a blessing to be able to live a comfortable life again. I pray for healing for all.

[@brooklynnchick]

So happy for you! My liver transplant team is at UC in Aurora, CO. I feel the same about them!

[@sybrik5605]

Dr Magliocca didn't do my liver transplant but he did save my liver at Shands. I had stricture in duct . Thank you again Dr Magliocca! Miss you at UF

[@simonewhitehead6835]

He really is the best. So humble and down to earth. I was so blessed to have him as my surgeon.

[@drsuessl]

Tell Dr Field Willingham “we miss and love you” from Anne and everyone else at Mass General Hospital. He is simply wonderful ❤️❤️

[@AJ-hy9si]

What a beautiful story. The MARS machine is amazing. I'm coming up on my 10 year liver transplant date. The MARS machine wasn't available then. I have a dear friend that needs a type O kidney right now and is about to have his intake appointment at Emory. The donation of life is the greatest gift you could ever give.

[@drsuessl]

8 ½ years for me !!!

[@sherdilegamov2913]

I wish everyone live healthy life . May God take care everyone!

[@michaelirwin1887]

Congratulations. I had my transplant about a week before you did. I'm about to revisit my transplant team for my second anniversary and look forward to it. Life continues to go well for me and I trust the same is true for you. All the best.

[@simonewhitehead6835]

Hi Michael, I hope you are still doing well! Cheers to 6 years!! Fortunately I am still doing so so well. I was able to have another baby too! Emory is such an amazing place to be.

[@venomff7309]

Hello I hope you guys still healthy Waiting for your response

[@shugarbxxymeh2482]

It’s my 8th day after my liver transplant I was with advent health they’re really good saved my life I had a liver that was bad 😊 but it’s ok I’m well :)

[@lokeshwaranrao1692]

Hi

[@headshooter7028]

God bless you

[@0s4m4-5]

My fathers surgery is tommorow, I can't wait to see him healthy!

[@samyarashid9736]

hellow dear ...did your father surgery gon wel...hwz he now...my sis s surgry is tomorrow ...we are very much worry ...

[@prshess]

I had my surgery about a year-and-a-half ago and I feel better than I've ever felt in my entire life. I hope all your families experienced the same results. Going through liver failure it's just awful for everyone involved and I'm so sorry you all had to experience this.

[@venomff7309]

How's your father I hope he still healthy

[@rheedixon192]

Why don’t these facilities give updates on 5-7-10 years later?

[@junegoss3278]

Vthanks Emory for saving my life. Dr, Ram Submaraneous is still the liver specialist I see and he is wonderful. Thank you organ donors.

[@joealvarez5893]

May God-bless Seeing your storyGive me hopeMy wife is 62 years old and do forever transplant in AugustWe've been together 44 yearsAnd I don't know what I would do without herWe've been fundraising to earn money for lodging for after surgery costs insurance only pays for surgery God's blessed us for a lot of kind people have been helping us and we're close to our goal or go make God-bless you and God-bless all those doctors that help people that need this Life saving surgery 🙏 Aman

[@simonewhitehead6835]

Yes!! I am still doing wonderful, 6 years later!! It is so hard for the caretaker; as well, so please take care of yourself too. My husband was amazing and it sounds like you are too!

[@joealvarez5893]

@@simonewhitehead6835 Happy to hear you're still well my wife and I are happy You're still well May God continued blessing you Keeping you healthy 🙏Aman

[@tommyexler6955]

Good for u! Mine was over nite too.

[@simonewhitehead6835]

Thank you!!

[@jessymode]

im going through this dilema with my father he had full liver transplant now hes on meds and is so different im scared hes going to start making bad decisions hes taking 46 pills a day and a shot he dosnt live in the same city i dont know what to do

[@drsuessl]

Just let him know that you love him. You don’t have control. It’s his job ❤️. I wish he didn’t have to be on so many medications. I had my transplant over 8 years ago and doing well.

[@jessymode]

@@drsuessl he seems better now he was just acting like a 17 year old when he's 65 from the steroids

[@simonewhitehead6835]

“Roid rage” is very much a thing. That first year is so hard. I currently am 6 years out and only take about 10 pills a day. One thing at a time is what my nurses & doctors taught me. I hope your dad is doing well.

[@zunairamubeen6636]

How much total cost of liver transplant?

[@beckybell4900]

That's hard to say. When I had my transplant, they would not even talk to me unless I had insurance. At the time, I had Florida Blue which is an insurance for low income people. It paid almost every bit of my surgery. So you don't have to have an expensive insurance. I guestimate the surgery and hospital care before and after was close to a million dollars. I was in the hospital 4 months though because I had other issues.

[@rikasilkcreations1500]

how much for full liver transplant expenses

[@bendover-bz4bc]

@ dollars?