Living Unfixed

ABOUT:
On February 1, 2020, twenty people living with chronic conditions began a 24-month journey together. They all received an email with a prompt, a question or an idea to help them explore a topic around living Unfixed. Then they set up a tripod and recorded their response with their smartphones. Some are living with the aftermath of a cerebral stroke, others are struggling with autoimmune disease or daily, debilitating migraines. These honest, unpolished moments are at the heart of the unfixed state - the highs, the lows and everything in between.
On the first of each month, they will receive a new prompt. Subscribe to our channel to stay up-to-date on the monthly community videos premiering exclusively here on KZbin!
FOLLOW:
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Twitter - unfixed_media
Thank you to our partners and collaborators for believing in us, bringing healing and advocacy into your own circles and helping us grow our audience to create a more informed and empathic world. We can't control what curve balls come our way in life but we can decide what to do about them. We are endlessly inspired by the people and organizations choosing to bring positivity, awareness, and love into some of the most challenging of places. Please take the time to learn more about all of their extensive efforts within the chronic illness communities - Invisible Disabilities Association, Our Odyssey, Solutions for a Better Day, Inspire, Health Story Collaborative, VeDA, InvisiYouth, Beyond My Battle, and MdDS Foundation.

[@InvisibleDisability]

We are so honored and excited to be a partner in this amazing film project! A big THANK YOU goes out to all of the community members, directors, producers, partners, collaborators and everyone involved!

[@UnfixedCommunity]

We couldn't be more grateful for your support!!

[@UnfixedCommunity]

Every single member of this community inspires me to no end.

[@beautifullybroken9373]

So many emotions right now. To be amongst these warriors telling my story is an honor. All of these people inspire me in so many ways. All so strong and beautiful ❤️

[@snowmanmelting8]

This is so great. Many people have no window into what it means to live with debilitating conditions, especially if the condition is invisible to them.

[@kimberlywarner628]

I've watched this too many times to count and every single time I am moved to tears.

[@beautifullybroken9373]

kimberly warner me too 😭

[@ahmadreshad508]

Truly inspirational. Watching this has shifted my perspective about some of the struggles that I deal with. Thank you!

[@davidmorrill2688]

As a member of this unfixed community, I appreciate all of you! Thank you for your continued commitment to living your life!

[@professorbriannacardenas1182]

This is sooo incredible!

[@danaalainejackson3496]

Beautiful and inspiring!! I totally get what you are saying!! I also have lupus, fibromyalgia, osteoarthritis, osteopenia, seizures and many more diseases. Thank you for sharing! Praying for you all!

[@actionfollows]

This is an incredible, and deeply inspiring project. So wonderful to see such vulnerability in the presence of these people. Can't wait to see where it goes from here!

[@marial3366]

Beautiful and inspiring. Thank you!

[@AdrianaHernandez-zr9gd]

As I lay here on a empty tank of gas and letting the tears fall as my body withers in agony, knowing that its temporary and I'll feel better soon, then drawing strength and inspiration from this clip. Thank you for sharing, thank you for doing this project

[@UnfixedCommunity]

Adriana Hernandez we totally get you. It’s not an easy journey by any stretch of the imagination. We’re glad you’ve found us so maybe you won’t feel so alone in it. Every month we’ll discuss a theme and hopefully you’ll find some solace, inspiration and comfort in the sharing.

[@bingbongcentralhq]

I LOVE this

[@stefaniegrant3313]

This literally made me cry. So many amazing and strong people. Thank you for sharing!

[@katmd405]

So very beautiful, I am so very proud of my daughter. She has been through so very much in her young life and living with this chronic condition is devastating, challenging and inspiring all at the same time. She is beautiful inside and out. She has a beautiful spirit that I can only hope to try to be as good a person as she is. I am so proud of her and I love her with all my heart. I pray the God will heal her and all the others in this film. And give each one grace and peace in this journey. God bless each of you.

[@lacychambers4947]

I am loving this. I have several of the conditions people on here have. It’s so hard but I feel a connection to each person on this video

[@cjankowski5184]

Brian L , I'm sure you are going to fight this like you have since you were 17 years old. I am so proud of you. And you are the strongest man 👨 I know. I am praying for you and all of your new friends who are unfixed .

[@lorimarchetti4425]

I suffer with Acute Cerebellar Ataxia and this was so so helpful. Thank you to Living Unfixed! :)

[@UnfixedCommunity]

We are so glad to know it was helpful for you, Lori!

[@jessicam3543]

This is a wonderful idea..."replacing my fear of death with love for existence", I love this. So many of the descriptions of nerve pain are part of my everyday reality as well. Does having 15 failed surgeries, DDD, PTSD. AA & more count as "unfixed"? Lol. One of the 'good' things I say, that's come from what happened to me, is that I was able to have time to learn more about my country's history. There is so much we aren't taught & so much to learn. I don't want to repeat our past mistakes and try to tell people about it, when I'm not trying to fight for pain care. I also taught myself meditation, out of desperation, and much to my surprise, found it can be helpful. This taught me not to be judgmental about alternative options when someone brings them up. Thank you for doing this and for helping bring attention to the many different patients and diseases in the world.

[@UnfixedCommunity]

Indeed, I'd say you qualify as Unfixed. ;) Sounds like you've also had some silver linings and revelations that have come from doing the hard work of adaptation. I think many would agree that meditation, alternatives and finding ways to stay educated and compassionate through it all are key to still living good lives despite the pain.

[@jessicam3543]

@@UnfixedCommunity After being forced to inadequate amounts of pain meds by Worker's Comp, I've finally learned to realize how blessed my life has been and can accept my upcoming death with less depression and am actually looking forward to learning the answer to one of life's *biggest* questions! I was finally able to settle with Worker's Comp after almost 3 years and am again allowed to get pain meds. Once I'm tapered back up to an adequate dosage, I'll be able to go back to PT, chiro and myofascia release massage therapies and should get another 2.5-3 years of a much improved life...and won't have to spend 20 hrs a day in bed! Yay! After that, the WComp settlement money will be used up and I'll have to go on Medicare which will refuse to pay for the dose I need for my intractable pain and I'll start being forced back all over again. So, instead of that, I'll be choosing either physician assisted death in another country (not US) or will do it myself at home as a "rational suicide". The meditation has helped a lot with the acceptance of realizing not wanting to live in such severe pain that I've been unable to shower or wash my hair in over three years, does not make me a selfish person. Today is a good day, as I finally got my enough of an increase in meds that I'm able to leave the house and to get my hair washed!!! Very excited about this & it will do wonders for my self esteem! Next goal: a shower!😊

[@RAVETOR]

I wish that we could cure all bad diseases on earth!

[@philliplaing7910]

Bethany is my cousin.