Living with Caudal Regression Syndrome (Dating as a Disabled Woman)

Maddie is diagnosed with Caudal Regression syndrome and decided to amputate both of her legs at age ten. She is grateful that her family allowed her to make this medical decision as a child and is still best friends with her mom as an adult. Filmed in February 2020.
Maddie's KZbin Channel: / @mad_tea_party97
Maddie's Insta: / mad_tea_party97
Maddie's FB: / maddiet97
A Foundation Maddie is Involved with: courageousfacesfoundation.org/
SBSK Patreon: / sbsk
SBSK's Socials:
/ specialbooksbyspecialkids
/ chrisulmer
/ specialbooksbyspecialkids
/ sbsk

[@Dranamolous]

6:00 This question and answer alone can teach us so much about how to treat each other. I can’t speak for everyone but I would rather hear a parent answering their child’s questions about why people look different and how that’s ok, rather than the “shh don’t stare!” you hear so often.

[@cshell64]

She's so pretty & has a great personality! I know her heart's desire of having her own family one day will become a reality for her. She's an amazing person, & her mom being a best friend to her is so wonderful! I wish I would have had that with my mom.

[@lawaunagrimes2555]

God Bless you all

[@rachaelplassmeyer2720]

You are extremely beautiful. Your makeup is so on point

[@Emily-ni6dm]

Omg, she's so kind and absolutely gorgeous. God bless her!! :)

[@anthonyohlson2977]

I think she is nice cool If I got chance go out with her i would have no problem with it

[@Sharonc64]

I just watched your video and with it being 2021, I hope you have met the love of your life and have had your own little family. You are such a sweet young lady and you deserve to have your wishes come true.

[@clydewxi]

She had beautiful eyes, thus having a beautiful soul

[@Airfriedfroglegg]

What a stunning person!

[@KBEAMON08]

Maddie! I really appreciate your honesty. I can totally relate.

[@frankiecowsert9364]

Hi Maddie...just watched your video with Chris and looked for your KZbin. You are beautiful inside and out. I hope you are doing well and staying happy.

[@MsViollentia]

She’s beautiful 🥺❤️

[@beyourself4996]

Great this confidence is needed

[@theunknownsource8317]

You're beautiful! You're an inspiration to me!!

[@goosegirl941]

She has such a great attitude 😚

[@marleenninaka1303]

Hi everyone: It's so nice to see you back on KZbin. I want to meet you all one day. Take care and stay safe.

[@MAGNUM05]

Maddie is so beautiful. She really is.

[@Yamamahouse11]

She’s beautiful! Trust me dating is hard for EVERYONE you’re beautiful don’t feel less.

[@ce9916]

She’s beautiful, plus she has an amazing spirit 🔥

[@mban35]

You're so cool. I wish you all the best.

[@shayisenor6896]

Hi Maddie! I hope the dating experience is going well. Dating with a "typical" body is hard so I hope man around you are being open, respectful, and kind. Good luck on your goals of becoming a wife/mother ( if that's what you still want). You are a charming, beautiful, and intelligent woman and any man should be honored you allowed him into your life. Thank you for sharing your feelings with me. I wish you nothing but success in all aspects of your life.

[@sparklebutt1119]

Maddie is gorgeous. ❤️❤️❤️❤️

[@roderickgarcia2778]

I'm got IBD and am disabled and wish I could find her or someone like her

[@mrgermannutt7138]

God bless you 😀

[@nelsonangulo1315]

Maddie is very pretty n has a beautiful personality. She's more of a person then most people

[@noahrodriguez1895]

she's beautiful.

[@KalleVonEi]

Hope shes doing well

[@danieljohnson9943]

Beautiful inside and out that smile though is a billion dollar smile

[@cocotickles9627]

Let me just say how incredibly beautiful you are! Your alabaster skin with your red hair is top notch!💕

[@marianagauss94]

Love your channel. Please go on

[@saintforeign]

I actually also have caudal regression syndrome, the thing is that my left hip is a bit higher up, i will get a surgery in may to make my legs look even, but i can still do normal every day activities, basically i can walk, run, etc.

[@sis4205]

She is very beautiful

[@rcrotorfreak]

Wow. Actually I guess I felt bad. For Zion Clark. Wanted to know more. And seeing the out come how fast he is on his two hands. I wanted to learn more about what happen to him. I found out he have Caudal Regression Syndrome. I did some research one of them took me to this page. I would say same goes to Zion that Maddie is super beautiful. So down to earth. Happy. Maybe there no such thing of 100 happy. But for sure she found her way to work on being happy. No matter what a great community, great family existance and positive thought. Goes a long ways. Maddie keep that beautiful happy soul and nobody is perfect. I was born 6 months. Learning disability. Got left behind. Even my family left behind my mom. But even one or two or dozen count those blessing. :) To be honest. I would be happy to have you. What's the difference? Except newer generation is material wise of everything. Ugh. I want some day have family too. Human isn't as they use to be. But keep up you're smile. Maybe someday you can keep my smile.

[@enjakuro7048]

Hot take: If somebody talks to you like a kid it is ok to swear.

[@csabatlo5943]

Beauty girl

[@tuffterrell]

Hey you'll find someone dude your way too genuine and chill ☺️ your way more normal than half the woman I meet out here in Tucson 🤣🤣☺️ you'll figure it out dude

[@kathyinwonderlandl.a.8934]

Dudette as she’s female and dude is a guy usually

[@gazzarafalemozzy4766]

@@kathyinwonderlandl.a.8934 i hear girls call each other dudes...its just afunny term..

[@TriForceTony]

The Comments are on 😇😭😭 Thank you Lord, this man and hiw wife have the greatest community of fans, I'm so happy we can now communicate ❤♥💜😀

[@lovesanimalshatesrats6339]

She needs to meet Rowdy...

[@e.delano7285]

❤️❤️❤️❤️❤️

[@horizonblack]

She's beautiful. I'm old, but were I her age and single she would catch my eye.

[@OK-pi6fq]

I don’t know if you have any other disabilities, but your legs aren’t much to hold you back, and you seem like you have yourself well put together as a person, so I hope you don’t hold negativity in your brain. There’s nothing wrong with you. You’re young, beautiful, well spoken, and you have a great personality. Most my friends are men, and most of them wouldn’t care about a wheelchair, but wheelchair or none not every man is let’s get married material, and you in a wheelchair doesn’t mean you want to go run off either. I’m just saying I think you will have no problem finding a partner, or friends. This video will help another person in your shoes who feels insecure. Insecure happens to most of us, but having a disability for sure is a mark to focus on in ourselves. Glad it hasn’t held you down.

[@polariscoven]

I have this condition, along with spina bifida. I am 18, and have legs, but my downside to having legs are is that I can't really run, or walk up stairs, as my legs will hurt badly. I'm 4'11, I got a baby face, and I had to have a surgery when I was 16. Same as her, I don't have a tailbone. I just honestly forget I have this, and I hope people treat me like some other person. I know this isn't genetic, and I was born 3 months early which caused me to get this. It's not curable, but that's okay, life is what you make of it, honestly. I'm just happy I found this as there's someone else like me. :) (for anyone who replies, I use he/him they/them pronouns)

[@Seizure-Salad1241]

My brother had this syndrome. But he sadly passed away in 2021 when he was 17.

[@EvaPev]

What a charming woman. I'd love to know her.

[@ortodoxprotestant]

Real love you dont care about so much things like this girl i hope find love in here life a real man who see here and not here disability ..Real love is not about body its about Heart and Soul...

[@Roswell01Area51]

She got beautiful big blue eyes!

[@dakotaneumann1259]

Bruh just a regular 22 year old without legs, and they are pretty relatable in some problems

[@anthonyohlson2977]

I would like chance to meet you would be happy cool The one problem is don’t drive or like to drive.

[@aldogo95]

shes cute tho

[@vjprasad9]

You are so beautifull

[@user-zc6mf8pb4n]

I think some questions are quite offensive when you speak out. Try to understand what the girl feels.

[@mad_tea_party97]

I appreciate the concern! But I was never offended or uncomfortable with the questions Chris was asking. He’s super easy to talk to and made sure I was okay to talk about certain subjects before the interview even started. I told him I’m very open and will answer any questions!